Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 Hi Jenifer I sure hope you are feeling good today...I am beginning to get my feet back under me...and moving about a little bit better today...Slow but sure.... I'll try to explain about my particular problems and hope I can present it so it makes any sense at all to you.... I know you already know what Fibro is....so my back...As we all know every nerve in our body is in some way connected to the spine. I have degenerative spine disease in my back as well as Rheumatoid Arthritis... What happens is when the RA swells the bones are already dislocated or deteriorated in my spine which causes excruciating pain as well as causing the fluids to press against the nerves in the spine causing paralysis from my waist down.....and the swelling also causes my spine to protrude against my lungs causing me great difficulty in breathing....Does this make any sense? You are so right , there are millions of people with chronic pains, some who have never been diagnoses...other suffering from a malady for which there is no clinical name....That is why it is so important for the support to one another....People who have not suffered and are still judgmental against those who are suffering be damned..(even uncaring Doctors)...They should be ashamed....and should be thanking someone, somewhere, everyday of their life that their life hasn't been interrupted with something, they have no control over...Oh, honey I didn't mean to get up on my soap-box, and this is not an excuse, but just an explanation.....I have had a pretty rough last couple weeks and I'm afraid my p_ _s and vinegar is starting to return......I think most would agree that having to live with chronic pain is not for the faint of heart nor is it for Sissy's we have to hang tough....LOL.....Jeanne....Thank you so much for writing to me....I really am a nice person and I love hearing from you...... -----Original Message----- From:Jenifer: Non-text portions of this message have been removed] To read these messages on the Hugs web site go to: http://groups.yahoo.com/group/Hugs-N-Pain you can contact me privately at starlyin@... Rose Owner/ Moderator Hugs N Pain God Bless our Troops Please Pray for them Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 8, 2006 Report Share Posted March 8, 2006 Hi Jeanne, You made perfect sense, so you have to be really cautious to avoid flare-ups, caused by particular movements. Then sometimes ya never know what causes those bad days. Gosh darn it, that must be horrible! Please feel free to express yourself openly with me. I mean it, I understand:-) My pain doctor doesn't have much time to listen to me. I have 15 minutes for $130. I believe most of them are numb and turn a deaf ear to pain levels. They write prescriptions and run tests, to substantiate the use of said medications. I shouldn't complain though, because I know what it's like to be left in pain. Somebody has to care and be able to relate, otherwise it's too darn depressing. No matter how bad we get, we need still something to look forward to each day, and to not lose hope. I wonder how many women have said " this pain is worse than childbirth? " One lesson I've learned is to not be such a quiet & patient patient! If I ever have to go to the ER again, I'm literally gonna scream...yep I am, lol:) Jen In a message dated 3/8/2006 5:05:21 PM Alaskan Standard Time, geni2@... writes: Hi Jenifer I sure hope you are feeling good today...I am beginning to get my feet back under me...and moving about a little bit better today...Slow but sure.... I'll try to explain about my particular problems and hope I can present it so it makes any sense at all to you.... I know you already know what Fibro is....so my back...As we all know every nerve in our body is in some way connected to the spine. I have degenerative spine disease in my back as well as Rheumatoid Arthritis... What happens is when the RA swells the bones are already dislocated or deteriorated in my spine which causes excruciating pain as well as causing the fluids to press against the nerves in the spine causing paralysis from my waist down.....and the swelling also causes my spine to protrude against my lungs causing me great difficulty in breathing....Does this make any sense? You are so right , there are millions of people with chronic pains, some who have never been diagnoses...other suffering from a malady for which there is no clinical name....That is why it is so important for the support to one another....People who have not suffered and are still judgmental against those who are suffering be damned..(even uncaring Doctors)...They should be ashamed....and should be thanking someone, somewhere, everyday of their life that their life hasn't been interrupted with something, they have no control over...Oh, honey I didn't mean to get up on my soap-box, and this is not an excuse, but just an explanation.....I have had a pretty rough last couple weeks and I'm afraid my p_ _s and vinegar is starting to return......I think most would agree that having to live with chronic pain is not for the faint of heart nor is it for Sissy's we have to hang tough....LOL.....Jeanne....Thank you so much for writing to me....I really am a nice person and I love hearing from you...... Quote Link to comment Share on other sites More sharing options...
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