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New here - Mom has LBD

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Hi to Everyone,

My name is , I live in West Texas, only child, not married, no

kids. My mom is 78 and my dad 82. After so long of not really

knowing what was wrong with my mom, last Tuesday a neurologist told

my dad and I that she has LBD. I had never heard of it. He told me

to look on the internet which I have, but don't fully understand

everything yet.

My mom is in very bad condition. From what I can tell from the

little reading I've had time to do she has had symptoms for at least

four years. She has had TIA's and the doctor assumed all the

sumptoms were from those. Then we started noticing Parkinsons

symptoms and FINALLY he sent to a neurologist and that is what the

diagnosis was. She already has the rigidity in her arms, legs,

etc., her speech is slurred, she is shaking some, shuffling when she

tries to walks, she has hallucinations of people here, she can't

finish a sentence or a thought, doesn't sleep well at night, and gets

very nervous in the evenings. It breaks my heart. She seems to be

sleeping better, but can't tell much difference in other symptoms, of

course its only been five days. At Christmas she wasn't well, but

could communicate and get around, and then about 3 1/2 months ago

everything changed for the worse. It was like someone turned a light

switch on and everything went bad.

There is only my dad and I to take care of her and we're both getting

so tired. My dad had a heart attack in January and still has some

blockage and I'm so worried about the stress on him and how he will

get thru this.

I don't really know what to do or how to help mother. I don't know

if we can keep her here or she will have to go to a nursing home (I

don't know if I can do that or not). I have so many questions and I

feel like she is slipping thru our hands. It seems we're losing her

a little at a time and that just breaks my heart. I sit and cry

every night. It's hard..you have your mother, but you don't. In

some ways she's gone, never to be here again. I miss her so

much...watching movies, going shopping, just talking about

everything...I am lucky my mom and dad are my best friends. I long

to talk to my mom. I guess I cry so much because I miss her so

much. She was such a vibrant, wonderful woman. So beautiful, had

the prettiest smile. She never smiles now...just has this far away

look in her eyes and like she doesn't understand what's going on.

Can someone tell me how long a person lives with this disease.

Because to me I just see her slipping away. Does this disease

actually cause a persons death or complications from it. I don't

know what to look for, I don't know how to deal with all this right

now. Can someone tell me if it sounds to them like she is in the

final stages of LBD?? I hate to even ask these questions, but I want

to know, I have to try to be prepared and prepare my dad. How long

does this last? I hope that question isn't wrong to ask. I just

don't know what we're looking at. I read a womans journal about her

mother, who is still alive, and I think my mother wouldn't want to

live her life like that in this condition. Why does this rob them of

every bit of dignity they have. The one thing my mom always told me

because we had to take care of my aunt and grandmother was that she

always hoped she would be able to take care of herself...now she

can't...that breaks my heart that the one thing she wanted so badly

she can't do.

The doctor took her off some meds, said made symptoms worse and

started her on on Trazadone for helping with sleep and Seroquel to

help with the other. Does anyone know if this is good??

I hope to find some help and answers here and maybe just someone to

talk to about this. Sorry this is so long, I'm just so depressed

and guess I needed someone that knows and going thru the same thing

to talk to.

Thank you,

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