Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 Jill, welcome to the group. I am sure you will learn a lot in the next little bit as you read peoples responses. If you click on the address after my name, you will come to the LBDA site and it has lots of information. The story you tell of your father is one that is familiar to most of us. Your Mom will need lots of support. She has to be having feelings if he doesn't recognize her. The " going home " is one most of us have heard. You will eventually come to know that nothing looks familiar to him. This is a hard road to travel so stay with us and ask all the questions you would like. Mostly be very cautious about what meds he is put on. Donna R Do you want to read more about Lewy Body? You can also read the Thistle, the LBD Newsletter. Just click on: http://www.lewybodydementia.org New to the Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 Jill Welcome to the board. I haven't had the experience with my mother not believing she's in her real home - probably since she's had to move 7 times since July - of course she doesn't know where she is... She went from her condo to Asstd. Liv. Fac to Hospital to Asstd. Liv. Fac. w/ dementia unit to Hospital to Nursing Home to Hospital to Nursing Home. There are numerous threads on this board where caregivers have done some creative acting skills to comfort their LOs with the hallucinations and confused thoughts - read back on this board and you will learn too. Continue reading from this board - you will learn a great deal and become the best caregiver for your dear ole dad in no time. ; loving daughter of Maureen of Boston, MA; finally diagnosed with LBD on 2/06 after also being diagnosed with everything from AD to Vascular Dementia caused by mini strokes to Binswengers...; was victim to rapid progression from Risperidone (or combination of Risperidone with other drugs OR possibly received another " bad drug " when she was observed/tested in a hospital in 10/05); in a NH since 11/05. > > I'm new to the group - hi to all of you. My dad was diagnosed with > LBD about 2 years ago, but we hadn't noticed too much change until > recently. He is now very confused and doesn't believe he is in his > own home. He asked my mom the other day if he had a wife...they have > been married for 60+ years. He gets up in the morning and has > breakfast and then sleeps til noon in his recliner. Then he eats > lunch and goes back to sleep for the afternoon. Is this typical > behavior? What do you tell someone with LBD who questions where he > lives and wonders why he just can't go home? Thank you. > > Jill > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 Hi Jill Welcome to the group. Sorry that you need to be here. My dad also became very confused very quickly. Some days he sleeps loads .... he seems able to fall asleep mid-conversation [ok ..... I'm boring but not that boring ] He offsets that by having other days/nights when he's pacing up and down the corridors of his nursing home till 3am. Dad has been the same about not knowing where home is. He was asking to be taken home when he was at home. I think he was wanting to be taken back to home as it was 20 years ago when it all made sense and felt safe. He even said one day that he knew he wanted to be taken out and brought back to the same place. You don't actually say whether your dad is at home or not. When dad was at home I used to take him around the house until he recognised something that was his ..... his bed, his favourite painting, his armchair. On his more confused days I'm afraid I just used to fob him off with " later ..... have some tea first etc " . Now he's not at home anymore I comfort myself when he asks to go home that he was asking to go home when he WAS at home .... so even if he could go and live at home, he probably still wouldn't be where he wanted to be ie. same address but back in time. best wishes Áine > > I'm new to the group - hi to all of you. My dad was diagnosed with > LBD about 2 years ago, but we hadn't noticed too much change until > recently. He is now very confused and doesn't believe he is in his > own home. He asked my mom the other day if he had a wife...they have > been married for 60+ years. He gets up in the morning and has > breakfast and then sleeps til noon in his recliner. Then he eats > lunch and goes back to sleep for the afternoon. Is this typical > behavior? What do you tell someone with LBD who questions where he > lives and wonders why he just can't go home? Thank you. > > Jill > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 Welcome, Jill. I am fairly new to this List also, so you and I will learn together. Imogene Caregiver for my True Texas Gentleman husband of 35 years. He has AD and possibly LBD, is Taking Aricept and Risperdal. Age 72 in May. In a message dated 3/22/2006 3:17:07 AM Central Standard Time, jillmollykady@... writes: I'm new to the group - hi to all of you. My dad was diagnosed with LBD about 2 years ago, but we hadn't noticed too much change until recently. He is now very confused and doesn't believe he is in his own home. He asked my mom the other day if he had a wife...they have been married for 60+ years. He gets up in the morning and has breakfast and then sleeps til noon in his recliner. Then he eats lunch and goes back to sleep for the afternoon. Is this typical behavior? What do you tell someone with LBD who questions where he lives and wonders why he just can't go home? Thank you. Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 Welcome, Jill. I am fairly new to this List also, so you and I will learn together. Imogene Caregiver for my True Texas Gentleman husband of 35 years. He has AD and possibly LBD, is Taking Aricept and Risperdal. Age 72 in May. In a message dated 3/22/2006 3:17:07 AM Central Standard Time, jillmollykady@... writes: I'm new to the group - hi to all of you. My dad was diagnosed with LBD about 2 years ago, but we hadn't noticed too much change until recently. He is now very confused and doesn't believe he is in his own home. He asked my mom the other day if he had a wife...they have been married for 60+ years. He gets up in the morning and has breakfast and then sleeps til noon in his recliner. Then he eats lunch and goes back to sleep for the afternoon. Is this typical behavior? What do you tell someone with LBD who questions where he lives and wonders why he just can't go home? Thank you. Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 Hi Jill I was just wondering what(if any) drugs your dad is on? He may be over medicated and that may be making him sleep more. My mother did just about the same amount of sleeping through. I would wake her up about 9am and feed her breakfast. She would sleep until lunch. I would feed her lunch and she would sleep almost 2 or 3 more hours. Have dinner and go to be at 7:30 or 8:00. She did that for many months. The " going home " thing happens to most of the people on this site. Changing rooms or going for a ride and returning home are great ideas. I did that in the beginning and then I would just say. Oh, it's not quite time. We will be leaving soon or we will be spending the night here and go home tomorrow in the morning. I think they just need an answer. Something when I tried to convince her she was home it was more drama than it needed to be. Also sometimes the LBD patients just wants to go home to heaven. I think they are tired of all the confusion here on earth. Just my two cents worth Dena Mother (83) recently moved to NH. In the end phases of LBD. No drugs at this time. --- jillmollykady wrote: > I'm new to the group - hi to all of you. My dad was > diagnosed with > LBD about 2 years ago, but we hadn't noticed too > much change until > recently. He is now very confused and doesn't > believe he is in his > own home. He asked my mom the other day if he had a > wife...they have > been married for 60+ years. He gets up in the > morning and has > breakfast and then sleeps til noon in his recliner. > Then he eats > lunch and goes back to sleep for the afternoon. Is > this typical > behavior? What do you tell someone with LBD who > questions where he > lives and wonders why he just can't go home? Thank > you. > > Jill > > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 Thank you Tori, This List has already been a great help to me. I belong to the AD List with Dr. Geri Hall on it. And, she has been a God send! My husband has done things with his hands since '97. Writing, reaching for and doing things, driving, etc. He also has hallucinations of which he tells me about. He is normally a quiet sleeper. Doesn't mess the bed, but a couple of weeks back his bed was a mess, and he woke up sitting on the end of the bed flailing his arms. He was fighting a person he saw in his room. That is when Dr. Hall told me to get him some help right now, because he could become dangerous if he was acting out against his hallucinations. The Doctor put him on Risperdal. He has visitors quite often, usually at night, but during the day, a couple of times, he has seen cats around the house. Once was a tiger, and the other time was several house cats. We don't own any cats. I am allergic to them. This is the reason we strongly suspect LBD. The Doctor hasn't diagnosed that yet, but he doesn't really know my husband yet. From all I have read, I can see that we are on a long new journey in life. We have already gone through two open heart surgeries, and five surgeries on an AVF in his leg, from a botched Cath job. He has maintain a high degree of a happy positive outlook. It is easy to love him, and play, and not argue back because of his fine attitude most of the time. He has had some sharp turns in his attitude a few times, which startled me, but I know it is the disease talking. Imogene In a message dated 3/22/2006 5:03:46 PM Central Standard Time, writertada@... writes: Hey Jill and Imogene, As someone said to me when I first joined last month, welcome to Lewyville, the place no one wants to be. It's a place that changes minute by mintue and you never know where you'll end up. Each day is an adventure, but you've come to a great place. These guys are the best of the best. So your in good hands here. My FIL (father in law) was just diagnosed in Jan 06, however we saw signs of it back in 2004. It was little things at first, not knowing where the store was that he needed to go to. Forgetting that his brother died back in 1990 or driving to church when he wanted to go the grocery store. In 2005 they moved from their home which they had lived in since the early 1970's into another house and his confusion got worse. Then we started to think he was seeing things. He spoke of his mother a lot. And would ask my MIL (mother in law) where the other lady was that would clean his house. of course it was her, he was thinking of. She just went with the flow though. She tries to get him to remember things that happened and get him grounded again, but it doesn't always work. She does get frustrated with him, especially if she has to repeat herself a billion times. It's hard for our LO (loved ones) who suffer with this stupid rotten disease from you know where. My FIL knows that there is something wrong with him but can't figure out what it is. He's told me though that he doesn't like, NOT ONE BIT! I just love him through those moments. I can't be much help as to what to tell your dad. We just told Dizz that this is where he lives now and it's a safe place to be. We reassured him that he will get taken care of here and that we will always be here for him. Hang in there Jill. I'll be praying for you and sending positive thoughts your way. Tori Iward27663@... wrote: Welcome, Jill. I am fairly new to this List also, so you and I will learn together. Imogene Caregiver for my True Texas Gentleman husband of 35 years. He has AD and possibly LBD, is Taking Aricept and Risperdal. Age 72 in May. In a message dated 3/22/2006 3:17:07 AM Central Standard Time, jillmollykady@... writes: I'm new to the group - hi to all of you. My dad was diagnosed with LBD about 2 years ago, but we hadn't noticed too much change until recently. He is now very confused and doesn't believe he is in his own home. He asked my mom the other day if he had a wife...they have been married for 60+ years. He gets up in the morning and has breakfast and then sleeps til noon in his recliner. Then he eats lunch and goes back to sleep for the afternoon. Is this typical behavior? What do you tell someone with LBD who questions where he lives and wonders why he just can't go home? Thank you. Jill [Non-text portions of this message have been removed] Welcome to LBDcaregivers. --------------------------------- YAHOO! GROUPS LINKS Visit your group " LBDcaregivers " on the web. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 Hey Jill and Imogene, As someone said to me when I first joined last month, welcome to Lewyville, the place no one wants to be. It's a place that changes minute by mintue and you never know where you'll end up. Each day is an adventure, but you've come to a great place. These guys are the best of the best. So your in good hands here. My FIL (father in law) was just diagnosed in Jan 06, however we saw signs of it back in 2004. It was little things at first, not knowing where the store was that he needed to go to. Forgetting that his brother died back in 1990 or driving to church when he wanted to go the grocery store. In 2005 they moved from their home which they had lived in since the early 1970's into another house and his confusion got worse. Then we started to think he was seeing things. He spoke of his mother a lot. And would ask my MIL (mother in law) where the other lady was that would clean his house. of course it was her, he was thinking of. She just went with the flow though. She tries to get him to remember things that happened and get him grounded again, but it doesn't always work. She does get frustrated with him, especially if she has to repeat herself a billion times. It's hard for our LO (loved ones) who suffer with this stupid rotten disease from you know where. My FIL knows that there is something wrong with him but can't figure out what it is. He's told me though that he doesn't like, NOT ONE BIT! I just love him through those moments. I can't be much help as to what to tell your dad. We just told Dizz that this is where he lives now and it's a safe place to be. We reassured him that he will get taken care of here and that we will always be here for him. Hang in there Jill. I'll be praying for you and sending positive thoughts your way. Tori Iward27663@... wrote: Welcome, Jill. I am fairly new to this List also, so you and I will learn together. Imogene Caregiver for my True Texas Gentleman husband of 35 years. He has AD and possibly LBD, is Taking Aricept and Risperdal. Age 72 in May. In a message dated 3/22/2006 3:17:07 AM Central Standard Time, jillmollykady@... writes: I'm new to the group - hi to all of you. My dad was diagnosed with LBD about 2 years ago, but we hadn't noticed too much change until recently. He is now very confused and doesn't believe he is in his own home. He asked my mom the other day if he had a wife...they have been married for 60+ years. He gets up in the morning and has breakfast and then sleeps til noon in his recliner. Then he eats lunch and goes back to sleep for the afternoon. Is this typical behavior? What do you tell someone with LBD who questions where he lives and wonders why he just can't go home? Thank you. Jill Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 Hi Dena, My dad is on Protonix, Reminyl, Hexapro, Namenda, Lipitor, and Norvasc. He is very sensitive to any medications so these are very low doses. It's good to hear that others are sleeping a lot as well. My dad is 84 years old and has been doing so well for so long - we've been truly blessed. It's very upsetting to hear him say he needs to go home. He is still at home where both my parents have lived for the past 48 years. Thank you for the suggestion of taking him for a ride and " returning " home. We will have to try that. My mom is his caregiver and I try to help out as much as I can. I teach full time and my brother lives in New Orleans, but would be here in a moment's notice if needed. My teenage sons are really good about going over to check on Grandma and Grandpa. It's so hard to see such a brillant man struggle in his confusion. I appreciate having a place to share with others. Thanks for your response. Jill > > > I'm new to the group - hi to all of you. My dad was > > diagnosed with > > LBD about 2 years ago, but we hadn't noticed too > > much change until > > recently. He is now very confused and doesn't > > believe he is in his > > own home. He asked my mom the other day if he had a > > wife...they have > > been married for 60+ years. He gets up in the > > morning and has > > breakfast and then sleeps til noon in his recliner. > > Then he eats > > lunch and goes back to sleep for the afternoon. Is > > this typical > > behavior? What do you tell someone with LBD who > > questions where he > > lives and wonders why he just can't go home? Thank > > you. > > > > Jill > > > > > > > > > > > > > > > > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 Judy, My Mom died in '02. She had what I believe was LBD and that is how I came to this site. She was only dx'ed one time with AD. As I went to the groups with her for AD, I knew she wasn't like most of the people there. Most MD's only talked about " dementia " when they referred to her illness. And I had her to see those MD's that should have known. She was sick for 4 years prior to her death and we never did get anyone to call it LBD. I just kept asking here and taking her off meds that everyone wanted to give her. I still don't know but to this day believe it was LBD. Donna R Do you want to read more about Lewy Body? You can also read the Thistle, the LBD Newsletter. Just click on: http://www.lewybodydementia.org Re: New to the Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 Hi Donna, Thank you for the kind welcome. I printed off all the posts I have received and gave them to my mom. She said it was truly reassuring to know others who have been down this same road. My mom is a very strong person, but I know this is very hard for her. I do have another question. My dad is always worried about money. He worries that he doesn't have any. Thanks to my dad and the investments he made when he was younger, my parents do not have any financial worries. My mom always explains to him that he has plenty of money - she even showed him money he has in his wallet and asked if he would like to have some in his pocket. He didn't want that, but continues to worry about it. Is this another " worry " that LBD patients have? This evening I asked him what he needed money for and without missing a beat he said " cigarettes! " My dad has never smoked a cigarette in his life. He even laughed after he said it. He has always had a tremendous sense of humor - perhaps that was his sense of humor shining through?? Again, thanks for your welcome - it's good to be here! Jill > > Jill, > > welcome to the group. I am sure you will learn a lot in the next little bit as you read peoples responses. If you click on the address after my name, you will come to the LBDA site and it has lots of information. > > The story you tell of your father is one that is familiar to most of us. Your Mom will need lots of support. She has to be having feelings if he doesn't recognize her. The " going home " is one most of us have heard. You will eventually come to know that nothing looks familiar to him. > > This is a hard road to travel so stay with us and ask all the questions you would like. > > Mostly be very cautious about what meds he is put on. > > Donna R > > Do you want to read more about Lewy Body? You can also read the Thistle, the LBD Newsletter. Just click on: > > http://www.lewybodydementia.org > > > New to the Group > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 Jill, I tried to keep Mom with some money as she always worried about it. If I gave her any she always hid it. Then she would tell me she never got any. Then I would go help her find where she hid it and she would say she didn't put it there, I must have hid it and kept it from her or how did I know where it was. It was a damned if I did and damned if I didn't. Finally I gave it up. My daughter did have a lot of fun with her and they could laugh, (we couldn't do that so well.) So Lori bought her some " chocolate coins. " Mom held on to them so tight they all melted and really confused her. She ended up at the sink, carefully washing all the foil from the coins. We laughed about that for a long time. I think part of money worries is the depression they most all grew up in or if not they remember well. So yes, you will hear a lot about the money thing. Some people just get some play paper money and give it to them and not worry about it. I most recently found the last $30.00 I gave Mom. It was hidden under some blankets in the bedroom she slept in. I had a few laughs and tears. She has been gone 4 years and it has taken me that long to almost get caught up after having with me for 3 years and one more in a nh. The quicker you swing with all this the soon you will not feel so crazy. I always say I can tell if someone is caregiving a LBD person by how frantic they are. AD(Alzheimers) just don't have the same level of stress. Hugs. Donna R Do you want to read more about Lewy Body? You can also read the Thistle, the LBD Newsletter. Just click on: http://www.lewybodydementia.org Re: New to the Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2006 Report Share Posted March 22, 2006 PS. Jill, There is lots of information at the LBDA site. The address if following my name and you can just click on it. Peggy has done such a fine job of updating those pages. Donna R Do you want to read more about Lewy Body? You can also read the Thistle, the LBD Newsletter. Just click on: http://www.lewybodydementia.org Re: New to the Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 It is funny that you asked whether there are others that obsess about money and to that I say yes. We don't have a thing to worry about financially and my husband keeps wanting to make plans for giving money to our grandchildren for their education. The subject comes up about every other day and I tell him what we decided and yet he won't let it go. And, I have to show him the financial statements constantly. It is just a little annoyance and I guess I should be thankful that he is obsessing about this and not about something else. Arlene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 Judy, I related many things happening to my husband, and a doctor on an AD List told me I was describing all the symptoms of LBD. When we talked to My husband's doctor, of course he hasn't known my husband long, and did not make a diagnosis. But, did want my husband to double his Risperdal. My husband is already on 1mg a day, and is short of breath, has heart trouble, and Risperdal is not recommended for heart patients, so--- my husband won't take the extra Risperdal a day. The Doctor must think he has LBD, because of my husband seeing cats in the house, and fighting his hallucinations. But, the doctor wasn't ready to say it. I understand hallucinations early on are a sign of LBD, and fighting them is a sign of paranoia, which can be dangerous for the caregiver. My LO only had one fighting episode. The doctor prescribed Risperdal right now! My LO Woke up sitting at the end of his messed up bed flailing his arms. He said he had been having quite a fight with the hallucination. My dear one is a gentle quiet man that everyone loves. It is the disease that caused the fighting. So, I am on this List to learn all I can just in case he actually has it. Imogene Caregiver for my True Texas Gentleman husband of 35 years. He has AD and possibly LBD, is Taking Aricept and Risperdal. Age 72 in May. In a message dated 3/22/2006 7:52:39 PM Central Standard Time, jchristensen1953@... writes: Many of you write that your LO has been diagnosed with LBD, and I wondered if the doctor diagnosed it or if it was diagnosed based on the symptoms. I am sure my husband has it, but he has not been diagnosed by anyone in the medical community. Can you, and if so, how is it actually diagnosed? --- JUDY DUKE wrote: > Hi Jill, > I'm still pretty new to this group myself, My dad is > 60 yrs old and also is living at home with mom.He > was > diagnosed with lewy body Feb/2006. We mostly just > try > and go along with his weird conversations.Someone > had > suggested saying " okay we'll go home now and just > moved to a different room in the house " maybe you > could try that.My best advice to you is talk calmly > and don't argue with them it seems to help us alot. > > Judy > God bless! > --- jillmollykady wrote: > > > --------------------------------- > I'm new to the group - hi to all of you. My dad was > diagnosed with > LBD about 2 years ago, but we hadn't noticed too > much > change until > recently. He is now very confused and doesn't > believe > he is in his > own home. He asked my mom the other day if he had a > wife...they have > been married for 60+ years. He gets up in the > morning > and has > breakfast and then sleeps til noon in his recliner. > Then he eats > lunch and goes back to sleep for the afternoon. Is > this typical > behavior? What do you tell someone with LBD who > questions where he > lives and wonders why he just can't go home? Thank > you. > > Jill > > > > > > > > > Welcome to LBDcaregivers. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 HI Donna, I am sooo sorry for your loss and the fact that you lived in the unknown as well. It is frusterating,I would say my dad has all symptoms mentioned in this site.From runny nose, being cold all the time, not being able to write his signature anymore,hallucinations (which have subsided due to aricept)pacing, staring off into space, stuttering and having trouble getting his words out (I usually finish his sentences for him), saying ridiculous things that don't sound like him talking, needs simple directions to take a shower and wash his hair, one time mom just sponged bathed him cuz he got so upset, etc..so it's like I absoulutley know he has lbd but like the doctors just don't want to say it. I do understand there is no absolute diagnosis except thru autopsy, (I will be doing that in the end)and thats its a process of eliminating other problems, our neurologist basically agreed with us about it being Lbd and did put it in dads file that he faxed to gp but for some reason our gp (who is very old himself) is very reluctant to work with us on this. I do find him incompetent and I hope to find a better gp in near future.Would you happen to know if it's possible for geriatritionist to help us to find better qualified gp.Or at least one who is willing to learn with us. Thanks, Judy --- Donna Mido wrote: --------------------------------- Judy, My Mom died in '02. She had what I believe was LBD and that is how I came to this site. She was only dx'ed one time with AD. As I went to the groups with her for AD, I knew she wasn't like most of the people there. Most MD's only talked about " dementia " when they referred to her illness. And I had her to see those MD's that should have known. She was sick for 4 years prior to her death and we never did get anyone to call it LBD. I just kept asking here and taking her off meds that everyone wanted to give her. I still don't know but to this day believe it was LBD. Donna R Do you want to read more about Lewy Body? You can also read the Thistle, the LBD Newsletter. Just click on: http://www.lewybodydementia.org Re: New to the Group Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 Hi, Judy, If you can find a good neuropsychiatrist or a good geriatric or senior center, usually those folks are fairly familiar. However, I do find there are limitations with the knowledge base regardless of their specialty sometimes, so just arm yourself with as much knowledge as you can find on the web or wherever. Often it is the caretakers who determine a drug problem rather than the physician knowing it. I've had to say absolutely not on some drugs that a physician would suggest, and they always seem surprised when I tell them why - they obviously don't know some of this stuff. My mom was finally diagnosed by a whole neurology department while in the hospital, after grand rounds, and then well followed by a great geriatric physician at a senior center at a hospital near where she lived. We only just left the care of that doctor when she went into the nh, then you just get stuck with whoever the nh staff doctor is, and I've had to tell him a fair amount about the disease and drugs as well, and discovered that no - no drugs were given to my mother for various reasons when family wasn't there. So I had to put a big list of what they couldn't give her on the chart. Unfortunately, it falls to us a good part of the time to manage the things that can occur with this awful disease. > > > --------------------------------- > Judy, > > My Mom died in '02. She had what I believe was LBD > and that is how I came to this site. She was only > dx'ed one time with AD. As I went to the groups with > her for AD, I knew she wasn't like most of the people > there. > > Most MD's only talked about " dementia " when they > referred to her illness. And I had her to see those > MD's that should have known. She was sick for 4 years > prior to her death and we never did get anyone to call > it LBD. I just kept asking here and taking her off > meds that everyone wanted to give her. > > I still don't know but to this day believe it was LBD. > > > Donna R > > Do you want to read more about Lewy Body? You can > also read the Thistle, the LBD Newsletter. Just click > on: > > http://www.lewybodydementia.org > > > Re: New to the Group > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 Thanks for your reply. My mom has to go through their financial statements and assure my dad that they have plenty of money. We can't quite figure out why he wants to know, just reassure him that everything is taken care of and he doesn't have to worry. That works for now... Jill > > > > It is funny that you asked whether there are others that obsess about money > and to that I say yes. We don't have a thing to worry about financially and > my husband keeps wanting to make plans for giving money to our grandchildren > for their education. The subject comes up about every other day and I tell him > what we decided and yet he won't let it go. And, I have to show him the > financial statements constantly. It is just a little annoyance and I guess I > should be thankful that he is obsessing about this and not about something > else. Arlene > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 23, 2006 Report Share Posted March 23, 2006 Thanks for your reply. My mom has to go through their financial statements and assure my dad that they have plenty of money. We can't quite figure out why he wants to know, just reassure him that everything is taken care of and he doesn't have to worry. That works for now... Jill > > > > It is funny that you asked whether there are others that obsess about money > and to that I say yes. We don't have a thing to worry about financially and > my husband keeps wanting to make plans for giving money to our grandchildren > for their education. The subject comes up about every other day and I tell him > what we decided and yet he won't let it go. And, I have to show him the > financial statements constantly. It is just a little annoyance and I guess I > should be thankful that he is obsessing about this and not about something > else. Arlene > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2006 Report Share Posted March 24, 2006 Imogene, It's so comforting to know others understand exactly what we are going thru.We will hang in on this journey and will learn everything we can.I'll certainly keep sharing so that what I have learned may help someone else.This group is absolutley amazing!! God bless, Judy --- Iward27663@... wrote: --------------------------------- Judy, I related many things happening to my husband, and a doctor on an AD List told me I was describing all the symptoms of LBD. When we talked to My husband's doctor, of course he hasn't known my husband long, and did not make a diagnosis. But, did want my husband to double his Risperdal. My husband is already on 1mg a day, and is short of breath, has heart trouble, and Risperdal is not recommended for heart patients, so--- my husband won't take the extra Risperdal a day. The Doctor must think he has LBD, because of my husband seeing cats in the house, and fighting his hallucinations. But, the doctor wasn't ready to say it. I understand hallucinations early on are a sign of LBD, and fighting them is a sign of paranoia, which can be dangerous for the caregiver. My LO only had one fighting episode. The doctor prescribed Risperdal right now! My LO Woke up sitting at the end of his messed up bed flailing his arms. He said he had been having quite a fight with the hallucination. My dear one is a gentle quiet man that everyone loves. It is the disease that caused the fighting. So, I am on this List to learn all I can just in case he actually has it. Imogene Caregiver for my True Texas Gentleman husband of 35 years. He has AD and possibly LBD, is Taking Aricept and Risperdal. Age 72 in May. In a message dated 3/22/2006 7:52:39 PM Central Standard Time, jchristensen1953@... writes: Many of you write that your LO has been diagnosed with LBD, and I wondered if the doctor diagnosed it or if it was diagnosed based on the symptoms. I am sure my husband has it, but he has not been diagnosed by anyone in the medical community. Can you, and if so, how is it actually diagnosed? --- JUDY DUKE wrote: > Hi Jill, > I'm still pretty new to this group myself, My dad is > 60 yrs old and also is living at home with mom.He > was > diagnosed with lewy body Feb/2006. We mostly just > try > and go along with his weird conversations.Someone > had > suggested saying " okay we'll go home now and just > moved to a different room in the house " maybe you > could try that.My best advice to you is talk calmly > and don't argue with them it seems to help us alot. > > Judy > God bless! > --- jillmollykady wrote: > > > --------------------------------- > I'm new to the group - hi to all of you. My dad was > diagnosed with > LBD about 2 years ago, but we hadn't noticed too > much > change until > recently. He is now very confused and doesn't > believe > he is in his > own home. He asked my mom the other day if he had a > wife...they have > been married for 60+ years. He gets up in the > morning > and has > breakfast and then sleeps til noon in his recliner. > Then he eats > lunch and goes back to sleep for the afternoon. Is > this typical > behavior? What do you tell someone with LBD who > questions where he > lives and wonders why he just can't go home? Thank > you. > > Jill > > > > > > > > > Welcome to LBDcaregivers. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2006 Report Share Posted March 27, 2006 would it help to say , ok i will add some more to their account today, and then get on the phone and phgone a friend and act like you did it??? hugs sharon m From: Zweibeers@... Date: 2006/03/23 Thu AM 10:45:24 EST To: LBDcaregivers Subject: Re: Re: New to the Group It is funny that you asked whether there are others that obsess about money and to that I say yes. We don't have a thing to worry about financially and my husband keeps wanting to make plans for giving money to our grandchildren for their education. The subject comes up about every other day and I tell him what we decided and yet he won't let it go. And, I have to show him the financial statements constantly. It is just a little annoyance and I guess I should be thankful that he is obsessing about this and not about something else. Arlene Quote Link to comment Share on other sites More sharing options...
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