Guest guest Posted April 5, 2000 Report Share Posted April 5, 2000 The neurologist at Duke documented demyelinating disease for the MRI justification. When I looked up the term there is mostly info regarding MS. But as Debbie said, there are other reasons for demyelination. So I guess I should just wait and see what the next MRI shows. Hopefully even if it's still there its confined to one area, with MS the demyelination is disseminated. I'm glad the phenergan has provided some relief, I had to take it the last several weeks pregnant with Macey. Good luck with the scan, how's the crowd with the Masters this year? Ursula Holleman uahollem@... and Macey's mom (4 yr. old with CVID, asthma, sinus disease, GERD, kidney reflux, Sensory Integration Disorder, Diabetes Insipidus) http://www.pedpid.com http://www.onelist.com/community/PedPID Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2000 Report Share Posted April 5, 2000 Good luck with the testing and I pray the results are not 'bad'. As far as the Masters, I have no idea. I haven't even been to that area of town since Saturday and today, well, I still haven't gotten out of my ol' PJ's since this morning, lol. Its the first day in 4 months that I had absolutely nothing to do, boy was I lost. Chat later, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2000 Report Share Posted April 6, 2000 : If the phenergan makes you dizzy and unsteady, ask if you can try some Zophran--once anything is able to stay down. It now comes in an instant dissolve pill that works great with the chemo kids. It and the phenergan were the only things that even half-way worked with me when I was pregnant with . linda RE: All fixed!!!! > > > > glad to hear that you're back amongst the " cyber-living " . Hope the > > family is doing well and that hubby ate a piece of humble pie. How are > you > > feeling these days? Any chance in morning yuckies? > > > > Ursula Holleman uahollem@... > > > and Macey's mom (4 yr. old with CVID, asthma, sinus disease, GERD, > > kidney reflux, Sensory Integration Disorder, Diabetes Insipidus) > > http://www.pedpid.com > > http://www.onelist.com/community/PedPID > > > > > > ------------------------------------------------------------------------ > > LOW RATE, NO WAIT! > > Get a NextCard Visa, in 30 seconds! Get rates > > as low as 2.9% Intro or 9.9% Fixed APR and no hidden fees. > > Learn more at: > > http://click./1/937/7/_/480115/_/954977045/ > > ------------------------------------------------------------------------ > > > > This forum is open to parents and caregivers of children diagnosed with a > Primary Immune Deficiency. Opinions or medical advice stated here are the > sole responsibility of the poster and should not be taken as professional > advice. > > > > > ------------------------------------------------------------------------ > DON'T HATE YOUR RATE! > Get a NextCard Visa, in 30 seconds! Get rates as low as > 0.0% Intro or 9.9% Fixed APR and no hidden fees. > Apply NOW! > http://click./1/2120/7/_/480115/_/954983726/ > ------------------------------------------------------------------------ > > This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 16, 2000 Report Share Posted April 16, 2000 Autumn, Your message came through on my computer. Good Luck reconstructing all that " stuff " ! It's no fun!!Hope all is well. Love, Beth At 09:52 PM 4/16/00 EDT, you wrote: >Ursula, > >Am I one of the 4 people that Onelist said mail was bouncing back on? My >computer crashed on Wednesday of last week and we lost EVERYTHING!!! We are >still trying to get things up and running. Things do not look good. I just >am starting to get mail as of yesterday so I have no idea what has been >coming through. We still are not sure if we have worked all the details out >yet. I am so bummed that this happened as we lost all of the medical files >on both boys..shame on me for not saving them on disk. This is the first >time that this has happened to us to this degree. Good news is, that is was >not a virus, according to our computer guy <whew>!!!!!!! I am not even sure >that you will get this mail so could you please let me know if you do. >Thanks so much. Hope everyone in the group is doing well. > >Autumn (Mark Cd5-Cd19 PID) > >------------------------------------------------------------------------ >Easter Made Simple >Click Here -> >http://click./1/3122/7/_/480115/_/955936351/ >------------------------------------------------------------------------ > >This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. > > > Beth Rathburn Grosse Pointe Woods, Mi. 48236 (313)824-4137 (313)824-9412 fax Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2001 Report Share Posted January 8, 2001 Never mind Ursula, I finally got a response from them and have marked the page in my favorites to avoid this again. Helen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2001 Report Share Posted January 17, 2001 just send me the new address and i can automatically add you. hope the scope today went well with no complications. > Ursula, > > I am going to be swithcing from AOL to cable for my Internet access. Do I > just send you my new address once I am up and running? We are going to keep > AOL until everything is set up so that we do no lose any mail. Let me know, > thanks. > > Autumn (Mom to Mark Cd5-Cd19 PID and ) > > > Quote Link to comment Share on other sites More sharing options...
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