Guest guest Posted February 14, 2001 Report Share Posted February 14, 2001 Dear Francine, I hope you're feeling better. Not to worry about a bit of a delay. Of course I will help. I think that just from what you've said, it would be best to focus on the Lyme boards to engage others to get involved. If you start with a plan that keeps it as simple as posssible, you won't suddenly have too much to do. Perhaps something like an initial proposal, which I will copy and get to everyone I know, and on all the boards I am on would be a good way to start. I think that if you keep it with the lyme groups for now, you could later investigate other venues. It can get going much more quickly with much less complication for you. You will have plenty to do before even thinking of doing an ebay thing. I say this knowing how easily things suddenly take off, and how much time and energy this can take. I know this part can be a little difficult, but if you can decide how you want it to happen, you can put it up as one full idea. Maybe some kind of title that catches attention, and then your idea in a full explanation. If you want, I can help you with putting it together, but I think you would have to be the one to decide which catalog to work from. This way other can give you feedback, and those that want to either particpate by selling or buying could have at least some clear idea of what you would like to see happen. If this message isn't clear enough, don't worry. Just let me know. Sometimes when writing, it can be a bit more difficult to communicate, but don't get discouraged. I will help you, and do what I can to get other involved, so now it just needs to be a little more clear to present to others who are on this board, and on other boards, in my address book, etc. Let me know. Sincerely, Regina neurochem1@... > Regina I jut got back from the Md and I am really drained so sorry > for not posting earlier. But I do want to get going. I think a good > way to go is e-bay and send emails to all the lyme groups on the > internet. Currently there is that way to do it or we could go the > brochure route the there are 3 types of brochures from AVON 1 is the > Inspirational Brochure which has mainly inspirational items such as > books, charms religious items etc. the other brochure is a mini- > brochure which has a little bit of everything or the main brochure > which is everything running for 2 weeks. Now the main brochure will > be starting on Monday 2/19/01. I just need people who are interested > in doing the selling. How much selling do they really have to do? > not much Avon pretty much sells itself, and once anyone hears the > profits are going to Lyme Disease we hope thatpeople would buy. So > it's really not that hard. I am waiting to hear from other avon reps > to see if I can actually post on ebay because it's usually > not " allowed " because of theAvon reputation. But if you think I > could post a central newsletter and post to all the lyme disease > groups on the internet you will have to help me with this one I want > to be sure not to hit any of the " enemy ones " I can set up with pay > pal or people can just buy right from my webpage and when they > register they would have to include a noteto me so I know it's for > the lyme fundraiser. otherwise then they would have to pay for > shipping. I can scan the latest brochures if you would like just let > me know. Sorry this is so long but this has got me HOT!!!! because > it is now MY MD> Francine NJ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2001 Report Share Posted September 27, 2001 The Arthritis Foundation is always collecting money for research. Diane Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2001 Report Share Posted September 27, 2001 I know that thru the Arthritis Foundation you can donate money and request that it go to JRA, or you can speak with your child's rheumatologist about where to send it. There is also now (unfortunately) another way to help children with JRA. A new foundation, The Terance Lynch Foundation, has recently been established. Monies raised will be used to help children with rheumatic diseases whose families cannot afford care and/or medications. Mr. Lynch was one of the victims of the Pentagon bombing. He worked hard to raise awareness of juvenile arthritis, and spent much time working to get the new pediatric rheumatology Clinic at NIH. If anyone would like the address of this foundation please let me know and I will post it here. I did not know Mr Lynch, only of him as our children have the same rheumatologist. I'm sure that those wanting more info can request it from the foundation. Liz Fundraising > It seems everywhere I go, money is being collected for various diseases, > diabetes, cancer, etc. I have never seen anything for JRA. Does anyone know > of any or how we could start something to raise money for the research of > this thing that has changed our children's lives forever? I give money > everywhere else, I'd like to give it to my own daughter's cause. Pat > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2001 Report Share Posted September 27, 2001 Thank you Liz, for sharing this. When you have a chance, please do post the website or address or any other information you may have about this newly formed Foundation. I'm very touched to hear this story about Mr. Lynch and am glad that his cause, spreading the awareness of JRA, will be furthered even after his death. As a side note, I was at a friend's house this afternoon when she turned on the Oprah Winfrey show. They were interviewing two men who helped a woman named , who was in a wheelchair, escape from her office on the 80th floor of the World Trade center. It turns out that has had Juvenile Rheumatoid Arthritis since she was three years old. This story is also mentioned in the latest People magazine. Aloha, Georgina wrote: > > I know that thru the Arthritis Foundation you can donate money and request > that it go to JRA, or you can speak with your child's rheumatologist about > where to send it. > > There is also now (unfortunately) another way to help children with JRA. A > new foundation, The Terance Lynch Foundation, has recently been established. > Monies raised will be used to help children with rheumatic diseases whose > families cannot afford care and/or medications. Mr. Lynch was one of the > victims of the Pentagon bombing. He worked hard to raise awareness of > juvenile arthritis, and spent much time working to get the new pediatric > rheumatology Clinic at NIH. If anyone would like the address of this > foundation please let me know and I will post it here. > > I did not know Mr Lynch, only of him as our children have the same > rheumatologist. I'm sure that those wanting more info can request it from > the foundation. > > Liz Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 27, 2001 Report Share Posted September 27, 2001 Dear Pat, I'm like you as I don't see any fundraisers around for jra. I know the other diseases are definetly just as important--but it would be nice to see something out there for our kids too. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2001 Report Share Posted September 28, 2001 Hi Pat and everyone, I too notice the lack of fund raisers concerning arthritis, especially JRA, but then it just isn't a high enough profile decease for the media to take notice. That is until some child of a celebrity is diagnosed, then you'll see it in the media, BIG TIME! So for anyone who does want to make a donation to JRA, send to the Arthritis Foundation/for the research of JRA. Morse On Thu, 27 Sep 2001 23:43:59 -0500 (EST) nLilly@... writes: > Dear Pat, > I'm like you as I don't see any fundraisers around for jra. I know > the > other diseases are definetly just as important--but it would be nice > to > see something out there for our kids too. > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2001 Report Share Posted September 28, 2001 Pat here in atlanta they do fundraisers i was at several last year but have not heard of many this year i got a letter of a event but i didnt go becasue it was something about wine and i dont drink so i didnt go maybe i should have but my opinion is alcohol shouldnt be around where kids are and if its a event for kids the adults should respect that if not for theirself but for the role model of these kids we do need to get it going for the kids as they are the ones who are living with it i am willing to help Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2001 Report Share Posted September 28, 2001 LIZ AWARENES lolol you just made me aware of this mr lynch i had no idea i do send condolences to his family PLEASE send me more info on this foundation thanks Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2001 Report Share Posted September 28, 2001 Georgina i watched the same show i wondered why the woman was in the wheelchair working so high in a building i didnt know she had JRA though thanks for letting me know s teacher was here at that time and i was just catching alittle at a time of oprah this is like what i told the school last year what if something happened AND melissa was in her chair would yall know what to do without a elevator this made them THINK what if schools are being built higher now Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2001 Report Share Posted September 29, 2001 My heart goes out to that womans family and Mr. Lynchs family...but to me it is ashame that this shameless disaster and loss of lives had to happen for someone to mention juvenile rheumatoid arthritis! When it has been around for years and years to where you have adults who surpassed jra to ra...i mean i am sorry for those lives that were lost but i emailed the Oprah show and never heard a reply..i guess to them it was worth national attention until this happened and it was brought up!!!!!!!! my opinion! karen(tabitha 16..poly) From: Georgina <gmckin@...> Reply- Subject: Re: Fundraising Date: Thu, 27 Sep 2001 18:24:15 -1000 Thank you Liz, for sharing this. When you have a chance, please do post the website or address or any other information you may have about this newly formed Foundation. I'm very touched to hear this story about Mr. Lynch and am glad that his cause, spreading the awareness of JRA, will be furthered even after his death. As a side note, I was at a friend's house this afternoon when she turned on the Oprah Winfrey show. They were interviewing two men who helped a woman named , who was in a wheelchair, escape from her office on the 80th floor of the World Trade center. It turns out that has had Juvenile Rheumatoid Arthritis since she was three years old. This story is also mentioned in the latest People magazine. Aloha, Georgina wrote: > > I know that thru the Arthritis Foundation you can donate money and request > that it go to JRA, or you can speak with your child's rheumatologist about > where to send it. > > There is also now (unfortunately) another way to help children with JRA. A > new foundation, The Terance Lynch Foundation, has recently been established. > Monies raised will be used to help children with rheumatic diseases whose > families cannot afford care and/or medications. Mr. Lynch was one of the > victims of the Pentagon bombing. He worked hard to raise awareness of > juvenile arthritis, and spent much time working to get the new pediatric > rheumatology Clinic at NIH. If anyone would like the address of this > foundation please let me know and I will post it here. > > I did not know Mr Lynch, only of him as our children have the same > rheumatologist. I'm sure that those wanting more info can request it from > the foundation. > > Liz _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2001 Report Share Posted September 29, 2001 Hi Georgina. The foundation is: Terence M Lynch Foundation c/o Ted Lynch Inc 6 Short St The Plains, Ohio 45780 Other than knowing that monies are to help kids whose families cannot afford rheumatology care and/or meds I don't know anything about the foundation. The rheumatologist is the one who told me it had been formed, though. For anyone wanting more info, I suggest a note to the foundation requesting info. Liz Re: Fundraising > Thank you Liz, for sharing this. When you have a chance, please do post > the website or address or any other information you may have about this > newly formed Foundation. I'm very touched to hear this story about Mr. > Lynch and am glad that his cause, spreading the awareness of JRA, will > be furthered even after his death. > > As a side note, I was at a friend's house this afternoon when she turned > on the Oprah Winfrey show. They were interviewing two men who helped a > woman named , who was in a wheelchair, escape from her office on the > 80th floor of the World Trade center. It turns out that has had > Juvenile Rheumatoid Arthritis since she was three years old. This story > is also mentioned in the latest People magazine. > > Aloha, > Georgina > > wrote: > > > > I know that thru the Arthritis Foundation you can donate money and request > > that it go to JRA, or you can speak with your child's rheumatologist about > > where to send it. > > > > There is also now (unfortunately) another way to help children with JRA. A > > new foundation, The Terance Lynch Foundation, has recently been established. > > Monies raised will be used to help children with rheumatic diseases whose > > families cannot afford care and/or medications. Mr. Lynch was one of the > > victims of the Pentagon bombing. He worked hard to raise awareness of > > juvenile arthritis, and spent much time working to get the new pediatric > > rheumatology Clinic at NIH. If anyone would like the address of this > > foundation please let me know and I will post it here. > > > > I did not know Mr Lynch, only of him as our children have the same > > rheumatologist. I'm sure that those wanting more info can request it from > > the foundation. > > > > Liz > > > For links to websites about arthritis and JRA, visit: > http://www.geocities.com/Heartland/Village/8414/Links.html > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2001 Report Share Posted September 29, 2001 Hi , I actually wondered if maybe Oprah mentioned 's living with arthritis since she was three years old as a result of all the letters she received from people like us? I know what you mean, though. Aloha, Georgina karens tribe wrote: > > My heart goes out to that womans family and Mr. Lynchs family...but to me it > is ashame that this shameless disaster and loss of lives had to happen for > someone to mention juvenile rheumatoid arthritis! When it has been around > for years and years to where you have adults who surpassed jra to ra...i > mean i am sorry for those lives that were lost but i emailed the Oprah show > and never heard a reply..i guess to them it was worth national attention > until this happened and it was brought up!!!!!!!! my opinion! > karen(tabitha 16..poly) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2001 Report Share Posted September 29, 2001 Hi Robbin, Yup. It does make you think. Here, the schools are all on one or two levels. We have county ordinances that forbid any buildings over (I think) 6 stories tall. Josh didn't want to use an elevator pass to get up to the second level at school, even when he hurt his foot last year. He preferred to walk up the steps very slowly, with everybody else. It was good to know there was an available option, though. Tell we say hello Take care, Georgina Robbin40@... wrote: > > Georgina > i watched the same show i wondered why the woman was in the wheelchair > working so high in a building i didnt know she had JRA though > thanks for letting me know > s teacher was here at that time and i was just catching alittle at a > time > of oprah > this is like what i told the school last year what if something happened > AND melissa was in her chair would yall know what to do without a elevator > this made them THINK what if > schools are being built higher now > Robbin Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 30, 2001 Report Share Posted September 30, 2001 Georgina..at least that would be a blessing knowing that because of our letters to her..she mentioned that..to know or think that it went un-noticed isn't comforting..i have been curious to know though, if anyone on the post has received any emails from their responses to the media,talk shows, or any other broadcasting system..about jra.. karen p.s. i didn't From: Georgina <gmckin@...> Reply- Subject: Re: Fundraising Date: Sat, 29 Sep 2001 11:09:41 -1000 Hi , I actually wondered if maybe Oprah mentioned 's living with arthritis since she was three years old as a result of all the letters she received from people like us? I know what you mean, though. Aloha, Georgina karens tribe wrote: > > My heart goes out to that womans family and Mr. Lynchs family...but to me it > is ashame that this shameless disaster and loss of lives had to happen for > someone to mention juvenile rheumatoid arthritis! When it has been around > for years and years to where you have adults who surpassed jra to ra...i > mean i am sorry for those lives that were lost but i emailed the Oprah show > and never heard a reply..i guess to them it was worth national attention > until this happened and it was brought up!!!!!!!! my opinion! > karen(tabitha 16..poly) _________________________________________________________________ Get your FREE download of MSN Explorer at http://explorer.msn.com/intl.asp Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 2, 2001 Report Share Posted October 2, 2001 karens tribe wrote: > > Georgina..at least that would be a blessing knowing that because of our > letters to her..she mentioned that..to know or think that it went un-noticed > isn't comforting..i have been curious to know though, if anyone on the post > has received any emails from their responses to the media,talk shows, or any > other broadcasting system..about jra.. > karen > p.s. > i didn't Me either. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 24, 2005 Report Share Posted August 24, 2005 Hi All, My wife and I are planning to send our son to a private school out of district while trying to convince our school district to pay. Our parents have agreed to help us make this work, but we want to do some fundraising, possibly a benefit of some kind. We'd like donations to be tax deductible, does anyone know about accepting donations for schooling? If anyone could point me in the direction of getting more info on the topic I'd appreciate it. thanks, jim christy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 27, 2005 Report Share Posted August 27, 2005 Jim... I have a foster son that I am in the process of doing the same thing for... I am meeting with a lawyer to set up an educational trust to fund raise into, as I don't want the Medicaid/SSI/CAP benefits that he is currently eligible for to be affected, I don't want it to affect my taxes, and I don't want folks who donate to think I'm fundraising for my Caribbean vacation. The school couldn't accept and manage the funds because it would threaten their non-profit status. I don't have all the answers but this is what I know so far. Good luck!!! Alice " jchristy1515 " <jchristy1515@...> Sent by: 08/24/2005 02:33 PM To cc Subject [ ] Fundraising Hi All, My wife and I are planning to send our son to a private school out of district while trying to convince our school district to pay. Our parents have agreed to help us make this work, but we want to do some fundraising, possibly a benefit of some kind. We'd like donations to be tax deductible, does anyone know about accepting donations for schooling? If anyone could point me in the direction of getting more info on the topic I'd appreciate it. thanks, jim christy List moderators: Jenn - ABAqueen1@... Steph - Stephhulshof@... Post message: Subscribe: -subscribe Unsubscribe: -unsubscribe Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 29, 2006 Report Share Posted June 29, 2006 Awesome job ! Whoo Hoo!! Alia and Caroline, age 4, poly and uveitis Evan Guy - Just turned the big NUMBER 1!! > > Its me again. I forgot to tell all even when > is down she raised $1,149 for the greater > chicago arthritis chapter.!! > > Thanks > > __________________________________________________ > Quote Link to comment Share on other sites More sharing options...
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