's Mom

[Guest guest]

Good luck , none of this is easy you and your mom will also

be in my prayers..

Namaste

>

> Just an update - she's still sleeping most of the time... Monday

PM

> she was alert, eating, said my name; Wednesday the social worker

said

> she will be ready to go back to the dementia floor on Friday;

> Wednesday PM she was asleep the whole time; Thursday AM received

the

> call that the room she was to get is now not available so she

won't

> move until next week; Thursday PM received the call that they're

> concerned with a temperature and she was having a 'bad day', and

she

> is drooling and not swallowing and they have a machine next to her

to

> clean out her mouth so she won't choke. This is such a roller

coaster

> ride. She only has a few more days left of the meds she's on.

She's

> finished the med that prevents swelling. And just a few more days

of

> the anti-seizure meds and antibiotics... If she could just hold

out a

> few more days she won't have to deal with being over medicated

> anymore. It's a 'no win, no win' - I can't say take away the meds

b/c

> it's to prevent the possibility of something worse, but at the

same

> time she's so overly medicated she can't open her eyes - she

tries -

> but she just can't do it...

>

> I'm visiting this AM - before work... With Haagen-Daz...

>

> Poor Mom...

>

[Guest guest]

Thank you. Visited mom yesterday. Yesterday was her last day of post

surgery meds. Yay! Now looking forward to her returning to where she

was before the surgery. She opened both eyes once, yesterday. She

cried (that's positive in my mind, b/c it's closer to where she was

before surgery). The " compassionate touch " therapist did her thing

yesterday. Mom's left foot is twisted and by the end of her session

it was straight again - I know it's temporary but it's good

nonetheless. Once we give mom a break from the drugs, we'll introduce

her slooooowly to the meds to help LBD. First she'll go back to

seroquel. Then is the anti-depressant - b/c before surgery her most

frequent emotion was crying. And believe an anti-depressant will help

her. What is the most common anti-depressant used by your LO's with

LBD? Want to begin to get these symptoms treated right the first

time... Then, a med to help her parkinson-like symptoms might be

beneficial (maybe not, b/c she's so far along now) but it's worth a

shot. Then a dementia med. But again. Slooooowly and one at a

time....

Her nurse Yolanda is a miracle worker with feeding mom. She has been

instrumental in getting the food into mom. She has all these tricks.

Since mom is having better luck drinking vs. eating right now,

Yolanda make a drink of her milk, mashed potatoes, squash, etc. -

sounds gross and mom probably hates it - but she ends the " meal " with

ice cream, so it ends well.

>

> HI ,

>

> Isn't it awful all that our LO's have to go through. I'm praying

for

> her speedy recovery and that ice cream will go a long way to help.

> Courage

>

[Guest guest]

:

So glad things have improved with your Mom. Enjoy the good days as

they occur. Can't help on anti-depressants as my Mum does not take any

and be really careful of PD meds. Sinemet which is frequently

prescribed can cause some pretty nasty hallucinations. We try and get

my Mum to move as much as possible and her aches and pains and

stiffness seem to be better when she keeps moving. I can't remember

how mobile your mother is.

--- octoryrose wrote:

---------------------------------

Thank you. Visited mom yesterday. Yesterday was her last day of post

surgery meds. Yay! Now looking forward to her returning to where she

was before the surgery. She opened both eyes once, yesterday. She

cried (that's positive in my mind, b/c it's closer to where she was

before surgery). The " compassionate touch " therapist did her thing

yesterday. Mom's left foot is twisted and by the end of her session

it was straight again - I know it's temporary but it's good

nonetheless. Once we give mom a break from the drugs, we'll introduce

her slooooowly to the meds to help LBD. First she'll go back to

seroquel. Then is the anti-depressant - b/c before surgery her most

frequent emotion was crying. And believe an anti-depressant will help

her. What is the most common anti-depressant used by your LO's with

LBD? Want to begin to get these symptoms treated right the first

time... Then, a med to help her parkinson-like symptoms might be

beneficial (maybe not, b/c she's so far along now) but it's worth a

shot. Then a dementia med. But again. Slooooowly and one at a

time....

Her nurse Yolanda is a miracle worker with feeding mom. She has been

instrumental in getting the food into mom. She has all these tricks.

Since mom is having better luck drinking vs. eating right now,

Yolanda make a drink of her milk, mashed potatoes, squash, etc. -

sounds gross and mom probably hates it - but she ends the " meal " with

ice cream, so it ends well.

>

> HI ,

>

> Isn't it awful all that our LO's have to go through. I'm praying

for

> her speedy recovery and that ice cream will go a long way to help.

> Courage

>

Welcome to LBDcaregivers.

[Guest guest]

Dear ,

I am so happy to hear of your Mother's progress! I might say it also helped

to read what you wrote after your name. May she continue to be comfortable

and able to share special moments with you for the rest of her time living

within the walls of LBD.

Prayers and much, much Peace to you, Stevie

* * * * * * * *

Now, we'll give her body a rest (and she's in serious need for a

haircut). And then we'll sloooowly and one at a time introduce mom to

meds that may help her LBD symptoms - starting with Seroquil...

; loving daughter of Maureen of Boston, MA; finally diagnosed

with LBD on 2/06 after also being diagnosed with everything from AD

to Vascular Dementia caused by mini strokes to Binswengers...; was

victim to rapid progression from Risperidone (or combination of

Risperidone with other drugs OR possibly received another " bad drug "

when she was observed/tested in a hospital in 10/05); in a NH since

11/05.

[Guest guest]

I'm happy to report that mom is very close to how she was before the

brain biopsy (2/6). When I visited Sunday, I was pleasantly surprised

to see her moving a lot in her wheelchair (leg = up, down, up, down;

restless upper body movements too); I fed her lunch and she both

drank and ate well; she talked = one word answers but much better

than before. Last night she was even better than this past Sunday

(and it was after work when she is usually tired and not as

responsive as during the day). And I was told that she ate 100% of

her breakfast yesterday! Again she talked some more (yes, no, hello,

I love you too) - but the best was when I said " Do you love me? " and

she said " Of course I do. " Last night we went into her room to listen

to classical music and bachatas (music from Dominican Republic - she

loves her bachatas). And we looked at pictures and I put lotion on

her...

YES!!! (didn't think I would ever be excited to see her in her

current state - but compared to how she's been with those post-

surgery meds it is wonderful!)

Now, we'll give her body a rest (and she's in serious need for a

haircut). And then we'll sloooowly and one at a time introduce mom to

meds that may help her LBD symptoms - starting with Seroquil...

; loving daughter of Maureen of Boston, MA; finally diagnosed

with LBD on 2/06 after also being diagnosed with everything from AD

to Vascular Dementia caused by mini strokes to Binswengers...; was

victim to rapid progression from Risperidone (or combination of

Risperidone with other drugs OR possibly received another " bad drug "

when she was observed/tested in a hospital in 10/05); in a NH since

11/05.

[Guest guest]

Hi

Wow! This is good news. It takes a long time with LBD

patients to bounce back. Sometimes they do not get

back to where they were ever. I am relieved to hear

she is doing so well.

Dena

--- octoryrose wrote:

> I'm happy to report that mom is very close to how

> she was before the

> brain biopsy (2/6). When I visited Sunday, I was

> pleasantly surprised

> to see her moving a lot in her wheelchair (leg = up,

> down, up, down;

> restless upper body movements too); I fed her lunch

> and she both

> drank and ate well; she talked = one word answers

> but much better

> than before. Last night she was even better than

> this past Sunday

> (and it was after work when she is usually tired and

> not as

> responsive as during the day). And I was told that

> she ate 100% of

> her breakfast yesterday! Again she talked some more

> (yes, no, hello,

> I love you too) - but the best was when I said " Do

> you love me? " and

> she said " Of course I do. " Last night we went into

> her room to listen

> to classical music and bachatas (music from

> Dominican Republic - she

> loves her bachatas). And we looked at pictures and I

> put lotion on

> her...

>

> YES!!! (didn't think I would ever be excited to see

> her in her

> current state - but compared to how she's been with

> those post-

> surgery meds it is wonderful!)

>

> Now, we'll give her body a rest (and she's in

> serious need for a

> haircut). And then we'll sloooowly and one at a time

> introduce mom to

> meds that may help her LBD symptoms - starting with

> Seroquil...

>

> ; loving daughter of Maureen of Boston, MA;

> finally diagnosed

> with LBD on 2/06 after also being diagnosed with

> everything from AD

> to Vascular Dementia caused by mini strokes to

> Binswengers...; was

> victim to rapid progression from Risperidone (or

> combination of

> Risperidone with other drugs OR possibly received

> another " bad drug "

> when she was observed/tested in a hospital in

> 10/05); in a NH since

> 11/05.

>

>

>

>

>

>

__________________________________________________

[Guest guest]

This is great news . Enjoy these good times as they will

sustain you in the future. Best to your mom.

Courage

[Guest guest]

Praise the Lord. Sooo Glad to hear your Mom is doing better...!

Hugs,

Debbie

>

> I'm happy to report that mom is very close to how she was before

the

> brain biopsy (2/6). When I visited Sunday, I was pleasantly

surprised

> to see her moving a lot in her wheelchair (leg = up, down, up,

down;

> restless upper body movements too); I fed her lunch and she both

> drank and ate well; she talked = one word answers but much better

> than before. Last night she was even better than this past Sunday

> (and it was after work when she is usually tired and not as

> responsive as during the day). And I was told that she ate 100% of

> her breakfast yesterday! Again she talked some more (yes, no,

hello,

> I love you too) - but the best was when I said " Do you love me? "

and

> she said " Of course I do. " Last night we went into her room to

listen

> to classical music and bachatas (music from Dominican Republic -

she

> loves her bachatas). And we looked at pictures and I put lotion on

> her...

>

> YES!!! (didn't think I would ever be excited to see her in her

> current state - but compared to how she's been with those post-

> surgery meds it is wonderful!)

>

> Now, we'll give her body a rest (and she's in serious need for a

> haircut). And then we'll sloooowly and one at a time introduce mom

to

> meds that may help her LBD symptoms - starting with Seroquil...

>

> ; loving daughter of Maureen of Boston, MA; finally

diagnosed

> with LBD on 2/06 after also being diagnosed with everything from

AD

> to Vascular Dementia caused by mini strokes to Binswengers...; was

> victim to rapid progression from Risperidone (or combination of

> Risperidone with other drugs OR possibly received another " bad

drug "

> when she was observed/tested in a hospital in 10/05); in a NH

since

> 11/05.

>

[Guest guest]

Hi, ,

I am so glad to hear that your mom is doing better! It is always wonderful

to get news on this site!

Hugs,

Piper