Re: Barb

[Guest guest]

Judy, I've heard of the vineland test but can't tell you anything.

So far as PDD or anything on autism spectrum, many still do take

medication for symptoms/behaviors. Of course knowing some things

(obsessions or routines for example) are due to the autism part gives

you another way to approach that " problem " but meds might still help

to...calm it down a bit if it's out-of-control. LOL, don't know if

I'm wording this well. ---- But it does make a difference in ways

to approach any problem to know if it's a " personality " type trait

due to autism or not.

Just wanted to point out that many on spectrum still need medication

to help with some things.

>

> Barb,

> Yes my kids do see one psychiatrist.(also an hour away)We have an

appointment tomorrow morning at 8:30. My son's psychiatrist talked on

the phone with the psychologists I took him to last week and came up

with the once a week plan.

>  

> My son can't keep up with his schoolwork. If he misses a day a week

it will be detrimental to his schoolwork. Like you mentioned the meds

are not working for him. They work against each other and nobody has

any answers regarding this.

[Guest guest]

Hi Judy,

No I haven't heard of either the vineland test, or anything about PDD

and meds (not something I am familiar with). Regardless of

diagnosis, it's the symptoms that the meds treat, so I guess you pick

and chose on that one based on what the presenting symptoms are.

Challenge being with the OCD how much it can look like other

things...and how the meds can trigger symptoms, and you end up in a

maze of symptoms, right???!

I did go to a lecture recently where a a fabulous psychiatrist spoke

on drug interactions, and reasons why meds failed etc. The issue of

the missing enzyme to process(?) specifically risperidone(not the

other atypicals), and prozak, and other drugs I didn't know. I'm

pretty sure this is the case for our son. And that is only one

aspect that they have discovered, and it is not well known, our

doctors had not heard of it. There is a " test " , but it would never be

done, only in research.

All that to say, still so much that is not known, so one never knows

what all is happening. Not helpful to you at the moment I know. Just

to say, in the end go with what your gut tells you, if you can be

clear at all. What do you really think is going on?

The other thing I did this summer was take our son to an alternative

person who could test which drugs our son had a positive response to

according to a machine (QXCI) he hooked him up to. It did confirm

exactly the ones he had trouble with and the ones we had positive

results with, but weren't sure about. I took our whole cabinet of

meds! Normally he does it for vitamins, but said he would be willing

to do it with the meds. Can't determine dose at all, only if the

body likes/positive response to the med. It just gave us more

information to help us feel that yes this was the best med choice out

of the choices given. Since there are no mainstream tests out there

for meds it was a way we thought couln't hurt to try. Just a thought.

I recently heard a young pyschiatrist speaking on mental health and

spirituality who said " if what you are doing is not working try

something else, doesn't matter whether it is mainstream or not. If

we had all the answers there would be no more problems. " I spoke

with him afterward too, really open minded person. He experiences

first hand every day not being able to have " the answers " . Although

I know many who have been helped by him immensely. Sometimes it is

the connection that is made, or not, with the person who is trying to

help.

Just some thoughts... I don't have answers, mostly questions and

wonderings after our own experience. Keep searching for those

answers!

Hugs!

Barb

> >

> > Hi Barb,

> > Well unfortunately my daughter is becoming manic again. I have a

> psychiatrist appt for her on Monday morning first thing. I really

> don't want to have to put her on another mood stabilizer, but I

guess

> it's inevitable at this point.

> > As far as my son goes, we took him to the appointment I waited

for

> so long for, just to find out that he indeed has OCD with a huge

> amount of anxiety ( which we already knew) and they don't diagnose

> anything else there besides anxiety disorders, therefore, we never

> could get their opinion as to whether or not they felt he had

bipolar

> or pdd-nos , aspergers, etc, etc. they want him to do 20 weeks of

> therapy, which is the therapy he needs(CBT and ERP). The problem is

> the place is 1 1/2 hours away and he needs this once a week so he'd

> end up having to stay back in school. (he's already so far behind)

> He'd miss a day a week.

> > I called in my states voluntary dept of children and families for

> help.I don't know what to do. I have to find a place that can do

> this, that is not so far away or if they could do it in a shorter

> period of time. This is just not going to work.He'd probably be

> better off inpatient for a week than having to go for 5 months once

a

> week. We also don't know what else is going on besides the OCD. I

was

> under the impression they did a thorough eval.If there is nothing

> else going on but OCD it's all worth it, but if there is , this

will

> be a waste of time and money

> > I can never win

> > UUUGGGGHHHHHHH! !!!!!

> > Hugs

> > Judy

> >

> >

> >

> >

[Guest guest]

Hi Barb,

I heard of that test somewhere, where you can find out if your going to react to

a certain medication. It sounds like it would be worthwhile!

 

Still searching, almost 9 years later!

Hugs

Judy

Subject: Re: Barb

To:

Date: Sunday, October 19, 2008, 12:58 PM

Hi Judy,

No I haven't heard of either the vineland test, or anything about PDD

and meds (not something I am familiar with). Regardless of

diagnosis, it's the symptoms that the meds treat, so I guess you pick

and chose on that one based on what the presenting symptoms are.

Challenge being with the OCD how much it can look like other

things...and how the meds can trigger symptoms, and you end up in a

maze of symptoms, right???!

I did go to a lecture recently where a a fabulous psychiatrist spoke

on drug interactions, and reasons why meds failed etc. The issue of

the missing enzyme to process(?) specifically risperidone( not the

other atypicals), and prozak, and other drugs I didn't know. I'm

pretty sure this is the case for our son. And that is only one

aspect that they have discovered, and it is not well known, our

doctors had not heard of it. There is a " test " , but it would never be

done, only in research.

All that to say, still so much that is not known, so one never knows

what all is happening. Not helpful to you at the moment I know. Just

to say, in the end go with what your gut tells you, if you can be

clear at all. What do you really think is going on?

The other thing I did this summer was take our son to an alternative

person who could test which drugs our son had a positive response to

according to a machine (QXCI) he hooked him up to. It did confirm

exactly the ones he had trouble with and the ones we had positive

results with, but weren't sure about. I took our whole cabinet of

meds! Normally he does it for vitamins, but said he would be willing

to do it with the meds. Can't determine dose at all, only if the

body likes/positive response to the med. It just gave us more

information to help us feel that yes this was the best med choice out

of the choices given. Since there are no mainstream tests out there

for meds it was a way we thought couln't hurt to try. Just a thought.

I recently heard a young pyschiatrist speaking on mental health and

spirituality who said " if what you are doing is not working try

something else, doesn't matter whether it is mainstream or not. If

we had all the answers there would be no more problems. " I spoke

with him afterward too, really open minded person. He experiences

first hand every day not being able to have " the answers " . Although

I know many who have been helped by him immensely. Sometimes it is

the connection that is made, or not, with the person who is trying to

help.

Just some thoughts... I don't have answers, mostly questions and

wonderings after our own experience. Keep searching for those

answers!

Hugs!

Barb

> >

> > Hi Barb,

> > Well unfortunately my daughter is becoming manic again. I have a

> psychiatrist appt for her on Monday morning first thing. I really

> don't want to have to put her on another mood stabilizer, but I

guess

> it's inevitable at this point.

> > As far as my son goes, we took him to the appointment I waited

for

> so long for, just to find out that he indeed has OCD with a huge

> amount of anxiety ( which we already knew) and they don't diagnose

> anything else there besides anxiety disorders, therefore, we never

> could get their opinion as to whether or not they felt he had

bipolar

> or pdd-nos , aspergers, etc, etc. they want him to do 20 weeks of

> therapy, which is the therapy he needs(CBT and ERP). The problem is

> the place is 1 1/2 hours away and he needs this once a week so he'd

> end up having to stay back in school. (he's already so far behind)

> He'd miss a day a week.

> > I called in my states voluntary dept of children and families for

> help.I don't know what to do. I have to find a place that can do

> this, that is not so far away or if they could do it in a shorter

> period of time. This is just not going to work.He'd probably be

> better off inpatient for a week than having to go for 5 months once

a

> week. We also don't know what else is going on besides the OCD. I

was

> under the impression they did a thorough eval.If there is nothing

> else going on but OCD it's all worth it, but if there is , this

will

> be a waste of time and money

> > I can never win

> > UUUGGGGHHHHHHH! !!!!!

> > Hugs

> > Judy

> >

> >

> >

> >