Re: stages

[Guest guest]

Kim,

I too am wondering about the stages, but after reading a lot of message

boards it seems to me that symptoms can be all over the place. Can go away for

a bit then come back, If there is anyone out there that can make sense of the

stages , then please try and break it down for us. Its the unknown that I fear

most.

Judy

Kimdawn_99 wrote: Can anyone give me a listing

of the stages of LBD. My dad can speak

but makes no sense. He cries alot. He cannot feed himself anymore. I

am wondering what is next.

Thanks, Kim

Welcome to LBDcaregivers.

[Guest guest]

Judy, I am sending you the stages directly. As long as you remember these are

designed for Alzheimers. They are very general and our LBD people usually

aren't as direct as AD patients.

I think more " bouncing " around is done due to meds as Sandi and Donna (The other

one) spoke of and I couldn't give my mom any meds and I fought real hard to keep

her off most. She had lots of reaction to even small doses of meds. I just rode

out the disease and it wasn't always easy.

At least now some people are getting a dx. Mom was always had what was called

" dementia " and only once did I ever hear an MD call her dementia anything and

that was AD.

Donna R

Mom with me 4 years. Last year in a nh and died in '02 at 88.

Do you want to read more about Lewy Body? You can also read the Thistle, the

LBD Newsletter. Just click on:

http://www.lewybodydementia.org

Re: stages

[Guest guest]

Hi Donna,

Thanks for the stages , it does kinda put me in perspective to how far long

Dad's decline is.I believe according to this report he is in stage 5. I am

seeing a few of stage 6 but don't think hes quite that far yet. Its a little

scary how accurate the stages appear to be. Do you think I should encourage him

to read this. On Monday he wanted me to read about dementia to him so he could

kind of get a grasp on what he is going thru. I'm just not sure he needs to

know all the bad stuff that's goin to happen.I don't want to depress him.

Judy

Donna Mido wrote: Judy, I am sending you the stages

directly. As long as you remember these are designed for Alzheimers. They are

very general and our LBD people usually aren't as direct as AD patients.

I think more " bouncing " around is done due to meds as Sandi and Donna (The

other one) spoke of and I couldn't give my mom any meds and I fought real hard

to keep her off most. She had lots of reaction to even small doses of meds. I

just rode out the disease and it wasn't always easy.

At least now some people are getting a dx. Mom was always had what was

called " dementia " and only once did I ever hear an MD call her dementia

anything and that was AD.

Donna R

Mom with me 4 years. Last year in a nh and died in '02 at 88.

Do you want to read more about Lewy Body? You can also read the Thistle, the

LBD Newsletter. Just click on:

http://www.lewybodydementia.org

Re: stages

[Guest guest]

Hi Donna...I would love to have the stage information that you sent Judy. I

understand that it is for Alzheimer patients but I would like to see how my dad

fits in. Could you possibly send it on to me as well? I would greatly

appreciate it.

Thank you. Marzocco

JUDY DUKE wrote:

Hi Donna,

Thanks for the stages , it does kinda put me in perspective to how far long

Dad's decline is.I believe according to this report he is in stage 5. I am

seeing a few of stage 6 but don't think hes quite that far yet. Its a little

scary how accurate the stages appear to be. Do you think I should encourage him

to read this. On Monday he wanted me to read about dementia to him so he could

kind of get a grasp on what he is going thru. I'm just not sure he needs to

know all the bad stuff that's goin to happen.I don't want to depress him.

Judy

Donna Mido wrote: Judy, I am sending you the stages

directly. As long as you remember these are designed for Alzheimers. They are

very general and our LBD people usually aren't as direct as AD patients.

I think more " bouncing " around is done due to meds as Sandi and Donna (The

other one) spoke of and I couldn't give my mom any meds and I fought real hard

to keep her off most. She had lots of reaction to even small doses of meds. I

just rode out the disease and it wasn't always easy.

At least now some people are getting a dx. Mom was always had what was

called " dementia " and only once did I ever hear an MD call her dementia

anything and that was AD.

Donna R

Mom with me 4 years. Last year in a nh and died in '02 at 88.

Do you want to read more about Lewy Body? You can also read the Thistle, the

LBD Newsletter. Just click on:

http://www.lewybodydementia.org

Re: stages

[Guest guest]

. I have sent them. Just let me know if you get them or I will try and

send them again. Sometimes I don't get past peoples setups.

There is lots of good information by clicking on the LBDA site after my name

also. If you haven't spent some time there, do so. There is lots and lots of

info.

Donna R

Do you want to read more about Lewy Body? You can also read the Thistle, the

LBD Newsletter. Just click on:

http://www.lewybodydementia.org

Re: stages

[Guest guest]

Judy,

I wouldn't be inclined to read the stages to Mom when she was alive. You might

ask him what he thinks will happen. He really knows. If they ask some times it

is just to see if you will deny it.

I know all those that hide it, already have an idea what is wrong when people

look at them funny. That is why the thing that is called " show time, " they are

really trying to hide what they already know isn't right.

And when they do learn things, sometimes they get stuck on them. I like Sandi's

answer to her Dad, " What ever happens I will be here to go through it with you. "

Or something close to that.

And please remember that those stages were designed for AD people, not LBD

people. It makes a huge difference.

Donna R

Do you want to read more about Lewy Body? You can also read the Thistle, the

LBD Newsletter. Just click on:

http://www.lewybodydementia.org

Re: stages

[Guest guest]

Hi Donna...I never received the stages information. I appreciate all your time,

if you could try sending it again. Thanks!!

Donna Mido wrote: . I have sent them. Just let me

know if you get them or I will try and send them again. Sometimes I don't get

past peoples setups.

There is lots of good information by clicking on the LBDA site after my name

also. If you haven't spent some time there, do so. There is lots and lots of

info.

Donna R

Do you want to read more about Lewy Body? You can also read the Thistle, the LBD

Newsletter. Just click on:

http://www.lewybodydementia.org

Re: stages

[Guest guest]

,

It has gone out again and I hope you get it this time. If not I will try and

send you the email address.

Donna R

Do you want to read more about Lewy Body? You can also read the Thistle, the

LBD Newsletter. Just click on:

http://www.lewybodydementia.org

Re: stages