Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 What a day. This was an appt. with the Movement Disorder Specialist at the National Parkinson Foundation Center for Excellence. She had attended the Washington, D. C. meeting in Feb. To make a long story short, when I asked if my husband had PDD or LBD, she said, oh, they are still trying to decide . I thought that there was a consensus, am I wrong? Anyway, whatever he has, it isn't good. Arlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 Hi Arlene, That is odd that the doctor who attended the DC symposium said they are still trying to decide about LBD Vs PDD. It was the one thing that they had decided. They are still working on things like if it is genetic or if it is genetic and an environmental polution triggers it and things of that nature. I believe is going to have it soon on the LBDA.org site about what was discussed and decided at the Symposium. PDD and LBD were all discussed on the very first day of the symposium, but they had a consensus that they were two separate entities for sure. On the LBDA.org site now if you go to the Home page and scroll to the bottom tells you that Lewy Body is a Spectrum of Lewy Body Diseases and names PDD as one. It says that if Parkinsons precedes dementia by one year or more it is PDD. I heard that it was several years or more, but the fact is that it has to proceed dementia. Jan --- Zweibeers@... wrote: > > > What a day. This was an appt. with the Movement > Disorder Specialist at the > National Parkinson Foundation Center for Excellence. > She had attended the > Washington, D. C. meeting in Feb. To make a long > story short, when I asked if > my husband had PDD or LBD, she said, oh, they are > still trying to decide . I > thought that there was a consensus, am I wrong? > Anyway, whatever he has, it > isn't good. Arlene > > > [Non-text portions of this message have been > removed] > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
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