Guest guest Posted April 24, 2006 Report Share Posted April 24, 2006 Jan, From what I understand about pain relievers, including Tylenol, it is important to give them on a consistent basis, like 3 or 4 times a day to keep the levels of the medicine in the blood high enough to be of help. It does wear off. Tylenol can be toxic if it is given in higher doses than are on the bottle. If you wait until the pain gets bad, the pain reliever isn't as effective. Hope I'm making sense. This has been a long, trying day. I'm pooped. Arm Pain Hi All, Jim seems to be going through some other phase, which started over the weekend and continues today. He has been very confused, more than usual, it's not a UTI. He has gone back into his past and can not remember who I am, but calls for his ex wife, whom he divorced over 30 years ago. He says she has been taking care of him and he has appreciated it very much, so he has me confused with her name. I have been telling him I am Jan, your wife, but he doesn't see how I can be his wife and wants proof. I know, I can't take this personally, and I am not, but I must say it does hurt. I realize it is the disease talking. Jim is also grimacing in a lot of pain and says his arms hurt and he holds them and says they hurt bad and he rocks back and forth in his wheelchair holding his arms in pain. This also started over the weekend and continued through today. I think I read here where others have said their LOs have pain in their arms too and that you have found that Tylenol Extra Strength works. Do you give one or two Tylenols at a time? I gave him one today and it seemed to help him, but it wore off within a few hours. Thanks for any advice you can give me. Jan __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2006 Report Share Posted April 25, 2006 Hi Jan and Yes you do need to give tylenol on a regular basis. It is referred to staying on top of the pain, prevents breakthrough pain. Once pain is bad, it is harder to control. I give my MIL one regular strength tylenol 4 times a day with food. She used to take oxycontinat one time, another time it was tylenol with codiene. She has not complained of pain for several months, we have been doing this dose for about 4 months now. I know that tylenol can be hard on the stomach, but at this stage in her life, it is not as much of a concern as keeping the pain away. Sorry Jim is changing again Jan, I get it that it can still bother you in regards to Jim wanting his ex- wife. You are an amazing woman and a great role model for a person like me. Take care. , borough, ON cg to MIL dx age 68, now 69 exelon, seroquel, tylenol, citalopram, senokot > > Jan, > From what I understand about pain relievers, including Tylenol, it is important to give them on a consistent basis, like 3 or 4 times a day to keep the levels of the medicine in the blood high enough to be of help. It does wear off. Tylenol can be toxic if it is given in higher doses than are on the bottle. If you wait until the pain gets bad, the pain reliever isn't as effective. > Hope I'm making sense. This has been a long, trying day. I'm pooped. > > Arm Pain > > > > Hi All, > Jim seems to be going through some other phase, which > started over the weekend and continues today. He has > been very confused, more than usual, it's not a UTI. > He has gone back into his past and can not remember > who I am, but calls for his ex wife, whom he divorced > over 30 years ago. He says she has been taking care of > him and he has appreciated it very much, so he has me > confused with her name. I have been telling him I am > Jan, your wife, but he doesn't see how I can be his > wife and wants proof. I know, I can't take this > personally, and I am not, but I must say it does hurt. > I realize it is the disease talking. Jim is also > grimacing in a lot of pain and says his arms hurt and > he holds them and says they hurt bad and he rocks back > and forth in his wheelchair holding his arms in pain. > This also started over the weekend and continued > through today. > I think I read here where others have said their LOs > have pain in their arms too and that you have found > that Tylenol Extra Strength works. Do you give one or > two Tylenols at a time? I gave him one today and it > seemed to help him, but it wore off within a few > hours. > Thanks for any advice you can give me. Jan > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2006 Report Share Posted April 25, 2006 I have been reading about some LOs having arm pain. I wonder if it is heart related? Jan, If it was my husband in that situation I would make sure his Cardiologist saw him, because my husband has a long history of heart disease. Your Jim may not be known to have heart disease, but it can start at any time, and any age. One man only had one spot on his arm that hurt, but nothing else. He was having a big MI. Imogene Caregiver for my True Texas Gentleman husband of 35 years. He has AD and possibly LBD, is Taking Aricept. In a message dated 4/24/2006 11:04:23 PM Central Daylight Time, janetcolello@... writes: Hi All, Jim seems to be going through some other phase, which started over the weekend and continues today. He has been very confused, more than usual, it's not a UTI. He has gone back into his past and can not remember who I am, but calls for his ex wife, whom he divorced over 30 years ago. He says she has been taking care of him and he has appreciated it very much, so he has me confused with her name. I have been telling him I am Jan, your wife, but he doesn't see how I can be his wife and wants proof. I know, I can't take this personally, and I am not, but I must say it does hurt. I realize it is the disease talking. Jim is also grimacing in a lot of pain and says his arms hurt and he holds them and says they hurt bad and he rocks back and forth in his wheelchair holding his arms in pain. This also started over the weekend and continued through today. I think I read here where others have said their LOs have pain in their arms too and that you have found that Tylenol Extra Strength works. Do you give one or two Tylenols at a time? I gave him one today and it seemed to help him, but it wore off within a few hours. Thanks for any advice you can give me. Jan __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam protection around http://mail.yahoo.com Welcome to LBDcaregivers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2006 Report Share Posted April 25, 2006 Hi, Jan, I don't have any advice about the arm pain, but just wanted to send you a hug and let you know I am thinking of you. Does showing Jim pictures of your wedding help at all with him remembering you are his wife? I know your brain knows not to take it personally about him referring to his ex wife, but our heart never gets the same message. Hopefully, this phase will fade out as quickly as it came on. Love and hugs, Piper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2006 Report Share Posted April 25, 2006 Hi All ..... Just found out I will be a grandma again also , yesterday my son living in Paris France called to tell me .Second marriage for him , Baby due in Dec made my day , it will be my 6th and 1 GreatGranddaughter ....... Eileen .. Canada -- Re: Arm Pain Hi Jan and Yes you do need to give tylenol on a regular basis. It is referred to staying on top of the pain, prevents breakthrough pain. Once pain is bad, it is harder to control. I give my MIL one regular strength tylenol 4 times a day with food. She used to take oxycontinat one time, another time it was tylenol with codiene. She has not complained of pain for several months, we have been doing this dose for about 4 months now. I know that tylenol can be hard on the stomach, but at this stage in her life, it is not as much of a concern as keeping the pain away. Sorry Jim is changing again Jan, I get it that it can still bother you in regards to Jim wanting his ex- wife. You are an amazing woman and a great role model for a person like me. Take care. , borough, ON cg to MIL dx age 68, now 69 exelon, seroquel, tylenol, citalopram, senokot > > Jan, > From what I understand about pain relievers, including Tylenol, it is important to give them on a consistent basis, like 3 or 4 times a day to keep the levels of the medicine in the blood high enough to be of help. It does wear off. Tylenol can be toxic if it is given in higher doses than are on the bottle. If you wait until the pain gets bad, the pain reliever isn't as effective. > Hope I'm making sense. This has been a long, trying day. I'm pooped. > > Arm Pain > > > > Hi All, > Jim seems to be going through some other phase, which > started over the weekend and continues today. He has > been very confused, more than usual, it's not a UTI. > He has gone back into his past and can not remember > who I am, but calls for his ex wife, whom he divorced > over 30 years ago. He says she has been taking care of > him and he has appreciated it very much, so he has me > confused with her name. I have been telling him I am > Jan, your wife, but he doesn't see how I can be his > wife and wants proof. I know, I can't take this > personally, and I am not, but I must say it does hurt. > I realize it is the disease talking. Jim is also > grimacing in a lot of pain and says his arms hurt and > he holds them and says they hurt bad and he rocks back > and forth in his wheelchair holding his arms in pain. > This also started over the weekend and continued > through today. > I think I read here where others have said their LOs > have pain in their arms too and that you have found > that Tylenol Extra Strength works. Do you give one or > two Tylenols at a time? I gave him one today and it > seemed to help him, but it wore off within a few > hours. > Thanks for any advice you can give me. Jan > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2006 Report Share Posted April 25, 2006 CONGRATULATIONS IT ALWAYS IS NICE TO HAVE GREAT EVENTS TO LOOK FORWARD TO. GOD BLESS YA MIDGE eileen wrote: Hi All ..... Just found out I will be a grandma again also , yesterday my son living in Paris France called to tell me .Second marriage for him , Baby due in Dec made my day , it will be my 6th and 1 GreatGranddaughter ....... Eileen .. Canada -- Re: Arm Pain Hi Jan and Yes you do need to give tylenol on a regular basis. It is referred to staying on top of the pain, prevents breakthrough pain. Once pain is bad, it is harder to control. I give my MIL one regular strength tylenol 4 times a day with food. She used to take oxycontinat one time, another time it was tylenol with codiene. She has not complained of pain for several months, we have been doing this dose for about 4 months now. I know that tylenol can be hard on the stomach, but at this stage in her life, it is not as much of a concern as keeping the pain away. Sorry Jim is changing again Jan, I get it that it can still bother you in regards to Jim wanting his ex- wife. You are an amazing woman and a great role model for a person like me. Take care. , borough, ON cg to MIL dx age 68, now 69 exelon, seroquel, tylenol, citalopram, senokot > > Jan, > From what I understand about pain relievers, including Tylenol, it is important to give them on a consistent basis, like 3 or 4 times a day to keep the levels of the medicine in the blood high enough to be of help. It does wear off. Tylenol can be toxic if it is given in higher doses than are on the bottle. If you wait until the pain gets bad, the pain reliever isn't as effective. > Hope I'm making sense. This has been a long, trying day. I'm pooped. > > Arm Pain > > > > Hi All, > Jim seems to be going through some other phase, which > started over the weekend and continues today. He has > been very confused, more than usual, it's not a UTI. > He has gone back into his past and can not remember > who I am, but calls for his ex wife, whom he divorced > over 30 years ago. He says she has been taking care of > him and he has appreciated it very much, so he has me > confused with her name. I have been telling him I am > Jan, your wife, but he doesn't see how I can be his > wife and wants proof. I know, I can't take this > personally, and I am not, but I must say it does hurt. > I realize it is the disease talking. Jim is also > grimacing in a lot of pain and says his arms hurt and > he holds them and says they hurt bad and he rocks back > and forth in his wheelchair holding his arms in pain. > This also started over the weekend and continued > through today. > I think I read here where others have said their LOs > have pain in their arms too and that you have found > that Tylenol Extra Strength works. Do you give one or > two Tylenols at a time? I gave him one today and it > seemed to help him, but it wore off within a few > hours. > Thanks for any advice you can give me. Jan > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2006 Report Share Posted April 25, 2006 Hi Eileen How Fun!!! Having a new baby is always a blessing. Hope you will get to visit with them soon. Congrats!! Dena --- eileen wrote: > Hi All ..... Just found out I will be a grandma > again also , yesterday my > son living in Paris France called to tell me .Second > marriage for him , Baby > due in Dec made my day , it will be my 6th and 1 > GreatGranddaughter ....... > Eileen .. Canada > > -- Re: Arm Pain > > Hi Jan and > > Yes you do need to give tylenol on a regular basis. > It is referred > to staying on top of the pain, prevents breakthrough > pain. Once pain > is bad, it is harder to control. I give my MIL one > regular strength > tylenol 4 times a day with food. She used to take > oxycontinat one > time, another time it was tylenol with codiene. She > has not > complained of pain for several months, we have been > doing this dose > for about 4 months now. I know that tylenol can be > hard on the > stomach, but at this stage in her life, it is not as > much of a > concern as keeping the pain away. Sorry Jim is > changing again Jan, I > get it that it can still bother you in regards to > Jim wanting his ex- > wife. You are an amazing woman and a great role > model for a person > like me. Take care. > > , borough, ON > cg to MIL dx age 68, now 69 > exelon, seroquel, tylenol, citalopram, senokot > > > > > > > Jan, > > From what I understand about pain relievers, > including Tylenol, it > is important to give them on a consistent basis, > like 3 or 4 times a > day to keep the levels of the medicine in the blood > high enough to be > of help. It does wear off. Tylenol can be toxic if > it is given in > higher doses than are on the bottle. If you wait > until the pain > gets bad, the pain reliever isn't as effective. > > Hope I'm making sense. This has been a long, > trying day. I'm > pooped. > > > > Arm Pain > > > > > > > > Hi All, > > Jim seems to be going through some other phase, > which > > started over the weekend and continues today. He > has > > been very confused, more than usual, it's not a > UTI. > > He has gone back into his past and can not > remember > > who I am, but calls for his ex wife, whom he > divorced > > over 30 years ago. He says she has been taking > care of > > him and he has appreciated it very much, so he > has me > > confused with her name. I have been telling him > I am > > Jan, your wife, but he doesn't see how I can be > his > > wife and wants proof. I know, I can't take this > > personally, and I am not, but I must say it does > hurt. > > I realize it is the disease talking. Jim is also > > grimacing in a lot of pain and says his arms > hurt and > > he holds them and says they hurt bad and he > rocks back > > and forth in his wheelchair holding his arms in > pain. > > This also started over the weekend and continued > > through today. > > I think I read here where others have said their > LOs > > have pain in their arms too and that you have > found > > that Tylenol Extra Strength works. Do you give > one or > > two Tylenols at a time? I gave him one today and > it > > seemed to help him, but it wore off within a few > > hours. > > Thanks for any advice you can give me. Jan > > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2006 Report Share Posted April 25, 2006 Jan, don't take it personally - I had the same thing with my husband, although he had been married to me for 50 years, he still questioned if I was his wife. He thought there were two June's, and I think he was remembering the first one as me when I was young, at which stage he appeared to be in (late teens or early twenties), and he didn't recognize me as I am now (although I know I'm still young-looking - joke). The other person was June, too, but when I would tell him I was his wife, he would look at me quizically, and say " Are you sure? " Then he would ask for the marriage license to prove it. It is very hurtful when you are not validated for all you have done. He also would say his wife (the young one) took really good care of him, and she was wonderful, etc., to other people. But to me, he would complain that I didn't help him, wouldn't do anything for him, and other things I don't want to repeat. I had virtually given up my life as it was to take care of him, and it was very hurtful and angering to hear this, even tho you know it is the disease talking. Since he has been in the nursing home, I think there is only one June, and he has been asking/looking for me when I'm gone and seems much more appreciative than he did at home. So, I think part of it is that you have to make him do things in taking care of him, there is combativeness on the LO's part, because they don't want to go to the BR, take showers, shave, dress, etc., and when you are no longer in charge of making them do those things, that takes away part of those angry feeling they have. This is just my opinion of what I went thru. Your husband appears to be about 6 months behind what my husband was like from early fall until he went to NH, and it sounds as if it is nearing the time you will have to consider the NH, especially if he is in pain. My husband complained of pain a lot, and when I asked where, he would say " all over. " He got angry when I had to push or pull his clothing over his elbows, shoulders, etc., and say I was hurting him. He was and still is very sensitive to pain, and previously he never complained about pain before the disease set in. He never was a person to get angry, never cursed, was as laid-back a person as you would ever know, and his personality took a very drastic change over this past year especially. Hang in there; I won't say it will get better, but it will help when someone else has the duties that you now have full responsibility for, and then you can be the " Reagan. " I say this because she () has been lauded for her care of her husband, but it needs to be said that she did not have to take care of a house, mow the lawn, pull the weeds, carry out the trash, worry about finances, cook, wash dishes, and take complete physical care of him as we as caregivers do. I'm not trying to take anything away from her, as I know she was devoted, but she had lots of help to allow her to give her husband her full attention. --- Janet Colello wrote: > > Hi All, > Jim seems to be going through some other phase, > which > started over the weekend and continues today. He has > been very confused, more than usual, it's not a UTI. > He has gone back into his past and can not remember > who I am, but calls for his ex wife, whom he > divorced > over 30 years ago. He says she has been taking care > of > him and he has appreciated it very much, so he has > me > confused with her name. I have been telling him I am > Jan, your wife, but he doesn't see how I can be his > wife and wants proof. I know, I can't take this > personally, and I am not, but I must say it does > hurt. > I realize it is the disease talking. Jim is also > grimacing in a lot of pain and says his arms hurt > and > he holds them and says they hurt bad and he rocks > back > and forth in his wheelchair holding his arms in > pain. > This also started over the weekend and continued > through today. > I think I read here where others have said their LOs > have pain in their arms too and that you have found > that Tylenol Extra Strength works. Do you give one > or > two Tylenols at a time? I gave him one today and it > seemed to help him, but it wore off within a few > hours. > Thanks for any advice you can give me. Jan > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2006 Report Share Posted April 25, 2006 Congrats Eileen. Seems like we will both be having our grand-babies in Dec. Courage eileen wrote: > Hi All ..... Just found out I will be a grandma again also , > yesterday my > son living in Paris France called to tell me .Second marriage for him > , Baby > due in Dec made my day , it will be my 6th and 1 GreatGranddaughter > ....... > Eileen .. Canada > > -- Re: Arm Pain > > Hi Jan and > > Yes you do need to give tylenol on a regular basis. It is referred > to staying on top of the pain, prevents breakthrough pain. Once pain > is bad, it is harder to control. I give my MIL one regular strength > tylenol 4 times a day with food. She used to take oxycontinat one > time, another time it was tylenol with codiene. She has not > complained of pain for several months, we have been doing this dose > for about 4 months now. I know that tylenol can be hard on the > stomach, but at this stage in her life, it is not as much of a > concern as keeping the pain away. Sorry Jim is changing again Jan, I > get it that it can still bother you in regards to Jim wanting his ex- > wife. You are an amazing woman and a great role model for a person > like me. Take care. > > , borough, ON > cg to MIL dx age 68, now 69 > exelon, seroquel, tylenol, citalopram, senokot > > > > > > > Jan, > > From what I understand about pain relievers, including Tylenol, it > is important to give them on a consistent basis, like 3 or 4 times a > day to keep the levels of the medicine in the blood high enough to be > of help. It does wear off. Tylenol can be toxic if it is given in > higher doses than are on the bottle. If you wait until the pain > gets bad, the pain reliever isn't as effective. > > Hope I'm making sense. This has been a long, trying day. I'm > pooped. > > > > Arm Pain > > > > > > > > Hi All, > > Jim seems to be going through some other phase, which > > started over the weekend and continues today. He has > > been very confused, more than usual, it's not a UTI. > > He has gone back into his past and can not remember > > who I am, but calls for his ex wife, whom he divorced > > over 30 years ago. He says she has been taking care of > > him and he has appreciated it very much, so he has me > > confused with her name. I have been telling him I am > > Jan, your wife, but he doesn't see how I can be his > > wife and wants proof. I know, I can't take this > > personally, and I am not, but I must say it does hurt. > > I realize it is the disease talking. Jim is also > > grimacing in a lot of pain and says his arms hurt and > > he holds them and says they hurt bad and he rocks back > > and forth in his wheelchair holding his arms in pain. > > This also started over the weekend and continued > > through today. > > I think I read here where others have said their LOs > > have pain in their arms too and that you have found > > that Tylenol Extra Strength works. Do you give one or > > two Tylenols at a time? I gave him one today and it > > seemed to help him, but it wore off within a few > > hours. > > Thanks for any advice you can give me. Jan > > > > > > __________________________________________________ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2006 Report Share Posted April 25, 2006 Hi Jan, I can't imagine how hard it is to hear Jim call for his ex-wife and give her credit for the hard work you are doing. This disease is awful. My mom used to ask for her mother who died well over 30 years ago all the time. I had to make up many fiblets - like grandma was at church or on vacation - I think I now hold the world's record for a grandmother on vacation. As mom's disease progressed she just plain stopped asking for anybody. I used to give mom tylenol - I tab 3x a day and/or two tabs if the pain seemed worse. Sending you a hug and strength. Courage Quote Link to comment Share on other sites More sharing options...
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