Re: Question on pre- and post- pneumococcal antibodies

[Guest guest]

Autumn, I was reading your post to and you mentioned s

pneumococcal titers. You said that checking the pre- and post- helped to

discover that he wasn't having as much trouble with the antibodies as

originally thought.

I'm very curious about this because doesn't seem to be making

pneumococcal antibodies and she's had THREE Prevnar vaccines, dozens of ear

infections and pneumococcal meningitis. The pneumococcal antibody failure is

the biggest reason the immuno's saying we might want to consider IGIV, but

I'm scared to jump into that because 's completely IgA deficient and I'm

afraid she'll have a bad reaction.

We're doing a fourth Prevnar next week (or when we're done with her current

double ear infection) and checking titers four weeks later, but EVERY time

we've checked the titers the stupid lab has neglected to do the pre- and

post-. The immuno didn't seem that annoyed with it, I think she said

something about maybe they didn't save the blood from before or something???

So I'm wondering if I should " demand " a pre- and post- vaccination profile

when we do the next round of tests in February??

Thanks --

(mom to , age 2, antibody def, IgA, IgM, IgG & subclass def - not

on IGIV yet)

[Guest guest]

That is really interesting information.

Only 2 as opposed to 12 were done on . Maybe another of those

American v. Australian differences in medical practices.

[Guest guest]

, Hi this is carol ,joshua pagleys mother. When they test tell the lab

to hold the pre test untill the post is taken an they get sent together. We

have went through this test many times. while i am writing i will let

everyone know that josh is going for his ph probe in the morning and is ok

about the whole thing that is untill they start putting the tube in. well

take care everyone.

carol mother to josh pagley, steroid

dependent,cvid,astma,heart,intestinal,lung,ulsars,sinus,and on and on,.

>Autumn, I was reading your post to and you mentioned s

>pneumococcal titers. You said that checking the pre- and post- helped to

>discover that he wasn't having as much trouble with the antibodies as

>originally thought.

>

>I'm very curious about this because doesn't seem to be making

>pneumococcal antibodies and she's had THREE Prevnar vaccines, dozens of ear

>infections and pneumococcal meningitis. The pneumococcal antibody failure is

>the biggest reason the immuno's saying we might want to consider IGIV, but

>I'm scared to jump into that because 's completely IgA deficient and I'm

>afraid she'll have a bad reaction.

>

>We're doing a fourth Prevnar next week (or when we're done with her current

>double ear infection) and checking titers four weeks later, but EVERY time

>we've checked the titers the stupid lab has neglected to do the pre- and

>post-. The immuno didn't seem that annoyed with it, I think she said

>something about maybe they didn't save the blood from before or something???

>

>So I'm wondering if I should " demand " a pre- and post- vaccination profile

>when we do the next round of tests in February??

>

>Thanks --

>

> (mom to , age 2, antibody def, IgA, IgM, IgG & subclass def - not

>on IGIV yet)

>

>This forum is open to parents and caregivers of children diagnosed with a

>Primary Immune Deficiency. Opinions or medical advice stated here are the

>sole responsibility of the poster and should not be taken as professional

>advice.

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[Guest guest]

carol - they've sprayed some type of spray in the back of my throat before

when they've put in NG tubes. Might also work for the probe wires. I

believe its a lidocaine spray.

Ursula Holleman uahollem@...

and Macey's mom (5 yr. old with CVID, asthma, sinus disease, GERD,

kidney reflux, Sensory Integration Disorder, Diabetes Insipidus)

http://www.pedpid.com

/group/PedPID

[Guest guest]

Kim,

We had pre & post antibodies run, both in separate profiles. So, we

got one set done prior to pneumovax & another set 6 weeks later. We

had another " post " done 6 weeks after that, which just happened to

coincide with 4 weeks after Prevnar.

I will warn you about our experience though. Every lab does things

differently and you may get some wild results. Autumn's test results

showed some response to a few of the antibodies & a DECREASE in some

of the other antibodies. Then, the second " post " was run through NJH

& they got some crazy results also. They are still rerunning these

antibodies to see if they made a mistake.

Make certain when your dr. orders the pre & post tests that they are

tested by the same lab. I know you've heard this before with other

blood tests, but I believe it is especially important with the

pneumococcal antibodie since there can be such wide variation.

Ray, mother to Tabitha (age 5), Autumn, age 3 (IgG def.,

athma, chronic sinusitis, and allergies), and Duncan Avery due on

5/17/01

[Guest guest]

I ditto what had to say 100% about the pre and post titers.

Autumn (Mom to Mark Cd5-Cd19 PID and )

[Guest guest]

In a message dated 1/15/01 9:20:15 PM Eastern Standard Time,

manning21@... writes:

<< i will let

everyone know that josh is going for his ph probe in the morning >>

Kody goes for the same thing on the 25th! Let me know how Josh does!

Diane, Mom to Kody, age 4, IgG sub. def., seizure disorder, asthma, GERD,

acute sinus disease

[Guest guest]

josh got his ph probe in today and did well but is very crancky so far he

says it hurts when he eats, The test number started out at 7.5 which is

good and has been down to 5.3 which is showing some reflux already. Don't

know wheather it is the fundo messed up or not,At 04:33 PM 1/16/01 -0500,

you wrote:

>In a message dated 1/15/01 9:20:15 PM Eastern Standard Time,

>manning21@... writes:

>

><< i will let

> everyone know that josh is going for his ph probe in the morning >>

>Kody goes for the same thing on the 25th! Let me know how Josh does!

>

>Diane, Mom to Kody, age 4, IgG sub. def., seizure disorder, asthma, GERD,

>acute sinus disease

>

>This forum is open to parents and caregivers of children diagnosed with a

>Primary Immune Deficiency. Opinions or medical advice stated here are the

>sole responsibility of the poster and should not be taken as professional

>advice.

Shop online without a credit card

http://www.rocketcash.com

RocketCash, a NetZero subsidiary