Feeling a Bit Wishy Washy

[Guest guest]

So I met with my mother's doctors at the NH for the first time. We've

had several family meetings, but today was the first time I met her

doctors. I'm kinda wishy washy. I wanted to hear from them what they

thought about my mother and the disease and they didn't have much to

say at all. I expressed my appreciation to how well she's been doing

and that I think she's improved and in return I got a blank stare

from them (makes you wonder that they have LBD too - J/K ).

I expressed that the 20mg of Celexa was a good call b/c mom is less

weepy now - again blank stare.

I asked what their thoughts were for a dementia med to be used - and

they don't think it's necessary... Don't know if that's a good thing

or a bad thing. I'm glad they're not the type to throw meds around,

but then again, wouldn't a dementia med help? Not make her better,

but keep her from getting worse for a bit... But the question is - is

she too far gone for any benefit? But I didn't get a real answer to

that either - I suggested that that's the case and they pretty much

agreed (note to self: don't put words in their mouths - have them say

it themselves..)

I asked if they felt mom had RLS or if it was just involuntary

movement. They said they didn't think she had RLS, just that it's the

disease... (??) I don't know how 'in tune' they are with LBD after

this meeting (shoulda brought another LBD DVD) Maybe I'll mail them

one...

Bottom line: the doctors didn't entertain me like mom's neurologist -

he wants to know what's going on and how she is and family history

info, etc. I asked these guys if they had questions and they didn't...

I don't know - maybe I started off on the wrong foot by arriving late

(even though I wasn't aware they were expecting me at a set time)...

They did say to continue with the visits, and showing her pictures,

and what to do if I need to contact them, etc. And they're nice

enough - I was just expecting a little more engaged conversation I

guess...

Oh - and they didn't know of mom's " miracle call " - the request that

the head nurse call me on 3/18 + 3/24 - that's BIG NEWS in my

opinion - I'm surprised they didn't know about it...

; loving daughter of Maureen of Boston, MA; finally diagnosed

with LBD on 2/06 after also being diagnosed with everything from AD

to Vascular Dementia caused by mini strokes to Binswengers...; was

victim to rapid decline from Risperidone (or combination of

Risperidone with other drugs OR possibly received another " bad drug "

when she was observed/tested in a hospital in 10/05); in a NH since

11/05. Update: on antidepressant Celexa, 20mg (still teary, but not

as weepy)