Would be very grateful for any advice for my father

[Guest guest]

Hi everyone,

I was wondering whether anyone might be able to offer any advice on treatments for my father who is in a really bad way?

In May of this year he underwent an embolisation procedure (sealing off of blood supply) for a vascular, benign (although still life threatening) brain tumour which he has had for a number of years but which has recently shown signs that it has started to grow.

Unfortunately as a result of the procedure, my father has suffered some nerve damage / a stroke which has left him unable to swallow (although he can speak albeit in a much diminished way), and as a result of this failing to recover naturally, he recently had to have a feeding tube inserted into the stomach. His right side also appears to have dropped, affecting his lower eyelid (which has dropped by about 3mm), his face and mouth, his shoulder and his arm. This is extremely distressing for him and my mother, who is also very worried about the prospect of being totally responsible for feeding him his food and medication through his feeding tube at home (he is due home this weekend after 10 weeks in hospital).

I was just wondering if there are any treatments that might accelerate recovery of the brainstem where this damage appears to have taken place, taking into account the nature of the damage? I presume oxygen therapy might be an option but I would be really grateful for anybody's thoughts on this?

Thank you very much,

Georgina x

[Guest guest]

Hi Georgina,

Get the book "A stroke of insight" by Jill Bolte ... and also you tube her for her talk on what it felt like to have a stroke and her amazing recovery. She is a scientist and explains it very well.

hope this helps, and sending you all the very best for your dad in his recovery.

x

Would be very grateful for any advice for my father

Hi everyone, I was wondering whether anyone might be able to offer any advice on treatments for my father who is in a really bad way? In May of this year he underwent an embolisation procedure (sealing off of blood supply) for a vascular, benign (although still life threatening) brain tumour which he has had for a number of years but which has recently shown signs that it has started to grow. Unfortunately as a result of the procedure, my father has suffered some nerve damage / a stroke which has left him unable to swallow (although he can speak albeit in a much diminished way), and as a result of this failing to recover naturally, he recently had to have a feeding tube inserted into the stomach. His right side also appears to have dropped, affecting his lower eyelid (which has dropped by about 3mm), his face and mouth, his shoulder and his arm. This is extremely distressing for him and my mother, who is also very worried about the prospect of being totally responsible for feeding him his food and medication through his feeding tube at home (he is due home this weekend after 10 weeks in hospital). I was just wondering if there are any treatments that might accelerate recovery of the brainstem where this damage appears to have taken place, taking into account the nature of the damage? I presume oxygen therapy might be an option but I would be really grateful for anybody's thoughts on this? Thank you very much, Georgina x

[Guest guest]

Dear Georgina,

Sorry I don't have any useful experience but I do remember I reading this articlehttp://www.telegraph.co.uk/health/elderhealth/3355207/Stroke-I-had-to-cure-myself.htmlalso I noticed this bookhttp://www.amazon.co.uk/Stronger-After-Stroke-Maximizing-Recovery/dp/1932603743/ref=sr_1_1?ie=UTF8 & qid=1312271638 & sr=8-1Best wishes for you and your father,Sandy

[Guest guest]

Georgina,

I know you are mainly thinking about biomed possibilities for your father but I

am posting to raise the point about obtaining on-going help for your mother (ie

is he getting any nursing care at home; has she had a carer's assessment etc ?)

and also I wondered what rehabilitation has your father had or is getting.

One example of a neuro rehab unit (perhaps unique oin the UK?)is part of St

's Hospital:http://www.stgeorges.nhs.uk/services_wolfson.asp

I don't know anything about the possibility of some degree of recovery from

brainstem injury but I do I think the idea of contacting the HBOT people in

Dundee is a good idea - they might have an idea whether HOT has helped anyone

else with an injury of this kind.

Best wishes,

Margaret

>

>

> Hi everyone,

>

> I was wondering whether anyone might be able to offer any advice on treatments

for my father who is in a really bad way?

>

> In May of this year he underwent an embolisation procedure (sealing off of

blood supply) for a vascular, benign (although still life threatening) brain

tumour which he has had for a number of years but which has recently shown signs

that it has started to grow.

>

> Unfortunately as a result of the procedure, my father has suffered some nerve

damage / a stroke which has left him unable to swallow (although he can speak

albeit in a much diminished way), and as a result of this failing to recover

naturally, he recently had to have a feeding tube inserted into the stomach. His

right side also appears to have dropped, affecting his lower eyelid (which has

dropped by about 3mm), his face and mouth, his shoulder and his arm. This is

extremely distressing for him and my mother, who is also very worried about the

prospect of being totally responsible for feeding him his food and medication

through his feeding tube at home (he is due home this weekend after 10 weeks in

hospital).

>

> I was just wondering if there are any treatments that might accelerate

recovery of the brainstem where this damage appears to have taken place, taking

into account the nature of the damage? I presume oxygen therapy might be an

option but I would be really grateful for anybody's thoughts on this?

>

> Thank you very much,

>

> Georgina x

>

[Guest guest]

Hi Margaret,

Thank you very much for looking! I think the way forward is his swallow exercises and oxygen therapy.

Georgina x

To: Autism-Biomedical-Europe From: m.collins9@...Date: Fri, 5 Aug 2011 06:23:17 +0000Subject: Re: Would be very grateful for any advice for my father

I am not sure thought whether it is possible to recover from a brain stem injury in the same way one can recover from a stroke elsewhere in the brain? I don't know whether the brain stem has the same degree of flexibility. (I have looked on line in the past few days and found nothing on the subject.)Margaret>> > thank you very much x> > > > > To: Autism-Biomedical-Europe > Date: Tue, 2 Aug 2011 08:12:03 +0100> Subject: Re: Would be very grateful for any advice for my father> > > > > > > > Hi Georgina,> > Get the book "A stroke of insight" by Jill Bolte ... and also you tube her for her talk on what it felt like to have a stroke and her amazing recovery. She is a scientist and explains it very well.> > hope this helps, and sending you all the very best for your dad in his recovery.> > x> > Would be very grateful for any advice for my father> > > > > Hi everyone,> > I was wondering whether anyone might be able to offer any advice on treatments for my father who is in a really bad way?> > In May of this year he underwent an embolisation procedure (sealing off of blood supply) for a vascular, benign (although still life threatening) brain tumour which he has had for a number of years but which has recently shown signs that it has started to grow.> > Unfortunately as a result of the procedure, my father has suffered some nerve damage / a stroke which has left him unable to swallow (although he can speak albeit in a much diminished way), and as a result of this failing to recover naturally, he recently had to have a feeding tube inserted into the stomach. His right side also appears to have dropped, affecting his lower eyelid (which has dropped by about 3mm), his face and mouth, his shoulder and his arm. This is extremely distressing for him and my mother, who is also very worried about the prospect of being totally responsible for feeding him his food and medication through his feeding tube at home (he is due home this weekend after 10 weeks in hospital).> > I was just wondering if there are any treatments that might accelerate recovery of the brainstem where this damage appears to have taken place, taking into account the nature of the damage? I presume oxygen therapy might be an option but I would be really grateful for anybody's thoughts on this? > > Thank you very much,> > Georgina x>

[Guest guest]

thank you very much Ken

To: Autism-Biomedical-Europe From: drken.aitken@...Date: Fri, 5 Aug 2011 10:08:19 +0100Subject: Re: Re: Would be very grateful for any advice for my father

Try searching Pubmed Central on Medline - this gives you access to PDF downloads of relevant articles.

Ken

Subject: Re: Would be very grateful for any advice for my fatherTo: Autism-Biomedical-Europe Date: Friday, 5 August, 2011, 7:23

I am not sure thought whether it is possible to recover from a brain stem injury in the same way one can recover from a stroke elsewhere in the brain? I don't know whether the brain stem has the same degree of flexibility. (I have looked on line in the past few days and found nothing on the subject.)Margaret>> > thank you very much x> > > > > To: Autism-Biomedical-Europe > Date: Tue, 2 Aug 2011 08:12:03 +0100> Subject: Re: Would be very grateful for any advice for my father> > > > > > > > Hi Georgina,> > Get the book "A stroke of insight" by Jill Bolte ... and also you tube her for her talk on what it felt like to have a stroke and her amazing recovery. She is a scientist and explains it very well.> > hope this helps, and sending you all the very best for your dad in his recovery.> > x> > Would be very grateful for any advice for my father> > > > > Hi everyone,> > I was wondering whether anyone might be able to offer any advice on treatments for my father who is in a really bad way?> > In May of this year he underwent an embolisation procedure (sealing off of blood supply) for a vascular, benign (although still life threatening) brain tumour which he has had for a number of years but which has recently shown signs that it has started to grow.> > Unfortunately as a result of the procedure, my father has suffered some nerve damage / a stroke which has left him unable to swallow (although he can speak albeit in a much diminished way), and as a result of this failing to recover naturally, he recently had to have a feeding tube inserted into the stomach. His right side also appears to have dropped, affecting his lower eyelid (which has dropped by about 3mm), his face and mouth, his shoulder and his arm. This is extremely distressing for him and my mother, who is also very worried about the prospect of being totally responsible for feeding him his food and medication through his feeding tube at home (he is due home this weekend after 10 weeks in hospital).> > I was just wondering if there are any treatments that might accelerate recovery of the brainstem where this damage appears to have taken place, taking into account the nature of the damage? I presume oxygen therapy might be an option but I would be really grateful for anybody's thoughts on this? > > Thank you very much,> > Georgina x>