Guest guest Posted February 11, 2006 Report Share Posted February 11, 2006 You are not alone with this Stevie. Keep us posted. > > > Hello , > > > > Unfortunately my Unc's bed sore have not improved > > but have gotten worse. > > They look horrible and I won't go into detail but > > ........ouch!.....no wonder he > > gets grumpy! It started off with one sore on his > > bum and now the whole area > > where he sits on his bum is black and blue with open > > sores (sorry everyone) but > > these things really can get serious. > > > > The nurse explained today that the discoloration is > > because the circulation > > is very bad (his circulatory system is starting to > > break down) and the red scar > > like lesions are because the skin is so thin from > > lack of eating. He has to > > lie down on his side for two hours at a time and > > then get turned over for two > > more hours. We have Roxinal for pain if he requests > > it and a nurse comes to > > dress his wounds every day. We'll just have to see > > what happens. > > > > As far as the CNA help, you are very fortunate to > > have such good care. It's > > a known fact in my area that one does NOT want to > > end up in a nursing home > > because they are overcrowded and there is not enough > > help. Maybe one CNA is > > responsible for an average of 22 patients. Try > > putting 22 kids to bed at one > > time! That's what it's like. > > > > Thanks again for your concern and I will look into > > the lambs wool idea again. > > Peace to you, Stevie > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2006 Report Share Posted February 11, 2006 Thank you so much ! It helps to come to this board and have comforting words waiting to be read while we wait to see what Lewy has in store for us next. My Uncle is still not awake and it has been 24 hours. I have found, at times like this, when you need someone to be with you, I am amazed how many people shy away from actually " coming over " when you need them to. I am so glad that you all are here and I am not alone. Thank you all so much for taking this ride with me. Peace, Stevie * * * * * * * * * You are not alone with this Stevie. Keep us posted. > > Hello Dena and All, > > Well, my Uncle's bed sores look a bit better today but, unfortunately, he is > already in another " comatose-Lewy " state. He slept in bed most of the day > yesterday (very uncharacteristic of him) waking up once in the afternoon (3:45) > because he wanted to go to the table. I put him in his wheelchair, fed him a > late lunch of which he had a very hard time eating with his good hand, and then > he wanted to get back in bed. > > He woke up briefly at 7:00 PM to go to the bathroom, said he was terribly > tired and wanted to go back to sleep, so we put him back in bed for the night. > That's where he has been ever since. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2006 Report Share Posted February 11, 2006 Dear Sharon....What a wonderful thought! I will whisper the pretend ride when I try to wake him in the morning. Thank you so much. Peace, Stevie * * * * * * * * " just go tell him about a ride, pretend you are driving him somewhere like the shore, decribe what you see, how you feel the wind in your hair and on your face and the smells that you smell, the salt from the ocean, the pine trees, the roses or honeysuckle, in hnis mind he can be on that ride if you hjelp him, just a thought hugs sharon " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2006 Report Share Posted February 11, 2006 Thank you so much again, Stevie * * * * * * * stevie, when you need us, just close your eyes and think of all of us in the group there with you, holding your hand and helping you thru this most difficutl time, we are with you always, hugs sharon m Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2006 Report Share Posted February 11, 2006 stevie, when you need us, just close your eyes and think of all of us in the group there with you, holding your hand and helping you thru this most difficutl time, we are with you always, hugs sharon m -- Re: Re: Hi Stevie update Thank you so much ! It helps to come to this board and have comforting words waiting to be read while we wait to see what Lewy has in store for us next. My Uncle is still not awake and it has been 24 hours. I have found, at times like this, when you need someone to be with you, I am amazed how many people shy away from actually " coming over " when you need them to. I am so glad that you all are here and I am not alone. Thank you all so much for taking this ride with me. Peace, Stevie * * * * * * * * * You are not alone with this Stevie. Keep us posted. > > Hello Dena and All, > > Well, my Uncle's bed sores look a bit better today but, unfortunately, he is > already in another " comatose-Lewy " state. He slept in bed most of the day > yesterday (very uncharacteristic of him) waking up once in the afternoon (3:45) > because he wanted to go to the table. I put him in his wheelchair, fed him a > late lunch of which he had a very hard time eating with his good hand, and then > he wanted to get back in bed. > > He woke up briefly at 7:00 PM to go to the bathroom, said he was terribly > tired and wanted to go back to sleep, so we put him back in bed for the night. > That's where he has been ever since. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 11, 2006 Report Share Posted February 11, 2006 stevie, if your gut feeling says to take uncle for one more great ride then do it. dads peace was with his kitten, i had trained stormy to eat and drink in dads room so he learned dad loved him and not get so attached to me but to dad instead. whenever dad was having bad hallucinations or stressing or bp fluctuating stormy would come in there and sit next to him and let dad and his big ole clumsy hands stroke him, even when he rubbed the fur the wrong way , stormy purred strongly for dad, we could hear stormy purring 2 rooms away and when dad was in the nursing home i brought the kitten in too for dad to see, esp when hte assistant nursing director called me that dad was stressing. so as crazy as it sounds, maybe your uncle is telling you mentally that he wants to go for one last ride, if you can get him in the car, then do it, just like nike commercials say just do it. who cares what everyone else thinks /says, you know that waw his pride and joy why not let him have one more msile if you can do it, if you cant do it as his body is too rigid or etc. than just go tell him about a ride, pretend you are driving him somewhere like the shore, decribe what you see, how you feel the wind in your hair and on your face and the smells that you smell, the salt from the ocean, the pine trees, the roses or honeysuckle, in hnis mind he can be on that ride if you hjelp him, just a thought hugs sharon -- Re: Re: Hi Stevie update Hello Dena and All, Well, my Uncle's bed sores look a bit better today but, unfortunately, he is already in another " comatose-Lewy " state. He slept in bed most of the day yesterday (very uncharacteristic of him) waking up once in the afternoon (3:45) because he wanted to go to the table. I put him in his wheelchair, fed him a late lunch of which he had a very hard time eating with his good hand, and then he wanted to get back in bed. He woke up briefly at 7:00 PM to go to the bathroom, said he was terribly tired and wanted to go back to sleep, so we put him back in bed for the night. That's where he has been ever since. The health aid from Hospice came this morning at 8:30 to give him a shower and we found him in the same position we had left him last night and could not awake him. She bathed him in bed and he did not budge except for a few grimaces. I'm calm, thinking this is another CL episode but the health aid said he was a bit " different " this time. I check on him every 15 minutes and put my cheek to his and think of all the wonderful times we have had, and the things I have learned, and tell him I love him. There's not much else to do but wait and see if he will come around again to check on his pack of imaginary dogs and the many animals that he now sees and worries about during the day.....in the mysterious land of Lewyville. Peace to all of us going through this trying stage of decision and emotional wear, Stevie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 12, 2006 Report Share Posted February 12, 2006 Stevie, I too will include you and your Uncle in my prayers...! I'm a firm believer in the power of prayer! Hugs, Debbie > > Thank you so much Dena. We call him Mr. B. Much Peace, Stevie > > * * * * * * * > Hi Stevie > > I will keep you and your Uncle in prayer. I am not > sure if you ever shared his name or not. It just helps > me when I pray is all. May God bless you both and I > pray that you know that He is at work in your life. > > Dena > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 stevie, i learned to improvise early with dad and lbd he couldnt or wouldnt depends on what stage he was in, leave his house except for doctors appointments, there were plenty of times i used visualizaiton to give him peace and comfort, he loved the blue angels, the us navy flying acrobatic pilots, he would sit in his bed and listen to them fly over, i would go in there and lok out the window and see what formations they were flying and describe them to dad, he so enjoyed the visualizations and at times i would go wow did you see that flip wasnt it gerat and he would softly smile, that is why he retired here so he could be near his navy base. hugs sharon m -- Re: Re: Hi Stevie update Dear Sharon....What a wonderful thought! I will whisper the pretend ride when I try to wake him in the morning. Thank you so much. Peace, Stevie * * * * * * * * " just go tell him about a ride, pretend you are driving him somewhere like the shore, decribe what you see, how you feel the wind in your hair and on your face and the smells that you smell, the salt from the ocean, the pine trees, the roses or honeysuckle, in hnis mind he can be on that ride if you hjelp him, just a thought hugs sharon " Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 Thank you so much . I am so glad that you are here! Peace to you, Stevie * * * * * * * * Stevie - My prayers are with you. These are such hard times and you are not alone. God bless you, in WA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 Thank you so much for your prayers Debbie. What will be, will be. I thank you for being here. Peace to you, Stevie * * * * * * * * * Stevie, I too will include you and your Uncle in my prayers...! I'm a firm believer in the power of prayer! Hugs, Debbie > > Thank you so much Dena. We call him Mr. B. Much Peace, Stevie > > * * * * * * * > Hi Stevie > > I will keep you and your Uncle in prayer. I am not > sure if you ever shared his name or not. It just helps > me when I pray is all. May God bless you both and I > pray that you know that He is at work in your life. > > Dena > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 13, 2006 Report Share Posted February 13, 2006 Hello again ....Thank you so much for your prayers over the weekend! At this point, the Miracle would be Peace and Comfort. Tonight when I put my Uncle to bed, his very weak voice said, " I wonder when I will take my last breath? " I hugged him, all cozied up in his hospital bed, with the rails up that he desperately despises, clothed in the unforgivable Depends pull-up, with his gold watch...that he insists on wearing...dangling halfway up his thin arm, and simply said, " When you find your way back and your Mother comes to get you. " He closed his eyes and showed a weak smile, then said goodnight. Yes, Peace and Comfort. Thank you , Stevie * * * * * * * * * * Dear Stevie - I'm wondering how things are going and wanted to let you know that I've been praying for you all weekend. It's never too late to pray for a miracle, but I also pray that you find peace and comfort. in WA Quote Link to comment Share on other sites More sharing options...
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