Re: anyone there I need help right now......

[Guest guest]

Sonja, how old is he?

hang on! He will stop. Is he safe in his room to wear himself out, and

maybe just fall asleep from exhaustion?

(((HUGS)))

Sonija wrote:

>

> This is sonija, my son is the one with PANDAS, OCD and ADHD, Ihavent

> messaged in a little bit but right now he is having a bad melt down and

> no matter what I do it wont stop. We are on almost 30 minutes of this.

> My patientce is wearin gthin and I am trying my best to not fall apart

> or make the situation worse. These temper tamtrums r new, granted he

> did them when he was 2 or 3 but this is bad....any suggestions???????

>

> PLEASE

>

>

[Guest guest]

How old is he?

Dina

[Guest guest]

7 years, just turned 7 begining of sept

Re: anyone there I need help right now......

How old is he?

Dina

[Guest guest]

Thanks...

So, that's good - he's not too big, then. My ds is now 16 1/2, and in

his calm times, he told me that when he had rages, sometimes anything I

did or said would keep it going. He just needed some no-more-input time

to sort it out and let it run its course. Of course, if he's hurting

himself you can't leave him alone.

but the mom thing of talking, holding, inputting is usually exactly what

he didn't need. Hard to do! But that was what he needed to calm down and

come back to earth,

Would that work for you?

more ((HUGS)) to you!

Sonija wrote:

>

> 7 years, just turned 7 begining of sept

> Re: anyone there I need help right now......

>

> How old is he?

> Dina

>

>

[Guest guest]

he is 7 and he is pushing buttons bad, everything he asks, its like he is

looking for a fight and all of this at just 7 yrs of age? I feel like I am

arguing with my mom, lol. I am not arguing with him but it slike he is trying

to provoke, does that make sense? this all started becuae my hubby took him for

a walk and he was told before the walk started taht they were only going to the

end of the street andback. That was fine till they got to the end, my hubby said

they could stay down there and look at the canal for a few minutes. Robbie got

mad and said no I wanna go home so when they started the walk back robbie said

he changed his mind but my hubby stuck to his word. so it began.....then it was

rock me momma but when I asked him to come by me he said no and threw himself

down and kicked the wall, the bed the floor....etc.... I am tired

Re: anyone there I need help right now......

Sonja, how old is he?

hang on! He will stop. Is he safe in his room to wear himself out, and

maybe just fall asleep from exhaustion?

(((HUGS)))

Sonija wrote:

>

> This is sonija, my son is the one with PANDAS, OCD and ADHD, Ihavent

> messaged in a little bit but right now he is having a bad melt down and

> no matter what I do it wont stop. We are on almost 30 minutes of this.

> My patientce is wearin gthin and I am trying my best to not fall apart

> or make the situation worse. These temper tamtrums r new, granted he

> did them when he was 2 or 3 but this is bad....any suggestions???????

>

> PLEASE

>

>

[Guest guest]

Been there and done lengthy meltdowns with my then 7 year old.

Retrospectively wish I didn't allow secondary gains, that is, when

she was melting down, I'd go into " therapeutic Mommy mode " ...trying

deep breathing, distraction, other relaxation techniques,

promises/bribes. In hindsight, since none of these worked AT ALL, I

realize I was giving her meltdown " an audience " . I wish I simply kept

her in a safe place and " actively ignored " her behavior. Once I

started responding in this fashion, her meltdowns were over much

quicker and less frequent. Good luck, I know it's exhausting. Hope it

ends SOON>

> >

> > This is sonija, my son is the one with PANDAS, OCD and ADHD,

Ihavent

> > messaged in a little bit but right now he is having a bad melt

down and

> > no matter what I do it wont stop. We are on almost 30 minutes of

this.

> > My patientce is wearin gthin and I am trying my best to not fall

apart

> > or make the situation worse. These temper tamtrums r new, granted

he

> > did them when he was 2 or 3 but this is bad....any

suggestions???????

> >

> > PLEASE

> >

> >

>

>

>

>

[Guest guest]

I'm so sorry that's happening. I think I would just try to let it run

it's course. I don't think that anything you can do or say will make

him stop. That said, I haven't ever dealt with a child going on that

long. Usually 2-3 minutes does me in. Please let us know how it's

going. I know there are plenty of people on this list that have had

children rage for a good length of time. Is he going through a med. change?

Hugs,

Dina

[Guest guest]

well the way I am handling it is trying not to fed into it, because the more I

try the more it backfires and your right with the term RAGE. It is scary to see

him that way. He is not hurting himself but its still scary. I am just sitting

with calm music on waiting for the storm to pass but man this is freakin hard

Re: anyone there I need help right now......

>

> How old is he?

> Dina

>

>

[Guest guest]

no meds yet. We go back to the doc next monday and they are considering meds.

They were waiting fo rthe PANDAS to go into remission before they did medicne

Re: anyone there I need help right now......

I'm so sorry that's happening. I think I would just try to let it run

it's course. I don't think that anything you can do or say will make

him stop. That said, I haven't ever dealt with a child going on that

long. Usually 2-3 minutes does me in. Please let us know how it's

going. I know there are plenty of people on this list that have had

children rage for a good length of time. Is he going through a med. change?

Hugs,

Dina

[Guest guest]

well its is fianaly almost over I think

he was quiet enough for me to talk to for a bit, he is not crying anymore but is

still yelling or moaning loud everynow and then because noone is paying

attention to him I went in to make sure he was ok and not hurt and I talked

softly and checked on him, offered to cover him up, get a drink or to turn the

light out for him. Of course all answrs were no but at least we are not crying

anymore. He looks wore out and I am crossing my fingers that he will fall

asleep

will this get better? Will meds help? I dont want him to walk around as a

zombie from medicine.....

I am sorry I am going on and on....thanks to all of you tthat are listienting to

me and trying to read my nervous typing

Re: anyone there I need help right now......

I'm so sorry that's happening. I think I would just try to let it run

it's course. I don't think that anything you can do or say will make

him stop. That said, I haven't ever dealt with a child going on that

long. Usually 2-3 minutes does me in. Please let us know how it's

going. I know there are plenty of people on this list that have had

children rage for a good length of time. Is he going through a med. change?

Hugs,

Dina

[Guest guest]

Medications are a personal choice and trial and error. Each medication

affects each person differently, and then you have to factor in dosage.

It's tricky. I wish there was an exact science to this. My child

hasn't had mood issues, so I don't know what they do for that. But, for

OCD, my DD (13) is functioning great, honors student, lots of friends

and on medication. Definitely not a zombie!

Take care,

Dina

[Guest guest]

hi Sonija,

Oh, that's just the worst. My ds, especially when he was tired, hungry

and both, would just fall apart. Anything I had to say at that point, he

just couldn't hear.

Can you just remove yourself from the situation, maybe a couple of rooms

away, and let everyone get some air?

take care,

Cory

Sonija wrote:

>

> he is 7 and he is pushing buttons bad, everything he asks, its like he

> is looking for a fight and all of this at just 7 yrs of age? I feel

> like I am arguing with my mom, lol. I am not arguing with him but it

> slike he is trying to provoke, does that make sense? this all started

> becuae my hubby took him for a walk and he was told before the walk

> started taht they were only going to the end of the street andback.

> That was fine till they got to the end, my hubby said they could stay

> down there and look at the canal for a few minutes. Robbie got mad and

> said no I wanna go home so when they started the walk back robbie said

> he changed his mind but my hubby stuck to his word. so it

> began.....then it was rock me momma but when I asked him to come by me

> he said no and threw himself down and kicked the wall, the bed the

> floor....etc.... I am tired

> Re: anyone there I need help right now......

>

> Sonja, how old is he?

>

> hang on! He will stop. Is he safe in his room to wear himself out, and

> maybe just fall asleep from exhaustion?

>

> (((HUGS)))

>

> Sonija wrote:

> >

> > This is sonija, my son is the one with PANDAS, OCD and ADHD, Ihavent

> > messaged in a little bit but right now he is having a bad melt down and

> > no matter what I do it wont stop. We are on almost 30 minutes of this.

> > My patientce is wearin gthin and I am trying my best to not fall apart

> > or make the situation worse. These temper tamtrums r new, granted he

> > did them when he was 2 or 3 but this is bad....any suggestions???????

> >

> > PLEASE

> >

> >

>

>

[Guest guest]

That is very comforting. Thanks:) He just finally fell asleep. that was like

almost an hour I think. Longest one yet. But I did notice it was better for me

to ignore it all togther becuase the more I tried to fix it the worse it got.

What meds is she on and what age did her OCD start if you dont mind me asking

Dina

Thanks

Sonija

Re: anyone there I need help right now......

Medications are a personal choice and trial and error. Each medication

affects each person differently, and then you have to factor in dosage.

It's tricky. I wish there was an exact science to this. My child

hasn't had mood issues, so I don't know what they do for that. But, for

OCD, my DD (13) is functioning great, honors student, lots of friends

and on medication. Definitely not a zombie!

Take care,

Dina

[Guest guest]

Hi Sonija

Glad that you and your son can finally calm down. I have had that happen with

my 11 year old DD. A long time ago I would get into a rage too. It only fed

into it. For quite some time now I make sure she is safe and I just let her at

it. During this time I usually keep busy with housework or making supper so

that I can get some of my negative energy out. She ends up getting herself

tired out. I find also that not feeding into it makes the tantrum go by faster.

Have a peaceful night.

Jen

Re: anyone there I need help right now......

Medications are a personal choice and trial and error. Each medication

affects each person differently, and then you have to factor in dosage.

It's tricky. I wish there was an exact science to this. My child

hasn't had mood issues, so I don't know what they do for that. But, for

OCD, my DD (13) is functioning great, honors student, lots of friends

and on medication. Definitely not a zombie!

Take care,

Dina

[Guest guest]

Hey Cory,

he finally fell asleep, THANK GOD!!!!! I did try to keep myself in the other

room. We (DH and me) went outside. He followed us...lol to bring the drama

outside. SOmeone must have thought we were beating him....

Now I have the worst headache in the world. He did talk to me for a little when

he first stopped crying and said he hates that angry feeling he gets and he cant

control it. I will definatly tell the doctor about the episode. It isnt

happening all the time but I think that they are getting more and more.

I really appreciat the moral support from you. It means alot. at this time of

night there is noone to call, at least noone ho understands it all. I hate when

people just say ground him or worse yet spank him, that doesnt help.

This is sooo not like him, I think its mainly the OCD and the ADHD, there are

times he will just start to cry and tell me that the bad thoughts are hard on

him and he feels noone understands. He is soo young, too young to go through

this. None of our children need this.

I wish it would have ben me that got all of this and not him..

I hope this gets easier. I like That Dina said that she has had good luck with

how her 13yr old is handeling things. You all are giving me some home. I wish

there was a local support group to meet with but I also like that I can sit on

here and talk at anytime to you all. Local meeting would have to be scheduled.

lots of love and admiration for all of the parents that are getting though all

of this with their children.

Now here I am the one sitting here crying feeling completely wore out and like a

bad mom

Love Sonija

Re: anyone there I need help right now......

>

> Sonja, how old is he?

>

> hang on! He will stop. Is he safe in his room to wear himself out, and

> maybe just fall asleep from exhaustion?

>

> (((HUGS)))

>

> Sonija wrote:

> >

> > This is sonija, my son is the one with PANDAS, OCD and ADHD, Ihavent

> > messaged in a little bit but right now he is having a bad melt down and

> > no matter what I do it wont stop. We are on almost 30 minutes of this.

> > My patientce is wearin gthin and I am trying my best to not fall apart

> > or make the situation worse. These temper tamtrums r new, granted he

> > did them when he was 2 or 3 but this is bad....any suggestions???????

> >

> > PLEASE

> >

> >

>

>

[Guest guest]

I forgot how old he is.  What precipitated this tantrum?  I hope by the time

you read this that he has calmed down and your nerves have too.   Sending

cyberhugs of support!

anyone there I need help right now......

This is sonija, my son is the one with PANDAS, OCD and ADHD, Ihavent

messaged in a little bit but right now he is having a bad melt down and

no matter what I do it wont stop. We are on almost 30 minutes of this.

My patientce is wearin gthin and I am trying my best to not fall apart

or make the situation worse. These temper tamtrums r new, granted he

did them when he was 2 or 3 but this is bad....any suggestions???????

PLEASE

[Guest guest]

Thanks Jen, yea I agree the waiting it out seems to be the best. I am glad its

over for now

Good night to you too. I am sure he is down for the night. so at least this is

over for tonight

Rest well

Sonija

Re: anyone there I need help right now......

Medications are a personal choice and trial and error. Each medication

affects each person differently, and then you have to factor in dosage.

It's tricky. I wish there was an exact science to this. My child

hasn't had mood issues, so I don't know what they do for that. But, for

OCD, my DD (13) is functioning great, honors student, lots of friends

and on medication. Definitely not a zombie!

Take care,

Dina

[Guest guest]

My DD's OCD came on suddenly at age 7 1/2. We didn't know what it was

for several months and it was horrible. She started on Celexa, then was

switched to Prozac and worked up to 30 mgs. We've had to bump it up as

she has grown. She is now 13 1/2 and she's on 60 mgs. Kids are on a

wide range of dosages, some do well on a low dose, some need a really

high dose to knock out those obsessive thoughts. She is at the high

end. She hasn't had any mood issues, though, so I'm sure your Dr. would

start low and go really slow.

Dina

[Guest guest]

The other thing that's so HARD to keep in mind is that they NORMALLY

aren't like this! They don't like feeling the way they do, acting like

that either. Your sweet boy is still in there, he's just overwhelmed by

everything that is happening to him. Believe me, my DD was a shadow of

her true self during the worst of times. For her, medication gave her

life back. She blossomed back into the girl she once was. (Albeit with

some issues!) Many people have had the same success with good therapy.

Sorry about your headache. I've had many nights when I couldn't believe

this was happening to us, our daughter, or our family. It is so hard

for anyone else to understand. And, no, grounding won't help! :-)

Have a quiet evening.

Dina

[Guest guest]

My daughter seems to have had OCD type fears from at least preschool.  The

reason she seems to have had it earlier than most is probably because I have OCD

myself and was very aware of it.  It got really bad in 2nd grade.  PANDAS may

be an issue for her as well.  She is doing much better now on Anafranil,

although she is still quite stressed a lot of the time.  

Re: anyone there I need help right now......

My DD's OCD came on suddenly at age 7 1/2. We didn't know what it was

for several months and it was horrible. She started on Celexa, then was

switched to Prozac and worked up to 30 mgs. We've had to bump it up as

she has grown. She is now 13 1/2 and she's on 60 mgs. Kids are on a

wide range of dosages, some do well on a low dose, some need a really

high dose to knock out those obsessive thoughts. She is at the high

end. She hasn't had any mood issues, though, so I'm sure your Dr. would

start low and go really slow.

Dina

[Guest guest]

I'm so sorry you all had to go through this today Sonjiia. Sending you warm

vibes and thoughts.

~~Kathy

 

gkathy40@...

http://www.myspace.com/clearingachannel

yahoo messenger id  gkathy40@...

Courage is not living without fear.

Courage is being scared to death and doing the right thing anyway.

-Chae

> >

> > This is sonija, my son is the one with PANDAS, OCD and ADHD, Ihavent

> > messaged in a little bit but right now he is having a bad melt down and

> > no matter what I do it wont stop. We are on almost 30 minutes of this.

> > My patientce is wearin gthin and I am trying my best to not fall apart

> > or make the situation worse. These temper tamtrums r new, granted he

> > did them when he was 2 or 3 but this is bad....any suggestions? ??????

> >

> > PLEASE

> >

> >

>

>

[Guest guest]

I just wanted to thank everyone who was there for me last night. He finally

wore himself out and fell asleep. He came and asked me to lay with him in the

middle of the night

So far this morning he is as hapy as can be.

I will check in with everyone later

Thanks for everything

Sonija

Re: anyone there I need help right now......

I'm so sorry you all had to go through this today Sonjiia. Sending you warm

vibes and thoughts.

~~Kathy

gkathy40@...

http://www.myspace.com/clearingachannel

yahoo messenger id gkathy40@...

Courage is not living without fear.

Courage is being scared to death and doing the right thing anyway.

-Chae

> >

> > This is sonija, my son is the one with PANDAS, OCD and ADHD, Ihavent

> > messaged in a little bit but right now he is having a bad melt down and

> > no matter what I do it wont stop. We are on almost 30 minutes of this.

> > My patientce is wearin gthin and I am trying my best to not fall apart

> > or make the situation worse. These temper tamtrums r new, granted he

> > did them when he was 2 or 3 but this is bad....any suggestions? ??????

> >

> > PLEASE

> >

> >

>

>

[Guest guest]

Hi Sonija,

I'm sorry you are going through this right now.

Two out of my three kids have rages, so I can definitely understand what you are

going through. My daughter has raged her whole life and is now 11.My son is 7

and started with his raging at age 5 . I know how they can " push you over the

edge " . I read all the other posts and I agree with everyone. As for someone who

used to deal with 4-6 hour long rages with my daughter, everyone here has given

you the correct advice. IGNORE IT, as best as you can.I used to try to intervene

with her rages by going in her room and trying to talk to her, yell and scream

at her , etc, etc,. All this did was add fuel to the fire. She still does rage

now, but for under an hour at a time.

My son still rages also, and will come over and hit me, throw things at me,

spit, etc. My kids both have OCD and Bipolar, with severe ADHD symptoms.

This may sound very mean, but when my son rages I have to lock him in his room

until he calms down. I stand outside his door, so I can hear what he's doing,

but if I don't do this I cannot disengage from him. He will come out of his room

and follow me around he house.You have to disengage so they do not have an

audience.Most kids wouldn't rage if they were home alone.

As far as meds go, it is very difficult to find meds for a child with OCD and

ADHD, because like with Bipolar , the meds work against each other.

I wish you luck and hugs!

We are all here if you need to talk!!

Hugs

Judy

[Guest guest]

My son 13 has rages too but not as often as a couple months ago.  He typical

rages outside and he struggles with how to get clean.  We have just arrived home

from a place where he felt he got really dirty and he doesn't want to come in

the house and then he has a melt down. If I ignore him, he tells me (his ocd

tells me) I'm being mean and it only adds fuel to the firest.  This can last 1-3

hours.  He had one on Sunday after church and that was the first time I ignored

him.  I went inside and did some laundry, etc and then I  heard noises.  He

broke our fence and did a few other things around the  house that will cost me

to repair.  We are already struggling with money due to all the therapy, etc.  

Anyone  else struggle with this and ideas?   Ignoring him inside is safe but

outside does not seem to be safe.  His drs have told me to ignore him as well

and that he will come in when he is ready but in the mean time, I don't like the

damage that occurs.  thanks! 

[Guest guest]

My son has had PANDAS OCD for years. I would not wait for the episode

to quit for the meds. The brain is inflaimed during the episodes. I

would get him on antianxiety or antipsychotic meds right away. Some of

the damage done over time can not be repaired. We use abilify and

probably adding zoloft soon. Also get him on an antibiotic prophylaxis

like augmentin or omnicef everyday. Don't let him get strep again. It

can be very dangerous to their brain. I know you will have a hard time

finding a specialist in PANDAS but at least get to a neurologist who

knows OCD and tourettes. If they want to diagnose him with TS then let

them but get him on meds to stop his suffering. I am currently

exploring IVIG because I have heard it can cure them of the PANDAS

behaviors for good. They have a faulty immune system and something in

their brain is misfiring and attacking what the brain thinks is strep.

It is actually attacking the basal ganglia. It can cause very strange

mental issues some of them can be permanent. Don't wait. Please

consult a neurologist ASAP. I am here for you if you want to talk.

michele_223@...

Michele

>

> Is he on OCD medication for his unbearable contamination fear?  My

contamination fear always made coming home most difficult.  I hated

going out because I knew that eventually I would have to come back

home and inevitably I would feel contaminated and  I would have to go

through the rituals of long showering, washing my clothes, throwing

things out or whatever.  The thought of having to do these rituals

was so aversive, but the fear felt so real that I felt to do otherwise

was too foolhardy.  If this is what your son is experiencing, how

does he finally feel safe enough to come in the house?  What does he

do to " clean off " ?  It sounds like he needs to be seen by a very good

OCD specialist who can do intensive exposure and response prevention,

but for me that only worked after I was on medication for a while,

which for me seems to be Anafranil.  

>

>

>

>

> Re: anyone there I need help right now......

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> My son 13 has rages too but not as often as a couple months ago. 

He typical rages outside and he struggles with how to get clean.  We

have just arrived home from a place where he felt he got really dirty

and he doesn't want to come in the house and then he has a melt

down. If I ignore him, h

> e tells me (his ocd tells me) I'm being mean and it only adds fuel

to the firest.  This can last 1-3 hours.  He had one on Sunday

after church and that was the first time I ignored him.  I went

inside and did some laundry, etc and then I  heard noises.  He broke

our fence and did a few other things around the  house that will cost

me to repair.  We are already struggling with money due to all the

therapy, etc.   Anyone  else struggle with this and ideas?  

Ignoring him inside is safe but outside does not seem to be safe. 

His drs have told me to ignore him as well and that he will come in

when he is ready but in the mean time, I don't like the

>

> damage that occurs.  thanks! 

>

>

>

>