Re: Re: BAR OF SOAP FOR RLS AND CRAMPING

[Guest guest]

Carole,

That is amazing! I sent the suggestion and felt foolish for doing so as I

didn't know if it worked or not. If it helps one person, it was worth it.

Donna R

Do you want to read more about Lewy Body? You can also read the Thistle, the

LBD Newsletter. Just click on:

http://www.lewybodydementia.org

Re: BAR OF SOAP FOR RLS AND CRAMPING

[Guest guest]

Blow me down, Carol. I heard about the soap, but haven't heard others say if

it worked.

Imogene

In a message dated 3/29/2006 5:16:09 AM Central Standard Time,

carlislecy@... writes:

RLS/leg cramping has been a continuing problem for my husband even

before LBD dx. His complaints mainly start after going to bed for

the night and continue until about midnight.

Well, tried the " bar of soap " - for three nights not a sound from

him, slept straight through the night. Could not be " power of

suggestion " ; he didn't even know the soap was there. I used Zest.

Anyone else had success?

Carole

[Guest guest]

And what do we do with a bar of soap? Must have missed that one, my emails

have been bouncing, only God knows why.

Jayn

in S GA

[Guest guest]

......Take a couple of bites and you'll forget all about your legs

cramping.......LOL Sorry...couldn't resist that one..... I'd like to know

also about

the soap thing since both my husband and I have developed this lovely symptom.

Could it be from lack of exercise? My legs SCREAM at night!

Peace all, Stevie

Stevie in So. California

LO - Mr. B (Uncle) 82 yrs.

Lives in my home - 3 yrs.

DX Parkinson's 1993

DX LBD 2003 - probably has PDD

End stage meds: Hytrin, E.S Tylenol (Hallies have subsided)

Was on: Sinemet, Seroguel, Elavil, Lasix, Hytrin, Roxinal, Aciphex,

Amitriptyline

Was given Ativan in NH for 5 days (Jan '06), hasn't been the same since

Daily BP usually 68/52

* * * * * *

And what do we do with a bar of soap? Must have missed that one, my emails

have been bouncing, only God knows why.

Jayn

in S GA

[Guest guest]

Thank you Donna. We are going to put 2 bars of Zest at the end of our bed

tonight and will tell you how it works. Maybe someone can start a list on this

website for " Hand me down cures for Caregiver burnout " ? Have a Peaceful

night, Stevie

Stevie in So. California

LO - Mr. B (Uncle) 82 yrs.

Lives in my home - 3 yrs.

DX Parkinson's 1993

DX LBD 2003 - probably has PDD

End stage meds: Hytrin, E.S Tylenol (Hallies have subsided)

Was on: Sinemet, Seroguel, Elavil, Lasix, Hytrin, Roxinal, Aciphex,

Amitriptyline

Was given Ativan in NH for 5 days (Jan '06), hasn't been the same since

Daily BP usually 68/52

3/27 Starting to have bad hallies again with no meds.

* * * * * * * * *

Quoting juperant@...:

Supposedly put it under the sheet at the bottom of the bed !

My mom and sister (neither wil LBD) both swear it works.

Donna

> .....Take a couple of bites and you'll forget all about your legs

> cramping.......LOL Sorry...couldn't resist that one..... I'd like

> to know also about

> the soap thing since both my husband and I have developed this lovely

> symptom.

> Could it be from lack of exercise? My legs SCREAM at night!

>

> Peace all, Stevie

>

> Stevie in So. California

> LO - Mr. B (Uncle) 82 yrs.

> Lives in my home - 3 yrs.

> DX Parkinson's 1993

> DX LBD 2003 - probably has PDD

> End stage meds: Hytrin, E.S Tylenol (Hallies have subsided)

> Was on: Sinemet, Seroguel, Elavil, Lasix, Hytrin, Roxinal, Aciphex,

> Amitriptyline

> Was given Ativan in NH for 5 days (Jan '06), hasn't been the same since

> Daily BP usually 68/52

[Guest guest]

Legs or feet cramping, I jump out of bed instantly and walk around a bit.

The cramps go away. I have heard that a lack of potassium can cause it, as well

as other things of which I can't remember.

Imogene

In a message dated 3/29/2006 7:31:27 PM Central Standard Time,

juperant@... writes:

......Take a couple of bites and you'll forget all about your legs

cramping.......LOL Sorry...couldn't resist that one..... I'd like to know

also about

the soap thing since both my husband and I have developed this lovely

symptom.

Could it be from lack of exercise? My legs SCREAM at night!

Peace all, Stevie

Stevie in So. California

LO - Mr. B (Uncle) 82 yrs.

Lives in my home - 3 yrs.

DX Parkinson's 1993

DX LBD 2003 - probably has PDD

End stage meds: Hytrin, E.S Tylenol (Hallies have subsided)

Was on: Sinemet, Seroguel, Elavil, Lasix, Hytrin, Roxinal, Aciphex,

Amitriptyline

Was given Ativan in NH for 5 days (Jan '06), hasn't been the same since

Daily BP usually 68/52

* * * * * *

And what do we do with a bar of soap? Must have missed that one, my emails

have been bouncing, only God knows why.

[Guest guest]

Quoting juperant@...:

Supposedly put it under the sheet at the bottom of the bed !

My mom and sister (neither wil LBD) both swear it works.

Donna

> .....Take a couple of bites and you'll forget all about your legs

> cramping.......LOL Sorry...couldn't resist that one..... I'd like

> to know also about

> the soap thing since both my husband and I have developed this lovely

> symptom.

> Could it be from lack of exercise? My legs SCREAM at night!

>

> Peace all, Stevie

>

> Stevie in So. California

> LO - Mr. B (Uncle) 82 yrs.

> Lives in my home - 3 yrs.

> DX Parkinson's 1993

> DX LBD 2003 - probably has PDD

> End stage meds: Hytrin, E.S Tylenol (Hallies have subsided)

> Was on: Sinemet, Seroguel, Elavil, Lasix, Hytrin, Roxinal, Aciphex,

> Amitriptyline

> Was given Ativan in NH for 5 days (Jan '06), hasn't been the same since

> Daily BP usually 68/52

>

> * * * * * *

> And what do we do with a bar of soap? Must have missed that one, my emails

> have been bouncing, only God knows why.

>

> Jayn

> in S GA

>

>

>

[Guest guest]

Okay....I know I'm tired and delirious but.......I put a bar of Zest at the

end of my husband's feet (in between the sheets), and just for the heck of it,

I put a large Spa bar of lavender soap at the end of my side and neither of us

had any leg problems last night. Power of suggestion? What in the world

would be in a bar of soap?

I am even going to put a bar of soap at the end of Mr. B's bed too....just

for the heck of it.

Thanks for the suggestion. Much Peace to all, Stevie

Stevie in So. California

LO - Mr. B (Uncle) 82 yrs.

Lives in my home - 3 yrs.

DX Parkinson's 1993

DX LBD 2003 - probably has PDD

End stage meds: Hytrin, E.S Tylenol (Hallies have subsided) ...recently

started up again

Was on: Sinemet, Seroguel, Elavil, Lasix, Hytrin, Roxinal, Aciphex,

Amitriptyline

Was given Ativan and Seroquel in NH for 5 days (Jan '06), hasn't been the

same since

Daily BP usually 68/52

* * * * * * * *

Blow me down, Carol. I heard about the soap, but haven't heard others say if

it worked.

Imogene

In a message dated 3/29/2006 5:16:09 AM Central Standard Time,

carlislecy@... writes:

RLS/leg cramping has been a continuing problem for my husband even

before LBD dx. His complaints mainly start after going to bed for

the night and continue until about midnight.

Well, tried the " bar of soap " - for three nights not a sound from

him, slept straight through the night. Could not be " power of

suggestion " ; he didn't even know the soap was there. I used Zest.

Anyone else had success?

Carole

[Guest guest]

I have presented the question to a Scientist, Doctor, friend of mine, and I

will let you know what he says regarding the bar of soap helping leg cramps.

Imogene

In a message dated 3/30/2006 3:51:29 PM Central Standard Time,

d_j_leavitt@... writes:

Hi Stevie

I'm with you. How can this work? I am willing to give

it a try, but it sounds like a urban legend to me. If

any out there knows the reason why putting a bar up

soap in bed with you stops leg cramps, please let me

know, I am very curious.

Dena in So.CA

Mother (83) Lived in my home 10 months. Recently moved

to a NH. On Hospice and is not currently taking any

drugs. Was on Risperdal, Aricept, Prozac, Namenda,

Clonzapam, Lisinipril.

--- juperant@... wrote:

> Okay....I know I'm tired and delirious but.......I

> put a bar of Zest at the

> end of my husband's feet (in between the sheets),

> and just for the heck of it,

> I put a large Spa bar of lavender soap at the end of

> my side and neither of us

> had any leg problems last night. Power of

> suggestion? What in the world

> would be in a bar of soap?

>

> I am even going to put a bar of soap at the end of

> Mr. B's bed too....just

> for the heck of it.

>

> Thanks for the suggestion. Much Peace to all,

> Stevie

>

> Stevie in So. California

> LO - Mr. B (Uncle) 82 yrs.

> Lives in my home - 3 yrs.

> DX Parkinson's 1993

> DX LBD 2003 - probably has PDD

> End stage meds: Hytrin, E.S Tylenol (Hallies have

> subsided) ...recently

> started up again

> Was on: Sinemet, Seroguel, Elavil, Lasix, Hytrin,

> Roxinal, Aciphex,

> Amitriptyline

> Was given Ativan and Seroquel in NH for 5 days (Jan

> '06), hasn't been the

> same since

> Daily BP usually 68/52

>

> * * * * * * * *

>

> Blow me down, Carol. I heard about the soap, but

> haven't heard others say if

> it worked.

> Imogene

>

>

> In a message dated 3/29/2006 5:16:09 AM Central

> Standard Time,

> carlislecy@... writes:

>

> RLS/leg cramping has been a continuing problem for

> my husband even

> before LBD dx. His complaints mainly start after

> going to bed for

> the night and continue until about midnight.

>

> Well, tried the " bar of soap " - for three nights

> not a sound from

> him, slept straight through the night. Could not

> be " power of

> suggestion " ; he didn't even know the soap was

> there. I used Zest.

>

> Anyone else had success?

>

> Carole

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

Do You Yahoo!?

Tired of spam? Yahoo! Mail has the best spam protection around

http://mail.yahoo.com

Welcome to LBDcaregivers.

[Guest guest]

Hi Stevie

I'm with you. How can this work? I am willing to give

it a try, but it sounds like a urban legend to me. If

any out there knows the reason why putting a bar up

soap in bed with you stops leg cramps, please let me

know, I am very curious.

Dena in So.CA

Mother (83) Lived in my home 10 months. Recently moved

to a NH. On Hospice and is not currently taking any

drugs. Was on Risperdal, Aricept, Prozac, Namenda,

Clonzapam, Lisinipril.

--- juperant@... wrote:

> Okay....I know I'm tired and delirious but.......I

> put a bar of Zest at the

> end of my husband's feet (in between the sheets),

> and just for the heck of it,

> I put a large Spa bar of lavender soap at the end of

> my side and neither of us

> had any leg problems last night. Power of

> suggestion? What in the world

> would be in a bar of soap?

>

> I am even going to put a bar of soap at the end of

> Mr. B's bed too....just

> for the heck of it.

>

> Thanks for the suggestion. Much Peace to all,

> Stevie

>

> Stevie in So. California

> LO - Mr. B (Uncle) 82 yrs.

> Lives in my home - 3 yrs.

> DX Parkinson's 1993

> DX LBD 2003 - probably has PDD

> End stage meds: Hytrin, E.S Tylenol (Hallies have

> subsided) ...recently

> started up again

> Was on: Sinemet, Seroguel, Elavil, Lasix, Hytrin,

> Roxinal, Aciphex,

> Amitriptyline

> Was given Ativan and Seroquel in NH for 5 days (Jan

> '06), hasn't been the

> same since

> Daily BP usually 68/52

>

> * * * * * * * *

>

> Blow me down, Carol. I heard about the soap, but

> haven't heard others say if

> it worked.

> Imogene

>

>

> In a message dated 3/29/2006 5:16:09 AM Central

> Standard Time,

> carlislecy@... writes:

>

> RLS/leg cramping has been a continuing problem for

> my husband even

> before LBD dx. His complaints mainly start after

> going to bed for

> the night and continue until about midnight.

>

> Well, tried the " bar of soap " - for three nights

> not a sound from

> him, slept straight through the night. Could not

> be " power of

> suggestion " ; he didn't even know the soap was

> there. I used Zest.

>

> Anyone else had success?

>

> Carole

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

Hi Dena,

I don't know how it works...or if it's just a " suggestion " to the

subconscience, but, I'm keeping the soap at the end of the bed! The real test

will be my

Mother...she has a terrible case of RLS and takes medicine every night for it

or she can't sleep. I am taking her a case of Zest when I go to see her this

Sunday. LOL

Much Peace to you Dena, Stevie

Stevie in So. California

LO - Mr. B (Uncle) 82 yrs.

Lives in my home - 3 yrs.

DX Parkinson's 1993

DX LBD 2003 - probably has PDD

End stage meds: Hytrin, E.S Tylenol (Hallies have subsided) ...but have

started up again.

Was on: Sinemet, Seroguel, Elavil, Lasix, Hytrin, Roxinal, Aciphex,

Amitriptyline

Was given Ativan and Seroquel in NH for 5 days (Jan '06), hasn't been the

same since

Daily BP usually 68/52

Severe shoulder pain, hip pain, and shortness of breath.

* * * * * * * * * *

Hi Stevie

I'm with you. How can this work? I am willing to give

it a try, but it sounds like a urban legend to me. If

any out there knows the reason why putting a bar up

soap in bed with you stops leg cramps, please let me

know, I am very curious.

Dena in So.CA

Mother (83) Lived in my home 10 months. Recently moved

to a NH. On Hospice and is not currently taking any

drugs. Was on Risperdal, Aricept, Prozac, Namenda,

Clonzapam, Lisinipril.

--- juperant@... wrote:

> Okay....I know I'm tired and delirious but.......I

> put a bar of Zest at the

> end of my husband's feet (in between the sheets),

> and just for the heck of it,

> I put a large Spa bar of lavender soap at the end of

> my side and neither of us

> had any leg problems last night. Power of

> suggestion? What in the world

> would be in a bar of soap?

>

> I am even going to put a bar of soap at the end of

> Mr. B's bed too....just

> for the heck of it.

>

> Thanks for the suggestion. Much Peace to all,

> Stevie

>

> Stevie in So. California

> LO - Mr. B (Uncle) 82 yrs.

> Lives in my home - 3 yrs.

> DX Parkinson's 1993

> DX LBD 2003 - probably has PDD

> End stage meds: Hytrin, E.S Tylenol (Hallies have

> subsided) ...recently

> started up again

> Was on: Sinemet, Seroguel, Elavil, Lasix, Hytrin,

> Roxinal, Aciphex,

> Amitriptyline

> Was given Ativan and Seroquel in NH for 5 days (Jan

> '06), hasn't been the

> same since

> Daily BP usually 68/52

>

> * * * * * * * *

>

> Blow me down, Carol. I heard about the soap, but

> haven't heard others say if

> it worked.

> Imogene

>

>

> In a message dated 3/29/2006 5:16:09 AM Central

> Standard Time,

> carlislecy@... writes:

>

> RLS/leg cramping has been a continuing problem for

> my husband even

> before LBD dx. His complaints mainly start after

> going to bed for

> the night and continue until about midnight.

>

> Well, tried the " bar of soap " - for three nights

> not a sound from

> him, slept straight through the night. Could not

> be " power of

> suggestion " ; he didn't even know the soap was

> there. I used Zest.

>

> Anyone else had success?

>

> Carole

[Guest guest]

Yes....both bars opened and at the end of the bed, in between the sheets. : )

* * * * * * * * *

Did you open the bar of soap? I see in the article

sent earlier that it suggested (unwrapped).

Sandie

-- Re: Re: BAR OF SOAP FOR RLS AND CRAMPING

Hi Dena,

I don't know how it works...or if it's just a " suggestion " to the

subconscience, but, I'm keeping the soap at the end of the bed! The real

test will be my

Mother...she has a terrible case of RLS and takes medicine every night for

it

or she can't sleep. I am taking her a case of Zest when I go to see her

this

Sunday. LOL

Much Peace to you Dena, Stevie

Stevie in So. California

LO - Mr. B (Uncle) 82 yrs.

Lives in my home - 3 yrs.

DX Parkinson's 1993

DX LBD 2003 - probably has PDD

End stage meds: Hytrin, E.S Tylenol (Hallies have subsided) ...but have

started up again.

Was on: Sinemet, Seroguel, Elavil, Lasix, Hytrin, Roxinal, Aciphex,

Amitriptyline

Was given Ativan and Seroquel in NH for 5 days (Jan '06), hasn't been the

same since

Daily BP usually 68/52

Severe shoulder pain, hip pain, and shortness of breath.

* * * * * * * * * *

Hi Stevie

I'm with you. How can this work? I am willing to give

it a try, but it sounds like a urban legend to me. If

any out there knows the reason why putting a bar up

soap in bed with you stops leg cramps, please let me

know, I am very curious.

Dena in So.CA

Mother (83) Lived in my home 10 months. Recently moved

to a NH. On Hospice and is not currently taking any

drugs. Was on Risperdal, Aricept, Prozac, Namenda,

Clonzapam, Lisinipril.

--- juperant@... wrote:

> Okay....I know I'm tired and delirious but.......I

> put a bar of Zest at the

> end of my husband's feet (in between the sheets),

> and just for the heck of it,

> I put a large Spa bar of lavender soap at the end of

> my side and neither of us

> had any leg problems last night. Power of

> suggestion? What in the world

> would be in a bar of soap?

>

> I am even going to put a bar of soap at the end of

> Mr. B's bed too....just

> for the heck of it.

>

> Thanks for the suggestion. Much Peace to all,

> Stevie

>

> Stevie in So. California

> LO - Mr. B (Uncle) 82 yrs.

> Lives in my home - 3 yrs.

> DX Parkinson's 1993

> DX LBD 2003 - probably has PDD

> End stage meds: Hytrin, E.S Tylenol (Hallies have

> subsided) ...recently

> started up again

> Was on: Sinemet, Seroguel, Elavil, Lasix, Hytrin,

> Roxinal, Aciphex,

> Amitriptyline

> Was given Ativan and Seroquel in NH for 5 days (Jan

> '06), hasn't been the

> same since

> Daily BP usually 68/52

>

> * * * * * * * *

>

> Blow me down, Carol. I heard about the soap, but

> haven't heard others say if

> it worked.

> Imogene

[Guest guest]

I wonder if the brain is distracted with the smell of

the soap and therefore, does not send messages of the

pain of cramps or in the case of Restless Leg Syndrome

the feelings of movement in the legs. It's a kind of

distraction. Just thinking out loud. It is funny, if

all it takes is a bar of soap placed in the sheets.

Jan

--- juperant@... wrote:

> Okay....I know I'm tired and delirious but.......I

> put a bar of Zest at the

> end of my husband's feet (in between the sheets),

> and just for the heck of it,

> I put a large Spa bar of lavender soap at the end of

> my side and neither of us

> had any leg problems last night. Power of

> suggestion? What in the world

> would be in a bar of soap?

>

> I am even going to put a bar of soap at the end of

> Mr. B's bed too....just

> for the heck of it.

>

> Thanks for the suggestion. Much Peace to all,

> Stevie

>

> Stevie in So. California

> LO - Mr. B (Uncle) 82 yrs.

> Lives in my home - 3 yrs.

> DX Parkinson's 1993

> DX LBD 2003 - probably has PDD

> End stage meds: Hytrin, E.S Tylenol (Hallies have

> subsided) ...recently

> started up again

> Was on: Sinemet, Seroguel, Elavil, Lasix, Hytrin,

> Roxinal, Aciphex,

> Amitriptyline

> Was given Ativan and Seroquel in NH for 5 days (Jan

> '06), hasn't been the

> same since

> Daily BP usually 68/52

>

> * * * * * * * *

>

> Blow me down, Carol. I heard about the soap, but

> haven't heard others say if

> it worked.

> Imogene

>

>

> In a message dated 3/29/2006 5:16:09 AM Central

> Standard Time,

> carlislecy@... writes:

>

> RLS/leg cramping has been a continuing problem for

> my husband even

> before LBD dx. His complaints mainly start after

> going to bed for

> the night and continue until about midnight.

>

> Well, tried the " bar of soap " - for three nights

> not a sound from

> him, slept straight through the night. Could not

> be " power of

> suggestion " ; he didn't even know the soap was

> there. I used Zest.

>

> Anyone else had success?

>

> Carole

>

>

> [Non-text portions of this message have been

> removed]

>

>

Jan Colello, wife of Jim, dx w/Parkinsons 1993 and LBD 2003San Francisco Bay

Area, California

__________________________________________________

[Guest guest]

found this among many other entries when i googled the soap thing . Think this

explains it.Sent: Sunday, August 21, 2005 2:46 PM Subject: Natural Cure

for Restless Leg Syndrome

I stumbled upon your site looking for info on Restless Leg

Syndrome, which I have had for at least 20 plus years, which also runs in

my family. Up until a few years ago, I thought it was only a family

disease, until my daughter found info about RLS. I was so relieved to see

that my problem actually had a name.

Just wanted to pass on a possible natural cure for RLS, which a

friend passed on to me. She found the article in a newspaper, cut it out

and gave it to me. The article stated that putting a new bar of soap under

the bottom sheet down where the legs will be, will help with RLS. I didn't

believe this could possibly work, but I tried it. It has been

working for me for the past two weeks. My husband usually wakes me nightly

to tell me that my feet are racing and that I am keeping him awake. I

didn't tell him about the bar of soap as he would have thought I was crazy

for trying. I did ask him today if he had noticed my legs kicking in the

last two weeks, and he said no. I still haven't told him what I did as I

want to give it more time to work, to see if it keeps on working. I don't

know if this will work for others with RLS, but I did want to pass on the

info to them so they could try it for

themselves.

Here is also a website where I found more info about using two

bars of soap. Good luck to everyone out there with RLS.

http://www.lacetoleather.com/restlesslegsyndrome.html

RESTLESS LEG SYNDROME

Natural Ways to Relieve Restless Leg Syndrome - More Than Home

Remedies To stop restless leg syndrome, put two new bars of soap

(unwrapped) in the sheets of your bed. Put the soap on top of the

bottom sheet and under the top sheet, down at the foot of the bed,

one near each corner. Your legs don't have to touch the soap, just

leave them in the sheets. We know this works with

Lever 2000, but it will probably work with any bar of soap. Then

you can get a restful sleep again.

Correction of iron deficiency may improve symptoms for some

patients (Iron Tablets).

Michele,

Owensboro, KY

P.S. I used a new bar of Coconut Oil Soap that I wanted to try. I'm

sure any type of bar soap should work. Why? I don't know, but it so far

is working for me.

Medical Reply

This soap trick has made the rounds for several years already. Although

some patients have reported success with this treatment, it does not work for

the vast majority of RLS/PLMD patients. There is a very strong placebo

(sugar pill) effect with RLS therapies that likely accounts for the observed

benefits of this very strange treatment.

Janet Colello <janetcolello@yawrote: I wonder if the brain is distracted with

the smell of

the soap and therefore, does not send messages of the

pain of cramps or in the case of Restless Leg Syndrome

the feelings of movement in the legs. It's a kind of

distraction. Just thinking out loud. It is funny, if

all it takes is a bar of soap placed in the sheets.

Jan

--- juperant@... wrote:

> Okay....I know I'm tired and delirious but.......I

> put a bar of Zest at the

> end of my husband's feet (in between the sheets),

> and just for the heck of it,

> I put a large Spa bar of lavender soap at the end of

> my side and neither of us

> had any leg problems last night. Power of

> suggestion? What in the world

> would be in a bar of soap?

>

> I am even going to put a bar of soap at the end of

> Mr. B's bed too....just

> for the heck of it.

>

> Thanks for the suggestion. Much Peace to all,

> Stevie

>

> Stevie in So. California

> LO - Mr. B (Uncle) 82 yrs.

> Lives in my home - 3 yrs.

> DX Parkinson's 1993

> DX LBD 2003 - probably has PDD

> End stage meds: Hytrin, E.S Tylenol (Hallies have

> subsided) ...recently

> started up again

> Was on: Sinemet, Seroguel, Elavil, Lasix, Hytrin,

> Roxinal, Aciphex,

> Amitriptyline

> Was given Ativan and Seroquel in NH for 5 days (Jan

> '06), hasn't been the

> same since

> Daily BP usually 68/52

>

> * * * * * * * *

>

> Blow me down, Carol. I heard about the soap, but

> haven't heard others say if

> it worked.

> Imogene

>

>

> In a message dated 3/29/2006 5:16:09 AM Central

> Standard Time,

> carlislecy@... writes:

>

> RLS/leg cramping has been a continuing problem for

> my husband even

> before LBD dx. His complaints mainly start after

> going to bed for

> the night and continue until about midnight.

>

> Well, tried the " bar of soap " - for three nights

> not a sound from

> him, slept straight through the night. Could not

> be " power of

> suggestion " ; he didn't even know the soap was

> there. I used Zest.

>

> Anyone else had success?

>

> Carole

>

>

> [Non-text portions of this message have been

> removed]

>

>

Jan Colello, wife of Jim, dx w/Parkinsons 1993 and LBD 2003San Francisco Bay

Area, California

__________________________________________________

[Guest guest]

Did you open the bar of soap? I see in the article

sent earlier that it suggested (unwrapped).

Sandie

-- Re: Re: BAR OF SOAP FOR RLS AND CRAMPING

Hi Dena,

I don't know how it works...or if it's just a " suggestion " to the

subconscience, but, I'm keeping the soap at the end of the bed! The real

test will be my

Mother...she has a terrible case of RLS and takes medicine every night for

it

or she can't sleep. I am taking her a case of Zest when I go to see her

this

Sunday. LOL

Much Peace to you Dena, Stevie

Stevie in So. California

LO - Mr. B (Uncle) 82 yrs.

Lives in my home - 3 yrs.

DX Parkinson's 1993

DX LBD 2003 - probably has PDD

End stage meds: Hytrin, E.S Tylenol (Hallies have subsided) ...but have

started up again.

Was on: Sinemet, Seroguel, Elavil, Lasix, Hytrin, Roxinal, Aciphex,

Amitriptyline

Was given Ativan and Seroquel in NH for 5 days (Jan '06), hasn't been the

same since

Daily BP usually 68/52

Severe shoulder pain, hip pain, and shortness of breath.

* * * * * * * * * *

Hi Stevie

I'm with you. How can this work? I am willing to give

it a try, but it sounds like a urban legend to me. If

any out there knows the reason why putting a bar up

soap in bed with you stops leg cramps, please let me

know, I am very curious.

Dena in So.CA

Mother (83) Lived in my home 10 months. Recently moved

to a NH. On Hospice and is not currently taking any

drugs. Was on Risperdal, Aricept, Prozac, Namenda,

Clonzapam, Lisinipril.

--- juperant@... wrote:

> Okay....I know I'm tired and delirious but.......I

> put a bar of Zest at the

> end of my husband's feet (in between the sheets),

> and just for the heck of it,

> I put a large Spa bar of lavender soap at the end of

> my side and neither of us

> had any leg problems last night. Power of

> suggestion? What in the world

> would be in a bar of soap?

>

> I am even going to put a bar of soap at the end of

> Mr. B's bed too....just

> for the heck of it.

>

> Thanks for the suggestion. Much Peace to all,

> Stevie

>

> Stevie in So. California

> LO - Mr. B (Uncle) 82 yrs.

> Lives in my home - 3 yrs.

> DX Parkinson's 1993

> DX LBD 2003 - probably has PDD

> End stage meds: Hytrin, E.S Tylenol (Hallies have

> subsided) ...recently

> started up again

> Was on: Sinemet, Seroguel, Elavil, Lasix, Hytrin,

> Roxinal, Aciphex,

> Amitriptyline

> Was given Ativan and Seroquel in NH for 5 days (Jan

> '06), hasn't been the

> same since

> Daily BP usually 68/52

>

> * * * * * * * *

>

> Blow me down, Carol. I heard about the soap, but

> haven't heard others say if

> it worked.

> Imogene

>

>

> In a message dated 3/29/2006 5:16:09 AM Central

> Standard Time,

> carlislecy@... writes:

>

> RLS/leg cramping has been a continuing problem for

> my husband even

> before LBD dx. His complaints mainly start after

> going to bed for

> the night and continue until about midnight.

>

> Well, tried the " bar of soap " - for three nights

> not a sound from

> him, slept straight through the night. Could not

> be " power of

> suggestion " ; he didn't even know the soap was

> there. I used Zest.

>

> Anyone else had success?

>

> Carole

[Guest guest]

My scientist friend says it an old wives tale. If it works for your mother,

then I might change my mind.

Imogene

In a message dated 3/30/2006 9:03:05 PM Central Standard Time,

juperant@... writes:

Hi Dena,

I don't know how it works...or if it's just a " suggestion " to the

subconscience, but, I'm keeping the soap at the end of the bed! The real

test will be my

Mother...she has a terrible case of RLS and takes medicine every night for

it

or she can't sleep. I am taking her a case of Zest when I go to see her

this

Sunday. LOL

Much Peace to you Dena, Stevie

Stevie in So. California

LO - Mr. B (Uncle) 82 yrs.

[Guest guest]

Hello Imogene.....If it works for my Mother, I will sell tickets! LOL I'll

let you know.

Have a great day, Stevie

* * * * * * * *

My scientist friend says it an old wives tale. If it works for your mother,

then I might change my mind.

Imogene

In a message dated 3/30/2006 9:03:05 PM Central Standard Time,

juperant@... writes:

Hi Dena,

I don't know how it works...or if it's just a " suggestion " to the

subconscience, but, I'm keeping the soap at the end of the bed! The real

test will be my

Mother...she has a terrible case of RLS and takes medicine every night for

it

or she can't sleep. I am taking her a case of Zest when I go to see her

this

Sunday. LOL

Much Peace to you Dena, Stevie

Stevie in So. California

LO - Mr. B (Uncle) 82 yrs.

[Guest guest]

Hi Barbara

You will have to tell us know if this really does

work.

--- Barbara Lyon wrote:

> found this among many other entries when i googled

> the soap thing . Think this explains it.Sent:

> Sunday, August 21, 2005 2:46 PM Subject:

> Natural Cure for Restless Leg Syndrome

>

> I stumbled upon your site looking for info

> on Restless Leg Syndrome, which I have had for

> at least 20 plus years, which also runs in my

> family. Up until a few years ago, I thought it was

> only a family disease, until my daughter found

> info about RLS. I was so relieved to see that

> my problem actually had a name.

>

> Just wanted to pass on a possible natural

> cure for RLS, which a friend passed on to me.

> She found the article in a newspaper, cut it

> out and gave it to me. The article stated that

> putting a new bar of soap under the bottom sheet

> down where the legs will be, will help with

> RLS. I didn't believe this could possibly work, but

> I tried it. It has been working for

> me for the past two weeks. My husband usually

> wakes me nightly to tell me that my feet are racing

> and that I am keeping him awake. I didn't tell

> him about the bar of soap as he would have

> thought I was crazy for trying. I did ask him today

> if he had noticed my legs kicking in the last

> two weeks, and he said no. I still haven't

> told him what I did as I want to give it more time

> to work, to see if it keeps on working. I

> don't know if this will work for others with

> RLS, but I did want to pass on the info to them so

> they could try it for

> themselves.

>

>

> Here is also a website where I found more

> info about using two bars of soap. Good luck

> to everyone out there with RLS.

>

>

>

http://www.lacetoleather.com/restlesslegsyndrome.html

>

>

>

>

> RESTLESS LEG SYNDROME Natural Ways to

> Relieve Restless Leg Syndrome - More

> Than Home Remedies To stop restless

> leg syndrome, put two new bars of soap

> (unwrapped) in the sheets of your bed. Put the soap

> on top of the bottom sheet and under

> the top sheet, down at the foot of the bed,

> one near each corner. Your legs don't have to

> touch the soap, just leave them in

> the sheets. We know this works with

> Lever 2000, but it will

> probably work with any bar of soap. Then you can get

> a restful sleep again.

>

> Correction of iron deficiency may

> improve symptoms for some patients

> (Iron Tablets).

>

>

>

>

>

> Michele,

> Owensboro, KY

> P.S. I used a new bar of Coconut Oil Soap

> that I wanted to try. I'm sure any type of bar

> soap should work. Why? I don't know, but it

> so far is working for me.

> Medical Reply

>

> This soap trick has made the rounds for several

> years already. Although some patients have

> reported success with this treatment, it does not

> work for the vast majority of RLS/PLMD patients.

> There is a very strong placebo (sugar pill)

> effect with RLS therapies that likely accounts for

> the observed benefits of this very strange

> treatment.

>

>

> Janet Colello <janetcolello@yawrote: I wonder if

> the brain is distracted with the smell of

> the soap and therefore, does not send messages of

> the

> pain of cramps or in the case of Restless Leg

> Syndrome

> the feelings of movement in the legs. It's a kind

> of

> distraction. Just thinking out loud. It is funny,

> if

> all it takes is a bar of soap placed in the sheets.

>

> Jan

>

>

> --- juperant@... wrote:

>

> > Okay....I know I'm tired and delirious

> but.......I

> > put a bar of Zest at the

> > end of my husband's feet (in between the sheets),

> > and just for the heck of it,

> > I put a large Spa bar of lavender soap at the end

> of

> > my side and neither of us

> > had any leg problems last night. Power of

> > suggestion? What in the world

> > would be in a bar of soap?

> >

> > I am even going to put a bar of soap at the end

> of

> > Mr. B's bed too....just

> > for the heck of it.

> >

> > Thanks for the suggestion. Much Peace to all,

> > Stevie

> >

> > Stevie in So. California

> > LO - Mr. B (Uncle) 82 yrs.

> > Lives in my home - 3 yrs.

> > DX Parkinson's 1993

> > DX LBD 2003 - probably has PDD

> > End stage meds: Hytrin, E.S Tylenol (Hallies have

> > subsided) ...recently

> > started up again

> > Was on: Sinemet, Seroguel, Elavil, Lasix, Hytrin,

> > Roxinal, Aciphex,

> > Amitriptyline

> > Was given Ativan and Seroquel in NH for 5 days

> (Jan

> > '06), hasn't been the

> > same since

> > Daily BP usually 68/52

> >

> > * * * * * * * *

> >

> > Blow me down, Carol. I heard about the soap, but

> > haven't heard others say if

> > it worked.

> > Imogene

> >

> >

> > In a message dated 3/29/2006 5:16:09 AM Central

> > Standard Time,

> > carlislecy@... writes:

> >

> > RLS/leg cramping has been a continuing problem

> for

> > my husband even

> > before LBD dx. His complaints mainly start

> after

> > going to bed for

> > the night and continue until about midnight.

> >

> > Well, tried the " bar of soap " - for three nights

> > not a sound from

> > him, slept straight through the night. Could

> not

> > be " power of

> > suggestion " ; he didn't even know the soap was

> > there. I used Zest.

> >

> > Anyone else had success?

> >

> > Carole

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

> Jan Colello, wife of Jim, dx w/Parkinsons 1993 and

> LBD 2003San Francisco Bay Area, California

>

> __________________________________________________

>

[Guest guest]

I appreciate the fact that the person is giving it time, to make sure it

does in fact work, to put a bar of soap under the sheet for RLS. If it is just

the power of suggestion, that will wear off in time. So, she is smart for

saying she will give it time.

But, please do let us know if it works. I have heard from a Scientist friend

that it is an old wives tale.

Imogene

Caregiver for my True Texas Gentleman husband of 35 years. He has AD and

possibly LBD, is Taking Aricept and Risperdal. Age 72 in May.

In a message dated 3/31/2006 6:43:04 PM Central Standard Time,

d_j_leavitt@... writes:

Hi Barbara

You will have to tell us know if this really does

work.

--- Barbara Lyon wrote:

> found this among many other entries when i googled

> the soap thing . Think this explains it.Sent:

> Sunday, August 21, 2005 2:46 PM Subject:

> Natural Cure for Restless Leg Syndrome

>

> I stumbled upon your site looking for info

> on Restless Leg Syndrome, which I have had for

> at least 20 plus years, which also runs in my

> family. Up until a few years ago, I thought it was

> only a family disease, until my daughter found

> info about RLS. I was so relieved to see that

> my problem actually had a name.

>

> Just wanted to pass on a possible natural

> cure for RLS, which a friend passed on to me.

> She found the article in a newspaper, cut it

> out and gave it to me. The article stated that

> putting a new bar of soap under the bottom sheet

> down where the legs will be, will help with

> RLS. I didn't believe this could possibly work, but

> I tried it. It has been working for

> me for the past two weeks. My husband usually

> wakes me nightly to tell me that my feet are racing

> and that I am keeping him awake. I didn't tell

> him about the bar of soap as he would have

> thought I was crazy for trying. I did ask him today

> if he had noticed my legs kicking in the last

> two weeks, and he said no. I still haven't

> told him what I did as I want to give it more time

> to work, to see if it keeps on working. I

> don't know if this will work for others with

> RLS, but I did want to pass on the info to them so

> they could try it for

> themselves.

>

>

> Here is also a website where I found more

> info about using two bars of soap. Good luck

> to everyone out there with RLS.

>

>

>

http://www.lacetoleather.com/restlesslegsyndrome.html

>

>

>

>

> RESTLESS LEG SYNDROME Natural Ways to

> Relieve Restless Leg Syndrome - More

> Than Home Remedies To stop restless

> leg syndrome, put two new bars of soap

> (unwrapped) in the sheets of your bed. Put the soap

> on top of the bottom sheet and under

> the top sheet, down at the foot of the bed,

> one near each corner. Your legs don't have to

> touch the soap, just leave them in

> the sheets. We know this works with

> Lever 2000, but it will

> probably work with any bar of soap. Then you can get

> a restful sleep again.

>

> Correction of iron deficiency may

> improve symptoms for some patients

> (Iron Tablets).

>

>

>

>

>

> Michele,

> Owensboro, KY

> P.S. I used a new bar of Coconut Oil Soap

> that I wanted to try. I'm sure any type of bar

> soap should work. Why? I don't know, but it

> so far is working for me.

> Medical Reply

>

> This soap trick has made the rounds for several

> years already. Although some patients have

> reported success with this treatment, it does not

> work for the vast majority of RLS/PLMD patients.

> There is a very strong placebo (sugar pill)

> effect with RLS therapies that likely accounts for

> the observed benefits of this very strange

> treatment.

>

>

> Janet Colello <janetcolello@yawrote: I wonder if

> the brain is distracted with the smell of

> the soap and therefore, does not send messages of

> the

> pain of cramps or in the case of Restless Leg

> Syndrome

> the feelings of movement in the legs. It's a kind

> of

> distraction. Just thinking out loud. It is funny,

> if

> all it takes is a bar of soap placed in the sheets.

>

> Jan

>

>

> --- juperant@... wrote:

>

> > Okay....I know I'm tired and delirious

> but.......I

> > put a bar of Zest at the

> > end of my husband's feet (in between the sheets),

> > and just for the heck of it,

> > I put a large Spa bar of lavender soap at the end

> of

> > my side and neither of us

> > had any leg problems last night. Power of

> > suggestion? What in the world

> > would be in a bar of soap?

> >

> > I am even going to put a bar of soap at the end

> of

> > Mr. B's bed too....just

> > for the heck of it.

> >

> > Thanks for the suggestion. Much Peace to all,

> > Stevie

> >

> > Stevie in So. California

> > LO - Mr. B (Uncle) 82 yrs.

> > Lives in my home - 3 yrs.

> > DX Parkinson's 1993

> > DX LBD 2003 - probably has PDD

> > End stage meds: Hytrin, E.S Tylenol (Hallies have

> > subsided) ...recently

> > started up again

> > Was on: Sinemet, Seroguel, Elavil, Lasix, Hytrin,

> > Roxinal, Aciphex,

> > Amitriptyline

> > Was given Ativan and Seroquel in NH for 5 days

> (Jan

> > '06), hasn't been the

> > same since

> > Daily BP usually 68/52

> >

> > * * * * * * * *

> >

> > Blow me down, Carol. I heard about the soap, but

> > haven't heard others say if

> > it worked.

> > Imogene

> >

> >

> > In a message dated 3/29/2006 5:16:09 AM Central

> > Standard Time,

> > carlislecy@... writes:

> >

> > RLS/leg cramping has been a continuing problem

> for

> > my husband even

> > before LBD dx. His complaints mainly start

> after

> > going to bed for

> > the night and continue until about midnight.

> >

> > Well, tried the " bar of soap " - for three nights

> > not a sound from

> > him, slept straight through the night. Could

> not

> > be " power of

> > suggestion " ; he didn't even know the soap was

> > there. I used Zest.

> >

> > Anyone else had success?

> >

> > Carole

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

>

>

> Jan Colello, wife of Jim, dx w/Parkinsons 1993 and

> LBD 2003San Francisco Bay Area, California

>

> __________________________________________________

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>

> Welcome to LBDcaregivers.

>

>

>

>

>

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