Re: auditory processing/listening programme

[Guest guest]

Alison have you joined APDUK? Everything you could possibly want to know is on their pages, really helpful people.

Vicky

auditory processing/listening programme

Charlie had appt with ENT today which was arranged by speech therpaist.

His main issues at moment are lack of emotional control and speech. He has speech and is vocabulary is massive. The pattern and clarity of speech are a major concern. He recently told me that he can't say his friends names at school and was sad. He said he can't say (we play rhyming slang to work out what his is saying) and that all his friends can say these words. He often looks said when we encourage him to try sounds and he is very aware that he is not saying things properly but says he can't. He won't join in with any rhyming activities or songs and actions. For a long time I have said this is because he can't but therapists have said he doesn't want to and will in his own time (even thought they have not seen him n this situation)

When I described this to ENT he said I was describing auditory proccessing disorder but to describe this level of information at Charlies age (3) is very unusual as this is not usually dignosed (through NHS) until teenage years.

He went on to explain that this is only recently been recognised (through NHS) and that most doctors and therapists won't know about it or if they do still do not believe it exists. He compared it to understanding about ME in recent years.

Charlie also has glue ear in one ear which means his hearing is low end of normal in one ear but he said that it was not bad enough to be causing a communication problem. He is not bad enough for surgery/gromits and had been given a low pressure balloon to blow up using his nostrils to try and 'pop' his ears (suppose to make a game of it)

How can I pursue this myself? I've been looking at listening programme for a while but needed someone to confirm that Charlie may have a problem with auditory processing as until now I've just been guessing where his problems are. He has no input from speech and language despite me continually requesting this since he was 9 months old and had feeding and swallowing problems. He is 'on their books' and I am told he will be 'picked up' when he starts nursey but I'm not holding my breath. When I've tried to discuss the fact that there is something going on in addition to speech delay with SALTS they just look at me as I'm neurotic.

Is there a minimum age that LP is suitable for. What is the best way to investigate this - we live in Sheffield. I've also noticed its something that caudwell will consider helping with.

Any advice appreciated.

Thanks

Alison R

[Guest guest]

hi alison if I was you, i would get hold of the bone conductor listening program

from mary kidson who goes on this site, its successful at helping auditory

processing difficulties and can be done at home 15 mins am and pm Isobel

>

> Charlie had appt with ENT today which was arranged by speech therpaist.

> His main issues at moment are lack of emotional control and speech. He has

speech and is vocabulary is massive. The pattern and clarity of speech are a

major concern. He recently told me that he can't say his friends names at

school and was sad. He said he can't say (we play rhyming slang to work

out what his is saying) and that all his friends can say these words. He often

looks said when we encourage him to try sounds and he is very aware that he is

not saying things properly but says he can't. He won't join in with any rhyming

activities or songs and actions. For a long time I have said this is because he

can't but therapists have said he doesn't want to and will in his own time (even

thought they have not seen him n this situation)

>

> When I described this to ENT he said I was describing auditory proccessing

disorder but to describe this level of information at Charlies age (3) is very

unusual as this is not usually dignosed (through NHS) until teenage years.

>

> He went on to explain that this is only recently been recognised (through NHS)

and that most doctors and therapists won't know about it or if they do still do

not believe it exists. He compared it to understanding about ME in recent

years.

>

> Charlie also has glue ear in one ear which means his hearing is low end of

normal in one ear but he said that it was not bad enough to be causing a

communication problem. He is not bad enough for surgery/gromits and had been

given a low pressure balloon to blow up using his nostrils to try and 'pop' his

ears (suppose to make a game of it)

>

> How can I pursue this myself? I've been looking at listening programme for a

while but needed someone to confirm that Charlie may have a problem with

auditory processing as until now I've just been guessing where his problems are.

He has no input from speech and language despite me continually requesting this

since he was 9 months old and had feeding and swallowing problems. He is 'on

their books' and I am told he will be 'picked up' when he starts nursey but I'm

not holding my breath. When I've tried to discuss the fact that there is

something going on in addition to speech delay with SALTS they just look at me

as I'm neurotic.

>

> Is there a minimum age that LP is suitable for. What is the best way to

investigate this - we live in Sheffield. I've also noticed its something that

caudwell will consider helping with.

>

> Any advice appreciated.

>

> Thanks

>

> Alison R

>

[Guest guest]

Unless your local sevice is very responsive then I also suggest you go ahead and

do it yourself.

Margaret

> >

> > Charlie had appt with ENT today which was arranged by speech therpaist.

> > His main issues at moment are lack of emotional control and speech. He has

speech and is vocabulary is massive. The pattern and clarity of speech are a

major concern. He recently told me that he can't say his friends names at

school and was sad. He said he can't say (we play rhyming slang to work

out what his is saying) and that all his friends can say these words. He often

looks said when we encourage him to try sounds and he is very aware that he is

not saying things properly but says he can't. He won't join in with any rhyming

activities or songs and actions. For a long time I have said this is because he

can't but therapists have said he doesn't want to and will in his own time (even

thought they have not seen him n this situation)

> >

> > When I described this to ENT he said I was describing auditory proccessing

disorder but to describe this level of information at Charlies age (3) is very

unusual as this is not usually dignosed (through NHS) until teenage years.

> >

> > He went on to explain that this is only recently been recognised (through

NHS) and that most doctors and therapists won't know about it or if they do

still do not believe it exists. He compared it to understanding about ME in

recent years.

> >

> > Charlie also has glue ear in one ear which means his hearing is low end of

normal in one ear but he said that it was not bad enough to be causing a

communication problem. He is not bad enough for surgery/gromits and had been

given a low pressure balloon to blow up using his nostrils to try and 'pop' his

ears (suppose to make a game of it)

> >

> > How can I pursue this myself? I've been looking at listening programme for

a while but needed someone to confirm that Charlie may have a problem with

auditory processing as until now I've just been guessing where his problems are.

He has no input from speech and language despite me continually requesting this

since he was 9 months old and had feeding and swallowing problems. He is 'on

their books' and I am told he will be 'picked up' when he starts nursey but I'm

not holding my breath. When I've tried to discuss the fact that there is

something going on in addition to speech delay with SALTS they just look at me

as I'm neurotic.

> >

> > Is there a minimum age that LP is suitable for. What is the best way to

investigate this - we live in Sheffield. I've also noticed its something that

caudwell will consider helping with.

> >

> > Any advice appreciated.

> >

> > Thanks

> >

> > Alison R

> >

>

[Guest guest]

Thank you Isobel.

Alison, please contact me off list if you would like to have a chat about this.

The Listening Program has been used on babies. 3 years old is a great time to do

this as your son is still learning language and his prospects of catching up are

really good.

It is very good to hear that the ENT specialist knew about Auditory Processing

Disorder. I am finding that more and more NHS Trusts are accepting the prescenec

of APD. The minimum age for testing is 7 and there are requirements such as the

need for a certain level of speech, language and understanding.

If you have a copy of the audiogram I can tell alot from that about how the ears

are working and if there are any deficits at certain frequencies.

The e-mail address to contact me on is: info@...

> >

> > Charlie had appt with ENT today which was arranged by speech therpaist.

> > His main issues at moment are lack of emotional control and speech. He has

speech and is vocabulary is massive. The pattern and clarity of speech are a

major concern. He recently told me that he can't say his friends names at

school and was sad. He said he can't say (we play rhyming slang to work

out what his is saying) and that all his friends can say these words. He often

looks said when we encourage him to try sounds and he is very aware that he is

not saying things properly but says he can't. He won't join in with any rhyming

activities or songs and actions. For a long time I have said this is because he

can't but therapists have said he doesn't want to and will in his own time (even

thought they have not seen him n this situation)

> >

> > When I described this to ENT he said I was describing auditory proccessing

disorder but to describe this level of information at Charlies age (3) is very

unusual as this is not usually dignosed (through NHS) until teenage years.

> >

> > He went on to explain that this is only recently been recognised (through

NHS) and that most doctors and therapists won't know about it or if they do

still do not believe it exists. He compared it to understanding about ME in

recent years.

> >

> > Charlie also has glue ear in one ear which means his hearing is low end of

normal in one ear but he said that it was not bad enough to be causing a

communication problem. He is not bad enough for surgery/gromits and had been

given a low pressure balloon to blow up using his nostrils to try and 'pop' his

ears (suppose to make a game of it)

> >

> > How can I pursue this myself? I've been looking at listening programme for

a while but needed someone to confirm that Charlie may have a problem with

auditory processing as until now I've just been guessing where his problems are.

He has no input from speech and language despite me continually requesting this

since he was 9 months old and had feeding and swallowing problems. He is 'on

their books' and I am told he will be 'picked up' when he starts nursey but I'm

not holding my breath. When I've tried to discuss the fact that there is

something going on in addition to speech delay with SALTS they just look at me

as I'm neurotic.

> >

> > Is there a minimum age that LP is suitable for. What is the best way to

investigate this - we live in Sheffield. I've also noticed its something that

caudwell will consider helping with.

> >

> > Any advice appreciated.

> >

> > Thanks

> >

> > Alison R

> >

>

[Guest guest]

Thank you Isobel.

Alison, please contact me off list if you would like to have a chat about this. The Listening Program has been used on babies. 3 years old is a great time to do this as your son is still learning language and his prospects of catching up are really good.

It is very good to hear that the ENT specialist knew about Auditory Processing Disorder. I am finding that more and more NHS Trusts are accepting the prescenec of APD. The minimum age for testing is 7 and there are requirements such as the need for a certain level of speech, language and understanding.

If you have a copy of the audiogram I can tell alot from that about how the ears are working and if there are any deficits at certain frequencies.

The e-mail address to contact me on is: info@...

> >

> > Charlie had appt with ENT today which was arranged by speech therpaist.

> > His main issues at moment are lack of emotional control and speech. He has speech and is vocabulary is massive. The pattern and clarity of speech are a major concern. He recently told me that he can't say his friends names at school and was sad. He said he can't say (we play rhyming slang to work out what his is saying) and that all his friends can say these words. He often looks said when we encourage him to try sounds and he is very aware that he is not saying things properly but says he can't. He won't join in with any rhyming activities or songs and actions. For a long time I have said this is because he can't but therapists have said he doesn't want to and will in his own time (even thought they have not seen him n this situation)

> >

> > When I described this to ENT he said I was describing auditory proccessing disorder but to describe this level of information at Charlies age (3) is very unusual as this is not usually dignosed (through NHS) until teenage years.

> >

> > He went on to explain that this is only recently been recognised (through NHS) and that most doctors and therapists won't know about it or if they do still do not believe it exists. He compared it to understanding about ME in recent years.

> >

> > Charlie also has glue ear in one ear which means his hearing is low end of normal in one ear but he said that it was not bad enough to be causing a communication problem. He is not bad enough for surgery/gromits and had been given a low pressure balloon to blow up using his nostrils to try and 'pop' his ears (suppose to make a game of it)

> >

> > How can I pursue this myself? I've been looking at listening programme for a while but needed someone to confirm that Charlie may have a problem with auditory processing as until now I've just been guessing where his problems are. He has no input from speech and language despite me continually requesting this since he was 9 months old and had feeding and swallowing problems. He is 'on their books' and I am told he will be 'picked up' when he starts nursey but I'm not holding my breath. When I've tried to discuss the fact that there is something going on in addition to speech delay with SALTS they just look at me as I'm neurotic.

> >

> > Is there a minimum age that LP is suitable for. What is the best way to investigate this - we live in Sheffield. I've also noticed its something that caudwell will consider helping with.

> >

> > Any advice appreciated.

> >

> > Thanks

> >

> > Alison R

> >

>

[Guest guest]

Alison

We went through exactly the same thing. My son also had glue ear. There is an

excellent book called Glue Ear by Dr Peer

http://www.amazon.co.uk/Glue-Ear-Essential-Teachers-Professionals/dp/1843123525

and here is another excellent one on the subject - Facilitating Hearing and

Listening in Young Children

http://www.amazon.co.uk/Facilitating-Listening-Children-Childhood-Intervention/d\

p/1565939891/ref=sr_1_2?s=books & ie=UTF8 & qid=1313481586 & sr=1-2

Glue ear has a dramatic effect on behaviour and the development of auditory

proccessing disorder, it effects also balance and should NEVER be left if it

doesn't clear in 3 months. It also fluctuates so it is possible that your

child's hearing could be worse, or better, the next time you test. Kids with

glue ear swich off listening because they cannot rely on it and try to develop

other senses more - our son was excellent at reading visual clues and guessing

what people wanted from him. I would first fix his glue ear and then go for TLP

or Johansen to compensate for the lost listening time.

We were also told by an auditory therapy practitioner that children who are

learning to speak have to have perfect hearing (Facilitating hearing and

Listening book backs it up) because they have no ability to fill in the gaps

they misheard. So if the ENT tells you your child cannot hear a whisper but this

does not affect the way they hear speech, this is a complete $$$ because a child

with a slight hearing loss misses most of the information carrying sounds in the

English language. Please get the books - they were very helpful in understaning

our son's behaviour and provided a sound base for discussions with doctors,

SLT's and teachers. You can find a few quotes from the second book

here:http://www.listen-up.org/oral/flexer.htm. I also think that the deafness

research glue ear leaflet SHOULD be given to all parents of newly diagnosed kids

http://www.deafnessresearch.org.uk/factsheets/glue-ear-teachers-factsheet.pdf

they also sent me lots of info about auditory processing disorder.

I exchanged a couple of emails with a person who started the campaign for

awareness of glue ear. They really describe well both of our children. I will

ask her for permission to email them to you. But again, get on top of the glue

ear because it may fix all Charlie's problems. Email me if you want more stuff

forwarded or if you would like to chat on the phone.

Kasia

>

> Charlie had appt with ENT today which was arranged by speech therpaist.

> His main issues at moment are lack of emotional control and speech. He has

speech and is vocabulary is massive. The pattern and clarity of speech are a

major concern. He recently told me that he can't say his friends names at

school and was sad. He said he can't say (we play rhyming slang to work

out what his is saying) and that all his friends can say these words. He often

looks said when we encourage him to try sounds and he is very aware that he is

not saying things properly but says he can't. He won't join in with any rhyming

activities or songs and actions. For a long time I have said this is because he

can't but therapists have said he doesn't want to and will in his own time (even

thought they have not seen him n this situation)

>

> When I described this to ENT he said I was describing auditory proccessing

disorder but to describe this level of information at Charlies age (3) is very

unusual as this is not usually dignosed (through NHS) until teenage years.

>

> He went on to explain that this is only recently been recognised (through NHS)

and that most doctors and therapists won't know about it or if they do still do

not believe it exists. He compared it to understanding about ME in recent

years.

>

> Charlie also has glue ear in one ear which means his hearing is low end of

normal in one ear but he said that it was not bad enough to be causing a

communication problem. He is not bad enough for surgery/gromits and had been

given a low pressure balloon to blow up using his nostrils to try and 'pop' his

ears (suppose to make a game of it)

>

> How can I pursue this myself? I've been looking at listening programme for a

while but needed someone to confirm that Charlie may have a problem with

auditory processing as until now I've just been guessing where his problems are.

He has no input from speech and language despite me continually requesting this

since he was 9 months old and had feeding and swallowing problems. He is 'on

their books' and I am told he will be 'picked up' when he starts nursey but I'm

not holding my breath. When I've tried to discuss the fact that there is

something going on in addition to speech delay with SALTS they just look at me

as I'm neurotic.

>

> Is there a minimum age that LP is suitable for. What is the best way to

investigate this - we live in Sheffield. I've also noticed its something that

caudwell will consider helping with.

>

> Any advice appreciated.

>

> Thanks

>

> Alison R

>