Re: New to group/Supplements to use?

[Guest guest]

Welcome, Anne. Did you try more than one SSRI? Sometimes one can

work, when another can be a disaster. Just a thought.

There are other things to try too. Inositol is one thing that some

have had success with. We tried it and didn't, unfortunately.

Other things are Fish Oil, Magnesium, and some things others have

mentioned by Natural Remedies(?). Pure Calm comes to mind.

I'm sure others will speak up once they see your post. There are many

who've tried other things and have had some success.

Is your son also seeing a good therapist that specializes in the

treatment of OCD, using CBT (cognitive behavioral therapy) and ERP

(exposure and response prevention)? That is the recommended first

line of treatment for OCD. Using ERP has been proven to make

permanent physical changes to the brain. Our son has benefited

greatly from it.

Glad you found us. This is great place to get info and support. You

will find many here who know what you are dealing with and going through.

BJ

-- In , " nycbyline "

wrote:

>

> Hi,

>

> My son, just turned 11, has a lot of OCD behavior. One thing that

has helped for periods of

> time is Zithromax (antibiotic). We tried SSRIs with terrible side

effects.

>

> What supplements would help....inositol, for example? Can someone

clue me in on

> appropriate supplements and dosages for a 65 lb, boy? Thanks very much.

>

> Anne

>

[Guest guest]

Hi Anne, I see BJ mentioned some things. Here is an article

regarding inositol use for OCD:

http://westsuffolkpsych.homestead.com/Inositol_and_OCD.html

Note that different brands of inositol powder are different so far

as " strength " , that is 1/4 tsp will equal different mg than the

article states.

My son was turning 12 when he went on it. We ended up around...14

grams or so and OCD was pretty bad. Some people have benefitted from

much less, even 6 grams. My son is now 19. Inositol did help the

first time we used it but tried it again in high school, even at

higher dosages but not a bit of help. Have tried other things too,

no help yet but still trying. He doesn't want a prescription again

though I'd be happy for him to go back on Celexa.

>

> Hi,

>

> My son, just turned 11, has a lot of OCD behavior. One thing that

has helped for periods of

> time is Zithromax (antibiotic). We tried SSRIs with terrible side

effects.

>

> What supplements would help....inositol, for example? Can someone

clue me in on

> appropriate supplements and dosages for a 65 lb, boy? Thanks very

much.

>

> Anne

>

[Guest guest]

Hi, Anne. Yes, OCD is considered an anxiety disorder. Although, some

don't feel anxiety attached to their rituals (like our son). Instead

they need it to feel " just right " , or they have a hard time letting it

go and moving on. Our son had anxiety attached to his OCD " intrusive

thoughts " and his GAD thoughts. The meds helped bring the anxiety

levels down, and eventually made them stop.

How long was he on them (Zoloft; Prozac), Anne? Our son had that

reaction both times he was on Celexa. But, it stopped as his body

adjusted to the meds. It's a common side effect. It would flare up

with each dosage increase, then calm back down once his body adapted.

He would literally fall down on the sofa at times and say, " I feel so

hyper " .

As long as he isn't showing aggression and signs of BPD, that should

pass. What did the prescribing doctor think? Was is a pediatric

psychiatrist that saw him? It can be so hard to find people who

really understand OCD. <sigh> It's so frustrating!

Hope something helps soon. Maybe some of the natural stuff will work

for him, then you won't have to worry about the side effects of the

SSRIs.

BJ

> > >

> > > Hi,

> > >

> > > My son, just turned 11, has a lot of OCD behavior. One thing that

> > has helped for periods of

> > > time is Zithromax (antibiotic). We tried SSRIs with terrible side

> > effects.

> > >

> > > What supplements would help....inositol, for example? Can someone

> > clue me in on

> > > appropriate supplements and dosages for a 65 lb, boy? Thanks

very much.

> > >

> > > Anne

> > >

> >

>

[Guest guest]

My son just had 3-D scan and Dr recommended staying away from SSRI or

any serotonin booster based on his scan and past failures with

meds..so we are now trying dopamine booster type meds..

So I started him on a tiny 2.5 dexadrine..wow..he could finally

concentrate in school(it's a dopamine booster). So he gets ativan to

cool down the anxiety and the dexadrine so he can think and so far

that combo is working for him. Dr also wants us to try amantadine

which is a dopamine booster...I'm not thrilled about the ativan but

it seems to be the only med to stop the anxiety and the Dr said if he

has anxiety he can't think!!

> > >

> > > Hi,

> > >

> > > My son, just turned 11, has a lot of OCD behavior. One thing

that

> > has helped for periods of

> > > time is Zithromax (antibiotic). We tried SSRIs with terrible

side

> > effects.

> > >

> > > What supplements would help....inositol, for example? Can

someone

> > clue me in on

> > > appropriate supplements and dosages for a 65 lb, boy? Thanks

very

> > much.

> > >

> > > Anne

> > >

> >

>

[Guest guest]

, I'm so glad there's been some improvement! Now, did the doctor

want to add amantadine as a 3rd med or switch him to it? Just thinking

the longer he is on dexadrine (recently begun), the more improvement he

might see on it?? Keep us updated on progress!

>

> My son just had 3-D scan and Dr recommended staying away from SSRI or

> any serotonin booster based on his scan and past failures with

> meds..so we are now trying dopamine booster type meds..

> So I started him on a tiny 2.5 dexadrine..wow..he could finally

> concentrate in school(it's a dopamine booster). So he gets ativan to

> cool down the anxiety and the dexadrine so he can think and so far

[Guest guest]

Is this a spect scan? If so, what doctor did you use? I have been thinking about

getting a

spect scan for two of my sons (now ages 8 and 11) for years. Some doctors feel

that this

can be used for research purposes only, however others I have talked to feel it

can help

with RXing the correct medication based on where there is problems in blood

flow, etc.

Any thoughts???

Anne

> > > >

> > > > Hi,

> > > >

> > > > My son, just turned 11, has a lot of OCD behavior. One thing

> that

> > > has helped for periods of

> > > > time is Zithromax (antibiotic). We tried SSRIs with terrible

> side

> > > effects.

> > > >

> > > > What supplements would help....inositol, for example? Can

> someone

> > > clue me in on

> > > > appropriate supplements and dosages for a 65 lb, boy? Thanks

> very

> > > much.

> > > >

> > > > Anne

> > > >

> > >

> >

>

[Guest guest]

Yes, BJ, it is very frustrating knowing exactly what to do. We are going to a

new

neurologist soon, so maybe he can give some insight and new protocols. We have

been to

a ped. psychiatrist as well.

> > > >

> > > > Hi,

> > > >

> > > > My son, just turned 11, has a lot of OCD behavior. One thing that

> > > has helped for periods of

> > > > time is Zithromax (antibiotic). We tried SSRIs with terrible side

> > > effects.

> > > >

> > > > What supplements would help....inositol, for example? Can someone

> > > clue me in on

> > > > appropriate supplements and dosages for a 65 lb, boy? Thanks

> very much.

> > > >

> > > > Anne

> > > >

> > >

> >

>

[Guest guest]

Med update,,,my son has been a zombie this week! I started neurontin,

small dose at night..only 100mg and it's been terrible..he's not

sleeping and is spaced out all day. I am not going to give it..I know

my Dr wants me to try it..but we are all going to loose our minds

from lack of sleep!I have seen no change in OCD and anxiety

either...I will keep on the ativan & dexadrine to concentrate in

school. I think we still need something for intrusive thoughts,,

> > > > >

> > > > > Hi,

> > > > >

> > > > > My son, just turned 11, has a lot of OCD behavior. One

thing

> > that

> > > > has helped for periods of

> > > > > time is Zithromax (antibiotic). We tried SSRIs with

terrible

> > side

> > > > effects.

> > > > >

> > > > > What supplements would help....inositol, for example? Can

> > someone

> > > > clue me in on

> > > > > appropriate supplements and dosages for a 65 lb, boy?

Thanks

> > very

> > > > much.

> > > > >

> > > > > Anne

> > > > >

> > > >

> > >

> >

>

[Guest guest]

Have they tried an antidepressant like Prozac or Zoloft? This is what

our neurologist would recommend next if my sons mood swings and

compulsive behaviors don't settle down with 5 mg of abilify. I believe

we would use zoloft along with the abilify. 5 mg of abilify is all he

wants him on because of his small size and age. I wondered if you'd

tried antidepressants before. For supplements we have tried 5HTP and

GABA calm along with monolaurin and a yeast fighter nystatin before.

It did seem to help with his impulsiveness but not enough to not have

to go with the meds. He was still off task too much and fallinh behind

at school. The abilify keeps him focused, less ADHD and anxiety, and

less tics. I hope you find answers soon. Dr. from Shands

psychiatry clinic recommended tennex for the tics and adhd. Does your

son have tics?

Michele

> > > > > >

> > > > > > Hi,

> > > > > >

> > > > > > My son, just turned 11, has a lot of OCD behavior. One

> thing

> > > that

> > > > > has helped for periods of

> > > > > > time is Zithromax (antibiotic). We tried SSRIs with

> terrible

> > > side

> > > > > effects.

> > > > > >

> > > > > > What supplements would help....inositol, for example? Can

> > > someone

> > > > > clue me in on

> > > > > > appropriate supplements and dosages for a 65 lb, boy?

> Thanks

> > > very

> > > > > much.

> > > > > >

> > > > > > Anne

> > > > > >

> > > > >

> > > >

> > >

> >

>