Help needed

[Guest guest]

I would suggest going to Cranial Technologies in Dallas for a free

consult (cranialtech.com). They will give you an honest opinion and

will take pictures.

My son had significant ear and facial asymmetry. He was banded at 5

months and everything realigned perfectly. The flat spot didn't

concern us nearly as much as the asymmetries.

Let us know what you decide

Dane's mom DOC Grad

> I have a 7 month old baby boy-my ped. started to notice

his " slight "

> flat spot on his left rear side of his head around 2months old

(told

> me to get him to sleep on his right

> which I did try-he always went back to the left side tho in the

> nihgt!!) At his 6mo c/up refered me to the Cranial exper. at

> Childrens Hospital of Dallas-they say his spot is not very

> dramatic/noticable and not too bad it is there tho - his ears

however

> are not even at all, I did not even realize that untill I was at

the

> appt and she said " see " look down - she was right, but looking at

him

> normal you cannot tell-(well, now I can a tiny bit)-she said its a

> mild to moderate case because of the ears-I dont know what to do-

> should I do it and try to correct the flat area-WILL IT HELP THE

> EARS ?? That is my main concern, no head or ears are perfect, but

I

> worry for later in life when he wears sunglasses or eye glasses or

> his hair. The Dr said that it is a go either way type situation

and I

> have to make the choice-they are sending his info to the ct clinic

> and will be calling me with insurance approval or as I find out

may

> be denial I have BCBS and a casting appt. He had a head/scull xray

> and all is developing perfect! Every one close to me says they

cant

> even tell of the head or ears-but will it get worse or stay the

same

> or can it get better? He is up and crawling around a lot now, in

his

> saucer etc...he has no problumes in his face and really looks both

to

> the left and the right, I have moved all his crib toys to the

> otherside, but he goes back and forth-so it is not like he anymore

> prefers one side to the other as much! I just want to do the best

for

> my child-but if his ears wont straighten significatly or his case

is

> more mild is it necessary to go thru all of this????? Please

> help!!!!!!!This is soooo hard-it is sooo hard- I really went to

his

> appt more as a formality to please my ped.- did not expect to have

> more than a " normal " flatspot from laying on it kinda thing!!

> anything you can say or suggest! I just don't want to wait to

long, I

> hear the closer they get to 1yr the longer they have to wear it!!

> THANK YOU!!!!!!!!

>

>

> There are 4 replies to this post.

[Guest guest]

Hi,

Both of my twins had misaligned ears, forehead bossing and moderate/severe plagio. We tried repositioning, but it did not help. After less than 2 months in DOC bands, the assymetries are pretty much gone. We went to CT in Dallas, and they were awesome. I would definitely go down there and talk to them. Where do you live? I live in , so it was only about 30 minutes in bad traffic, but I'd drive much further for the awesome results we got. Good luck with your decision.

Gail, Sam and Sara's mom, DOC grads

HELP NEEDED

I have a 7 month old baby boy-my ped. started to notice his "slight" flat spot on his left rear side of his head around 2months old (told me to get him to sleep on his rightwhich I did try-he always went back to the left side tho in the nihgt!!) At his 6mo c/up refered me to the Cranial exper. at Childrens Hospital of Dallas-they say his spot is not very dramatic/noticable and not too bad it is there tho - his ears however are not even at all, I did not even realize that untill I was at the appt and she said "see" look down - she was right, but looking at him normal you cannot tell-(well, now I can a tiny bit)-she said its a mild to moderate case because of the ears-I dont know what to do-should I do it and try to correct the flat area-WILL IT HELP THE EARS ?? That is my main concern, no head or ears are perfect, but I worry for later in life when he wears sunglasses or eye glasses or his hair. The Dr said that it is a go either way type situation and I have to make the choice-they are sending his info to the ct clinic and will be calling me with insurance approval or as I find out may be denial I have BCBS and a casting appt. He had a head/scull xray and all is developing perfect! Every one close to me says they cant even tell of the head or ears-but will it get worse or stay the same or can it get better? He is up and crawling around a lot now, in his saucer etc...he has no problumes in his face and really looks both to the left and the right, I have moved all his crib toys to the otherside, but he goes back and forth-so it is not like he anymore prefers one side to the other as much! I just want to do the best for my child-but if his ears wont straighten significatly or his case is more mild is it necessary to go thru all of this????? Please help!!!!!!!This is soooo hard-it is sooo hard- I really went to his appt more as a formality to please my ped.- did not expect to have more than a "normal" flatspot from laying on it kinda thing!! anything you can say or suggest! I just don't want to wait to long, I hear the closer they get to 1yr the longer they have to wear it!! THANK YOU!!!!!!!! There are 4 replies to this post.For more plagio info

[Guest guest]

Hi,

Welcome to the group. Are you near a Cranaial Tech clinic? If so, I

suggest you go and get a free evaluation. They will be honest with

you and tell you if they feel your son will benefit from a band.

Good luck making you decision. Please keep us posted.

> I have a 7 month old baby boy-my ped. started to notice

his " slight "

> flat spot on his left rear side of his head around 2months old

(told

> me to get him to sleep on his right

> which I did try-he always went back to the left side tho in the

> nihgt!!) At his 6mo c/up refered me to the Cranial exper. at

> Childrens Hospital of Dallas-they say his spot is not very

> dramatic/noticable and not too bad it is there tho - his ears

however

> are not even at all, I did not even realize that untill I was at

the

> appt and she said " see " look down - she was right, but looking at

him

> normal you cannot tell-(well, now I can a tiny bit)-she said its a

> mild to moderate case because of the ears-I dont know what to do-

> should I do it and try to correct the flat area-WILL IT HELP THE

> EARS ?? That is my main concern, no head or ears are perfect, but I

> worry for later in life when he wears sunglasses or eye glasses or

> his hair. The Dr said that it is a go either way type situation and

I

> have to make the choice-they are sending his info to the ct clinic

> and will be calling me with insurance approval or as I find out may

> be denial I have BCBS and a casting appt. He had a head/scull xray

> and all is developing perfect! Every one close to me says they cant

> even tell of the head or ears-but will it get worse or stay the

same

> or can it get better? He is up and crawling around a lot now, in

his

> saucer etc...he has no problumes in his face and really looks both

to

> the left and the right, I have moved all his crib toys to the

> otherside, but he goes back and forth-so it is not like he anymore

> prefers one side to the other as much! I just want to do the best

for

> my child-but if his ears wont straighten significatly or his case

is

> more mild is it necessary to go thru all of this????? Please

> help!!!!!!!This is soooo hard-it is sooo hard- I really went to his

> appt more as a formality to please my ped.- did not expect to have

> more than a " normal " flatspot from laying on it kinda thing!!

> anything you can say or suggest! I just don't want to wait to long,

I

> hear the closer they get to 1yr the longer they have to wear it!!

> THANK YOU!!!!!!!!

>

>

> There are 4 replies to this post.

[Guest guest]

Hi & welcome to our group!

Are you near the Dallas Cranial Technologies clinic? Their address at

www.cranialtech.com clinic locations. If so, I would suggest

bringing your peanut to them for a free evaluation. They will give

you their HONEST opinion and not recommend a band if they feel your

son's case is too mild.

It is true, the younger you'd begin treatment, the shorter time he'd

need to wear it & the better correction he'd most likely receive.

You sound quite concerned w/his flatness & assymetrical ears. If

your insurance would cover the cost of a band, then I'd suggest going

ahead with it. He's still at a great younger age to get great

correction. Believe it or not, most babies don't mind their bands

for one second, they sleep, eat, play just as before while wearing

their band.

Good luck w/your difficult decision - it was difficult enough for me

to decide what to do & my daughter's plagio was severe

Please let us know what you do. Welcome again.

Debbie Abby's mom DOCGrad

MI

> I have a 7 month old baby boy-my ped. started to notice

his " slight "

> flat spot on his left rear side of his head around 2months old

(told

> me to get him to sleep on his right

> which I did try-he always went back to the left side tho in the

> nihgt!!) At his 6mo c/up refered me to the Cranial exper. at

> Childrens Hospital of Dallas-they say his spot is not very

> dramatic/noticable and not too bad it is there tho - his ears

however

> are not even at all, I did not even realize that untill I was at

the

> appt and she said " see " look down - she was right, but looking at

him

> normal you cannot tell-(well, now I can a tiny bit)-she said its a

> mild to moderate case because of the ears-I dont know what to do-

> should I do it and try to correct the flat area-WILL IT HELP THE

> EARS ?? That is my main concern, no head or ears are perfect, but I

> worry for later in life when he wears sunglasses or eye glasses or

> his hair. The Dr said that it is a go either way type situation and

I

> have to make the choice-they are sending his info to the ct clinic

> and will be calling me with insurance approval or as I find out may

> be denial I have BCBS and a casting appt. He had a head/scull xray

> and all is developing perfect! Every one close to me says they cant

> even tell of the head or ears-but will it get worse or stay the

same

> or can it get better? He is up and crawling around a lot now, in

his

> saucer etc...he has no problumes in his face and really looks both

to

> the left and the right, I have moved all his crib toys to the

> otherside, but he goes back and forth-so it is not like he anymore

> prefers one side to the other as much! I just want to do the best

for

> my child-but if his ears wont straighten significatly or his case

is

> more mild is it necessary to go thru all of this????? Please

> help!!!!!!!This is soooo hard-it is sooo hard- I really went to his

> appt more as a formality to please my ped.- did not expect to have

> more than a " normal " flatspot from laying on it kinda thing!!

> anything you can say or suggest! I just don't want to wait to long,

I

> hear the closer they get to 1yr the longer they have to wear it!!

> THANK YOU!!!!!!!!

>

>

> There are 4 replies to this post.

[Guest guest]

Hey there, Sandie. You did the right thing, changing rheumy's. I had

to do that as well because my first one was a joke. As for ignoring

your RA, forget it. It won't work. Been there tried that!! It just

rears its ugly head and says, very loudly, " HERE I AM " !!! When I

first went on methotrexate I got nausea with it. Everyone reacts

differently to it. It takes it a while to work, so you should start

it now. But, if you are that unsure, then it shouldn't hurt to wait

until you see your new rheumy. Many of the RA meds are scarey. I

switched recently to the injectable methotrexate and I am not having

those side effects. In fact, I think it's been more effective.

Hopefully you will have that appointment soon. Good luck to

you...Marina

[Guest guest]

Methotrexate was the first RA medication prescribed by my rheumy when

he diagnosed me. He gave me a brochure about it. I read it and

concluded that if it didn't kill me, it might help me a little. I was

scared, too, but I was also desperate, so I took the pills. I didn't

have any adverse side effects except a low white blood cell count.

If you take methotrexate and do have bad side effects, your rheumy will

try something else. The damage that RA can do is much worse. I think

that the reason that I'm doing so well now, on Enbrel, is that my

rheumy attacked it aggressively from the beginning, before damage was

done to my joints.

Just my two cents' worth. Sue

On Friday, April 29, 2005, at 09:00 PM, slmcc93@... wrote:

> he prescribed lortab for the pain and methotrexate for the RA. I am

> scared to

> take the methotrexate. I know it should help but the side effects

> scare the

> heck out of me. I am sure many of you are on the drug. Can you tell me

> what to

> expect? it is just sitting on my counter staring me in the face and I

> cannot

> bring myself to take them. Part of me wants to totally ignore that I

> have RA

> and pretend that I am fine. I wish that were true.

[Guest guest]

--- slmcc93@... wrote:

> Hi All,

> I am very new to this group and also to RA. I found

> out I had it in November

> of 2004.

> Well, as you may know, I have decided to switch

> rheumy as the one I had just

> put me on Prednisone, plaquenil and voltaren. he

> told me nothing of the side

> effects of the prednisone and even though I told him

> I did not want to stay on

> it, he refused to put me on any other meds due to

> the fact that " they need to

> check my liver every month " Well, none of the meds

> worked for me and I went

> off the prednisone. Armed with my research from this

> group I went back to see

> him. he was not happy at all but did send me for

> x-rays of my hands and feet to

> see what damage has been done. on my way out he

> also told me that I should

> " try to do some tai chi " when I laughed in his face

> and explained that I have

> three kids 2 of them under 3 and a hubby who works

> long hours he then

> said " stress makes it worse " well DUH.

> anyway, I went to see my primary doc to get a new

> referral and he actually

> LISTENED to me. I explained my terrible pain how I

> have totally changed my

> eating habits 6 months ago and also have been doing

> walking exercise tapes (they

> are harder than you think) for 3-4 days a week a

> mile and a half each time and

> haven lost any weight. also that I just want to be

> able to play with my kids

> and not be in pain.

> he prescribed lortab for the pain and methotrexate

> for the RA. I am scared to

> take the methotrexate. I know it should help but the

> side effects scare the

> heck out of me. I am sure many of you are on the

> drug. Can you tell me what to

> expect? it is just sitting on my counter staring me

> in the face and I cannot

> bring myself to take them. Part of me wants to

> totally ignore that I have RA

> and pretend that I am fine. I wish that were true.

>

> Oh my x-rays show that I have a bone spur in my Good

> foot and that my bones

> are deteriorating in my other foot-lovely don't you

> think?

> Any and all comments are welcome, I am sorry this is

> so long.

> I should have my appointment with my new rheumy

> soon.

> Thanks for listening.

>

> sandie

>

> I have been on MTX 10 mgs weekly for 2 years with

very little side effects. With MTX you should also

take folic acid to minimize any side effects and also

have labs checked frequently. I usually feel tired the

day after I take the MTX but function. I had x-rays

done on my feet hands and wrist this week with no

damage done. When I was first diagnosed my labs were

all elevated and I was miserable. My doc also gave me

a dexpac until I could get started on the MTX. About

a month after starting the MTX I noticed a big

improvement in all joints and took only MTX folic acid

and naproxen for almost 2 years. Just during the last

couple of months I have been having more problems-

pain, stiffness.weakness etc. My labs are elevated

again and we are increasing the MTX to 15 mgs weekly

and adding low dose decadron (steroids) temporarily..

If it will prevent the bone and joint damage and keep

me functioning it is definitely worth a little

tiredness one or two days a week. I live a very

active lifestyle and have slowed down some but still

keep most things going. I don't think that would have

been the case otherwise. linda

> removed]

>

>

>

>

>

__________________________________________________

[Guest guest]

Sandie, I have been taking Methotrexate and folic acid for several

years, and like you was afraid to take it as it is a " cancer " drug

(only in much higher doses)and I just knew I was going to die if I

took it! My feet hurt so bad I could hardly walk, my first hint that

something was wrong....my doctor said to wear good running shoes and

not go barefoot! This I did and the feet pain went away after a few

weeks (this was really a " flare " as I look back). A few months later

I developed a knot just above my elbow and the doctor took x-rays,

negative report. Another month or two I had MATCHING knots, one on

eack arm......the doctor looked at my hands and noticed the knuckles

were pink. Only then did he order a blood test for RF, sure enough it

was very high so he sent me to a rhumie doctor. I started out with

four pills a week taken on one day with folic acid daily (this keeps

the side effects of Methotrexate down), I had NO bad reactions. This

has been upped to 6 a year or so later after another " flare " brought

on by stress of father dying and settleing his estate, still no

problems with the dosage. Now I have the injections and like others

here I like them much better, doesn't go through the digestive tract

to cause other problems there (side effects). I still take folic acid

daily, and my next step when needed will be to combine Meth. with

Embrel or one of those type drugs. I have bloodwork done every two

months, and never a problem there. Hope you get to taking the

medicine, be sure to ask about folic acid....sounds awful, just a tiny

pill....healthy for you by its self! Betty

>

> I am sure many of you are on the drug. Can you tell me what to

> expect? it is just sitting on my counter staring me in the face and

I cannot

> bring myself to take them. Part of me wants to totally ignore that I

have RA

> and pretend that I am fine. I wish that were true.

>

> Oh my x-rays show that I have a bone spur in my Good foot and that

my bones

> are deteriorating in my other foot-lovely don't you think?

> Any and all comments are welcome, I am sorry this is so long.

> I should have my appointment with my new rheumy soon.

> Thanks for listening.

>

> sandie

>

>

>

[Guest guest]

I see these comments about 'side effects' all the time and have something to

say about it. I may be out of line, but this is my belief. Side effects are

listed as things that CAN happen, not that WILL happen. If we all looked at

those things, none of us would take any meds. I think that after a patient

is informed, he/she should be able to watch for these side effects after

taking the med in question. I've been taking prednisone since 1990, in doses

of 10-15 mg, and only gained weight while I was bed ridden. My eyes are

still good and almost not affected at all. I did, however, take Vioxx and

Celebrex, and had bad things happen, so I quit taking them and reported my

experience. Bottom line is, don't refuse to take a med because of scary

things that might happen, refuse them if they DO happen.

Sandie, I think you should at least try the MTX unless you have a real

foundation for refusing. As I said, don't let the side effects determine

your future, you have to do that. Good luck,

Dennis

[ ] help needed

> Hi All,

> I am very new to this group and also to RA. I found out I had it in

> November

> of 2004.

> Well, as you may know, I have decided to switch rheumy as the one I had

> just

> put me on Prednisone, plaquenil and voltaren. he told me nothing of the

> side

> effects of the prednisone and even though I told him I did not want to

> stay on

> it, he refused to put me on any other meds due to the fact that " they need

> to

> check my liver every month " Well, none of the meds worked for me and I

> went

> off the prednisone. Armed with my research from this group I went back to

> see

> him. he was not happy at all but did send me for x-rays of my hands and

> feet to

> see what damage has been done. on my way out he also told me that I

> should

> " try to do some tai chi " when I laughed in his face and explained that I

> have

> three kids 2 of them under 3 and a hubby who works long hours he then

> said " stress makes it worse " well DUH.

> anyway, I went to see my primary doc to get a new referral and he actually

> LISTENED to me. I explained my terrible pain how I have totally changed my

> eating habits 6 months ago and also have been doing walking exercise tapes

> (they

> are harder than you think) for 3-4 days a week a mile and a half each time

> and

> haven lost any weight. also that I just want to be able to play with my

> kids

> and not be in pain.

> he prescribed lortab for the pain and methotrexate for the RA. I am scared

> to

> take the methotrexate. I know it should help but the side effects scare

> the

> heck out of me. I am sure many of you are on the drug. Can you tell me

> what to

> expect? it is just sitting on my counter staring me in the face and I

> cannot

> bring myself to take them. Part of me wants to totally ignore that I have

> RA

> and pretend that I am fine. I wish that were true.

>

> Oh my x-rays show that I have a bone spur in my Good foot and that my

> bones

> are deteriorating in my other foot-lovely don't you think?

> Any and all comments are welcome, I am sorry this is so long.

> I should have my appointment with my new rheumy soon.

> Thanks for listening.

>

> sandie

[Guest guest]

Hi Sandie-

I, too, have tried to ignore or wish the RA away. My experience

with the medication, though, is that I have more variety - some bad

days, some fair days, and some good days as well. Whenever I have a

really good day, I always think that I am cured! More wishful

thinking I guess.

My personal experience with Methotrexate/Folic Acid has been

positive. I have had no adverse reactions or side effects, and it

has been helpful with the pain of RA.

I would suggest trying it - if it doesn't work for you/ or you

experience negative side effects - you can always discontinue it and

try something else.

I wish you the best,

in Texas

-- In , slmcc93@c... wrote:

> Hi All,

> I am very new to this group and also to RA. I found out I had it

in November

> of 2004.

> Well, as you may know, I have decided to switch rheumy as the one

I had just

> put me on Prednisone, plaquenil and voltaren. he told me nothing

of the side

> effects of the prednisone and even though I told him I did not

want to stay on

> it, he refused to put me on any other meds due to the fact

that " they need to

> check my liver every month " Well, none of the meds worked for me

and I went

> off the prednisone. Armed with my research from this group I went

back to see

> him. he was not happy at all but did send me for x-rays of my

hands and feet to

> see what damage has been done. on my way out he also told me that

I should

> " try to do some tai chi " when I laughed in his face and explained

that I have

> three kids 2 of them under 3 and a hubby who works long hours he

then

> said " stress makes it worse " well DUH.

> anyway, I went to see my primary doc to get a new referral and he

actually

> LISTENED to me. I explained my terrible pain how I have totally

changed my

> eating habits 6 months ago and also have been doing walking

exercise tapes (they

> are harder than you think) for 3-4 days a week a mile and a half

each time and

> haven lost any weight. also that I just want to be able to play

with my kids

> and not be in pain.

> he prescribed lortab for the pain and methotrexate for the RA. I

am scared to

> take the methotrexate. I know it should help but the side effects

scare the

> heck out of me. I am sure many of you are on the drug. Can you

tell me what to

> expect? it is just sitting on my counter staring me in the face

and I cannot

> bring myself to take them. Part of me wants to totally ignore that

I have RA

> and pretend that I am fine. I wish that were true.

>

> Oh my x-rays show that I have a bone spur in my Good foot and that

my bones

> are deteriorating in my other foot-lovely don't you think?

> Any and all comments are welcome, I am sorry this is so long.

> I should have my appointment with my new rheumy soon.

> Thanks for listening.

>

> sandie

>

>

>

[Guest guest]

Hi Sandie,

I agree very strongly with the response you're receiving. I was

diagnosed at age 4, and my parents soon tired of me spitting out my

meds and complaining about them. They stopped forcing me to take

them. I wasn't treated at all from age 6 to about 16. I had swan

neck deformities on my fingers (when the top portion of the finger

bends forward) in my early teens. Today my arthritis isn't too bad,

but I'm dealing with the terrible damage the many years of no

medications did to my body.

According to my rheumy, docs used to treat children very slowly for

fear of over medicating them. Now he says kids go straight onto Metho

in the effort to stop the damage. That's what RA is -- damage being

done to your joints. Untreated you will be much worse in the long run.

A life insurance salesman once told me that I may have to pay a higher

premium because of the damage medications do. I told my rheumy and he

said, Nonsense. Untreated, RA can attack your heart, eyes and shorten

your life. Not treating it takes the biggest toll.

People love to tell how they " brave it out " by not taking meds for

their various aches and pains. I just tell myself they must not be

suffering much! We with RA believe in meds because they are our life

lines. If I didn't take my Metho and Enbrel I would be operating at a

much lower level. It may take time to find what works for you, but we

must stop the progression of the disease.

And finally (IMHO), although I've heard a lot about people having to

have trouble with Metho and then their docs give them Folic Acid, my

rheumy offered up the Folic Acid the very first time I took it. I'm

not sure why they wouldn't, considering many people have problems

tolerating it without Folic Acid.

Good luck! Take the darn stuff and let us know what happens ;-)

Sharon

> Hi All,

> I am very new to this group and also to RA. I found out I had it in

November

> of 2004.

> Well, as you may know, I have decided to switch rheumy as the one I

had just

> put me on Prednisone, plaquenil and voltaren. he told me nothing of

the side

> effects of the prednisone and even though I told him I did not want

to stay on

> it, he refused to put me on any other meds due to the fact that

" they need to

> check my liver every month " Well, none of the meds worked for me and

I went

> off the prednisone. Armed with my research from this group I went

back to see

> him. he was not happy at all but did send me for x-rays of my hands

and feet to

> see what damage has been done. on my way out he also told me that I

should

> " try to do some tai chi " when I laughed in his face and explained

that I have

> three kids 2 of them under 3 and a hubby who works long hours he then

> said " stress makes it worse " well DUH.

> anyway, I went to see my primary doc to get a new referral and he

actually

> LISTENED to me. I explained my terrible pain how I have totally

changed my

> eating habits 6 months ago and also have been doing walking exercise

tapes (they

> are harder than you think) for 3-4 days a week a mile and a half

each time and

> haven lost any weight. also that I just want to be able to play with

my kids

> and not be in pain.

> he prescribed lortab for the pain and methotrexate for the RA. I am

scared to

> take the methotrexate. I know it should help but the side effects

scare the

> heck out of me. I am sure many of you are on the drug. Can you tell

me what to

> expect? it is just sitting on my counter staring me in the face and

I cannot

> bring myself to take them. Part of me wants to totally ignore that I

have RA

> and pretend that I am fine. I wish that were true.

>

> Oh my x-rays show that I have a bone spur in my Good foot and that

my bones

> are deteriorating in my other foot-lovely don't you think?

> Any and all comments are welcome, I am sorry this is so long.

> I should have my appointment with my new rheumy soon.

> Thanks for listening.

>

> sandie

>

>

>

[Guest guest]

I'm looking for that same article. I can't find it.

Let's locate this damn thing.

I am moving to Greenville, SC in March 2006 &

NEED that bit of information.

Michele - w/ one L . Thanks. LOL

[Guest guest]

What article?

--- isoaa@... wrote:

> I'm looking for that same article. I can't find it.

> Let's locate this damn thing.

>

> I am moving to Greenville, SC in March 2006 &

> NEED that bit of information.

>

> Michele - w/ one L . Thanks. LOL

>

>

> [Non-text portions of this message have been

> removed]

>

>

Barb Katsaros

barbkatsaros@...

__________________________________________________

[Guest guest]

It's just michele having a middle aged moment :-)

=doris

>

> > I'm looking for that same article. I can't find it.

> > Let's locate this damn thing.

> >

> > I am moving to Greenville, SC in March 2006 &

> > NEED that bit of information.

> >

> > Michele - w/ one L . Thanks. LOL

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

> Barb Katsaros

> barbkatsaros@...

>

> __________________________________________________

>

[Guest guest]

Hi Everyone,

A dear friend is looking for a good behavior consultant and therapists for

her 5-year-old grandaughter who is blind and has autism. The child has

language and is musically gifted and has been in a therapeutic school

program, but the family now wants more intensive behavioral services. Money

is no obstacle for this family. You can reply to me privately if you wish.

Thanks!

Zeiger

daytripper17@...

[Guest guest]

If she's high functioning, look at the standards for whatever grade she's in and

adjust them according to reasonable expectation for achievement. Make them

realistic, so she doesn't get frustrated. Remember you can always call another

IEP if she quickly masters goals. I'm not sure where you're located, but grade

standards can be found on most states' department of education websites or your

school should have them. My son has mild/moderate autism and this is the method

I use for him, although much more adjustment is needed than it probably would be

with a child who is high functioning.

Good luck!

Robyn

From: Sheri <eszbi5@...>

Subject: Help needed

Date: Tuesday, September 15, 2009, 6:39 PM

 

Do any of you have measurable goals that might pertain to a

high functioning child.  I have been scouring the Internet for measurable goals

for

an autistic child and honestly she has mastered all of the goals that I

have found.  I am at a loss and I have an IEP meeting in 10 days so

there is not much time to prepare.  Thanks in advance,  Sheri

[Guest guest]

You can also look at the grade level above and work on goals toward

those objectives. This is what we do. Then our daughter has an easier

time mastering some of the standards because she has tools and

strategies to draw on.

Robyn & Greg Coggins wrote:

>

>

> If she's high functioning, look at the standards for whatever grade

> she's in and adjust them according to reasonable expectation for

> achievement. Make them realistic, so she doesn't get frustrated.

> Remember you can always call another IEP if she quickly masters goals.

> I'm not sure where you're located, but grade standards can be found on

> most states' department of education websites or your school should

> have them. My son has mild/moderate autism and this is the method I

> use for him, although much more adjustment is needed than it probably

> would be with a child who is high functioning.

>

> Good luck!

>

> Robyn

>

>

>

> From: Sheri <eszbi5@... <mailto:eszbi5%40>>

> Subject: Help needed

> <mailto:%40>

> Date: Tuesday, September 15, 2009, 6:39 PM

>

>

>

> Do any of you have measurable goals that might pertain to a high

> functioning child. I have been scouring the Internet for measurable

> goals for

>

> an autistic child and honestly she has mastered all of the goals that I

>

> have found. I am at a loss and I have an IEP meeting in 10 days so

>

> there is not much time to prepare. Thanks in advance, Sheri

>

>

[Guest guest]

Interesting question. I work with an advocate that is a board member of the

advisory board for ESE for Miami Dade School board. She is very services focused

and when we each the goals area she has literally told me at an IEP to set them

any where. 1- they do not use them to set his curriculum, 2) they do not effect

any additional services (Services are set in a different section of the IEP and

one rarely relates to another) 3) The teachers and pull out additional

therapists are not measured by reaching these goals. This is a parent feel good

area and setting the goals to high for an abbreviated period allows you to come

back and request addition speech/OT/PT or inter-ant teacher time when they are

not met. Do not stress over these areas, Look at the minutes per subject/week of

Collaboration (this is an autism specialist that trains and instructs an ESE

teacher which in reality has very little training in the spectrum. Look for

additional Speech/ Language

Therapy and set his goal as high as you can justify. Most School administrator

will let you push this ares because they have little interest in goals. If the

goals are not met you can justify additional services. Goals mean nothing,

setting and services are what you are there to get.

My goals are OUT OF AN AUTISM CLASSROOM, mainstream acedemic.

Bill

From: Sheri <eszbi5@...>

Subject: Help needed

Date: Tuesday, September 15, 2009, 9:39 PM

 

Do any of you have measurable goals that might pertain to a

high functioning child. I have been scouring the Internet for measurable goals

for

an autistic child and honestly she has mastered all of the goals that I

have found. I am at a loss and I have an IEP meeting in 10 days so

there is not much time to prepare. Thanks in advance, Sheri

[Guest guest]

I just posted that very thing to our CSE chair.  I asked her what my daughter

has to do to get out of that class where the children are disruptive, do not

focus and some of them aggressive.  My child does not have any of these

behaviors and I would prefer to keep it that way. Although this summer there was

another boys here working with a teacher at our home.  That boy pinched her and

made her bleed.  knew that he has hyperacusis and so she screamed until

he cried.   When he cried she stopped screaming and when he stopped crying she

screamed again leaning toward him.  I guess that boy got a taste of natural

consequences.  LOL  Sheri

From: Sheri <eszbi5 (DOT) com>

Subject: Help needed

groups (DOT) com

Date: Tuesday, September 15, 2009, 9:39 PM

 

Do any of you have measurable goals that might pertain to a high functioning

child. I have been scouring the Internet for measurable goals for

an autistic child and honestly she has mastered all of the goals that I

have found. I am at a loss and I have an IEP meeting in 10 days so

there is not much time to prepare. Thanks in advance, Sheri