Guest guest Posted October 17, 2000 Report Share Posted October 17, 2000 Dear I'm so sorry to hear of your troubles. The IV nurse should have come sooner and I would have hoped that the nurse would have stayed to see that the infusion went through without any problems. This may be a stupid question, but when Chrissy was on long term IV's they either used a midline or picline which didn't seem to blow like the short IV lines do. Is that what the infusion people are using? --Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2000 Report Share Posted October 17, 2000 HI Kim (Jess's Mom) would have been vaccinated for H. Influenza (HIB), it is a mandatory immunization, if I am correct (at least in Michigan it is). I agree with S., they are probably looking at her immune system's memory. I will send you information on Dr. H in a separate email. Autumn (Mom to Mark Cd5-Cd19 PID and ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 17, 2000 Report Share Posted October 17, 2000 We had to pull out the IV today because we were having problems getting a stable line. The first IV blew at (or before) 6 a.m. I called the nurse who showed up by 9:30 (not my idea of prompt customer service). He started the IV in the crook of her left arm and left. Five minutes later when I tried to start the meds, the line was gone again. Another nurse showed up within 45 minutes and was reluctant to try a stick in her dominant hand. I called the dr's office and then paged the ped. He said to " stop torturing her " and go ahead and stop the meds. He's calling in some oral antibiotics. If these don't work, I'm afraid we'll be back in the hospital within 2 weeks. Let's hope not. Hospitalization is so traumatic for her and trying for the rest of the family. We still have our 2 nephews and no sign of their parents coming for them any time soon. Ray, mother to Tabitha (age 5) and Autumn, almost 3 (IgG def., asthma, chronic sinusitis, and allergies--unknown) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2000 Report Share Posted October 18, 2000 Dear Ray, A typical IV cathether is inserted (about a depth of 1 1/2 inches) into a peripheral vein, that is a vein which is small and fragile because it is close to the outside of the body. A midline catheter is longer and reaches maybe about 3 to 4 inches ( I don't know for sure -- because this is from memory) long and goes in deeper where the vein is slightly larger and less fragile. A pic line I believe goes all the way nearly Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2000 Report Share Posted October 18, 2000 Dear Ray Sorry, the message got sent before I could finish. The pic line we had for lasted for a full 4 weeks (didn't have to be changed because of infiltration or " blowing " ) The catheter is quite long and goes almost to the heart and was threaded in from the elbow crook. The vein at this depth is quite large and strong. The infusion nurses only had to change the Tegaderm dressing once per week. The line stayed intact for the full 4 weeks. The IV nurse who inserted the Pic line had to do it under sterile conditions and had to be certified to do the procedure as it is a little more complicated than just using the shorter catheters. One other thing we learned about the standard IV's (short) in 3 year old veins. The size of the catheter (diameter) is very important. If you use a smaller diameter catheter, it is much easier to get into a child's veins. However, for some reason, the smaller diameter catheter size seems to blow more frequently than the larger catheter (at least for us when Chrissy was 3). Also the kind of antibiotic you are infusing is important. Something that is irritating to the veins will cause infiltration much sooner than a less harsh antibiotic. I hope this is of help to you. --Martha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2000 Report Share Posted October 18, 2000 Hi , WHen Wade was much younger, he had to take Oxycillin & I, too remeber the nasty taste & having to break open capsules. I suggest trying putting it into a small amount of applesauce, yogurt, pudding or even a spoonful of peanut butter & by all means follow it up with somehting Autumn likes... a special treat, priviledge, prize or any favorite thing. In cases like this I DO believe in bribery! I've also done it with milkshakes but I think small amounts of strong flavored solid food works better...just my experience for whatever it's worth. You have received good explanations about the different types of IV lines, so I won't even address that. I, too get tired of hearing " the same answer " & yet still not having ANY answer at all! I feel your frustration & your tiredness & I sympathize. Try to do something nice for yourself once in a while so that you don't " wig out " as Wade calls it. When that doesn't work, that's when I decide it must be " time " !! Hope Autumn feels better soon & I will keep you, Autumn & your family in my prayers! Take care & give Autumn a hug for me. Love, Beth At 11:17 AM 10/18/00 -0500, you wrote: >Martha, >I don't know what a midline or a picline is, so maybe you can help me >with that. We're so new to infusion therapy--I hope it doesn't turn out >to be a reoccuring event. The nurses put in a heplock for Autumn. Is >that similar to what you're describing? > >They took out the IV yesterday when we had so much trouble and put her >on oral meds. She is now taking Oxacillin. This med. is no longer >manufactured in liquid form and we are having to break apart capsules >and mix it into drinks for her. The result is something terrible and >we're really fighting to get the medicine in her. I personally don't >see the difference between the IV infusion and the trouble we're going >through now to get her to take the new med. To me it's all traumatic. > > Ray, mother to Tabitha (age 5) and Autumn, 3 tomorrow (!) (IgG >def., asthma, chronic sinusitis, and allergies--unknown) > > > > >This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. > > > Beth Rathburn Mom to Wade, 13 yrs. with CVID;Asthma;GERD,post Nissen Fundoplication & Pylormyotomy;Chronic Sinusitis; Eczema;Neutropenia; ? Atypical Migraines Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 18, 2000 Report Share Posted October 18, 2000 --Our doctor recently gave us prevacid for Wesley's reflux, it was me who diagnosed that , thanks to all th info from this group--and gave him one of the levaquin antib, sayinng he felt that was the only chance we had to finally clear his sinus inf. Well, the fighting aabout getting the meds in him was huge...Took most of my energy the 2 days before this big wa trip, i finally called desparate, pleading for different meds... Soo he's back on keflex, it helps him hold his own, but never stomps it out completely. Argh...the pharmacist did his best to explain why he couldn't put those things in suspension, but i still dind't reallly get it. He was kind enough to switch the prev. to the over the counter chewable, he gave me a big box of 50 for my regular pres. copay. Generous, we're hoping dr will give reglan next time. For those of you with refluxers , does reglan work as well? Waht is your comparison of the two? Wesley is 6 today, but i will probalby wait till he's 7 to try a swallow pill again. ARGGHHH!!! Maurita ________________________________________________________________ YOU'RE PAYING TOO MUCH FOR THE INTERNET! Juno now offers FREE Internet Access! Try it today - there's no risk! For your FREE software, visit: http://dl.www.juno.com/get/tagj. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 19, 2000 Report Share Posted October 19, 2000 Maurita - Macey started on Reglan in May and it seems to be keeping things calm. Her reflux isn't greatly improved but it isn't out of hand either. Macey was taking Propulsid before this and hasn't used the Prevacid. I've taken the Prevacid and it doesn't do much for me. Had to go on something else. Hope he's back to par soon. Ursula Holleman uahollem@... and Macey's mom (5 yr. old with CVID, asthma, sinus disease, GERD, kidney reflux, Sensory Integration Disorder, Diabetes Insipidus) http://www.pedpid.com /group/PedPID Quote Link to comment Share on other sites More sharing options...
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