Guest guest Posted August 27, 2003 Report Share Posted August 27, 2003 ((((((((((((((Judi))))))))))))))) ... I pray those infections go away SOON. You are a brave lady, full of faith, and are an inspiration to me. Your Aumentin Buddy..... Tess Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2004 Report Share Posted May 25, 2004 Judi: I was so sorry to read the interferon is not doing the trick, I totally identify with the guinea pig feeling, and was so hoping for your sake it would work, and will say some extra prayers that they have something else in mind.....hopefully the SS will cone through and help out with some of the cost, probably not the meds, but maybe a specialist that knows about Dercums....anyway I will keep you in prayer......hugs kathi in OK > Thanks for the suggestions! > > guess I'll just have to wait and see what the next step is. A friend > here told me probably a mental exam. I haven't been the sharpest > knife in the drawer lately, so who knows! > > I see the oncologist tomorrow, and after 4 weeks on Intron (alpha > interferon/chemotherapy) I think it is time to call a halt. I am > getting sicker from the interferon instead of feeling better, and > this week noticed new tumors growing and more pain from the old > ones. I think it was either or a who said that autoiummune > diseases could be worsened by this, so now I guess I have been the > guinea pig to find out that Dercum's really is autoimmune. Not to > mention the fact that it was costing a good chunk of our retirement > income to pay for the treatment--$150 a shot plus $120 for the office > visit, and with 3 shots a week, that adds up pretty fast. > > Take care, > Judi Quote Link to comment Share on other sites More sharing options...
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