Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 Kassi, Abby is started at 150mg for this week then she will take 150mg in the morning and then 150mg at night. She will eventually be worked up to 300mg in the morning and 300mg at night. Her neuro said that she will switch her after a couple of weeks if Abby is still to tired on it. Pennie Abby's Mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 Pennie sad to hear you little girl is to have of epilepsy, did they even to suggest the Ktogentic diet for her it is of specific oils added to her food to help reduce seizures and or the new surgically implanted device to be called something like VTE or something of this where it is of magnetic field that first signal one sees that she is beginning of a seizure you rub the magnet over the areas of the implant it and pulls or sucks the electrical field away from brain which triggers seizures, some who were having multiple seizures daily testify that they rarely have seizures now from this therapeutic measure. So some options to look at. I to know of several children who do the oil and the parents say it has reduced and decreased the intensity, and I to know a young adult male who had device placed in but moved to different job so not sure if it to helped of him but did see the video at the MRDD areas and it had the testimonials. Sondra Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2004 Report Share Posted January 21, 2004 Sorry to learn of the seizures. We've got to get you to the biomedical conference somehow...I think Sondra may on to something and you might lurk on the GFCFkids list or the Enzymesandautism list. Some people are reporting a great reduction in seizing on the GFCF diet or enzymes. Let me know if I can help if you want to try one or the other. PennY > Yesterday we got Abby's EEG results back, She had several seizure spikes > during the 24 hour test. Her neuro diagnosed her with Partial Complex Epilepsy. > Abby has been on Trileptal for 5 days now. It makes her really tired, that is > supposed to wear off after a couple of weeks. I hope that it does. Since her > seizure last Wed. she has been really pale. I havent figured out what to make of > that. I guess its just a waiting game at this point and hope that the meds > control the seizures. > > Pennie > Abby's Mom > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2004 Report Share Posted January 22, 2004 Pennie, Kara was on seizure medication and just when I thought she was glued to the couch forever she adapted to the meds. (tegratol) It was at least 3 weeks. My dr said be patient. But I used to cry about it all the time. On Wednesday, January 21, 2004, at 05:13 PM, Ploveabby@... wrote: > Kassi, Abby is started at 150mg for this week then she will take 150mg > in the > morning and then 150mg at night. She will eventually be worked up to > 300mg in > the morning and 300mg at night. Her neuro said that she will switch > her after > a couple of weeks if Abby is still to tired on it. > > Pennie > Abby's Mom > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2004 Report Share Posted January 22, 2004 Thank you , I hope its the same for Abby. I have to admit though, she is sleeping so much better at night. No teeth grinding, no talking in her sleep. Or maybe its that I am sleeping better-LOL Pennie Abby's Mom Quote Link to comment Share on other sites More sharing options...
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