Guest guest Posted January 4, 2001 Report Share Posted January 4, 2001 How do I access the pedpid list archives??? I need an email written by awhile back to myself, I printed it and lost it, and now I need the information for someone else. It was back probably in October or November and had info about the possibility of Kody's seizures being caused by encephalitis in the brain. Thanks! Diane, Mom to Kody, IgG def. 2 & 3, epilepsy, asthma, Gerd, acute sinus disease Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 4, 2001 Report Share Posted January 4, 2001 Go to www. and login. There will be a list of egroups that you belong to. Choose the PedPID group. The next page will have several links down the left side of the screen. One will be " Messages " , click on that. The most recent emails will come up on the next page. Up in the top right corner of that page will be a search engine with a little box to type in. Hope that helps. Ursula Holleman uahollem@... and Macey's mom (5 yr. old with CVID, asthma, sinus disease, GERD, kidney reflux, Sensory Integration Disorder, Diabetes Insipidus) http://www.pedpid.com /group/PedPID Help! How do I access the pedpid list archives??? I need an email written by awhile back to myself, I printed it and lost it, and now I need the information for someone else. It was back probably in October or November and had info about the possibility of Kody's seizures being caused by encephalitis in the brain. Thanks! Diane, Mom to Kody, IgG def. 2 & 3, epilepsy, asthma, Gerd, acute sinus disease This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2006 Report Share Posted January 7, 2006 Hi Steve, Well, we have been to Lander, Wy, so I know exactly where you are. I didn't even know that had a Doctor in town...just kidding. If I remember correctly when we were there it was small. Could have grown a lot since then. I loved it. We stayed at a campground run by the nicest people. My husband is in the same boat as you. He had some small chest pains and then one day got dizzy and I took him to the hospital. They did the same thing and said one artery was 90 something percent closed and put in a stent. He has just stopped taking lipitor less than 2 weeks before and I think that caused the attack. And, you are right, you just don't argue with them when they have you on the table. You just do it. My husband is on the plavix, lopressor, imdur, aspirin, and pepcid. They said they want him on pepcid to avoid any heartburn that might be confused for chest pains that are heart related. He takes fishoil, b vitamins, multi vitamins and I use cinnamon in the coffee. Oh, they also gave him nitro glycerin to carry around for any chest pains. I don't really know why since he never really had severe pains, just little twinges. But, they gave it to him right away when he had the dizzy spell, so I am sure it is good to have on hand in the event something does happen. They gave him that and an aspirin when he checked in. He will not go on any more statins or other cholesterol lowering drugs. He lost all his muscle in his arms and legs, and has had other reactions, and has eye problems. His testosterone went way down, he had bursitis, tendonitis, pains in his right side, he now has osteoporosis (caused from the low testosterone, caused by the statins), he had back pains, shingles, and probably more I am forgetting. His Dr. said at least a year on the meds, and I suspect when the year is up they will say to continue them. I don't think they ever want to tell anyone we want you on meds for the rest of your life. They know it makes people mad, so they don't tell you. My husband hates taking meds too, and for us I think I will have him get a second opinion from another cardiologist to see what they say. The one he has now pushes those statins and won't give up. My husband bruises so easily now and he just won't be careful. And, here is a note, you should be more cautious because you can get sepsis and that can land you in the hospital. It is a blood infection and it can spread. My husband had it once and caught it quickly, but a friend had it and was in a week. Good luck, and if you find out anything that helps, please post. Susie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2006 Report Share Posted January 7, 2006 > > > > >> > Now I am coming around to my 6-month anniversary, and I want to go off > medications if at all possible. I am sick of all the bruising caused > by the blood thinner, and I feel like I am experiencing some muscle > deterioration due to the lipitor. (Of course I could be wrong. I > definitely have a prejudice against taking medications.) decision? > > Does anyone know a good " Ornish-oriented " doctor in Wyoming (I haven't > found any yet), or in the Rocky Mountain area that I could consult with? >> Hello--have you heard about or considered Functional Medicine trained MDs--though these docs are not specifically " ornish oriented " they do have a very different perspective on the practice of medicine--nutrition is a MAJOR aspect of their therapy-- goolge " institute of functional medicne " and review what their practice includes--most a re western trained MD's with further treaining in functional medicine-----there is also a feature " find a practitioner " you can utilize to find a doc in your area...or a physician trained in " orthomolecular medicne " may be someone you would find beneficial--you could research their approach to medicine to determine if it appeals to you. a total cholesterol of 107 seems very low to me---ask your doc if you even absorb fat soluble viatmins with a cholesterol so low....and what do you accomplish with lowering of cholsterol to such a level? i would be very interested in your doctor's answer to those 2 questions. a few things to keep in mind about your drugs-- no matter what you decide to do about them: 1--there is some evidence that stopping a statin results in rebound increase in platelet stickiness that peaks about day 14 after stopping the statin (platelet stickiness predisposes one to clotting- -leading to blockage of arteries already containing atherosclerotic plaques)---both plavix and aspirin DECREASE platelet stickiness--so is you decide to stop the lipitor, do not stop the plavix and /or aspirin first-- 2--Plavix and aspirin are both " blood thinners " best of luck-- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2006 Report Share Posted January 9, 2006 olsen wrote: > 1--there is some evidence that stopping a statin results in rebound > increase in platelet stickiness that peaks about day 14 after > stopping the statin (platelet stickiness predisposes one to clotting- > -leading to blockage of arteries already containing atherosclerotic > plaques)---both plavix and aspirin DECREASE platelet stickiness--so > is you decide to stop the lipitor, do not stop the plavix and /or > aspirin first-- > 2--Plavix and aspirin are both " blood thinners " Hi Olsen, Do you have a link that discusses the info above (stopping statins - platelet stickiness, Plavix and aspirin)? I've read several articles that discussed stopping statins when a " patient is hospitalized for chest pain " , that they were three times as likely to have a heart attack or die than those who kept taking their medication. The theory for this rational... Animal research has shown that when the statins are suddenly withdrawn, a rebound effect occurs, and the nitric oxide levels drop below normal -- increasing the risk of heart attack or other cardiac events. A human study to test this rebound effect would be unethical, but researchers were able to show a similar withdrawal effect in humans by looking at medical records of patients who'd been enrolled in an international heart disease trial. Link for one of many articles that states the nitric oxide situation: http://www.webmd.com/content/article/17/1675_53402?src=Inktomi & condition=Heart%2\ 0Disease TIA, Fran Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.