What a Wonderful Day....

[Guest guest]

This AM I received a call from the nursing home by the head nurse.

She told me that my mother asked her to call me to find out when I

was coming for my visit.

WHAT?! ARE YOU KIDDING?! THAT'S AMAZING!!

You have to understand my mother has been in the LBD-coma like state

for a long time after the biopsy. Many family members didn't think

she'd make it. The family priest called me to say that he thought mom

would pass in a couple of days. And then, the past week she has been

close to how she was before the biopsy. This action (asking the head

nurse to call to see when I was coming) is very close to how she was

before the stay at the hospital - the hospital where she received the

wrong meds. She was calling me all the time before that hospital stay

and then that action/desire stopped when she received the wrong

meds...

I arrived to find my mother in the dining room. And she started to

cry immediately. She is saying so many new words and phrases I can't

even believe it!

We went into her room for a bit - she said things like " You have a

beautiful voice, " When we were listening to Boccelli

she said " This music is beautiful. " I said to her that she made me

happy. And she said " How happy are you? " She'd say new words and

phrases, she'd hold my hands, she cried (which is making us want to

get her on an ant-depressant real soon), she zippered up my jacket,

she straightened out the blanket on the bed, etc.

We went down to her PT b/c those that work with her down there wanted

to show me how much she has improved the past few days. They're

working on getting her out of the jerri chair into a regular

wheelchair. They call mom their MIP - Most Improved Patient. They

told me that mom " hangs out " with them in the PT room for 2-3 hours.

I don't know what happened?! It's like she woke up from a coma. I

don't know if it's a Lewy 'good day' and she'll go back to where she

was. I don't know if it's b/c she has all the drugs out of her system

and this is how she is now. I usually go in and visit before work on

Friday - and stayed longer this AM b/c of her improvement - and of

course didn't want to leave, but had to get to work. And would love

to be with her tomorrow - but already have it planned to visit Sunday

and I do need one day for my chores and to relax... But also if this

is a temporary thing don't want to miss out...

My mother's sister changed her plans and went in for lunch today

instead of waiting for after work. Brought mom a green carnation -

and asked my mother what special occassion does this green carnation

represent - and mom said St. 's Day. Can you believe it? It's

definitely a miracle.

Everyone at the nursing home was so excited. The nurses, the aides,

the other personnel. They kept stopping us to talk to mom. They all

want to take it all in. Everyone couldn't stop smiling. The Reverand

at the nursing home told me that she has been bringing mom to their

mass and she picks up on the prayers and does the sign of the cross.

It's like I'm dreaming! It's absolutely amazing! It's a miracle! Even

if it was for just a day - it's a miracle! Mom was able to express

some of her feelings towards me. I was able to explain things to her.

We'd go around the home and people would say " hi " and mom would

say " hello, how are you? "

Unbelievable... I'm still in shock over the whole day... And I hope

she'll be the same come Sunday when I visit... I'm bringing projects

(got my adult coloring books)! I'm bringing the massage/music

therapist! Another aunt & cousin intend to visit that day too!

; loving daughter of Maureen of Boston, MA; finally diagnosed

with LBD on 2/06 after also being diagnosed with everything from AD

to Vascular Dementia caused by mini strokes to Binswengers...; was

victim to rapid progression from Risperidone (or combination of

Risperidone with other drugs OR possibly received another " bad drug "

when she was observed/tested in a hospital in 10/05); in a NH since

11/05.