Guest guest Posted February 17, 2006 Report Share Posted February 17, 2006 Good luck , none of this is easy you and your mom will also be in my prayers.. Namaste > > Just an update - she's still sleeping most of the time... Monday PM > she was alert, eating, said my name; Wednesday the social worker said > she will be ready to go back to the dementia floor on Friday; > Wednesday PM she was asleep the whole time; Thursday AM received the > call that the room she was to get is now not available so she won't > move until next week; Thursday PM received the call that they're > concerned with a temperature and she was having a 'bad day', and she > is drooling and not swallowing and they have a machine next to her to > clean out her mouth so she won't choke. This is such a roller coaster > ride. She only has a few more days left of the meds she's on. She's > finished the med that prevents swelling. And just a few more days of > the anti-seizure meds and antibiotics... If she could just hold out a > few more days she won't have to deal with being over medicated > anymore. It's a 'no win, no win' - I can't say take away the meds b/c > it's to prevent the possibility of something worse, but at the same > time she's so overly medicated she can't open her eyes - she tries - > but she just can't do it... > > I'm visiting this AM - before work... With Haagen-Daz... > > Poor Mom... > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 Thank you. Visited mom yesterday. Yesterday was her last day of post surgery meds. Yay! Now looking forward to her returning to where she was before the surgery. She opened both eyes once, yesterday. She cried (that's positive in my mind, b/c it's closer to where she was before surgery). The " compassionate touch " therapist did her thing yesterday. Mom's left foot is twisted and by the end of her session it was straight again - I know it's temporary but it's good nonetheless. Once we give mom a break from the drugs, we'll introduce her slooooowly to the meds to help LBD. First she'll go back to seroquel. Then is the anti-depressant - b/c before surgery her most frequent emotion was crying. And believe an anti-depressant will help her. What is the most common anti-depressant used by your LO's with LBD? Want to begin to get these symptoms treated right the first time... Then, a med to help her parkinson-like symptoms might be beneficial (maybe not, b/c she's so far along now) but it's worth a shot. Then a dementia med. But again. Slooooowly and one at a time.... Her nurse Yolanda is a miracle worker with feeding mom. She has been instrumental in getting the food into mom. She has all these tricks. Since mom is having better luck drinking vs. eating right now, Yolanda make a drink of her milk, mashed potatoes, squash, etc. - sounds gross and mom probably hates it - but she ends the " meal " with ice cream, so it ends well. > > HI , > > Isn't it awful all that our LO's have to go through. I'm praying for > her speedy recovery and that ice cream will go a long way to help. > Courage > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2006 Report Share Posted February 20, 2006 : So glad things have improved with your Mom. Enjoy the good days as they occur. Can't help on anti-depressants as my Mum does not take any and be really careful of PD meds. Sinemet which is frequently prescribed can cause some pretty nasty hallucinations. We try and get my Mum to move as much as possible and her aches and pains and stiffness seem to be better when she keeps moving. I can't remember how mobile your mother is. --- octoryrose wrote: --------------------------------- Thank you. Visited mom yesterday. Yesterday was her last day of post surgery meds. Yay! Now looking forward to her returning to where she was before the surgery. She opened both eyes once, yesterday. She cried (that's positive in my mind, b/c it's closer to where she was before surgery). The " compassionate touch " therapist did her thing yesterday. Mom's left foot is twisted and by the end of her session it was straight again - I know it's temporary but it's good nonetheless. Once we give mom a break from the drugs, we'll introduce her slooooowly to the meds to help LBD. First she'll go back to seroquel. Then is the anti-depressant - b/c before surgery her most frequent emotion was crying. And believe an anti-depressant will help her. What is the most common anti-depressant used by your LO's with LBD? Want to begin to get these symptoms treated right the first time... Then, a med to help her parkinson-like symptoms might be beneficial (maybe not, b/c she's so far along now) but it's worth a shot. Then a dementia med. But again. Slooooowly and one at a time.... Her nurse Yolanda is a miracle worker with feeding mom. She has been instrumental in getting the food into mom. She has all these tricks. Since mom is having better luck drinking vs. eating right now, Yolanda make a drink of her milk, mashed potatoes, squash, etc. - sounds gross and mom probably hates it - but she ends the " meal " with ice cream, so it ends well. > > HI , > > Isn't it awful all that our LO's have to go through. I'm praying for > her speedy recovery and that ice cream will go a long way to help. > Courage > Welcome to LBDcaregivers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2006 Report Share Posted March 1, 2006 Dear , I am so happy to hear of your Mother's progress! I might say it also helped to read what you wrote after your name. May she continue to be comfortable and able to share special moments with you for the rest of her time living within the walls of LBD. Prayers and much, much Peace to you, Stevie * * * * * * * * Now, we'll give her body a rest (and she's in serious need for a haircut). And then we'll sloooowly and one at a time introduce mom to meds that may help her LBD symptoms - starting with Seroquil... ; loving daughter of Maureen of Boston, MA; finally diagnosed with LBD on 2/06 after also being diagnosed with everything from AD to Vascular Dementia caused by mini strokes to Binswengers...; was victim to rapid progression from Risperidone (or combination of Risperidone with other drugs OR possibly received another " bad drug " when she was observed/tested in a hospital in 10/05); in a NH since 11/05. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2006 Report Share Posted March 1, 2006 I'm happy to report that mom is very close to how she was before the brain biopsy (2/6). When I visited Sunday, I was pleasantly surprised to see her moving a lot in her wheelchair (leg = up, down, up, down; restless upper body movements too); I fed her lunch and she both drank and ate well; she talked = one word answers but much better than before. Last night she was even better than this past Sunday (and it was after work when she is usually tired and not as responsive as during the day). And I was told that she ate 100% of her breakfast yesterday! Again she talked some more (yes, no, hello, I love you too) - but the best was when I said " Do you love me? " and she said " Of course I do. " Last night we went into her room to listen to classical music and bachatas (music from Dominican Republic - she loves her bachatas). And we looked at pictures and I put lotion on her... YES!!! (didn't think I would ever be excited to see her in her current state - but compared to how she's been with those post- surgery meds it is wonderful!) Now, we'll give her body a rest (and she's in serious need for a haircut). And then we'll sloooowly and one at a time introduce mom to meds that may help her LBD symptoms - starting with Seroquil... ; loving daughter of Maureen of Boston, MA; finally diagnosed with LBD on 2/06 after also being diagnosed with everything from AD to Vascular Dementia caused by mini strokes to Binswengers...; was victim to rapid progression from Risperidone (or combination of Risperidone with other drugs OR possibly received another " bad drug " when she was observed/tested in a hospital in 10/05); in a NH since 11/05. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2006 Report Share Posted March 1, 2006 Hi Wow! This is good news. It takes a long time with LBD patients to bounce back. Sometimes they do not get back to where they were ever. I am relieved to hear she is doing so well. Dena --- octoryrose wrote: > I'm happy to report that mom is very close to how > she was before the > brain biopsy (2/6). When I visited Sunday, I was > pleasantly surprised > to see her moving a lot in her wheelchair (leg = up, > down, up, down; > restless upper body movements too); I fed her lunch > and she both > drank and ate well; she talked = one word answers > but much better > than before. Last night she was even better than > this past Sunday > (and it was after work when she is usually tired and > not as > responsive as during the day). And I was told that > she ate 100% of > her breakfast yesterday! Again she talked some more > (yes, no, hello, > I love you too) - but the best was when I said " Do > you love me? " and > she said " Of course I do. " Last night we went into > her room to listen > to classical music and bachatas (music from > Dominican Republic - she > loves her bachatas). And we looked at pictures and I > put lotion on > her... > > YES!!! (didn't think I would ever be excited to see > her in her > current state - but compared to how she's been with > those post- > surgery meds it is wonderful!) > > Now, we'll give her body a rest (and she's in > serious need for a > haircut). And then we'll sloooowly and one at a time > introduce mom to > meds that may help her LBD symptoms - starting with > Seroquil... > > ; loving daughter of Maureen of Boston, MA; > finally diagnosed > with LBD on 2/06 after also being diagnosed with > everything from AD > to Vascular Dementia caused by mini strokes to > Binswengers...; was > victim to rapid progression from Risperidone (or > combination of > Risperidone with other drugs OR possibly received > another " bad drug " > when she was observed/tested in a hospital in > 10/05); in a NH since > 11/05. > > > > > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2006 Report Share Posted March 1, 2006 This is great news . Enjoy these good times as they will sustain you in the future. Best to your mom. Courage Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2006 Report Share Posted March 1, 2006 Praise the Lord. Sooo Glad to hear your Mom is doing better...! Hugs, Debbie > > I'm happy to report that mom is very close to how she was before the > brain biopsy (2/6). When I visited Sunday, I was pleasantly surprised > to see her moving a lot in her wheelchair (leg = up, down, up, down; > restless upper body movements too); I fed her lunch and she both > drank and ate well; she talked = one word answers but much better > than before. Last night she was even better than this past Sunday > (and it was after work when she is usually tired and not as > responsive as during the day). And I was told that she ate 100% of > her breakfast yesterday! Again she talked some more (yes, no, hello, > I love you too) - but the best was when I said " Do you love me? " and > she said " Of course I do. " Last night we went into her room to listen > to classical music and bachatas (music from Dominican Republic - she > loves her bachatas). And we looked at pictures and I put lotion on > her... > > YES!!! (didn't think I would ever be excited to see her in her > current state - but compared to how she's been with those post- > surgery meds it is wonderful!) > > Now, we'll give her body a rest (and she's in serious need for a > haircut). And then we'll sloooowly and one at a time introduce mom to > meds that may help her LBD symptoms - starting with Seroquil... > > ; loving daughter of Maureen of Boston, MA; finally diagnosed > with LBD on 2/06 after also being diagnosed with everything from AD > to Vascular Dementia caused by mini strokes to Binswengers...; was > victim to rapid progression from Risperidone (or combination of > Risperidone with other drugs OR possibly received another " bad drug " > when she was observed/tested in a hospital in 10/05); in a NH since > 11/05. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 2, 2006 Report Share Posted March 2, 2006 Hi, , I am so glad to hear that your mom is doing better! It is always wonderful to get news on this site! Hugs, Piper Quote Link to comment Share on other sites More sharing options...
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