Guest guest Posted December 9, 2004 Report Share Posted December 9, 2004 That's why I sleep on a waterbed LOL Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2004 Report Share Posted December 10, 2004 > .... never EVER give up a good reason to get a new bed! (LOL) I was thinking of buying a soft foam mattress to put on top of the bed. > > And, unfortunately, age can be part of the problem (I'm 43) > > Is that all? I'm 58. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 16, 2009 Report Share Posted July 16, 2009 Hi , He actually is a properly trained doctor and has been doing the casting for many years, just typically on children just a little bit bigger than my Destiny. The table they have is the correct one used for casting, but is not made for children her size. They are in the process of having a smaller table built, but its not ready yet. He considered sending us to Chicago where they have a smaller table, but felt he could still do it. I'm honestly at a loss, because we are really not able to travel to far, so I feel like we don't have many options. I'm about sick with worry and its having a bad affect on my health. Casting just seems like a horrible horrible thing to do to a child, but none of the other options seem any better. Do other parents have these feelings too? It just doesn't feel right to me, but I keep telling myself that it has to be better than putting her through all those surgeries. I think what worries me the most is she won't be my normal happy carefree little girl anymore...like it will change her somehow. When she was in the brace, it was literally like she was depressed. She cried and just sat around wanting to be held all the time. She would barely get up to walk or play or do anything. I don't want her to go back to that again. She's been without a brace for several months now and she's been so happy. I know she has to have help, but I hate doing that to her again. I'm very glad I found this group because its the only place I feel like I can really open up about how I feel. Thanks for any and all advice. Kim Find me online! www.myspace.com/kim221998 www.twitter.com/kim221998 From: <kim221998yahoo (DOT) com>Subject: [infantile_scoliosi s] New HereTo: infantile_scoliosis @yahoogroups. comDate: Wednesday, July 15, 2009, 7:00 PM Hey everyone...I' m Kim...mom to 2 1/2 year old Destiny. She was diagnosed with infantile scoliosis shortly after her first birthday. They put her in a brace for a while to slow down the curving, but it didn't help much. Her last regular appointment she measured at 72 degrees. They were going to do the growing rod surgery on her but because she had problems with bumps on her eyes, they cancelled in. During the time waiting for her eyes to be fixed, she has not been in a brace as they did not prescribe a new one since she was scheduled for surgery, but it ended up taking several months to get anything done. Then one day I ran into her doctor(I work at the hospital) and he said he had sent her films to a doctor's conference a friend of his was attending and they all recommended casting. So we were referred to Children's Hospital in New Orleans(we live in Pensacola, FL). The doctor there believes her to be a great candidate for casting, but says the casting table they have is to big for her, but he wants to attempt it anyway and just make adustments. So that's where we are now. Tomorrow she is scheduled for her first cast and I'm scared to death. I keep doubting that we made the right choice, but reading some of the stuff I've found online the past few days has been encouraging that maybe it is the right choice. I guess I've come here looking for some support, because this is all really stressing me out. Can't wait to get to know some of you and hear some of your experiences. Kim Find me online! www.myspace. com/kim221998 www.twitter. com/kim221998 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2009 Report Share Posted July 17, 2009 Tasha,I am brand new to this group...do you know where I can find a list of all the Meta trained doctors/locations. Thank you., Tacoma WA mom to Zachary, 27 months---27 degree, seeing peds ortho specialist for first time tomorrow (YEAH!!!!!)To: infantile_scoliosis Sent: Thursday, July 16, 2009 4:42:02 AMSubject: Re: New Here Hi Kim,Welcome to the group......everyone has given you great advice. I have not read all the posts, but wanted to make sure you did read an article published by Dr. Mehta 2005. Maybe it will give a better understanding of her techniques. You can find it in the FILES section here on the group. It will be the very first one.***Growth as a Corrective Force in the Early Treatment of Progressive Infantile Scoliosis***Long name, but a MUST read when treating your child for Infantile Scoliosis. And this may even be something you want to print out for the doctor. If he is indeed Mehta trained he will very familiar with this article.I think I do remember reading in a post that you could not travel for treatment. It is a far drive, but wanted to tell you that Texas ish Rite Hospital in Dallas does casting. There are 2 doctors there that are trained and they have the correct frame. This where my son has gone since 2006.And I just wanted to say I am a mom of a child that went to a doctor that was NOT trained and had the big table for casting. If I had known all I do today we would have traveled the world to find a Mehta trained doctor. Fortunately my son, , had great results, BUT I know if his doctor had been trained at the time the outcome would be so different right now......today!Please feel free to call or email me privately if you would like to talk. We all know how overwhelming this in the beginning. It is awful, but we have all been there. We are here for you.....ask any and all questions that come to mind. We will all do our best to answer with the experiences we have had with our own children.TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html From: <kim221998yahoo (DOT) com>Subject: [infantile_scoliosi s] New HereTo: infantile_scoliosis @yahoogroups. comDate: Wednesday, July 15, 2009, 7:00 PM Hey everyone...I' m Kim...mom to 2 1/2 year old Destiny. She was diagnosed with infantile scoliosis shortly after her first birthday. They put her in a brace for a while to slow down the curving, but it didn't help much. Her last regular appointment she measured at 72 degrees. They were going to do the growing rod surgery on her but because she had problems with bumps on her eyes, they cancelled in. During the time waiting for her eyes to be fixed, she has not been in a brace as they did not prescribe a new one since she was scheduled for surgery, but it ended up taking several months to get anything done. Then one day I ran into her doctor(I work at the hospital) and he said he had sent her films to a doctor's conference a friend of his was attending and they all recommended casting. So we were referred to Children's Hospital in New Orleans(we live in Pensacola, FL). The doctor there believes her to be a great candidate for casting, but says the casting table they have is to big for her, but he wants to attempt it anyway and just make adustments. So that's where we are now. Tomorrow she is scheduled for her first cast and I'm scared to death. I keep doubting that we made the right choice, but reading some of the stuff I've found online the past few days has been encouraging that maybe it is the right choice. I guess I've come here looking for some support, because this is all really stressing me out. Can't wait to get to know some of you and hear some of your experiences. Kim Find me online! www.myspace. com/kim221998 www.twitter. com/kim221998 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2009 Report Share Posted July 17, 2009 Welcome , You can find that info by going to the Database on the ISOP web site. Let me know if you have trouble finding it, I may be able to walk you through it. ~KristaJack's Mom, Jack is 23 months old, in his 1st brace from Shriners Hospital in Salt Lake City, Utah From: <kim221998yahoo (DOT) com>Subject: [infantile_scoliosi s] New HereTo: infantile_scoliosis @yahoogroups. comDate: Wednesday, July 15, 2009, 7:00 PM Hey everyone...I' m Kim...mom to 2 1/2 year old Destiny. She was diagnosed with infantile scoliosis shortly after her first birthday. They put her in a brace for a while to slow down the curving, but it didn't help much. Her last regular appointment she measured at 72 degrees. They were going to do the growing rod surgery on her but because she had problems with bumps on her eyes, they cancelled in. During the time waiting for her eyes to be fixed, she has not been in a brace as they did not prescribe a new one since she was scheduled for surgery, but it ended up taking several months to get anything done. Then one day I ran into her doctor(I work at the hospital) and he said he had sent her films to a doctor's conference a friend of his was attending and they all recommended casting. So we were referred to Children's Hospital in New Orleans(we live in Pensacola, FL). The doctor there believes her to be a great candidate for casting, but says the casting table they have is to big for her, but he wants to attempt it anyway and just make adustments. So that's where we are now. Tomorrow she is scheduled for her first cast and I'm scared to death. I keep doubting that we made the right choice, but reading some of the stuff I've found online the past few days has been encouraging that maybe it is the right choice. I guess I've come here looking for some support, because this is all really stressing me out. Can't wait to get to know some of you and hear some of your experiences. Kim Find me online! www.myspace. com/kim221998 www.twitter. com/kim221998 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2009 Report Share Posted July 17, 2009 Hi Steve, Glad to hear that Madison is adjusting well to her new life in a cast. As for bathing, my daughter is a year younger so it's a little easier for me to do this, but this is what I do. I lay her on our kitchen counter with her head over the sink. I put a big big, the one with arms on it, on her backwards and then another bib on her the usual way. This way the cast is protected both in the front and back. After her hair I just basically sponge bathe her like I did when she was a newborn. I use Huggies sensitive hypoallergenic soap and just do one part at a time soaping it up then take another wet washcloth t rinse and then towel dry, moving from one leg to the other and one arm to the next. Because I don't want to risk getting water on her cast or soaking her shirt under it I use a baby wipe to clean her armpits and neck. It seems to work for us, but maybe other with older children do things a bit differently and hopefully they'll chime in too. Hope this helps. (mother to - 13 months old - in 2nd cast fr SLC) Subject: New HereTo: infantile_scoliosis Date: Friday, July 17, 2009, 1:44 AM Hi,I am new here, my 2 year old daughter Madison just had her first cast put on yesterday. She was at about 35 degrees before cast and then 15 degrees in the cast. She seems to be doing pretty well with the cast so far. She gets frustrated because she can't move as well as before but I'm sure she will get the hang of her new limitations soon.Does anyone have any bathing tips? or products that can make things easier.Thanks,Steve Quote Link to comment Share on other sites More sharing options...
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