Re: Re: First MRI

[Guest guest]

if i were you i would insist on the head MRI because my sons only presenting problem was the scoli and they found a chiari malformation they would not have found w/o the head MRI. Insist on it!!!

melissa

Subject: Re: First MRITo: infantile_scoliosis Date: Monday, August 3, 2009, 9:12 AM

I did talk to the doctor about that and he seemed to think that in cases like Cole's where the only presenting problem was the scoliosis and everything else was completely normal he didn't find that the head MRI was necessary. I guess I don't understand why we wouldn't just do both but he seems pretty convinced that it is unnecessary. I will mention it again when we see him on Friday which is a few days before the MRI.Jenn Mommy to Cole, 19 months, 1st cast from rochester, 17 degrees down from 46, waiting 2nd casting on August 7th, 1st MRI August 12th> > > From: genericallyloud <jennifer.leggett@ ...>> Subject: [infantile_scoliosi s] First MRI> To: infantile_scoliosis @yahoogroups. com> Date: Sunday, August 2, 2009, 4:47 PM> > > > > My son Cole has his 1st MRI scheduled for a week from wed. I was wondering what to expect. How long does it take to get the actual MRI done. Are the kids actually under anesthesia or are they just sedated? My husband and I have heard numerous things and just want to have an idea of what we should expect. > > Thanks, > Jenn> Mommy to Cole, 19 months, 1st cast from rochester, 17 degrees down from 46, waiting 2nd casting on august 7th> > > > > > > > > > > ____________ _________ _________ _________ _________ _________ _> Get back to school stuff for

them and cashback for you.> http://www.bing. com/cashback? form=MSHYCB & publ=WLHMTAG & crea=TEXT_ MSHYCB_BackToSch ool_Cashback_ BTSCashback_ 1x1>

[Guest guest]

Jenn,

Arent you SO glad its over?? I am very happy you got to get both head and spine done at the same time. Its really very important. Our son would not have been dx with chiari I malformation without the head being done as well as the spine.

Im sure your results will come back totally normal. Did they say when you will get them?

Subject: Re: First MRITo: infantile_scoliosis Date: Wednesday, August 12, 2009, 5:46 PM

We got our MRI today things went pretty good. They did the brain and spine. Cole did completely freak out when he going into his room to change into his gown. We ended up needing to give him son Versed to relax him so it wouldn't be too stressful for him. I had warned the hospital that may be a problem after I took Cole to my doctors the other day and he got very anxious when he saw the exam table. Overall the MRI went smoothly and now we are just waiting for the results. Does anyone else's child experience that level of extreme anxiety with the hospital now? What do you do?Thanks,Jenn Mommy to Cole, 19 months, 2nd cast from Rochester, 23 degrees down from 47> > > > > > From: genericallyloud <jennifer.leggett@ gmail.com>> > Subject: [infantile_scoliosi s]

First MRI> > To: infantile_scoliosis @yahoogroups. com> > Date: Sunday, August 2, 2009, 4:47 PM> > > > > > > > > > My son Cole has his 1st MRI scheduled for a week from wed. I was wondering what to expect. How long does it take to get the actual MRI done. Are the kids actually under anesthesia or are they just sedated? My husband and I have heard numerous things and just want to have an idea of what we should expect. > > > > Thanks, > > Jenn> > Mommy to Cole, 19 months, 1st cast from rochester, 17 degrees down from 46, waiting 2nd casting on august 7th> > > > > > > > > > > > > > > > Get back to school stuff for them and cashback for you. Try BingT now.> >>

[Guest guest]

Hi Jenn... YES always. Hayden is going to be 3 in November and he still gets extremely anxious at Hospitals and Drs. Actually regular Dr's offices he is doing better, but anytime we go to ish Rite or Children's, he knows and he freaks out. Especially when they put that gown on him. I have been letting him play with Dr kits and doing exams on himself, me, my daughter, the dog etc. This seemed to help with his Dr office anxiety but anytime he has to have a procedure (MRI, Surgery, blood drawn etc) He pretty much FREAKS out. Now that he is a little older I try to reason with him and talk him down, but the only thing I can say is lots and lots of hugs and love which I am sure you do. And maybe some VERSED for you as well. LOL. Good luck with the MRI results. Let us know asap.

Joanmom to Hayden 2 1/246 degreesTreated at ish Rite Hospital Dallas, TX

To: infantile_scoliosis Sent: Wednesday, August 12, 2009 5:46:19 PMSubject: Re: First MRI

We got our MRI today things went pretty good. They did the brain and spine. Cole did completely freak out when he going into his room to change into his gown. We ended up needing to give him son Versed to relax him so it wouldn't be too stressful for him. I had warned the hospital that may be a problem after I took Cole to my doctors the other day and he got very anxious when he saw the exam table. Overall the MRI went smoothly and now we are just waiting for the results. Does anyone else's child experience that level of extreme anxiety with the hospital now? What do you do?Thanks,Jenn Mommy to Cole, 19 months, 2nd cast from Rochester, 23 degrees down from 47> > > > > > From: genericallyloud <jennifer.leggett@ gmail.com>> > Subject: [infantile_scoliosi s] First MRI> > To: infantile_scoliosis

@yahoogroups. com> > Date: Sunday, August 2, 2009, 4:47 PM> > > > > > > > > > My son Cole has his 1st MRI scheduled for a week from wed. I was wondering what to expect. How long does it take to get the actual MRI done. Are the kids actually under anesthesia or are they just sedated? My husband and I have heard numerous things and just want to have an idea of what we should expect.. > > > > Thanks, > > Jenn> > Mommy to Cole, 19 months, 1st cast from rochester, 17 degrees down from 46, waiting 2nd casting on august 7th> > > > > > > > > > > > > > > > Get back to school stuff for them and cashback for you. Try BingT now.> >>

[Guest guest]

Joan,

The doctor kit is a GREAT idea!! I will have to get one for Isaiah when he gets a little older so maybe that will help to calm his fears. Thanks for the great tip!

Subject: Re: Re: First MRITo: infantile_scoliosis Date: Wednesday, August 12, 2009, 6:11 PM

Hi Jenn... YES always. Hayden is going to be 3 in November and he still gets extremely anxious at Hospitals and Drs. Actually regular Dr's offices he is doing better, but anytime we go to ish Rite or Children's, he knows and he freaks out. Especially when they put that gown on him. I have been letting him play with Dr kits and doing exams on himself, me, my daughter, the dog etc. This seemed to help with his Dr office anxiety but anytime he has to have a procedure (MRI, Surgery, blood drawn etc) He pretty much FREAKS out. Now that he is a little older I try to reason with him and talk him down, but the only thing I can say is lots and lots of hugs and love which I am sure you do. And maybe some VERSED for you as well. LOL. Good luck with the MRI results. Let us know asap.

Joanmom to Hayden 2 1/246 degreesTreated at ish Rite Hospital Dallas, TX

From: genericallyloud <jennifer.leggett@ gmail.com>To: infantile_scoliosis @yahoogroups. comSent: Wednesday, August 12, 2009 5:46:19 PMSubject: [infantile_scoliosi s] Re: First MRI

We got our MRI today things went pretty good. They did the brain and spine. Cole did completely freak out when he going into his room to change into his gown. We ended up needing to give him son Versed to relax him so it wouldn't be too stressful for him. I had warned the hospital that may be a problem after I took Cole to my doctors the other day and he got very anxious when he saw the exam table. Overall the MRI went smoothly and now we are just waiting for the results. Does anyone else's child experience that level of extreme anxiety with the hospital now? What do you do?Thanks,Jenn Mommy to Cole, 19 months, 2nd cast from Rochester, 23 degrees down from 47> > > > > > From: genericallyloud <jennifer.leggett@

gmail.com>> > Subject: [infantile_scoliosi s] First MRI> > To: infantile_scoliosis @yahoogroups. com> > Date: Sunday, August 2, 2009, 4:47 PM> > > > > > > > > > My son Cole has his 1st MRI scheduled for a week from wed. I was wondering what to expect. How long does it take to get the actual MRI done. Are the kids actually under anesthesia or are they just sedated? My husband and I have heard numerous things and just want to have an idea of what we should expect.. > > > > Thanks, > > Jenn> > Mommy to Cole, 19 months, 1st cast from rochester, 17 degrees down from 46, waiting 2nd casting on august 7th> > > > > > > > > > > > > > > > Get back to school stuff for them and cashback for you. Try BingT now.>

>>

[Guest guest]

It was my daughters kit because she used to get anxiety really bad as well so we just passed it along to Hayden and it seemed to have helped with regular dr visits. Thanks Joanmom to Hayden 2 1/246 degreesTreated at ish Rite Hospital Dallas, TX

To: infantile_scoliosis Sent: Wednesday, August 12, 2009 6:20:06 PMSubject: Re: Re: First MRI

Joan,

The doctor kit is a GREAT idea!! I will have to get one for Isaiah when he gets a little older so maybe that will help to calm his fears. Thanks for the great tip!

From: Joan Vallee <hayro1611yahoo (DOT) com>Subject: Re: [infantile_scoliosi s] Re: First MRITo: infantile_scoliosis @yahoogroups. comDate: Wednesday, August 12, 2009, 6:11 PM

Hi Jenn... YES always. Hayden is going to be 3 in November and he still gets extremely anxious at Hospitals and Drs. Actually regular Dr's offices he is doing better, but anytime we go to ish Rite or Children's, he knows and he freaks out. Especially when they put that gown on him. I have been letting him play with Dr kits and doing exams on himself, me, my daughter, the dog etc. This seemed to help with his Dr office anxiety but anytime he has to have a procedure (MRI, Surgery, blood drawn etc) He pretty much FREAKS out. Now that he is a little older I try to reason with him and talk him down, but the only thing I can say is lots and lots of hugs and love which I am sure you do. And maybe some VERSED for you as well. LOL. Good luck with the MRI results. Let us know asap.

Joanmom to Hayden 2 1/246 degreesTreated at ish Rite Hospital Dallas, TX

From: genericallyloud <jennifer.leggett@ gmail.com>To: infantile_scoliosis @yahoogroups. comSent: Wednesday, August 12, 2009 5:46:19 PMSubject: [infantile_scoliosi s] Re: First MRI

We got our MRI today things went pretty good. They did the brain and spine. Cole did completely freak out when he going into his room to change into his gown. We ended up needing to give him son Versed to relax him so it wouldn't be too stressful for him. I had warned the hospital that may be a problem after I took Cole to my doctors the other day and he got very anxious when he saw the exam table. Overall the MRI went smoothly and now we are just waiting for the results. Does anyone else's child experience that level of extreme anxiety with the hospital now? What do you do?Thanks,Jenn Mommy to Cole, 19 months, 2nd cast from Rochester, 23 degrees down from 47> > > > > > From: genericallyloud <jennifer.leggett@ gmail.com>> > Subject: [infantile_scoliosi s] First MRI> > To: infantile_scoliosis @yahoogroups.

com> > Date: Sunday, August 2, 2009, 4:47 PM> > > > > > > > > > My son Cole has his 1st MRI scheduled for a week from wed. I was wondering what to expect. How long does it take to get the actual MRI done. Are the kids actually under anesthesia or are they just sedated? My husband and I have heard numerous things and just want to have an idea of what we should expect.. > > > > Thanks, > > Jenn> > Mommy to Cole, 19 months, 1st cast from rochester, 17 degrees down from 46, waiting 2nd casting on august 7th> > > > > > > > > > > > > > > > Get back to school stuff for them and cashback for you. Try BingT now.> >>

[Guest guest]

Im lovin that he practices on the dog. Maybe he should check the dogs spine to make sure its straight! LOL

From: Joan Vallee <hayro1611yahoo (DOT) com>Subject: Re: [infantile_scoliosi s] Re: First MRITo: infantile_scoliosis @yahoogroups. comDate: Wednesday, August 12, 2009, 6:11 PM

Hi Jenn... YES always. Hayden is going to be 3 in November and he still gets extremely anxious at Hospitals and Drs. Actually regular Dr's offices he is doing better, but anytime we go to ish Rite or Children's, he knows and he freaks out. Especially when they put that gown on him. I have been letting him play with Dr kits and doing exams on himself, me, my daughter, the dog etc. This seemed to help with his Dr office anxiety but anytime he has to have a procedure (MRI, Surgery, blood drawn etc) He pretty much FREAKS out. Now that he is a little older I try to reason with him and talk him down, but the only thing I can say is lots and lots of hugs and love which I am sure you do. And maybe some VERSED for you as well. LOL. Good luck with the MRI results. Let us know asap.

Joanmom to Hayden 2 1/246 degreesTreated at ish Rite Hospital Dallas, TX

From: genericallyloud <jennifer.leggett@ gmail.com>To: infantile_scoliosis @yahoogroups. comSent: Wednesday, August 12, 2009 5:46:19 PMSubject: [infantile_scoliosi s] Re: First MRI

We got our MRI today things went pretty good. They did the brain and spine. Cole did completely freak out when he going into his room to change into his gown. We ended up needing to give him son Versed to relax him so it wouldn't be too stressful for him. I had warned the hospital that may be a problem after I took Cole to my doctors the other day and he got very anxious when he saw the exam table. Overall the MRI went smoothly and now we are just waiting for the results. Does anyone else's child experience that level of extreme anxiety with the hospital now? What do you do?Thanks,Jenn Mommy to Cole, 19 months, 2nd cast from Rochester, 23 degrees down from 47> > > > > > From: genericallyloud <jennifer.leggett@ gmail.com>> > Subject: [infantile_scoliosi s] First MRI> > To: infantile_scoliosis @yahoogroups.

com> > Date: Sunday, August 2, 2009, 4:47 PM> > > > > > > > > > My son Cole has his 1st MRI scheduled for a week from wed. I was wondering what to expect. How long does it take to get the actual MRI done. Are the kids actually under anesthesia or are they just sedated? My husband and I have heard numerous things and just want to have an idea of what we should expect.. > > > > Thanks, > > Jenn> > Mommy to Cole, 19 months, 1st cast from rochester, 17 degrees down from 46, waiting 2nd casting on august 7th> > > > > > > > > > > > > > > > Get back to school stuff for them and cashback for you. Try BingT now.>

>>

[Guest guest]

Hang in there and I hope the results are all positive.

PS are you the mom writing the book? Sorry...I'm very behind on the posts....if so I would love a copy and would love to read the rough cut. You can send it to:

kristam@...

Thank you!!~KristaJack's Mom, Jack is 24 months old, in his 1st braceJack started casting at 41 degrees and is now measuring 0 in his brace!!! Receiving care from Shriners Hospital in Salt Lake City, Utah

Subject: Re: First MRITo: infantile_scoliosis Date: Wednesday, August 12, 2009, 10:46 PM

We got our MRI today things went pretty good. They did the brain and spine. Cole did completely freak out when he going into his room to change into his gown. We ended up needing to give him son Versed to relax him so it wouldn't be too stressful for him. I had warned the hospital that may be a problem after I took Cole to my doctors the other day and he got very anxious when he saw the exam table. Overall the MRI went smoothly and now we are just waiting for the results. Does anyone else's child experience that level of extreme anxiety with the hospital now? What do you do?Thanks,Jenn Mommy to Cole, 19 months, 2nd cast from Rochester, 23 degrees down from 47> > > > > > From: genericallyloud <jennifer.leggett@ gmail.com>> > Subject: [infantile_scoliosi s]

First MRI> > To: infantile_scoliosis @yahoogroups. com> > Date: Sunday, August 2, 2009, 4:47 PM> > > > > > > > > > My son Cole has his 1st MRI scheduled for a week from wed. I was wondering what to expect. How long does it take to get the actual MRI done. Are the kids actually under anesthesia or are they just sedated? My husband and I have heard numerous things and just want to have an idea of what we should expect. > > > > Thanks, > > Jenn> > Mommy to Cole, 19 months, 1st cast from rochester, 17 degrees down from 46, waiting 2nd casting on august 7th> > > > > > > > > > > > > > > > Get back to school stuff for them and cashback for you. Try BingT now.> >>

[Guest guest]

Hi Jenn,

Wishing you good luck on those results! Noelle was very stressed, but at Rochester the child care specialist was very helpful and gave Noelle some toys to play with and put cartoons on for her. I always carry her in my arms to the OR and they put her to sleep as I hold her. I bring her favorite lovey and we take that right into the OR, too, and I just bring it with me when I leave. If it's really bad, they can still administer the VERSED, but this has really helped Noelle and it has gotten easier and easier every time we go.- Noelle's mommy, 2 1/2 years old and in 7th cast from Rochester NY, reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

Subject: Re: First MRITo: infantile_scoliosis Date: Wednesday, August 12, 2009, 10:46 PM

We got our MRI today things went pretty good. They did the brain and spine. Cole did completely freak out when he going into his room to change into his gown. We ended up needing to give him son Versed to relax him so it wouldn't be too stressful for him. I had warned the hospital that may be a problem after I took Cole to my doctors the other day and he got very anxious when he saw the exam table. Overall the MRI went smoothly and now we are just waiting for the results. Does anyone else's child experience that level of extreme anxiety with the hospital now? What do you do?Thanks,Jenn Mommy to Cole, 19 months, 2nd cast from Rochester, 23 degrees down from 47> > > > > > From: genericallyloud <jennifer.leggett@ gmail.com>> > Subject: [infantile_scoliosi s]

First MRI> > To: infantile_scoliosis @yahoogroups. com> > Date: Sunday, August 2, 2009, 4:47 PM> > > > > > > > > > My son Cole has his 1st MRI scheduled for a week from wed. I was wondering what to expect. How long does it take to get the actual MRI done. Are the kids actually under anesthesia or are they just sedated? My husband and I have heard numerous things and just want to have an idea of what we should expect. > > > > Thanks, > > Jenn> > Mommy to Cole, 19 months, 1st cast from rochester, 17 degrees down from 46, waiting 2nd casting on august 7th> > > > > > > > > > > > > > > > Get back to school stuff for them and cashback for you. Try BingT now.> >>

[Guest guest]

Jenn,

I feel your pain, waiting is the worst, especailly when it's something so important! Not fair.Heidi, Bexon's Mama, (2 years old, in 3rd cast from Salt Lake City Shriners, currently down from 61 degrees to 25)

From: genericallyloud <jennifer.leggett@ gmail.com>Subject: [infantile_scoliosi s] Re: First MRITo: infantile_scoliosis @yahoogroups. comDate: Friday, August 14, 2009, 4:30 PM

I guess I should have clarified I called the ortho he is not in either is his secretary and i called the ped and they said we will call you back and nothing! Then I called back and no one is there! I think sometimes they forget the anxiety waiting for these results puts on a family. JennMommy to Cole, 19 months 2nd cast from rochester> > > > > > > > > > > > From: genericallyloud <jennifer.leggett@ gmail.com>> > > > Subject: [infantile_scoliosi s] First MRI> > > > To: infantile_scoliosis @yahoogroups. com> > > > Date: Sunday, August 2, 2009, 4:47 PM> > > > > > > > > > > > > > > > > > > > My son Cole has his 1st MRI scheduled for a

week from wed. I was wondering what to expect. How long does it take to get the actual MRI done. Are the kids actually under anesthesia or are they just sedated? My husband and I have heard numerous things and just want to have an idea of what we should expect. > > > > > > > > Thanks, > > > > Jenn> > > > Mommy to Cole, 19 months, 1st cast from rochester, 17 degrees down from 46, waiting 2nd casting on august 7th> > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Get back to school stuff for them and cashback for you. Try BingT now.> > > >> > >> >>