Guest guest Posted August 31, 2011 Report Share Posted August 31, 2011 Dear CathWelcome to the group... We have a diverse range of issues which face our children.. some are very high functioning, others are more complex.. and like my own daughter our biggest challenge has been seizures. There is a lot of information in the files section on different approaches being used.For me.. and my daughter is undiagnosed.. but did regress at two... The Scotson Technique TST has given us the biggest gains. Many take children off gluten and casein immediately and see how they improve. Her issues linked in with poor breathing caused by a very stressful pregnancy.. and hypoxic episodes.. which created a brain injury.... The information on this therapy along with many others is in the files section. There are a number of kids on the group using this therapy at the moment. What other problems does your son have?How does he sleep, is he constipated, have bowel or stomach problems or other allergies? and other than the lack of speech are there any other issues which you have noticed... From here it may be easier for the group to guide you to therapies which they have tried and tested. Best WishesTracey Hello, I hope someone can help us. My son is four Christmas time and doesn't speak at all. He does make noises and babbles but no words. He is being seen by all the usual people and is ib a unit being assessed because doesn't quite tick all the boxes for autism. I'm really interested in the biomedical approach but unsure where to start? Does he need bloods, urine,stool and hair tests? How do we arrange these? He has had bloods and urine done by paediatrician but just the normal routine ones I think which were ok. My husband and I just hate sitting here waiting -we just want to try and help him if we can. Thanks so much for any help you can offer. Ps we live in wales. XX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2011 Report Share Posted August 31, 2011 It would be useful to know what other problems your child has so others with similar issues can say what worked for them. My oldest is higher functioning and didn't speak until a few weeks before starting school at almost 5yrs old, he didn't actually have any interventions, the similiatrity to your child would be the babbling, he always babbled, my youngest severe non verbal child wasn't a babbler. My oldest didn't get an autism diagnosis until he was a bit older and it was on the back of his brother being so severe, he had other diagnosis before autism, ie language delay, severe language disorder etc. Today at 16 language is the least of his problems in fact it's considered a relative strength, does you child have other issues besides language delay? Vicky Re: help..im new! Dear Cath Welcome to the group... We have a diverse range of issues which face our children.. some are very high functioning, others are more complex.. and like my own daughter our biggest challenge has been seizures. There is a lot of information in the files section on different approaches being used. For me.. and my daughter is undiagnosed.. but did regress at two... The Scotson Technique TST has given us the biggest gains. Many take children off gluten and casein immediately and see how they improve. Her issues linked in with poor breathing caused by a very stressful pregnancy.. and hypoxic episodes.. which created a brain injury.... The information on this therapy along with many others is in the files section. There are a number of kids on the group using this therapy at the moment. What other problems does your son have? How does he sleep, is he constipated, have bowel or stomach problems or other allergies? and other than the lack of speech are there any other issues which you have noticed... From here it may be easier for the group to guide you to therapies which they have tried and tested. Best Wishes Tracey Hello, I hope someone can help us. My son is four Christmas time and doesn't speak at all. He does make noises and babbles but no words. He is being seen by all the usual people and is ib a unit being assessed because doesn't quite tick all the boxes for autism. I'm really interested in the biomedical approach but unsure where to start? Does he need bloods, urine,stool and hair tests? How do we arrange these? He has had bloods and urine done by paediatrician but just the normal routine ones I think which were ok. My husband and I just hate sitting here waiting -we just want to try and help him if we can. Thanks so much for any help you can offer. Ps we live in wales. XX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2011 Report Share Posted August 31, 2011 > > > > > > Hello, I hope someone can help us. > > My son is four Christmas time and doesn't speak at all. He does make noises and babbles but no words. He is being seen by all the usual people and is ib a unit being assessed because doesn't quite tick all the boxes for autism. > > I'm really interested in the biomedical approach but unsure where to start? Does he need bloods, urine,stool and hair tests? How do we arrange these? He has had bloods and urine done by paediatrician but just the normal routine ones I think which were ok. > > My husband and I just hate sitting here waiting -we just want to try and help him if we can. > > Thanks so much for any help you can offer. > > Ps we live in wales. > > XX > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2011 Report Share Posted August 31, 2011 Have a look at digestive enzymes www.EnzymeInfo.co.uk Mandi x (who sells them because she loves them, rather than loving them because I sell them if you get me!) V fussy eater which is why can't do gf/cf diet yet. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2011 Report Share Posted August 31, 2011 Dear Cath I recommend you to start on a few websites like defeat autism now and treating autism they have loads of information .... I would start the diet now rather later and this is my experience , because a child as small as yours is experimenting and learning food wise I would be aware of textures though seems to me that your child is fussy because he can stand certain textures rather than not liking certain flavours a good Occupational therapist should give you a food programme it done wonders for my boy ..... a good gut programme always starts from removing the culprits and to our children is gluten , caseine and glutamate All the best Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2011 Report Share Posted August 31, 2011 Thanks for quick replies again. We did try gf/cf but didn't last long as all liam eats and drinks really is bread milk etc. Won't touch anything else! Might have to take time off work! Have heard about enzymes but don't really understand so will check that website out. My computer not working and my phone is dh's old one so am on internet on that but keypad doesn't work properly so apologies if not making much sense..will try and fix one before messaging again. Thank you all so much, will look into extra info on the files on this website as well. Cath x x > > Have a look at digestive enzymes > > _www.EnzymeInfo.co.uk_ (http://www.EnzymeInfo.co.uk) > > Mandi x (who sells them because she loves them, rather than loving them > because I sell them if you get me!) > > > In a message dated 31/08/2011 13:30:11 GMT Daylight Time, > cathwyn1@... writes: > > > V fussy eater which is why can't do gf/cf diet yet. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2011 Report Share Posted August 31, 2011 Hi CathWhat are the meds saying about the very large tonsils? These can create issues like poor breathing and inability to maintain airway.. which may be why sleeping with you makes a difference.. children tend to mimic the breathing patterns of adults.. so this may help him to get good air quality in his sleep. Our son had large tonsils and this affected his ability to use his tongue properly and delayed the diction in his speech. With his large tonsils he tended to mouth breath which created more tonsil issues as mouth breathing stops air being filtered through nasal hairs and can create more infection. (he is NT) It may be rather easier to remove foods than you might imagine... there are some good tasting alternatives out there and you may be able to step back initially from cows dairy and wheat and corn for example. I found it really useful to maintain a food and drink, bowel and mood diary and to be slow to change things... introducing or taking away one thing at a time.. and allowing at least a week before next change.. this way you can be sure of what is and is not working. The journey is a slow gentle process.. and if we rush and do too much too quickly it can be counter productive.Best Wishes TraceyPS you do not mention if your child was vaccinated or not... if he was you might also like to look at the CEASE programme of homeopathic remedies to overcome the effects of vaccination toxins. > > > > > > Hello, I hope someone can help us. > > My son is four Christmas time and doesn't speak at all. He does make noises and babbles but no words. He is being seen by all the usual people and is ib a unit being assessed because doesn't quite tick all the boxes for autism. > > I'm really interested in the biomedical approach but unsure where to start? Does he need bloods, urine,stool and hair tests? How do we arrange these? He has had bloods and urine done by paediatrician but just the normal routine ones I think which were ok. > > My husband and I just hate sitting here waiting -we just want to try and help him if we can. > > Thanks so much for any help you can offer. > > Ps we live in wales. > > XX > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2011 Report Share Posted August 31, 2011 thanks Tracey, will look into cease as had all vaccs apart from preschool booster, unsure what to do about that..feel guilty in case my fault for giving the others? He has seen ent who took one quick look and just said yes they are large but he will grow into them. If they're not causing probs leave them and that was it! He does sometimes seem like hrs struggling to swallow and he puts our hands to his throat simetimes,just gently...if he was hurting he wouldn't ve able to tell us so o don't know what the ent was thinking..?does snore a lot also..we only knew about the tonsulitis cos if his temp..he is so brave when ill..doesn't complain bless him..just a bit clingy x > > > > > > > > > > > > > > > > > > Hello, I hope someone can help us. > > > > > > My son is four Christmas time and doesn't speak at all. He does make > > noises and babbles but no words. He is being seen by all the usual people > > and is ib a unit being assessed because doesn't quite tick all the boxes for > > autism. > > > > > > I'm really interested in the biomedical approach but unsure where to > > start? Does he need bloods, urine,stool and hair tests? How do we arrange > > these? He has had bloods and urine done by paediatrician but just the normal > > routine ones I think which were ok. > > > > > > My husband and I just hate sitting here waiting -we just want to try and > > help him if we can. > > > > > > Thanks so much for any help you can offer. > > > > > > Ps we live in wales. > > > > > > XX > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2011 Report Share Posted August 31, 2011 The thing with the vaccines is that there are good alternative programmes out there to make a big difference and help detox.. and at the time we all make decisions in the most informed way we can and with the best of intentions.. Accepting that vaccines may have played a role is a good starting point as it directs us to where we can begin to help. We used to give my son a tiny amount of manuka honey to swallow... the antiviral and antibacterial effects of this made a difference to his throat.. He is much better now and tonsils more normalised.. as mouth breathing stopped so did sore throats. If they can keep tonsils it is better as these organs have an important role to play in the body... and I am sure homeopathics might address underlying cause of them being swollen. Snoring can reflect a very high palate.. if you look inside his mouth is the top of his palate nice and flat and spread or is it very high and narrow... the high narrow shape tends to require mouth breathing and snoring... and it is very hard to breath at night like this.. the children often have to lie in a very unusual position to be able to get a constant air way. You little man sounds very much like my son.. never complains just needs more hugs.... and he is now 17 and over 6 foot!!Best Wishes TraceyPS most of us will not be agreeing to any vaccinations... and it may mean being thrown out by GP... as I was... but that is a small price to pay.. I think/ thanks Tracey, will look into cease as had all vaccs apart from preschool booster, unsure what to do about that..feel guilty in case my fault for giving the others? He has seen ent who took one quick look and just said yes they are large but he will grow into them. If they're not causing probs leave them and that was it! He does sometimes seem like hrs struggling to swallow and he puts our hands to his throat simetimes,just gently...if he was hurting he wouldn't ve able to tell us so o don't know what the ent was thinking..?does snore a lot also..we only knew about the tonsulitis cos if his temp..he is so brave when ill..doesn't complain bless him..just a bit clingy x > > > > > > > > > > > > > > > > > > Hello, I hope someone can help us. > > > > > > My son is four Christmas time and doesn't speak at all. He does make > > noises and babbles but no words. He is being seen by all the usual people > > and is ib a unit being assessed because doesn't quite tick all the boxes for > > autism. > > > > > > I'm really interested in the biomedical approach but unsure where to > > start? Does he need bloods, urine,stool and hair tests? How do we arrange > > these? He has had bloods and urine done by paediatrician but just the normal > > routine ones I think which were ok. > > > > > > My husband and I just hate sitting here waiting -we just want to try and > > help him if we can. > > > > > > Thanks so much for any help you can offer. > > > > > > Ps we live in wales. > > > > > > XX > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2011 Report Share Posted August 31, 2011 Cath, Often kids who only eat bread, milk, etc., are the kids who respond well to removing those foods. Rather than going gf/cf (and using replacement foods as is commonly done), I would encourage you to look at something like a Nourishing Traditions approach. If you think about how people more traditionally served food (meat, veg, broths) that can be a lot easier on the family, as everyone can eat it, and it can be naturally gluten free and casein free. If you join Treating Autism, we have a book in our library for members that can be a great starting point for cleaning up the environment and diet. Nourishing Hope by s. It isn't easy changing diet of a fussy eater. I've spent many hours sitting on the kitchen floor crying. But, it can be easier if the food you prepare is for everyone rather than special dishes just for the one child. It may be an awful few days, but most kids come around to eating what is put in front of them, even if it is only a few very basic things for a few months and then you evenutally expand. s has some great info on fussy eaters. It sounds like your child, like every kid I've known with ASD, has immune issues. Cleaning up the diet can help calm down an overwhelmed system. Anita > > > > Have a look at digestive enzymes > > > > _www.EnzymeInfo.co.uk_ (http://www.EnzymeInfo.co.uk) > > > > Mandi x (who sells them because she loves them, rather than loving them > > because I sell them if you get me!) > > > > > > In a message dated 31/08/2011 13:30:11 GMT Daylight Time, > > cathwyn1@ writes: > > > > > > V fussy eater which is why can't do gf/cf diet yet. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2011 Report Share Posted August 31, 2011 > > Hello, I hope someone can help us. > > My son is four Christmas time and doesn't speak at all. He does make noises and babbles but no words. He is being seen by all the usual people and is ib a unit being assessed because doesn't quite tick all the boxes for autism. > > I'm really interested in the biomedical approach but unsure where to start? Does he need bloods, urine,stool and hair tests? How do we arrange these? He has had bloods and urine done by paediatrician but just the normal routine ones I think which were ok. > > My husband and I just hate sitting here waiting -we just want to try and help him if we can. > > Thanks so much for any help you can offer. > > Ps we live in wales. > > XX > Dear Cath, welcome to the group. You're doing the right thing in removing the gluten and casein immediately. I recommend Dr. McBride's book - Gut and Psycology Syndrome. It really explains what is going on for our kids in a straight forward way, even if you don't decide to do the GAPS diet. I think it is one of the most commonly used diets however. Also, look into the homeopathic CEASE programme. My daughter has been taking a nosode to clear her MMR vaccine. It is working - we keep seeing measles spots - a sign that it is clearing it. Don't blame yourself for getting your child vaccinated. Hindsight would be a wonderful thing but none of us have it! Very best of luck. . X Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2011 Report Share Posted August 31, 2011 I've lost track of the beginning of this thread now, but I remember there was a recent post from someone who said their child had a difficult delivery with forceps. In this case I would suggest you consider going to see an experienced paediatric osteopath (cranial osteopath)as there might be retrained physical stresses within the skull from the birth and releasing this tension could help the palate and dentition to develop better.(BTW I met a mother in the hospital eye clinic a few years ago who had been recommended by an NHS professional in the clinic to see a cranial osteopath. She was so grateful because in her child's case there was compression near the base of the skull and releasing this led to a big improvement in her child's vision.) Margaret > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hello, I hope someone can help us. > > > > > > > > > > My son is four Christmas time and doesn't speak at all. He does make > > > > noises and babbles but no words. He is being seen by all the usual > > people > > > > and is ib a unit being assessed because doesn't quite tick all the > > boxes for > > > > autism. > > > > > > > > > > I'm really interested in the biomedical approach but unsure where to > > > > start? Does he need bloods, urine,stool and hair tests? How do we > > arrange > > > > these? He has had bloods and urine done by paediatrician but just the > > normal > > > > routine ones I think which were ok. > > > > > > > > > > My husband and I just hate sitting here waiting -we just want to try > > and > > > > help him if we can. > > > > > > > > > > Thanks so much for any help you can offer. > > > > > > > > > > Ps we live in wales. > > > > > > > > > > XX > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2011 Report Share Posted August 31, 2011 When I read your post, Cath, I thought that it was quite possible that your child may have a particular problem with the foods they crave. It seems not to be uncommon in autism that children are living on bread and yogurt. A local mother I knew had an autistic child like this and I gave her the Sunderland Protocol and suggested that her child might benefit from a diet without gluten and dairy. She was horrified and said it would be impossible. However the child's health deteriorated and it was obvious there were gut problems. Eventually the NHS said the child needed a gluten and dairy free diet! Anita's suggestion for how to make dietary changes is something I would agree with - better than replacing wheat and dairy with processed substitutes. Margaret > > > > > > Have a look at digestive enzymes > > > > > > _www.EnzymeInfo.co.uk_ (http://www.EnzymeInfo.co.uk) > > > > > > Mandi x (who sells them because she loves them, rather than loving them > > > because I sell them if you get me!) > > > > > > > > > In a message dated 31/08/2011 13:30:11 GMT Daylight Time, > > > cathwyn1@ writes: > > > > > > > > > V fussy eater which is why can't do gf/cf diet yet. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2011 Report Share Posted August 31, 2011 typo: RETAINED physical stresses M > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hello, I hope someone can help us. > > > > > > > > > > > > My son is four Christmas time and doesn't speak at all. He does make > > > > > noises and babbles but no words. He is being seen by all the usual > > > people > > > > > and is ib a unit being assessed because doesn't quite tick all the > > > boxes for > > > > > autism. > > > > > > > > > > > > I'm really interested in the biomedical approach but unsure where to > > > > > start? Does he need bloods, urine,stool and hair tests? How do we > > > arrange > > > > > these? He has had bloods and urine done by paediatrician but just the > > > normal > > > > > routine ones I think which were ok. > > > > > > > > > > > > My husband and I just hate sitting here waiting -we just want to try > > > and > > > > > help him if we can. > > > > > > > > > > > > Thanks so much for any help you can offer. > > > > > > > > > > > > Ps we live in wales. > > > > > > > > > > > > XX > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2011 Report Share Posted August 31, 2011 I second that. Treatingautism.co.uk has a very good beginners section. If you have time I highly recommend you watch as many DAN! conference presentations as you can via autism.com - look for their parent support or video conferences section. Read as much as you can. If you join Treating Autism there are many great books in the library FREE to members, you only pay for postage. Best of luck,Natasa >> Dear Cath > I recommend you to start on a few websites like defeat autism now and > treating autism they have loads of information ....> I would start the diet now rather later and this is my experience , because > a child as small as yours is experimenting and learning food wise I would > be aware of textures though seems to me that your child is fussy because > he can stand certain textures rather than not liking certain flavours a good > Occupational therapist should give you a food programme it done wonders > for my boy .....> > a good gut programme always starts from removing the culprits and to our > children is gluten , caseine and glutamate > > All the best > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2011 Report Share Posted August 31, 2011 I'm with Mandi, digestive enzymes would be a good place to start. You can always withdraw any foods that you still see behaviour issues with at a later date and the enzymes may promote hunger for other foods so that you could widen his choice too. I've lost track of the beginning of this thread now, but I remember there was a recent post from someone who said their child had a difficult delivery with forceps. In this case I would suggest you consider going to see an experienced paediatric osteopath (cranial osteopath)as there might be retrained physical stresses within the skull from the birth and releasing this tension could help the palate and dentition to develop better.(BTW I met a mother in the hospital eye clinic a few years ago who had been recommended by an NHS professional in the clinic to see a cranial osteopath. She was so grateful because in her child's case there was compression near the base of the skull and releasing this led to a big improvement in her child's vision.)Margaret> > > > >> > > > >> > > > >> > > > >> > > > >> > > > > Hello, I hope someone can help us.> > > > >> > > > > My son is four Christmas time and doesn't speak at all. He does make> > > > noises and babbles but no words. He is being seen by all the usual> > people> > > > and is ib a unit being assessed because doesn't quite tick all the> > boxes for> > > > autism.> > > > >> > > > > I'm really interested in the biomedical approach but unsure where to> > > > start? Does he need bloods, urine,stool and hair tests? How do we> > arrange> > > > these? He has had bloods and urine done by paediatrician but just the> > normal> > > > routine ones I think which were ok.> > > > >> > > > > My husband and I just hate sitting here waiting -we just want to try> > and> > > > help him if we can.> > > > >> > > > > Thanks so much for any help you can offer.> > > > >> > > > > Ps we live in wales.> > > > >> > > > > XX> > > > >> > > >> > > >> > > >> > >> >> > > >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 31, 2011 Report Share Posted August 31, 2011 As well as the good advice here, slowing down your speech and speaking telegraphically, meaning dropping unnecessary words can help as if you are speaking to a foreigner with a limited grasp of English, try to stop autistic leading i.e. grabbing you by the hand and leading you to what he wants, modelling the words for what he wants and if possible trying to get him to attempt the word, without making it aversive. The below link might take a while to get your head around but can be helpful. http://www.mariposaschool.org/learning-materials Making noises and babbling is usually a good sign that he is capable of language. I personally would also recommend a Doctors Data Hair Elements Test from directlabs.com quoting AUT for a discount but realise that you have probably already have had your head filled. All the Best Kenny > > Hello, I hope someone can help us. > > My son is four Christmas time and doesn't speak at all. He does make noises and babbles but no words. He is being seen by all the usual people and is ib a unit being assessed because doesn't quite tick all the boxes for autism. > > I'm really interested in the biomedical approach but unsure where to start? Does he need bloods, urine,stool and hair tests? How do we arrange these? He has had bloods and urine done by paediatrician but just the normal routine ones I think which were ok. > > My husband and I just hate sitting here waiting -we just want to try and help him if we can. > > Thanks so much for any help you can offer. > > Ps we live in wales. > > XX > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2011 Report Share Posted September 1, 2011 Thank you all so much for your help. I can't believe all the replies! Back in work today but will sit down in the weekend and write everything down and decide in what order to do everything. Will have to take time off work I think! Thanks everyone Love Cath XX > > > > Hello, I hope someone can help us. > > > > My son is four Christmas time and doesn't speak at all. He does make noises and babbles but no words. He is being seen by all the usual people and is ib a unit being assessed because doesn't quite tick all the boxes for autism. > > > > I'm really interested in the biomedical approach but unsure where to start? Does he need bloods, urine,stool and hair tests? How do we arrange these? He has had bloods and urine done by paediatrician but just the normal routine ones I think which were ok. > > > > My husband and I just hate sitting here waiting -we just want to try and help him if we can. > > > > Thanks so much for any help you can offer. > > > > Ps we live in wales. > > > > XX > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2011 Report Share Posted September 1, 2011 Where are you based? Maybe there is a local Treating Autism group that meets up regularly near you? Kirsty X > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Hello, I hope someone can help us. > > > > > > > > > > > > My son is four Christmas time and doesn't speak at all. He does > make > > > > > noises and babbles but no words. He is being seen by all the usual > > > people > > > > > and is ib a unit being assessed because doesn't quite tick all the > > > boxes for > > > > > autism. > > > > > > > > > > > > I'm really interested in the biomedical approach but unsure > where to > > > > > start? Does he need bloods, urine,stool and hair tests? How do we > > > arrange > > > > > these? He has had bloods and urine done by paediatrician but just > the > > > normal > > > > > routine ones I think which were ok. > > > > > > > > > > > > My husband and I just hate sitting here waiting -we just want to > try > > > and > > > > > help him if we can. > > > > > > > > > > > > Thanks so much for any help you can offer. > > > > > > > > > > > > Ps we live in wales. > > > > > > > > > > > > XX > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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