Guest guest Posted February 26, 2006 Report Share Posted February 26, 2006 Hello....Would like to know what meds your Mother is on? My Uncle would " fantasize/hallucinate " when he had too much Senemet or Seroquel. Sounds like an interesting place your Mom lives in. Peace to you and Momma, Stevie * * * * * * * * It's almost impossible to hear what my mother is saying anymore and when you can hear what she's saying, the words make no sense. BUT lately she's loud and clear telling me that I'm a pest and asking what does she have to do to get rid of me? It is not at all clear that she knows who I am anymore but she's extremely busy. She's planing to get married to a man named Mike. (There is no Mike in the nh as a patient or staff and no Mike in our family or among her friends) My mother's roommate has a son named Bobby. The roommate has a jolly walker and goes around the hallways singing " Bobby, Bobby " and puting his name in songs. Recently the roommate told me her son Bobby is Jesus Christ. Now she puts " Bobby " into Christmas Carols. Should I be ashamed of being jealous of Bobby????? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2006 Report Share Posted February 26, 2006 It's almost impossible to hear what my mother is saying anymore and when you can hear what she's saying, the words make no sense. BUT lately she's loud and clear telling me that I'm a pest and asking what does she have to do to get rid of me? It is not at all clear that she knows who I am anymore but she's extremely busy. She's planing to get married to a man named Mike. (There is no Mike in the nh as a patient or staff and no Mike in our family or among her friends) My mother's roommate has a son named Bobby. The roommate has a jolly walker and goes around the hallways singing " Bobby, Bobby " and puting his name in songs. Recently the roommate told me her son Bobby is Jesus Christ. Now she puts " Bobby " into Christmas Carols. Should I be ashamed of being jealous of Bobby????? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 Hello and All, As I was reading your message I was thinking of what na wrote about the " end stage " and what I am going through with my Uncle and thought maybe, (I know it will take some effort), but maybe when we write these messages we could more precisely document by ending our messages with our name, LO's name, and meds they are taking at the time of the message. The question that comes up most frequently is " what meds are the LO's taking? " , and maybe we can see a pattern sooner without having to re-ask or lookup past messages. Since I started writing to this board Mr. B has gone from 8-10 meds down to 2 now. He is now (I think) in the end stage of LBD. Here's how it might look: Stevie LO - Uncle (Mr. (if LO has passed then just put date of passing) Meds: Hytrin, Tylenol Extra Strength It seems like the behavior that describes below is caused by overmedication and would be easier for others to track and possibly see a pattern if the meds were at the end of the message. Just a suggestion. I wish everyone a wonderful Peaceful week, Stevie * * * * * * * * * * When I go to visit my Mother at the nursing home, she is very excited to see me. Usually during the visit, she will end up telling me that she's going to kill me or telling me that I'm worthless. Also, when I tell her that I lover her, she will say she doesn't believe it. Once when I was leaving, she said, " Got to H*ll " . I told her that no matter how bad she talked to me that I still loved her. She told me that what she had said wasn't bad. I asked her for confirmation that telling me to go to h*ll wasn't bad and she assured me that it wasn't bad. Every time I call her on something bad she has said to me she tells me that she didn't mean it that way. It must be Lewy Logic (oxymoron). Just remember that they love you enough to take it out on you. Also, my Mother will occasionally say that she's the Mother meaning that she wants to be in control and not me. I try to give her as much control as possible and treat her like an adult, but it's not always possible. The " verbal abuse " is one of the hardest things for me to handle. I have gotten a lot better at handling it and I try not to hear the bad things she says. Kind of like husbands that filter out what their wives are saying. Down deep I know she loves me and occasionally she will tell me that she loves me. I also have trouble when my Mother fights me when I'm trying to do something she wants me to do like helping her into bed. Once again, that Lewy Logic get in the way. For a long time, the Exelon, Namenda, Seroquel and Zoloft kept her calmer and more cooperative. They are not helping as much now and we're having more trouble with her being agitated and uncooperative. She's also sleeping more, so I believe that she starting to enter that final stage. in Dallas Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 SOUNDS LIKE MY MAMA YOU USALLY CAN'T UNDERSTAND A WORD SHE'S SAYING BUT I FEEL AS THOUGH SHE HATES ME. SHE IS CONSIDERABLY IN A HAPPY MOOD WITH THE CAREGIVERS OTHER THAN ME AND WHEN THEY ARE THERE WITH ME. BUT WHILE WE ARE ALONE SHE IS UPSET AND SOMETIMES THROWS THINGS NOT ANYTHING OF SIGNIFICANCE. JUST BLANKETS AND STUFFED ANIMALS WHICH SHE PICKS AT MOST DAYS. SHE WILL NOT EAT FOR ME OR MY FIANCE' . SHE EATS OK WHEN CAREGIVERS ARE THERE. I REALLY DON'T KNOW WHETHER OR NOT TO HIRE SOMEONE AROUND THE CLOCK JUST TO FEED HER AND KEEP HER IN A NICE MOOD. MONEY WILL GET TIGHT QUICK. AND SHE DOES NOT SLEEP MUCH NOW. I GOT A MONITOR TO LET ME KNOW WHEN SHE MOVES AROUND AT NIGHT( SHE'S YET TO GET OUT OF BED) BUT SHE PICKING AND SITTING UP ALL NIGHT. SHE WANTS TO NAP. I DON'T HAVE ANY SOLUTIONS RIGHT NOW. I'M CONFUSED AND TIRED. ANY ADVISE? I'M PRAYING FOR ALL OF YOU. THANKS MIDGE juperant@... wrote: Hello....Would like to know what meds your Mother is on? My Uncle would " fantasize/hallucinate " when he had too much Senemet or Seroquel. Sounds like an interesting place your Mom lives in. Peace to you and Momma, Stevie * * * * * * * * It's almost impossible to hear what my mother is saying anymore and when you can hear what she's saying, the words make no sense. BUT lately she's loud and clear telling me that I'm a pest and asking what does she have to do to get rid of me? It is not at all clear that she knows who I am anymore but she's extremely busy. She's planing to get married to a man named Mike. (There is no Mike in the nh as a patient or staff and no Mike in our family or among her friends) My mother's roommate has a son named Bobby. The roommate has a jolly walker and goes around the hallways singing " Bobby, Bobby " and puting his name in songs. Recently the roommate told me her son Bobby is Jesus Christ. Now she puts " Bobby " into Christmas Carols. Should I be ashamed of being jealous of Bobby????? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 Midge- Your Mama does not hate you. I am sure she is just as frustrated and frightened as you are. The reason she eats and performs well for other caregivers is that it is show time. It is very typical for a person with LBD to put on their very best behavior for others. My Dad did things much more readily for the professional caregivers than he did for me. I would say " But Dad I am a nurse. " It didn't help a bit. I was his daughter and the one there the most. I was the target. One of the symptoms of Parkinson Disease is pill rolling motion of the thumb and forefinger. It is absent when the patient is sleeping and increased when stressed or fatigued. It also is decreased when the person is performing voluntary movements. The pill forming movements is a form of tremors. I was just wondering if this is what your Mama is doing when she is picking all night long. Re: My mother says I'm a pest SOUNDS LIKE MY MAMA YOU USALLY CAN'T UNDERSTAND A WORD SHE'S SAYING BUT I FEEL AS THOUGH SHE HATES ME. SHE IS CONSIDERABLY IN A HAPPY MOOD WITH THE CAREGIVERS OTHER THAN ME AND WHEN THEY ARE THERE WITH ME. BUT WHILE WE ARE ALONE SHE IS UPSET AND SOMETIMES THROWS THINGS NOT ANYTHING OF SIGNIFICANCE. JUST BLANKETS AND STUFFED ANIMALS WHICH SHE PICKS AT MOST DAYS. SHE WILL NOT EAT FOR ME OR MY FIANCE' . SHE EATS OK WHEN CAREGIVERS ARE THERE. I REALLY DON'T KNOW WHETHER OR NOT TO HIRE SOMEONE AROUND THE CLOCK JUST TO FEED HER AND KEEP HER IN A NICE MOOD. MONEY WILL GET TIGHT QUICK. AND SHE DOES NOT SLEEP MUCH NOW. I GOT A MONITOR TO LET ME KNOW WHEN SHE MOVES AROUND AT NIGHT( SHE'S YET TO GET OUT OF BED) BUT SHE PICKING AND SITTING UP ALL NIGHT. SHE WANTS TO NAP. I DON'T HAVE ANY SOLUTIONS RIGHT NOW. I'M CONFUSED AND TIRED. ANY ADVISE? I'M PRAYING FOR ALL OF YOU. THANKS MIDGE juperant@... wrote: Hello....Would like to know what meds your Mother is on? My Uncle would " fantasize/hallucinate " when he had too much Senemet or Seroquel. Sounds like an interesting place your Mom lives in. Peace to you and Momma, Stevie * * * * * * * * It's almost impossible to hear what my mother is saying anymore and when you can hear what she's saying, the words make no sense. BUT lately she's loud and clear telling me that I'm a pest and asking what does she have to do to get rid of me? It is not at all clear that she knows who I am anymore but she's extremely busy. She's planing to get married to a man named Mike. (There is no Mike in the nh as a patient or staff and no Mike in our family or among her friends) My mother's roommate has a son named Bobby. The roommate has a jolly walker and goes around the hallways singing " Bobby, Bobby " and puting his name in songs. Recently the roommate told me her son Bobby is Jesus Christ. Now she puts " Bobby " into Christmas Carols. Should I be ashamed of being jealous of Bobby????? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 Re: My mother says I'm a pest SOUNDS LIKE MY MAMA YOU USALLY CAN'T UNDERSTAND A WORD SHE'S SAYING BUT I FEEL AS THOUGH SHE HATES ME. SHE IS CONSIDERABLY IN A HAPPY MOOD WITH THE CAREGIVERS OTHER THAN ME AND WHEN THEY ARE THERE WITH ME. BUT WHILE WE ARE ALONE SHE IS UPSET AND SOMETIMES THROWS THINGS NOT ANYTHING OF SIGNIFICANCE. JUST BLANKETS AND STUFFED ANIMALS WHICH SHE PICKS AT MOST DAYS. SHE WILL NOT EAT FOR ME OR MY FIANCE' . SHE EATS OK WHEN CAREGIVERS ARE THERE. I REALLY DON'T KNOW WHETHER OR NOT TO HIRE SOMEONE AROUND THE CLOCK JUST TO FEED HER AND KEEP HER IN A NICE MOOD. MONEY WILL GET TIGHT QUICK. AND SHE DOES NOT SLEEP MUCH NOW. I GOT A MONITOR TO LET ME KNOW WHEN SHE MOVES AROUND AT NIGHT( SHE'S YET TO GET OUT OF BED) BUT SHE PICKING AND SITTING UP ALL NIGHT. SHE WANTS TO NAP. I DON'T HAVE ANY SOLUTIONS RIGHT NOW. I'M CONFUSED AND TIRED. ANY ADVISE? I'M PRAYING FOR ALL OF YOU. THANKS MIDGE juperant@... wrote: Hello....Would like to know what meds your Mother is on? My Uncle would " fantasize/hallucinate " when he had too much Senemet or Seroquel. Sounds like an interesting place your Mom lives in. Peace to you and Momma, Stevie * * * * * * * * It's almost impossible to hear what my mother is saying anymore and when you can hear what she's saying, the words make no sense. BUT lately she's loud and clear telling me that I'm a pest and asking what does she have to do to get rid of me? It is not at all clear that she knows who I am anymore but she's extremely busy. She's planing to get married to a man named Mike. (There is no Mike in the nh as a patient or staff and no Mike in our family or among her friends) My mother's roommate has a son named Bobby. The roommate has a jolly walker and goes around the hallways singing " Bobby, Bobby " and puting his name in songs. Recently the roommate told me her son Bobby is Jesus Christ. Now she puts " Bobby " into Christmas Carols. Should I be ashamed of being jealous of Bobby????? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 When I go to visit my Mother at the nursing home, she is very excited to see me. Usually during the visit, she will end up telling me that she's going to kill me or telling me that I'm worthless. Also, when I tell her that I lover her, she will say she doesn't believe it. Once when I was leaving, she said, " Got to H*ll " . I told her that no matter how bad she talked to me that I still loved her. She told me that what she had said wasn't bad. I asked her for confirmation that telling me to go to h*ll wasn't bad and she assured me that it wasn't bad. Every time I call her on something bad she has said to me she tells me that she didn't mean it that way. It must be Lewy Logic (oxymoron). Just remember that they love you enough to take it out on you. Also, my Mother will occasionally say that she's the Mother meaning that she wants to be in control and not me. I try to give her as much control as possible and treat her like an adult, but it's not always possible. The " verbal abuse " is one of the hardest things for me to handle. I have gotten a lot better at handling it and I try not to hear the bad things she says. Kind of like husbands that filter out what their wives are saying. Down deep I know she loves me and occasionally she will tell me that she loves me. I also have trouble when my Mother fights me when I'm trying to do something she wants me to do like helping her into bed. Once again, that Lewy Logic get in the way. For a long time, the Exelon, Namenda, Seroquel and Zoloft kept her calmer and more cooperative. They are not helping as much now and we're having more trouble with her being agitated and uncooperative. She's also sleeping more, so I believe that she starting to enter that final stage. in Dallas Hello....Would like to know what meds your Mother is on? My Uncle would > " fantasize/hallucinate " when he had too much Senemet or Seroquel. Sounds like an > interesting place your Mom lives in. Peace to you and Momma, Stevie > > * * * * * * * * > It's almost impossible to hear what my mother is saying anymore and > when you can hear what she's saying, the words make no sense. > > BUT lately she's loud and clear telling me that I'm a pest and asking > what does she have to do to get rid of me? It is not at all clear that > she knows who I am anymore but she's extremely busy. She's planing to > get married to a man named Mike. (There is no Mike in the nh as a > patient or staff and no Mike in our family or among her friends) > > My mother's roommate has a son named Bobby. The roommate has a jolly > walker and goes around the hallways singing " Bobby, Bobby " and puting > his name in songs. Recently the roommate told me her son Bobby is > Jesus Christ. Now she puts " Bobby " into Christmas Carols. > > Should I be ashamed of being jealous of Bobby????? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 Stevie, Good idea about the signature, but I'm not sure I'll always remember. I've also wondered about over medication, but she has been on the same medication for over a year and it has never made her this sleepy. In fact at one time her Seroquel dose was larger. Also, one night recently, she refused the large dose of Seroquel that she gets at night. The next day she was even sleepier. I hesitate to lower the Seroquel because of her agitation, paranoia, and delusions. It seems like the Seroquel is not working as well, but I've seen her with out it and its not pretty sight. At least while she's asleep she's calm. I'm afraid this is just the natural progression of the disease. in Dallas LO - Mother (Billie) Meds: Exelon, Namenda, Seroquel, Zoloft > > Hello and All, > > As I was reading your message I was thinking of what na wrote about the > " end stage " and what I am going through with my Uncle and thought maybe, (I > know it will take some effort), but maybe when we write these messages we could > more precisely document by ending our messages with our name, LO's name, and > meds they are taking at the time of the message. The question that comes up > most frequently is " what meds are the LO's taking? " , and maybe we can see a > pattern sooner without having to re-ask or lookup past messages. > > Since I started writing to this board Mr. B has gone from 8-10 meds down to 2 > now. He is now (I think) in the end stage of LBD. Here's how it might look: > > Stevie > LO - Uncle (Mr. (if LO has passed then just put date of passing) > Meds: Hytrin, Tylenol Extra Strength > > It seems like the behavior that describes below is caused by > overmedication and would be easier for others to track and possibly see a pattern if the > meds were at the end of the message. > > Just a suggestion. > > I wish everyone a wonderful Peaceful week, Stevie > > * * * * * * * * * * > > > When I go to visit my Mother at the nursing home, she is very excited > to see me. Usually during the visit, she will end up telling me that > she's going to kill me or telling me that I'm worthless. Also, when I > tell her that I lover her, she will say she doesn't believe it. > > Once when I was leaving, she said, " Got to H*ll " . I told her that no > matter how bad she talked to me that I still loved her. She told me > that what she had said wasn't bad. I asked her for confirmation that > telling me to go to h*ll wasn't bad and she assured me that it wasn't > bad. Every time I call her on something bad she has said to me she > tells me that she didn't mean it that way. It must be Lewy Logic > (oxymoron). > > Just remember that they love you enough to take it out on you. Also, > my Mother will occasionally say that she's the Mother meaning that she > wants to be in control and not me. I try to give her as much control > as possible and treat her like an adult, but it's not always possible. > > The " verbal abuse " is one of the hardest things for me to handle. I > have gotten a lot better at handling it and I try not to hear the bad > things she says. Kind of like husbands that filter out what their > wives are saying. Down deep I know she loves me and occasionally she > will tell me that she loves me. > > I also have trouble when my Mother fights me when I'm trying to do > something she wants me to do like helping her into bed. Once again, > that Lewy Logic get in the way. > > For a long time, the Exelon, Namenda, Seroquel and Zoloft kept her > calmer and more cooperative. They are not helping as much now and > we're having more trouble with her being agitated and uncooperative. > She's also sleeping more, so I believe that she starting to enter that > final stage. > > in Dallas > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 midge, the one thing that hospice reminded me the old adage that we hurt the ones we love the most. dad would yell and scream at me, and make tons of inappropriate comments etc and yet for my husband donnie her rarely if ever yelled and screamed at. the hopsice nurse and pastor and aide, all reminded me that daddy felt the most comfortable with me therefore he yelled and screamed at me and showed me his worst, becuase those you love the most arent supposed to desert you in itmes of struggle and need. that thought helped me negoitatie my feelings thru the awful times, my fmaily has never been a nurturing family so this helped me accpet his hateful words in a better way then what he was actually saying. hope this helps, hugs, sharon m -- Fw: My mother says I'm a pest Re: My mother says I'm a pest SOUNDS LIKE MY MAMA YOU USALLY CAN'T UNDERSTAND A WORD SHE'S SAYING BUT I FEEL AS THOUGH SHE HATES ME. SHE IS CONSIDERABLY IN A HAPPY MOOD WITH THE CAREGIVERS OTHER THAN ME AND WHEN THEY ARE THERE WITH ME. BUT WHILE WE ARE ALONE SHE IS UPSET AND SOMETIMES THROWS THINGS NOT ANYTHING OF SIGNIFICANCE. JUST BLANKETS AND STUFFED ANIMALS WHICH SHE PICKS AT MOST DAYS. SHE WILL NOT EAT FOR ME OR MY FIANCE' . SHE EATS OK WHEN CAREGIVERS ARE THERE. I REALLY DON'T KNOW WHETHER OR NOT TO HIRE SOMEONE AROUND THE CLOCK JUST TO FEED HER AND KEEP HER IN A NICE MOOD. MONEY WILL GET TIGHT QUICK. AND SHE DOES NOT SLEEP MUCH NOW. I GOT A MONITOR TO LET ME KNOW WHEN SHE MOVES AROUND AT NIGHT( SHE'S YET TO GET OUT OF BED) BUT SHE PICKING AND SITTING UP ALL NIGHT. SHE WANTS TO NAP. I DON'T HAVE ANY SOLUTIONS RIGHT NOW. I'M CONFUSED AND TIRED. ANY ADVISE? I'M PRAYING FOR ALL OF YOU. THANKS MIDGE juperant@... wrote: Hello....Would like to know what meds your Mother is on? My Uncle would " fantasize/hallucinate " when he had too much Senemet or Seroquel. Sounds like an interesting place your Mom lives in. Peace to you and Momma, Stevie * * * * * * * * It's almost impossible to hear what my mother is saying anymore and when you can hear what she's saying, the words make no sense. BUT lately she's loud and clear telling me that I'm a pest and asking what does she have to do to get rid of me? It is not at all clear that she knows who I am anymore but she's extremely busy. She's planing to get married to a man named Mike. (There is no Mike in the nh as a patient or staff and no Mike in our family or among her friends) My mother's roommate has a son named Bobby. The roommate has a jolly walker and goes around the hallways singing " Bobby, Bobby " and puting his name in songs. Recently the roommate told me her son Bobby is Jesus Christ. Now she puts " Bobby " into Christmas Carols. Should I be ashamed of being jealous of Bobby????? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 Dear Midge,,,, I was told by a lot of people and my family Doc also to not even talk to him when he calls running me down but hes my husband , it took me a long time but I am fine with it now , I gave him 50years and that s enough, so don't feel bad, its the LBD , he's had it for 3 year's but now hes in a NH over a year now , guess hes tired of calling thank GOD , TAKE CARE Eileen -- Fw: My mother says I'm a pest Re: My mother says I'm a pest SOUNDS LIKE MY MAMA YOU USALLY CAN'T UNDERSTAND A WORD SHE'S SAYING BUT I FEEL AS THOUGH SHE HATES ME. SHE IS CONSIDERABLY IN A HAPPY MOOD WITH THE CAREGIVERS OTHER THAN ME AND WHEN THEY ARE THERE WITH ME. BUT WHILE WE ARE ALONE SHE IS UPSET AND SOMETIMES THROWS THINGS NOT ANYTHING OF SIGNIFICANCE. JUST BLANKETS AND STUFFED ANIMALS WHICH SHE PICKS AT MOST DAYS. SHE WILL NOT EAT FOR ME OR MY FIANCE' . SHE EATS OK WHEN CAREGIVERS ARE THERE. I REALLY DON'T KNOW WHETHER OR NOT TO HIRE SOMEONE AROUND THE CLOCK JUST TO FEED HER AND KEEP HER IN A NICE MOOD. MONEY WILL GET TIGHT QUICK. AND SHE DOES NOT SLEEP MUCH NOW. I GOT A MONITOR TO LET ME KNOW WHEN SHE MOVES AROUND AT NIGHT( SHE'S YET TO GET OUT OF BED) BUT SHE PICKING AND SITTING UP ALL NIGHT. SHE WANTS TO NAP. I DON'T HAVE ANY SOLUTIONS RIGHT NOW. I'M CONFUSED AND TIRED. ANY ADVISE? I'M PRAYING FOR ALL OF YOU. THANKS MIDGE juperant@... wrote: Hello....Would like to know what meds your Mother is on? My Uncle would " fantasize/hallucinate " when he had too much Senemet or Seroquel. Sounds like an interesting place your Mom lives in. Peace to you and Momma, Stevie * * * * * * * * It's almost impossible to hear what my mother is saying anymore and when you can hear what she's saying, the words make no sense. BUT lately she's loud and clear telling me that I'm a pest and asking what does she have to do to get rid of me? It is not at all clear that she knows who I am anymore but she's extremely busy. She's planing to get married to a man named Mike. (There is no Mike in the nh as a patient or staff and no Mike in our family or among her friends) My mother's roommate has a son named Bobby. The roommate has a jolly walker and goes around the hallways singing " Bobby, Bobby " and puting his name in songs. Recently the roommate told me her son Bobby is Jesus Christ. Now she puts " Bobby " into Christmas Carols. Should I be ashamed of being jealous of Bobby????? Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 It's a relief to hear other people saying how parents " behave better " for others than they do for them. DAD ignores me a lot of the time, or goes to sleep. When I take one of my cousins to visit he brightens up and starts making tea for her! I'm afraid it's backfired on him a bit 'cos in the early stages I knew there was something wrong from how he was with me ..... but when I got the GP or social worker to see him he brightend up and 'behaved' impeccably ..... leaving me trying to convince them that there was something wrong. It's a wonder it wasn't me that got the psychiatric referral in the end, instead of him I don't think he hates me ... but I was a bit put out yesterday when showing him family photos that he told me that my mother had died before she'd had any children. He sort of made up for it then by explaining that I had two dads, and taking me off to look for the other one! I have to laugh ..... or I think i'd start crying and never stop. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 My mother is in hospice and no longer on any meds except pain killers. She gets Tylenol twice a day and something perscription in the morning if she'll take it. She was actually awake this morning. That's rare now. > > Hello....Would like to know what meds your Mother is on? My Uncle would > " fantasize/hallucinate " when he had too much Senemet or Seroquel. Sounds like an > interesting place your Mom lives in. Peace to you and Momma, Stevie > > * * * * * * * * > It's almost impossible to hear what my mother is saying anymore and > when you can hear what she's saying, the words make no sense. > > BUT lately she's loud and clear telling me that I'm a pest and asking > what does she have to do to get rid of me? It is not at all clear that > she knows who I am anymore but she's extremely busy. She's planing to > get married to a man named Mike. (There is no Mike in the nh as a > patient or staff and no Mike in our family or among her friends) > > My mother's roommate has a son named Bobby. The roommate has a jolly > walker and goes around the hallways singing " Bobby, Bobby " and puting > his name in songs. Recently the roommate told me her son Bobby is > Jesus Christ. Now she puts " Bobby " into Christmas Carols. > > Should I be ashamed of being jealous of Bobby????? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 , It seems that " some " of the end stage LOs meds need to be reduced when they start acting more aggressively, hallucinating more, etc. Almost like they become " allergic " to the medicine that kept them going for so long. It's still all a crap shoot trying to figure out this disease...maybe someone can see a pattern to the madness? At any rate....now I can see who you are talking about in your message (and it will be more clear to New Members and easier for them to catch up) and what meds your LO is on so I can compare your experience with my 14 year adventure of taking care of my Uncle. For those who don't want to sign their names it isn't necessary....just the info about who you are talking about? As they say, just my 2 cents worth. Thanks ....Much Peace, Stevie in California LO - Mr. B (Uncle) End stage meds: Hytrin, E.S Tylenol Was on: Sinemet, Seroguel, Elavil, Lasix, Hytrin, Roxinal, Aciphex, Amitriptyline, Ativan * * * * * * Stevie, Good idea about the signature, but I'm not sure I'll always remember. I've also wondered about over medication, but she has been on the same medication for over a year and it has never made her this sleepy. In fact at one time her Seroquel dose was larger. Also, one night recently, she refused the large dose of Seroquel that she gets at night. The next day she was even sleepier. I hesitate to lower the Seroquel because of her agitation, paranoia, and delusions. It seems like the Seroquel is not working as well, but I've seen her with out it and its not pretty sight. At least while she's asleep she's calm. I'm afraid this is just the natural progression of the disease. in Dallas LO - Mother (Billie) Meds: Exelon, Namenda, Seroquel, Zoloft Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 I understand. My Dad has been verbally abusive to me for quite some time even though I'm the one helping him. It is hurtfull but I try to remind myself it's the disease talking and not him... From time to time when I tell him " I LOVE YOU " he will thank me and tell me he loves me back, but thats seldom... In my prayers, Debbie Hello....Would like to know what meds your > Mother is on? My Uncle would > > " fantasize/hallucinate " when he had too much Senemet or Seroquel. > Sounds like an > > interesting place your Mom lives in. Peace to you and Momma, Stevie > > > > * * * * * * * * > > It's almost impossible to hear what my mother is saying anymore and > > when you can hear what she's saying, the words make no sense. > > > > BUT lately she's loud and clear telling me that I'm a pest and asking > > what does she have to do to get rid of me? It is not at all clear that > > she knows who I am anymore but she's extremely busy. She's planing to > > get married to a man named Mike. (There is no Mike in the nh as a > > patient or staff and no Mike in our family or among her friends) > > > > My mother's roommate has a son named Bobby. The roommate has a jolly > > walker and goes around the hallways singing " Bobby, Bobby " and puting > > his name in songs. Recently the roommate told me her son Bobby is > > Jesus Christ. Now she puts " Bobby " into Christmas Carols. > > > > Should I be ashamed of being jealous of Bobby????? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 always remember that in times of crisis and uncontrollable things we alwauys hurt the ones we love the most, as ugly as it sounds it is esp true with lbders, they hurt us the most becuase they know deep down in the depths of lbd that we wont desert them and so they can be 'themselves' even if it hurts us. take care and good luck hugs sharon m -- Re: My mother says I'm a pest I understand. My Dad has been verbally abusive to me for quite some time even though I'm the one helping him. It is hurtfull but I try to remind myself it's the disease talking and not him... From time to time when I tell him " I LOVE YOU " he will thank me and tell me he loves me back, but thats seldom... In my prayers, Debbie Hello....Would like to know what meds your > Mother is on? My Uncle would > > " fantasize/hallucinate " when he had too much Senemet or Seroquel. > Sounds like an > > interesting place your Mom lives in. Peace to you and Momma, Stevie > > > > * * * * * * * * > > It's almost impossible to hear what my mother is saying anymore and > > when you can hear what she's saying, the words make no sense. > > > > BUT lately she's loud and clear telling me that I'm a pest and asking > > what does she have to do to get rid of me? It is not at all clear that > > she knows who I am anymore but she's extremely busy. She's planing to > > get married to a man named Mike. (There is no Mike in the nh as a > > patient or staff and no Mike in our family or among her friends) > > > > My mother's roommate has a son named Bobby. The roommate has a jolly > > walker and goes around the hallways singing " Bobby, Bobby " and puting > > his name in songs. Recently the roommate told me her son Bobby is > > Jesus Christ. Now she puts " Bobby " into Christmas Carols. > > > > Should I be ashamed of being jealous of Bobby????? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 that is so typical lbd, to have a good daugther and a bad daughter when dad was in a bad mood or aggresive or something i was the bad daughter that robbed him blind and sold his things right under his nose etc. and at other times i was his other daughet t the one who hleped him all the time etc. i would get weird looks from people who didnt understand becuae they knew dad only had one daughter. show time is what we in this group have labeled when our lbders put on their normal act for doctors friends, family whomever, it is much easier to put a showtime act for a few momments or hours but not days on end. dad would be able to talk to his mom or sister on the phone but not to me or donnie in the same house. lbd is ugly try to be strong and know that we are here for you to help you thru the darkest hours. hugs sharon m -- Re: My mother says I'm a pest It's a relief to hear other people saying how parents " behave better " for others than they do for them. DAD ignores me a lot of the time, or goes to sleep. When I take one of my cousins to visit he brightens up and starts making tea for her! I'm afraid it's backfired on him a bit 'cos in the early stages I knew there was something wrong from how he was with me ..... but when I got the GP or social worker to see him he brightend up and 'behaved' impeccably ..... leaving me trying to convince them that there was something wrong. It's a wonder it wasn't me that got the psychiatric referral in the end, instead of him I don't think he hates me ... but I was a bit put out yesterday when showing him family photos that he told me that my mother had died before she'd had any children. He sort of made up for it then by explaining that I had two dads, and taking me off to look for the other one! I have to laugh ..... or I think i'd start crying and never stop. Welcome to LBDcaregivers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2006 Report Share Posted February 27, 2006 stevie, no you shouldnt be ashamed. you are jealous of the love that used to be yhours. but now she is seeing herself as younger, probaly younger than you therefore you are too old to be her child and now that there is a baby around that child has to be her baby now. like alzheimers our loved ones tend to go back in time, and that is why you are not her duaghter now. i have found my self repeating my self but our loved ones will be the meanest to the ones in their heart they feel most secure with true love deosnt leave or runaway so you *as i was* are the victim of the hate and malcontent of lbd. keep your spirits up, hugs sharon m father leonard passed away 9/25/05 diag 5/-4 -- My mother says I'm a pest It's almost impossible to hear what my mother is saying anymore and when you can hear what she's saying, the words make no sense. BUT lately she's loud and clear telling me that I'm a pest and asking what does she have to do to get rid of me? It is not at all clear that she knows who I am anymore but she's extremely busy. She's planing to get married to a man named Mike. (There is no Mike in the nh as a patient or staff and no Mike in our family or among her friends) My mother's roommate has a son named Bobby. The roommate has a jolly walker and goes around the hallways singing " Bobby, Bobby " and puting his name in songs. Recently the roommate told me her son Bobby is Jesus Christ. Now she puts " Bobby " into Christmas Carols. Should I be ashamed of being jealous of Bobby????? Welcome to LBDcaregivers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2006 Report Share Posted February 28, 2006 Debbie- I find it very interesting that your Dad would respond to your " I love you " with " Thank you. " My Dad did the same. This was very out of character for him, because he always vocalized how much he loved me. It was sad to lose this little part of him to LBD, but I felt loved until the end . Gerry Re: My mother says I'm a pest I understand. My Dad has been verbally abusive to me for quite some time even though I'm the one helping him. It is hurtfull but I try to remind myself it's the disease talking and not him... From time to time when I tell him " I LOVE YOU " he will thank me and tell me he loves me back, but thats seldom... In my prayers, Debbie Hello....Would like to know what meds your > Mother is on? My Uncle would > > " fantasize/hallucinate " when he had too much Senemet or Seroquel. > Sounds like an > > interesting place your Mom lives in. Peace to you and Momma, Stevie > > > > * * * * * * * * > > It's almost impossible to hear what my mother is saying anymore and > > when you can hear what she's saying, the words make no sense. > > > > BUT lately she's loud and clear telling me that I'm a pest and asking > > what does she have to do to get rid of me? It is not at all clear that > > she knows who I am anymore but she's extremely busy. She's planing to > > get married to a man named Mike. (There is no Mike in the nh as a > > patient or staff and no Mike in our family or among her friends) > > > > My mother's roommate has a son named Bobby. The roommate has a jolly > > walker and goes around the hallways singing " Bobby, Bobby " and puting > > his name in songs. Recently the roommate told me her son Bobby is > > Jesus Christ. Now she puts " Bobby " into Christmas Carols. > > > > Should I be ashamed of being jealous of Bobby????? > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 28, 2006 Report Share Posted February 28, 2006 Hi This broke my heart. What an understanding person you must be to be able to know that this is the disease talking and not your mom. I know that words do hurt us and it must be extremely hard to " let it go " My mom is almost beyond that point now. Not much of what she says makes sense. However, yesterday as she was trying to get something out she said " I am getting worse aren't I " I agreeded with her and said I was trying my best to understand what she wanted and then I began to name things like, Do you want a drink? Do you need to go the bathroom? She literally makes no sense 90% of the time. So no matter how hard and insensitive and cruel and mean your mother's words seems, she can still communicate with you and deep down you know she loves you immensely. If she says something horrid try to turn it and think she means the opposite. Like go to heaven, instead of hell. This is a cruel awful disease. Just try to remember that the disease is talking and not who your mother was. I know it is easier said than done. Just a suggestion, I hope it helps. Dena --- lauraf13 wrote: > When I go to visit my Mother at the nursing home, > she is very excited > to see me. Usually during the visit, she will end up > telling me that > she's going to kill me or telling me that I'm > worthless. Also, when I > tell her that I lover her, she will say she doesn't > believe it. > > Once when I was leaving, she said, " Got to H*ll " . I > told her that no > matter how bad she talked to me that I still loved > her. She told me > that what she had said wasn't bad. I asked her for > confirmation that > telling me to go to h*ll wasn't bad and she assured > me that it wasn't > bad. Every time I call her on something bad she has > said to me she > tells me that she didn't mean it that way. It must > be Lewy Logic > (oxymoron). > > Just remember that they love you enough to take it > out on you. Also, > my Mother will occasionally say that she's the > Mother meaning that she > wants to be in control and not me. I try to give her > as much control > as possible and treat her like an adult, but it's > not always possible. > > The " verbal abuse " is one of the hardest things for > me to handle. I > have gotten a lot better at handling it and I try > not to hear the bad > things she says. Kind of like husbands that filter > out what their > wives are saying. Down deep I know she loves me and > occasionally she > will tell me that she loves me. > > I also have trouble when my Mother fights me when > I'm trying to do > something she wants me to do like helping her into > bed. Once again, > that Lewy Logic get in the way. > > For a long time, the Exelon, Namenda, Seroquel and > Zoloft kept her > calmer and more cooperative. They are not helping as > much now and > we're having more trouble with her being agitated > and uncooperative. > She's also sleeping more, so I believe that she > starting to enter that > final stage. > > in Dallas > > > Hello....Would like to know > what meds your > Mother is on? My Uncle would > > " fantasize/hallucinate " when he had too much > Senemet or Seroquel. > Sounds like an > > interesting place your Mom lives in. Peace to you > and Momma, Stevie > > > > * * * * * * * * > > It's almost impossible to hear what my mother is > saying anymore and > > when you can hear what she's saying, the words > make no sense. > > > > BUT lately she's loud and clear telling me that > I'm a pest and asking > > what does she have to do to get rid of me? It is > not at all clear that > > she knows who I am anymore but she's extremely > busy. She's planing to > > get married to a man named Mike. (There is no Mike > in the nh as a > > patient or staff and no Mike in our family or > among her friends) > > > > My mother's roommate has a son named Bobby. The > roommate has a jolly > > walker and goes around the hallways singing > " Bobby, Bobby " and puting > > his name in songs. Recently the roommate told me > her son Bobby is > > Jesus Christ. Now she puts " Bobby " into Christmas > Carols. > > > > Should I be ashamed of being jealous of Bobby????? > > > > > > > [Non-text portions of this message have been > removed] > > > > > > > > Welcome to LBDcaregivers. > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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