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Jill,

welcome to the group. I am sure you will learn a lot in the next little bit as

you read peoples responses. If you click on the address after my name, you will

come to the LBDA site and it has lots of information.

The story you tell of your father is one that is familiar to most of us. Your

Mom will need lots of support. She has to be having feelings if he doesn't

recognize her. The " going home " is one most of us have heard. You will

eventually come to know that nothing looks familiar to him.

This is a hard road to travel so stay with us and ask all the questions you

would like.

Mostly be very cautious about what meds he is put on.

Donna R

Do you want to read more about Lewy Body? You can also read the Thistle, the

LBD Newsletter. Just click on:

http://www.lewybodydementia.org

New to the Group

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Jill

Welcome to the board. I haven't had the experience with my mother not

believing she's in her real home - probably since she's had to move 7

times since July - of course she doesn't know where she is... She

went from her condo to Asstd. Liv. Fac to Hospital to Asstd. Liv.

Fac. w/ dementia unit to Hospital to Nursing Home to Hospital to

Nursing Home. There are numerous threads on this board where

caregivers have done some creative acting skills to comfort their LOs

with the hallucinations and confused thoughts - read back on this

board and you will learn too. Continue reading from this board - you

will learn a great deal and become the best caregiver for your dear

ole dad in no time.

; loving daughter of Maureen of Boston, MA; finally diagnosed

with LBD on 2/06 after also being diagnosed with everything from AD

to Vascular Dementia caused by mini strokes to Binswengers...; was

victim to rapid progression from Risperidone (or combination of

Risperidone with other drugs OR possibly received another " bad drug "

when she was observed/tested in a hospital in 10/05); in a NH since

11/05.

>

> I'm new to the group - hi to all of you. My dad was diagnosed with

> LBD about 2 years ago, but we hadn't noticed too much change until

> recently. He is now very confused and doesn't believe he is in his

> own home. He asked my mom the other day if he had a wife...they

have

> been married for 60+ years. He gets up in the morning and has

> breakfast and then sleeps til noon in his recliner. Then he eats

> lunch and goes back to sleep for the afternoon. Is this typical

> behavior? What do you tell someone with LBD who questions where he

> lives and wonders why he just can't go home? Thank you.

>

> Jill

>

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Hi Jill

Welcome to the group. Sorry that you need to be here. My dad also

became very confused very quickly. Some days he sleeps loads .... he

seems able to fall asleep mid-conversation [ok ..... I'm boring but

not that boring :) ] He offsets that by having other days/nights when

he's pacing up and down the corridors of his nursing home till 3am.

Dad has been the same about not knowing where home is. He was asking

to be taken home when he was at home. I think he was wanting to be

taken back to home as it was 20 years ago when it all made sense and

felt safe. He even said one day that he knew he wanted to be taken

out and brought back to the same place.

You don't actually say whether your dad is at home or not. When dad

was at home I used to take him around the house until he recognised

something that was his ..... his bed, his favourite painting, his

armchair. On his more confused days I'm afraid I just used to fob him

off with " later ..... have some tea first etc " . Now he's not at home

anymore I comfort myself when he asks to go home that he was asking to

go home when he WAS at home .... so even if he could go and live at

home, he probably still wouldn't be where he wanted to be ie. same

address but back in time.

best wishes

Áine

>

> I'm new to the group - hi to all of you. My dad was diagnosed with

> LBD about 2 years ago, but we hadn't noticed too much change until

> recently. He is now very confused and doesn't believe he is in his

> own home. He asked my mom the other day if he had a wife...they have

> been married for 60+ years. He gets up in the morning and has

> breakfast and then sleeps til noon in his recliner. Then he eats

> lunch and goes back to sleep for the afternoon. Is this typical

> behavior? What do you tell someone with LBD who questions where he

> lives and wonders why he just can't go home? Thank you.

>

> Jill

>

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Welcome, Jill. I am fairly new to this List also, so you and I will learn

together.

Imogene

Caregiver for my True Texas Gentleman husband of 35 years. He has AD and

possibly LBD, is Taking Aricept and Risperdal. Age 72 in May.

In a message dated 3/22/2006 3:17:07 AM Central Standard Time,

jillmollykady@... writes:

I'm new to the group - hi to all of you. My dad was diagnosed with

LBD about 2 years ago, but we hadn't noticed too much change until

recently. He is now very confused and doesn't believe he is in his

own home. He asked my mom the other day if he had a wife...they have

been married for 60+ years. He gets up in the morning and has

breakfast and then sleeps til noon in his recliner. Then he eats

lunch and goes back to sleep for the afternoon. Is this typical

behavior? What do you tell someone with LBD who questions where he

lives and wonders why he just can't go home? Thank you.

Jill

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Welcome, Jill. I am fairly new to this List also, so you and I will learn

together.

Imogene

Caregiver for my True Texas Gentleman husband of 35 years. He has AD and

possibly LBD, is Taking Aricept and Risperdal. Age 72 in May.

In a message dated 3/22/2006 3:17:07 AM Central Standard Time,

jillmollykady@... writes:

I'm new to the group - hi to all of you. My dad was diagnosed with

LBD about 2 years ago, but we hadn't noticed too much change until

recently. He is now very confused and doesn't believe he is in his

own home. He asked my mom the other day if he had a wife...they have

been married for 60+ years. He gets up in the morning and has

breakfast and then sleeps til noon in his recliner. Then he eats

lunch and goes back to sleep for the afternoon. Is this typical

behavior? What do you tell someone with LBD who questions where he

lives and wonders why he just can't go home? Thank you.

Jill

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Hi Jill

I was just wondering what(if any) drugs your dad is

on? He may be over medicated and that may be making

him sleep more. My mother did just about the same

amount of sleeping through. I would wake her up about

9am and feed her breakfast. She would sleep until

lunch. I would feed her lunch and she would sleep

almost 2 or 3 more hours. Have dinner and go to be at

7:30 or 8:00. She did that for many months.

The " going home " thing happens to most of the people

on this site. Changing rooms or going for a ride and

returning home are great ideas. I did that in the

beginning and then I would just say. Oh, it's not

quite time. We will be leaving soon or we will be

spending the night here and go home tomorrow in the

morning. I think they just need an answer. Something

when I tried to convince her she was home it was more

drama than it needed to be.

Also sometimes the LBD patients just wants to go home

to heaven. I think they are tired of all the confusion

here on earth.

Just my two cents worth

Dena

Mother (83) recently moved to NH. In the end phases of

LBD. No drugs at this time.

--- jillmollykady wrote:

> I'm new to the group - hi to all of you. My dad was

> diagnosed with

> LBD about 2 years ago, but we hadn't noticed too

> much change until

> recently. He is now very confused and doesn't

> believe he is in his

> own home. He asked my mom the other day if he had a

> wife...they have

> been married for 60+ years. He gets up in the

> morning and has

> breakfast and then sleeps til noon in his recliner.

> Then he eats

> lunch and goes back to sleep for the afternoon. Is

> this typical

> behavior? What do you tell someone with LBD who

> questions where he

> lives and wonders why he just can't go home? Thank

> you.

>

> Jill

>

>

>

>

>

>

>

__________________________________________________

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Thank you Tori, This List has already been a great help to me. I belong to

the AD List with Dr. Geri Hall on it. And, she has been a God send! My husband

has done things with his hands since '97. Writing, reaching for and doing

things, driving, etc.

He also has hallucinations of which he tells me about. He is normally a

quiet sleeper. Doesn't mess the bed, but a couple of weeks back his bed was a

mess, and he woke up sitting on the end of the bed flailing his arms. He was

fighting a person he saw in his room. That is when Dr. Hall told me to get him

some help right now, because he could become dangerous if he was acting out

against his hallucinations.

The Doctor put him on Risperdal.

He has visitors quite often, usually at night, but during the day, a couple

of times, he has seen cats around the house. Once was a tiger, and the other

time was several house cats. We don't own any cats. I am allergic to them.

This is the reason we strongly suspect LBD. The Doctor hasn't diagnosed that

yet, but he doesn't really know my husband yet.

From all I have read, I can see that we are on a long new journey in life.

We have already gone through two open heart surgeries, and five surgeries on

an AVF in his leg, from a botched Cath job. He has maintain a high degree of a

happy positive outlook. It is easy to love him, and play, and not argue back

because of his fine attitude most of the time. He has had some sharp turns

in his attitude a few times, which startled me, but I know it is the disease

talking.

Imogene

In a message dated 3/22/2006 5:03:46 PM Central Standard Time,

writertada@... writes:

Hey Jill and Imogene,

As someone said to me when I first joined last month, welcome to Lewyville,

the place no one wants to be. It's a place that changes minute by mintue and

you never know where you'll end up. Each day is an adventure, but you've

come to a great place. These guys are the best of the best. So your in good

hands here.

My FIL (father in law) was just diagnosed in Jan 06, however we saw signs of

it back in 2004. It was little things at first, not knowing where the store

was that he needed to go to. Forgetting that his brother died back in 1990

or driving to church when he wanted to go the grocery store. In 2005 they

moved from their home which they had lived in since the early 1970's into

another house and his confusion got worse. Then we started to think he was

seeing things. He spoke of his mother a lot. And would ask my MIL (mother in

law) where the other lady was that would clean his house. of course it was

her, he was thinking of. She just went with the flow though. She tries to get

him to remember things that happened and get him grounded again, but it

doesn't always work. She does get frustrated with him, especially if she has

to

repeat herself a billion times. It's hard for our LO (loved ones) who suffer

with this stupid rotten disease from you know where. My FIL knows that

there is something wrong with him but can't figure out what it is. He's told

me though that he doesn't like, NOT ONE BIT! I just love him through those

moments.

I can't be much help as to what to tell your dad. We just told Dizz that

this is where he lives now and it's a safe place to be. We reassured him that

he will get taken care of here and that we will always be here for him.

Hang in there Jill. I'll be praying for you and sending positive thoughts

your way.

Tori

Iward27663@... wrote:

Welcome, Jill. I am fairly new to this List also, so you and I will learn

together.

Imogene

Caregiver for my True Texas Gentleman husband of 35 years. He has AD and

possibly LBD, is Taking Aricept and Risperdal. Age 72 in May.

In a message dated 3/22/2006 3:17:07 AM Central Standard Time,

jillmollykady@... writes:

I'm new to the group - hi to all of you. My dad was diagnosed with

LBD about 2 years ago, but we hadn't noticed too much change until

recently. He is now very confused and doesn't believe he is in his

own home. He asked my mom the other day if he had a wife...they have

been married for 60+ years. He gets up in the morning and has

breakfast and then sleeps til noon in his recliner. Then he eats

lunch and goes back to sleep for the afternoon. Is this typical

behavior? What do you tell someone with LBD who questions where he

lives and wonders why he just can't go home? Thank you.

Jill

[Non-text portions of this message have been removed]

Welcome to LBDcaregivers.

---------------------------------

YAHOO! GROUPS LINKS

Visit your group " LBDcaregivers " on the web.

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Hey Jill and Imogene,

As someone said to me when I first joined last month, welcome to Lewyville,

the place no one wants to be. It's a place that changes minute by mintue and

you never know where you'll end up. Each day is an adventure, but you've come

to a great place. These guys are the best of the best. So your in good hands

here.

My FIL (father in law) was just diagnosed in Jan 06, however we saw signs of

it back in 2004. It was little things at first, not knowing where the store was

that he needed to go to. Forgetting that his brother died back in 1990 or

driving to church when he wanted to go the grocery store. In 2005 they moved

from their home which they had lived in since the early 1970's into another

house and his confusion got worse. Then we started to think he was seeing

things. He spoke of his mother a lot. And would ask my MIL (mother in law)

where the other lady was that would clean his house. of course it was her, he

was thinking of. She just went with the flow though. She tries to get him to

remember things that happened and get him grounded again, but it doesn't always

work. She does get frustrated with him, especially if she has to repeat herself

a billion times. It's hard for our LO (loved ones) who suffer with this stupid

rotten disease from you know where. My FIL knows that

there is something wrong with him but can't figure out what it is. He's told me

though that he doesn't like, NOT ONE BIT! I just love him through those

moments.

I can't be much help as to what to tell your dad. We just told Dizz that this

is where he lives now and it's a safe place to be. We reassured him that he

will get taken care of here and that we will always be here for him.

Hang in there Jill. I'll be praying for you and sending positive thoughts

your way.

Tori

Iward27663@... wrote:

Welcome, Jill. I am fairly new to this List also, so you and I will learn

together.

Imogene

Caregiver for my True Texas Gentleman husband of 35 years. He has AD and

possibly LBD, is Taking Aricept and Risperdal. Age 72 in May.

In a message dated 3/22/2006 3:17:07 AM Central Standard Time,

jillmollykady@... writes:

I'm new to the group - hi to all of you. My dad was diagnosed with

LBD about 2 years ago, but we hadn't noticed too much change until

recently. He is now very confused and doesn't believe he is in his

own home. He asked my mom the other day if he had a wife...they have

been married for 60+ years. He gets up in the morning and has

breakfast and then sleeps til noon in his recliner. Then he eats

lunch and goes back to sleep for the afternoon. Is this typical

behavior? What do you tell someone with LBD who questions where he

lives and wonders why he just can't go home? Thank you.

Jill

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Hi Dena,

My dad is on Protonix, Reminyl, Hexapro, Namenda, Lipitor, and

Norvasc. He is very sensitive to any medications so these are very

low doses. It's good to hear that others are sleeping a lot as

well. My dad is 84 years old and has been doing so well for so

long - we've been truly blessed. It's very upsetting to hear him

say he needs to go home. He is still at home where both my parents

have lived for the past 48 years.

Thank you for the suggestion of taking him for a ride

and " returning " home. We will have to try that. My mom is his

caregiver and I try to help out as much as I can. I teach full time

and my brother lives in New Orleans, but would be here in a moment's

notice if needed. My teenage sons are really good about going over

to check on Grandma and Grandpa. It's so hard to see such a brillant

man struggle in his confusion. I appreciate having a place to share

with others. Thanks for your response.

Jill

>

> > I'm new to the group - hi to all of you. My dad was

> > diagnosed with

> > LBD about 2 years ago, but we hadn't noticed too

> > much change until

> > recently. He is now very confused and doesn't

> > believe he is in his

> > own home. He asked my mom the other day if he had a

> > wife...they have

> > been married for 60+ years. He gets up in the

> > morning and has

> > breakfast and then sleeps til noon in his recliner.

> > Then he eats

> > lunch and goes back to sleep for the afternoon. Is

> > this typical

> > behavior? What do you tell someone with LBD who

> > questions where he

> > lives and wonders why he just can't go home? Thank

> > you.

> >

> > Jill

> >

> >

> >

> >

> >

> >

> >

>

>

> __________________________________________________

>

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Judy,

My Mom died in '02. She had what I believe was LBD and that is how I came to

this site. She was only dx'ed one time with AD. As I went to the groups with

her for AD, I knew she wasn't like most of the people there.

Most MD's only talked about " dementia " when they referred to her illness. And I

had her to see those MD's that should have known. She was sick for 4 years

prior to her death and we never did get anyone to call it LBD. I just kept

asking here and taking her off meds that everyone wanted to give her.

I still don't know but to this day believe it was LBD.

Donna R

Do you want to read more about Lewy Body? You can also read the Thistle, the

LBD Newsletter. Just click on:

http://www.lewybodydementia.org

Re: New to the Group

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Hi Donna,

Thank you for the kind welcome. I printed off all the posts I have

received and gave them to my mom. She said it was truly reassuring to

know others who have been down this same road. My mom is a very strong

person, but I know this is very hard for her.

I do have another question. My dad is always worried about money. He

worries that he doesn't have any. Thanks to my dad and the investments

he made when he was younger, my parents do not have any financial

worries. My mom always explains to him that he has plenty of money -

she even showed him money he has in his wallet and asked if he would

like to have some in his pocket. He didn't want that, but continues to

worry about it. Is this another " worry " that LBD patients have? This

evening I asked him what he needed money for and without missing a beat

he said " cigarettes! " My dad has never smoked a cigarette in his life.

He even laughed after he said it. He has always had a tremendous sense

of humor - perhaps that was his sense of humor shining through??

Again, thanks for your welcome - it's good to be here!

Jill

>

> Jill,

>

> welcome to the group. I am sure you will learn a lot in the next

little bit as you read peoples responses. If you click on the address

after my name, you will come to the LBDA site and it has lots of

information.

>

> The story you tell of your father is one that is familiar to most of

us. Your Mom will need lots of support. She has to be having feelings if

he doesn't recognize her. The " going home " is one most of us have heard.

You will eventually come to know that nothing looks familiar to him.

>

> This is a hard road to travel so stay with us and ask all the

questions you would like.

>

> Mostly be very cautious about what meds he is put on.

>

> Donna R

>

> Do you want to read more about Lewy Body? You can also read the

Thistle, the LBD Newsletter. Just click on:

>

> http://www.lewybodydementia.org

>

>

> New to the Group

>

>

>

>

>

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Jill,

I tried to keep Mom with some money as she always worried about it. If I gave

her any she always hid it. Then she would tell me she never got any. Then I

would go help her find where she hid it and she would say she didn't put it

there, I must have hid it and kept it from her or how did I know where it was.

It was a damned if I did and damned if I didn't. Finally I gave it up. My

daughter did have a lot of fun with her and they could laugh, (we couldn't do

that so well.) So Lori bought her some " chocolate coins. " Mom held on to them

so tight they all melted and really confused her. She ended up at the sink,

carefully washing all the foil from the coins.

We laughed about that for a long time. I think part of money worries is the

depression they most all grew up in or if not they remember well.

So yes, you will hear a lot about the money thing. Some people just get some

play paper money and give it to them and not worry about it. I most recently

found the last $30.00 I gave Mom. It was hidden under some blankets in the

bedroom she slept in. I had a few laughs and tears. She has been gone 4 years

and it has taken me that long to almost get caught up after having with me for 3

years and one more in a nh.

The quicker you swing with all this the soon you will not feel so crazy. I

always say I can tell if someone is caregiving a LBD person by how frantic they

are. AD(Alzheimers) just don't have the same level of stress.

Hugs.

Donna R

Do you want to read more about Lewy Body? You can also read the Thistle, the

LBD Newsletter. Just click on:

http://www.lewybodydementia.org

Re: New to the Group

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PS. Jill,

There is lots of information at the LBDA site. The address if following my name

and you can just click on it.

Peggy has done such a fine job of updating those pages.

Donna R

Do you want to read more about Lewy Body? You can also read the Thistle, the

LBD Newsletter. Just click on:

http://www.lewybodydementia.org

Re: New to the Group

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It is funny that you asked whether there are others that obsess about money

and to that I say yes. We don't have a thing to worry about financially and

my husband keeps wanting to make plans for giving money to our grandchildren

for their education. The subject comes up about every other day and I tell him

what we decided and yet he won't let it go. And, I have to show him the

financial statements constantly. It is just a little annoyance and I guess I

should be thankful that he is obsessing about this and not about something

else. Arlene

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Judy, I related many things happening to my husband, and a doctor on an AD

List told me I was describing all the symptoms of LBD. When we talked to My

husband's doctor, of course he hasn't known my husband long, and did not make

a diagnosis. But, did want my husband to double his Risperdal. My husband is

already on 1mg a day, and is short of breath, has heart trouble, and

Risperdal is not recommended for heart patients, so--- my husband won't take the

extra Risperdal a day. The Doctor must think he has LBD, because of my husband

seeing cats in the house, and fighting his hallucinations. But, the doctor

wasn't ready to say it.

I understand hallucinations early on are a sign of LBD, and fighting them is

a sign of paranoia, which can be dangerous for the caregiver. My LO only had

one fighting episode. The doctor prescribed Risperdal right now! My LO Woke

up sitting at the end of his messed up bed flailing his arms. He said he had

been having quite a fight with the hallucination. My dear one is a gentle

quiet man that everyone loves. It is the disease that caused the fighting.

So, I am on this List to learn all I can just in case he actually has it.

Imogene

Caregiver for my True Texas Gentleman husband of 35 years. He has AD and

possibly LBD, is Taking Aricept and Risperdal. Age 72 in May.

In a message dated 3/22/2006 7:52:39 PM Central Standard Time,

jchristensen1953@... writes:

Many of you write that your LO has been diagnosed with

LBD, and I wondered if the doctor diagnosed it or if

it was diagnosed based on the symptoms. I am sure my

husband has it, but he has not been diagnosed by

anyone in the medical community. Can you, and if so,

how is it actually diagnosed?

--- JUDY DUKE wrote:

> Hi Jill,

> I'm still pretty new to this group myself, My dad is

> 60 yrs old and also is living at home with mom.He

> was

> diagnosed with lewy body Feb/2006. We mostly just

> try

> and go along with his weird conversations.Someone

> had

> suggested saying " okay we'll go home now and just

> moved to a different room in the house " maybe you

> could try that.My best advice to you is talk calmly

> and don't argue with them it seems to help us alot.

>

> Judy

> God bless!

> --- jillmollykady wrote:

>

>

> ---------------------------------

> I'm new to the group - hi to all of you. My dad was

> diagnosed with

> LBD about 2 years ago, but we hadn't noticed too

> much

> change until

> recently. He is now very confused and doesn't

> believe

> he is in his

> own home. He asked my mom the other day if he had a

> wife...they have

> been married for 60+ years. He gets up in the

> morning

> and has

> breakfast and then sleeps til noon in his recliner.

> Then he eats

> lunch and goes back to sleep for the afternoon. Is

> this typical

> behavior? What do you tell someone with LBD who

> questions where he

> lives and wonders why he just can't go home? Thank

> you.

>

> Jill

>

>

>

>

>

>

>

>

> Welcome to LBDcaregivers.

>

>

>

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HI Donna,

I am sooo sorry for your loss and the fact that you

lived in the unknown as well. It is frusterating,I

would say my dad has all symptoms mentioned in this

site.From runny nose, being cold all the time, not

being able to write his signature

anymore,hallucinations (which have subsided due to

aricept)pacing, staring off into space, stuttering and

having trouble getting his words out (I usually finish

his sentences for him), saying ridiculous things that

don't sound like him talking, needs simple directions

to take a shower and wash his hair, one time mom just

sponged bathed him cuz he got so upset, etc..so it's

like I absoulutley know he has lbd but like the

doctors just don't want to say it. I do understand

there is no absolute diagnosis except thru autopsy, (I

will be doing that in the end)and thats its a process

of eliminating other problems, our neurologist

basically agreed with us about it being Lbd and did

put it in dads file that he faxed to gp but for some

reason our gp (who is very old himself) is very

reluctant to work with us on this. I do find him

incompetent and I hope to find a better gp in near

future.Would you happen to know if it's possible for

geriatritionist to help us to find better qualified

gp.Or at least one who is willing to learn with us.

Thanks,

Judy

--- Donna Mido wrote:

---------------------------------

Judy,

My Mom died in '02. She had what I believe was LBD

and that is how I came to this site. She was only

dx'ed one time with AD. As I went to the groups with

her for AD, I knew she wasn't like most of the people

there.

Most MD's only talked about " dementia " when they

referred to her illness. And I had her to see those

MD's that should have known. She was sick for 4 years

prior to her death and we never did get anyone to call

it LBD. I just kept asking here and taking her off

meds that everyone wanted to give her.

I still don't know but to this day believe it was LBD.

Donna R

Do you want to read more about Lewy Body? You can

also read the Thistle, the LBD Newsletter. Just click

on:

http://www.lewybodydementia.org

Re: New to the Group

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Hi, Judy,

If you can find a good neuropsychiatrist or a good geriatric or

senior center, usually those folks are fairly familiar. However, I

do find there are limitations with the knowledge base regardless of

their specialty sometimes, so just arm yourself with as much

knowledge as you can find on the web or wherever. Often it is the

caretakers who determine a drug problem rather than the physician

knowing it. I've had to say absolutely not on some drugs that a

physician would suggest, and they always seem surprised when I tell

them why - they obviously don't know some of this stuff.

My mom was finally diagnosed by a whole neurology department while

in the hospital, after grand rounds, and then well followed by a

great geriatric physician at a senior center at a hospital near

where she lived. We only just left the care of that doctor when she

went into the nh, then you just get stuck with whoever the nh staff

doctor is, and I've had to tell him a fair amount about the disease

and drugs as well, and discovered that no - no drugs were given to

my mother for various reasons when family wasn't there. So I had to

put a big list of what they couldn't give her on the chart.

Unfortunately, it falls to us a good part of the time to manage the

things that can occur with this awful disease.

>

>

> ---------------------------------

> Judy,

>

> My Mom died in '02. She had what I believe was LBD

> and that is how I came to this site. She was only

> dx'ed one time with AD. As I went to the groups with

> her for AD, I knew she wasn't like most of the people

> there.

>

> Most MD's only talked about " dementia " when they

> referred to her illness. And I had her to see those

> MD's that should have known. She was sick for 4 years

> prior to her death and we never did get anyone to call

> it LBD. I just kept asking here and taking her off

> meds that everyone wanted to give her.

>

> I still don't know but to this day believe it was LBD.

>

>

> Donna R

>

> Do you want to read more about Lewy Body? You can

> also read the Thistle, the LBD Newsletter. Just click

> on:

>

> http://www.lewybodydementia.org

>

>

> Re: New to the Group

>

>

>

>

>

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Guest guest

Thanks for your reply. My mom has to go through their financial

statements and assure my dad that they have plenty of money. We

can't quite figure out why he wants to know, just reassure him that

everything is taken care of and he doesn't have to worry. That

works for now...

Jill

>

>

>

> It is funny that you asked whether there are others that obsess

about money

> and to that I say yes. We don't have a thing to worry about

financially and

> my husband keeps wanting to make plans for giving money to our

grandchildren

> for their education. The subject comes up about every other day

and I tell him

> what we decided and yet he won't let it go. And, I have to show

him the

> financial statements constantly. It is just a little annoyance

and I guess I

> should be thankful that he is obsessing about this and not about

something

> else. Arlene

>

>

>

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Guest guest

Thanks for your reply. My mom has to go through their financial

statements and assure my dad that they have plenty of money. We

can't quite figure out why he wants to know, just reassure him that

everything is taken care of and he doesn't have to worry. That

works for now...

Jill

>

>

>

> It is funny that you asked whether there are others that obsess

about money

> and to that I say yes. We don't have a thing to worry about

financially and

> my husband keeps wanting to make plans for giving money to our

grandchildren

> for their education. The subject comes up about every other day

and I tell him

> what we decided and yet he won't let it go. And, I have to show

him the

> financial statements constantly. It is just a little annoyance

and I guess I

> should be thankful that he is obsessing about this and not about

something

> else. Arlene

>

>

>

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Guest guest

Imogene,

It's so comforting to know others understand exactly

what we are going thru.We will hang in on this journey

and will learn everything we can.I'll certainly keep

sharing so that what I have learned may help someone

else.This group is absolutley amazing!!

God bless,

Judy

--- Iward27663@... wrote:

---------------------------------

Judy, I related many things happening to my husband,

and a doctor on an AD

List told me I was describing all the symptoms of LBD.

When we talked to My

husband's doctor, of course he hasn't known my husband

long, and did not make

a diagnosis. But, did want my husband to double his

Risperdal. My husband is

already on 1mg a day, and is short of breath, has

heart trouble, and

Risperdal is not recommended for heart patients, so---

my husband won't take the

extra Risperdal a day. The Doctor must think he has

LBD, because of my husband

seeing cats in the house, and fighting his

hallucinations. But, the doctor

wasn't ready to say it.

I understand hallucinations early on are a sign of

LBD, and fighting them is

a sign of paranoia, which can be dangerous for the

caregiver. My LO only had

one fighting episode. The doctor prescribed Risperdal

right now! My LO Woke

up sitting at the end of his messed up bed flailing

his arms. He said he had

been having quite a fight with the hallucination. My

dear one is a gentle

quiet man that everyone loves. It is the disease that

caused the fighting.

So, I am on this List to learn all I can just in case

he actually has it.

Imogene

Caregiver for my True Texas Gentleman husband of 35

years. He has AD and

possibly LBD, is Taking Aricept and Risperdal. Age 72

in May.

In a message dated 3/22/2006 7:52:39 PM Central

Standard Time,

jchristensen1953@... writes:

Many of you write that your LO has been diagnosed

with

LBD, and I wondered if the doctor diagnosed it or if

it was diagnosed based on the symptoms. I am sure my

husband has it, but he has not been diagnosed by

anyone in the medical community. Can you, and if so,

how is it actually diagnosed?

--- JUDY DUKE wrote:

> Hi Jill,

> I'm still pretty new to this group myself, My dad

is

> 60 yrs old and also is living at home with mom.He

> was

> diagnosed with lewy body Feb/2006. We mostly just

> try

> and go along with his weird conversations.Someone

> had

> suggested saying " okay we'll go home now and just

> moved to a different room in the house " maybe you

> could try that.My best advice to you is talk calmly

> and don't argue with them it seems to help us alot.

>

> Judy

> God bless!

> --- jillmollykady wrote:

>

>

> ---------------------------------

> I'm new to the group - hi to all of you. My dad

was

> diagnosed with

> LBD about 2 years ago, but we hadn't noticed too

> much

> change until

> recently. He is now very confused and doesn't

> believe

> he is in his

> own home. He asked my mom the other day if he had a

> wife...they have

> been married for 60+ years. He gets up in the

> morning

> and has

> breakfast and then sleeps til noon in his recliner.

> Then he eats

> lunch and goes back to sleep for the afternoon. Is

> this typical

> behavior? What do you tell someone with LBD who

> questions where he

> lives and wonders why he just can't go home? Thank

> you.

>

> Jill

>

>

>

>

>

>

>

>

> Welcome to LBDcaregivers.

>

>

>

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Guest guest

would it help to say , ok i will add some more to their account today, and then

get on the phone and phgone a friend and act like you did it??? hugs sharon m

From: Zweibeers@...

Date: 2006/03/23 Thu AM 10:45:24 EST

To: LBDcaregivers

Subject: Re: Re: New to the Group

It is funny that you asked whether there are others that obsess about money

and to that I say yes. We don't have a thing to worry about financially and

my husband keeps wanting to make plans for giving money to our grandchildren

for their education. The subject comes up about every other day and I tell him

what we decided and yet he won't let it go. And, I have to show him the

financial statements constantly. It is just a little annoyance and I guess I

should be thankful that he is obsessing about this and not about something

else. Arlene

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