Guest guest Posted July 28, 2009 Report Share Posted July 28, 2009 Tasha, Thats so great. Im glad your doing all you can to get the word out to everyone you can think of. Your AWESOME!!! > > Hi everyone, > I am crying right now because I am so touched and happy!!!! > I post on Facebook very often about Infantile Scoliosis, share 's story link,ISOP's link, put little hints out there, etc. > Tonight I posted a link about ISOP with a plea for donations. > No one, but Stephaine--Matson's mom, made a comment about it. Thanks Stephaine! BUT I wanted moms that did not have a child with scoli to say something. I had just been complaing to my husband on Friday when my status was about Infantile Scoliosis, that no one ever says anything about it. Oh sure everyone can comment and send around a stupid wedding entrance video, but when it comes to something serious like babies having scoliosis....FORGET IT!!!! > Well I just got back on FB and a friend had posted a link with 's story. I can not tell you how good it made me feel. I am still crying because maybe people are finally listening. I am SO happy!!!! > She has now posted it to her profile and she has tons of friends on FB. Friends all over the world because her son has Angleman Syndrome. I am thinking of all the moms that will see the link!!!! > Anyway I just had to share my JOY this evening. This could not have come at a better time.....I was feeling pretty bummed out about no one listening!!!!! > Thanks for letting me share! > Tasha > Mommy of 4 year old twin boys- and > Fort Worth, Texas > Series of 6 casts for 14 months and now in a night brace. > is treated at Texas ish Rite Hospital. > You can read 's story at.... > http://www.infantilescoliosis.org/stories.html > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2009 Report Share Posted July 28, 2009 Hey TashaI know how you feel, most of my friends when I discuss it always jump to "But he's gonna be fine, right?". I nod, dutifully, but it always pisses me off because it's such a fake level of concern. When a threw the fundraiser for ISOP, my jaw almost dropped because we didn't even know her that well. We'd known her for years, but never had even a dinner with her and suddenly she was ready to jump in instead of jumping to. None of our close friends did anything close to what she did. My point is, you never know who the person is that is going to be touched by P.I.S, so we just have to keep exposing people to it. I do believe we are at a "tipping point" and in a couple years most US pediatricians will know what to do and the treatment will be standardized. Heidi, Bexon's Mama, (2 years old, in 3rd cast from Salt Lake City Shriners, currently down from 61 degrees to 25)Subject: Had to share!To: infantile_scoliosis Date: Monday, July 27, 2009, 7:40 PM Hi everyone,I am crying right now because I am so touched and happy!!!! I post on Facebook very often about Infantile Scoliosis, share 's story link,ISOP's link, put little hints out there, etc.Tonight I posted a link about ISOP with a plea for donations. No one, but Stephaine--Matson' s mom, made a comment about it. Thanks Stephaine! BUT I wanted moms that did not have a child with scoli to say something. I had just been complaing to my husband on Friday when my status was about Infantile Scoliosis, that no one ever says anything about it. Oh sure everyone can comment and send around a stupid wedding entrance video, but when it comes to something serious like babies having scoliosis... .FORGET IT!!!!Well I just got back on FB and a friend had posted a link with 's story. I can not tell you how good it made me feel. I am still crying because maybe people are finally listening. I am SO happy!!!! She has now posted it to her profile and she has tons of friends on FB. Friends all over the world because her son has Angleman Syndrome. I am thinking of all the moms that will see the link!!!!Anyway I just had to share my JOY this evening. This could not have come at a better time.....I was feeling pretty bummed out about no one listening!!! !!Thanks for letting me share!TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2009 Report Share Posted July 28, 2009 YAY!!!!! Tasha, that makes me very happy!!!Heidi, Bexon's Mama, (2 years old, in 3rd cast from Salt Lake City Shriners, currently down from 61 degrees to 25) Subject: Had to share!To: infantile_scoliosis Date: Monday, July 27, 2009, 7:40 PM Hi everyone,I am crying right now because I am so touched and happy!!!! I post on Facebook very often about Infantile Scoliosis, share 's story link,ISOP's link, put little hints out there, etc.Tonight I posted a link about ISOP with a plea for donations. No one, but Stephaine--Matson' s mom, made a comment about it. Thanks Stephaine! BUT I wanted moms that did not have a child with scoli to say something. I had just been complaing to my husband on Friday when my status was about Infantile Scoliosis, that no one ever says anything about it. Oh sure everyone can comment and send around a stupid wedding entrance video, but when it comes to something serious like babies having scoliosis... .FORGET IT!!!!Well I just got back on FB and a friend had posted a link with 's story. I can not tell you how good it made me feel. I am still crying because maybe people are finally listening. I am SO happy!!!! She has now posted it to her profile and she has tons of friends on FB. Friends all over the world because her son has Angleman Syndrome. I am thinking of all the moms that will see the link!!!!Anyway I just had to share my JOY this evening. This could not have come at a better time.....I was feeling pretty bummed out about no one listening!!! !!Thanks for letting me share!TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 28, 2009 Report Share Posted July 28, 2009 Some of my family members take it lightly as well. They say the same thing, "he will be fine, it's not lifethreatening". But they don't know how hard it is to see your child go through all of this, even though they can fix it, it is a long road and it is hard on the whole family.. Joan, Hayden's mom To: infantile_scoliosis Sent: Monday, July 27, 2009 9:51:02 PMSubject: Re: Had to share! Hey Tasha I know how you feel, most of my friends when I discuss it always jump to "But he's gonna be fine, right?". I nod, dutifully, but it always pisses me off because it's such a fake level of concern. When a threw the fundraiser for ISOP, my jaw almost dropped because we didn't even know her that well.. We'd known her for years, but never had even a dinner with her and suddenly she was ready to jump in instead of jumping to. None of our close friends did anything close to what she did. My point is, you never know who the person is that is going to be touched by P.I.S, so we just have to keep exposing people to it. I do believe we are at a "tipping point" and in a couple years most US pediatricians will know what to do and the treatment will be standardized. Heidi, Bexon's Mama, (2 years old, in 3rd cast from Salt Lake City Shriners, currently down from 61 degrees to 25) From: Tasha Fontenot <ryanswalkyahoo (DOT) com>Subject: [infantile_scoliosi s] Had to share!To: infantile_scoliosis @yahoogroups. comDate: Monday, July 27, 2009, 7:40 PM Hi everyone,I am crying right now because I am so touched and happy!!!! I post on Facebook very often about Infantile Scoliosis, share 's story link,ISOP's link, put little hints out there, etc.Tonight I posted a link about ISOP with a plea for donations. No one, but Stephaine--Matson' s mom, made a comment about it. Thanks Stephaine! BUT I wanted moms that did not have a child with scoli to say something. I had just been complaing to my husband on Friday when my status was about Infantile Scoliosis, that no one ever says anything about it. Oh sure everyone can comment and send around a stupid wedding entrance video, but when it comes to something serious like babies having scoliosis... .FORGET IT!!!!Well I just got back on FB and a friend had posted a link with 's story. I can not tell you how good it made me feel. I am still crying because maybe people are finally listening. I am SO happy!!!! She has now posted it to her profile and she has tons of friends on FB. Friends all over the world because her son has Angleman Syndrome. I am thinking of all the moms that will see the link!!!!Anyway I just had to share my JOY this evening. This could not have come at a better time.....I was feeling pretty bummed out about no one listening!!! !!Thanks for letting me share!TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html Quote Link to comment Share on other sites More sharing options...
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