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The PCT has agreed to a referral for a second opinion from Dr Baxter in

Sheffield re using B6 for Henry's seizures! I was told a couple of weeks back it

could be very difficult to get them to agree. He is a Consultant Paediatric

Neurologist and a world expert on B6 and seizures.

Locally they want him off the B6 and on Carbamazepine and I don't feel we have

given the B6 a good enough try at a high enough sdose so far, so I am very

relieved we shall now be seeing Dr Baxter. Even if the B6 isn't the answer any

more for Henry, I don't want it ruled out until we finally have given it a good

go.

Margaret

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