Re: Re: Barb

[Guest guest]

Barb,

Yes my kids do see one psychiatrist.(also an hour away)We have an appointment

tomorrow morning at 8:30. My son's psychiatrist talked on the phone with the

psychologists I took him to last week and came up with the once a week plan.

 

My son can't keep up with his schoolwork. If he misses a day a week it will be

detrimental to his schoolwork. Like you mentioned the meds are not working for

him. They work against each other and nobody has any answers regarding this.

A friend of mine has a child with all the same symptoms as my son and had a

special test administered to him called the vineland test.Apparantly this test

is the test that looks for social functioning, behavior and sensory dysfunction

as well as intelligence. I never heard of it before. He has bad thoughts etc,

etc, and she said he was misdiagnosed with the OCD. He has Aspergers with OCD

and ADHD tendencies. They found this was why the meds didn't work. She suggested

I have that test performed on my son. She said if my daughter truly has the

PDD-NOS she was diagnosed with the meds won't work for her either. She really

made me think.

Have you ever heard of that?

Hugs

Judy

Subject: Re: Just checking in, it's been a while...----Judy

To:

Date: Sunday, October 19, 2008, 10:57 AM

Hi Judy,

So sorry to hear about your daughter. Sigh.... Enough already!!! Do

you have one psychiatrist you have found that you feel confident in

(at all)? I guess I'm just thinking if you had stability in this

regard at least, so your kids could be tracked by one person.

The meds and all that go with it just suck, but if it will help your

daughter to be stable are necessary. I hope you can go slowly and

keep it low dose. Going into the dark months, brain chemistry

affected, I'm feeling it too... Definitely a seasonal aspect to the

bipolar. Hope the appt goes well on Monday.

The hour and a half drive for your son's care is a big issue for your

whole family I'm sure. But, I'm just thinking at 6, how much school

will he be missing really? If you really think it's a good program

and it will teach him the tools he needs to turn the disorder around,

personally I'd do it. Guess it depends how good that program/person

is,and how much function is affected. I hope you are able to turn

something up closer to home though.

With the inpatient, that would only be a short term answer, usu for

meds, so would not address the OCD. Seems like the medication piece

is perhaps the biggest hurdle for your kids?! We were the same for

so long. You know that lower dose and going slow was the critical

part for us, and to not keep making changes. Hard when you haven't

found any good answers yet. But as I said if you can stick with one

doctor and work a strategy, maybe???

It's been such a long road for you with all this.

Hugs YOU!!!

Barb

>

> Hi Barb,

> Well unfortunately my daughter is becoming manic again. I have a

psychiatrist appt for her on Monday morning first thing. I really

don't want to have to put her on another mood stabilizer, but I guess

it's inevitable at this point.

> As far as my son goes, we took him to the appointment I waited for

so long for, just to find out that he indeed has OCD with a huge

amount of anxiety ( which we already knew) and they don't diagnose

anything else there besides anxiety disorders, therefore, we never

could get their opinion as to whether or not they felt he had bipolar

or pdd-nos , aspergers, etc, etc. they want him to do 20 weeks of

therapy, which is the therapy he needs(CBT and ERP). The problem is

the place is 1 1/2 hours away and he needs this once a week so he'd

end up having to stay back in school. (he's already so far behind)

He'd miss a day a week.

> I called in my states voluntary dept of children and families for

help.I don't know what to do. I have to find a place that can do

this, that is not so far away or if they could do it in a shorter

period of time. This is just not going to work.He'd probably be

better off inpatient for a week than having to go for 5 months once a

week. We also don't know what else is going on besides the OCD. I was

under the impression they did a thorough eval.If there is nothing

else going on but OCD it's all worth it, but if there is , this will

be a waste of time and money

> I can never win

> UUUGGGGHHHHHHH! !!!!!

> Hugs

> Judy

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