Guest guest Posted March 24, 2006 Report Share Posted March 24, 2006 I agree. If sweets give them satisfaction let them go! Doris Carole A Bjorklund wrote: Hi Doris. Funny! I keep a clear glass cookie jar on our kitchen counter. Dad doesn't think to get a snack from the fridge or cupboard, but he gravitates to the cookie jar several times a day. I figure that at his age and considering the dementia he should have the cookies if he wants them. Plus, he IS my Dad and who am I to say he can't have them. He would be the first to let me know that. DORIS KARATOPRAK wrote: > Hi Carol, > > My mom is the opposite. All of her life she would eat anything. We have a family joke that one time we took her out for mother's day and the restaurant served a big cooked fennel bulb. Well none of the rest of us ate it but mom gobbled it up. Now she is becoming quite fussy about what she eats. This is so strange to see. She always has plenty of sweets in her house though. That's nothing new, but now is part of her staple diet. > > The lack of good judgement is I think a big thing with the decline of LBD. > > Take care Doris in Mississauga Canada. > > LO-Ramona (mom) - aged 76- dx'd March 2005- meds: Reminyl, Wellbutrin and Fosomax. Still living independently with supervision from gov't agency. > > Carole A Bjorklund wrote: > That makes so much sense! Dad ate pancakes with my granddaughters > remarking " yum " the whole time he was eating them. I am 55 yrs old and I > don't think I ever saw him eat pancakes..ever! Funny ..he saw them, and > I was about to prepare something else for him, he obviously wanted to > taste them. He recently ate brussel sprouts which I know he has hated > since childhood and absolutely loved them. Dad's symptoms have been all > over the place since he was diagnosed one yr. ago, and I really think he > has been showing some symptoms since we lost Mom 4 yrs ago. The one > things that are constantly and steadily going down is are his reasoning, > judgement and cognitive skills. He was feeding our little dog off his > fork from the table and my sister told him we could give Rufus something > at the end of the meal and don't feed him from the fork. Dad replied > " Well, I can't use my spoon, because we are having ice cream later! " Sis > is just learning No corrections unless someone is in mortal danger!! > Diversion still works nicely with him. He is so adorable just like he > always has been. > > Carole sothern rural NJ- daughter and lone ranger caregiver in my home > to my wonderful Dad for almost two yrs. > > June Christensen wrote: > >> By all means, loss of sense of smell is one of the >> symptoms, and my husband lost his years ago. I wish I >> had kept a journal of his symptoms over the years, but >> of course, you don't know what's down the road. I >> understand that the reason they like sweets so much is >> that it is the last taste to go, so they want >> everything sweet. He always had a sweet tooth, but it >> really kicked in the last few years. Now, when I feed >> him at the NH, he says " this doesn't have any taste " >> until I give him a bite of dessert, and then he eats. >> One nurse told me that where she worked once, they put >> sugar on all their food to get them to eat it. He >> also is eating things he never touched before, >> sometimes still says he doesn't like them. I blamed >> his runny nose on allergies, and despite shots and >> different kinds of medicine, it never resolved, so >> that's why I felt it might be a symptom. I also was >> told by the doctors that coldness was not a symptom, >> but I think it is, as he just can't get warm. Last >> night, he was so cold in the NH dining room, I had to >> get a blanket to put on him while he ate, and everyone >> else was complaining about how hot it was. >> >> --- Carole A Bjorklund >> wrote: >> >> >> >>> Hi! I am Carole in southern NJ Fairly new, also. Wow >>> did I see my Dad in >>> your post, June. He always has a runny nose...we >>> have tissues in every >>> room in the house. He usually wears three shirts, an >>> undershirt, a >>> regular shirt and usually a fleecy shirt in the >>> house all day. Always >>> cold. Lately he has been giving very animated >>> little speeches. They >>> usually don't make much sense, but he is definitely >>> being " informative " . >>> I wanted to ask the group about Zoloft. Dad was >>> depressed, although it >>> was kind of hard to figure out because he was not >>> able to express the >>> actual sadness, he was mostly uncommunicative. Now, >>> since being on the >>> Zoloft, he is giggly and enjoying (it seems) my >>> granddaughters' antics. >>> Before they seemed to annoy him. Also, does anyone >>> know if the 'loss of >>> smell' is LBD related? I think Dad may be >>> experiencing this as he has >>> been complaining about his food " no good..no >>> taste..needs salt, etc. " >>> AND/OR does altered TASTE come into the picture? >>> Thanks. Carole >>> >>> Gerry Deverell wrote: >>> >>> >>>> June- >>>> Welcome to our LBD support group. My Dad died >>>> >>>> >>> from LBD on 9/11/05 after a 4 yr. battle. He was >>> recovering from a traumatic brain injury result from >>> one of his many falls, when my physician son-in-law >>> suspected Parkinson. He referred my Dad to a >>> neurologist. Based on his symptoms, he potentially >>> dx'd my Father with LBD. A definitve Dx can lonely >>> be done with an autopsy. I feel that the >>> neurologist was accurate with his Dx, as Dad had >>> almost every symptom We were fortunate that Dad >>> kept his easy going dispostion. Another reason this >>> physician was so familiar with LBD is that his own >>> Father has LBD. He has walked in our shoes. I >>> couldn't have found a more empathetic doctor. >>> >>> >>>> June, the symptoms that you listed are right on >>>> >>>> >>> the money. As I ready them, they all came back to >>> me. The runny nose, depression, decreased appetite >>> among others bring back memories of what my Dad went >>> through. My Dad would constantly say " I'm cold. I'm >>> cold. " We kept the heat on in the summer, esp in >>> the mornings. I thought that Dad's complaints of >>> coldness were age related, but I bet you are right >>> in that it has a LBD connection. >>> >>> >>>> Again, welcome to this group. I have a feeling >>>> >>>> >>> you will gain from this group and in return we will >>> benefit from your joining. >>> >>> >>>> Gerry Deverell >>>> Wilmington, De. >>>> Caregiver and daughter of Dick Deverell who died >>>> >>>> >>> at home on 9/11/05 from LBD. Dad would have been 88 >>> the following month. >>> >>> >>>> >>>> Re: New to the Group >>>> > >>>> > Many of you write that your LO has been >>>> >>>> >>> diagnosed >>> >>> >>>> > with >>>> > LBD, and I wondered if the doctor diagnosed it >>>> >>>> >>> or if >>> >>> >>>> > it was diagnosed based on the symptoms. I am >>>> >>>> >>> sure >>> >>> >>>> > my >>>> > husband has it, but he has not been diagnosed >>>> >>>> >>> by >>> >>> >>>> > anyone in the medical community. Can you, and >>>> >>>> >>> if >>> >>> >>>> > so, >>>> > how is it actually diagnosed? >>>> > >>>> > --- JUDY DUKE wrote: >>>> > >>>> > > Hi Jill, >>>> > > I'm still pretty new to this group myself, >>>> >>>> >>> My dad >>> >>> >>>> > is >>>> > > 60 yrs old and also is living at home with >>>> >>>> >>> mom.He >>> >>> >>>> > > was >>>> > > diagnosed with lewy body Feb/2006. We mostly >>>> >>>> >>> just >>> >>> >>>> > > try >>>> > > and go along with his weird >>>> >>>> >>> conversations.Someone >>> >>> >>>> > > had >>>> > > suggested saying " okay we'll go home now and >>>> >>>> >>> just >>> >>> >>>> > > moved to a different room in the house " >>>> >>>> >>> maybe you >>> >>> >>>> > > could try that.My best advice to you is talk >>>> >>>> >> === message truncated === >> >> >> __________________________________________________ >> Quote Link to comment Share on other sites More sharing options...
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