Guest guest Posted August 2, 2003 Report Share Posted August 2, 2003 Hi , Must be something magical about turning 48. I am too, and was diagnosed about 2 months ago with RA. I'm still learning about living with the disease. You'll find the people here, friendly and more than helpful, no matter what the question. Noreen Sent: Friday, August 01, 2003 6:58 PM Subject: [ ] Hi-New here Hi Everybody, Just wanted to introduce myself. I am 48 yrs. young and from upstate NY. Diagnosed in '95 with RA, Fibromyalgia and just recently with Osteoarthritis and Sjogrens Sydrome. Its good to find this group. It looks like an active, fun and supportive one! Look forward to talking to you all. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 2, 2003 Report Share Posted August 2, 2003 Welcome, ! I think you'll find a lot in common with others here. I'm looking forward to learning more about you. [ ] Hi-New here > Hi Everybody, > Just wanted to introduce myself. I am 48 yrs. young and from upstate > NY. Diagnosed in '95 with RA, Fibromyalgia and just recently with > Osteoarthritis and Sjogrens Sydrome. Its good to find this group. It > looks like an active, fun and supportive one! Look forward to > talking to you all. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2003 Report Share Posted August 3, 2003 Well... I am up ONE on you! I turn 49 (cough, cough...gag, gag) on Sept. 1st! I somehow, don't think it will feel any different than the other 48! Elf Noreen Saukko wrote: > Hi , > Must be something magical about turning 48. I am too, and was > diagnosed about 2 months ago with RA. I'm still learning about living > with the disease. You'll find the people here, friendly and more than > helpful, no matter what the question. > > Noreen > > Sent: Friday, August 01, 2003 6:58 PM > Subject: [ ] Hi-New here > > > Hi Everybody, > Just wanted to introduce myself. I am 48 yrs. young and from > upstate > NY. Diagnosed in '95 with RA, Fibromyalgia and just recently with > Osteoarthritis and Sjogrens Sydrome. Its good to find this group. > It > looks like an active, fun and supportive one! Look forward to > talking to you all. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 13, 2009 Report Share Posted January 13, 2009 You should email Skip's Pharmacy and ask them about dogs and LDN. They are experienced in these matters. http://www.skipspharmacy.com/petvet.php Art --- http://www.skipspharmacy.com/petvet.php > > I read Dr. Mercola's article today as well as the responses. I have > been searching for something to help my dog. The moderators kindly let > me join this group for her. Thanks! > > She is a five year old pit bull/Boston or Frenchie cross. She has > lupus. I am also in an immune dog group but this girls problems are > very unique and no one can help her. The neurologist feels it is her > immune system attacking her CNS. So she has symptoms that include > nystagmus, poor balance, (former) mini-seizures, vision distortion, > rear limb weakness, sensitivity to sound and strangers. > > The Neuro says it taks about two years before the dog will need to be > put down. They offer no help except cyclosporin and prednisone. She > can't have them now because they caused pancreatitis. Her only > treatment now is methycobalamin, which seems to be slowing the > progression. > > Also, I would like to read about people who are helped with Crones > disease as my 15 yr. old nephew has this. He originally went through > all the medical testing and was put on drugs. My sister then took him > off all the drugs and consulted for months with a nutritionist who says > she can pretty much cure it with diet. He does very good now and is > drug free. But yesterday had a flare up because of eating at a Chinese > place. He is learning what he can and cannot eat the hard way > sometimes. > Thanks again for letting me join for my DOG! If anyone else has an > animal on LDN I would like to hear your stories. > Gail. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2009 Report Share Posted January 14, 2009 Gail... Is your dog on commercial food or home made? If she's on commercial, it would be better if she was on home made to make sure her body is getting all the nutrients she needs-- raw would be good. Also, a good herbal dewormer like humaworm, clarkia or barefoot (don't know anything about barefoot's dewormer). Does the lupus cause the seizures or does she also have epilepsy? If she has epilepsy, the ketogenic diet (strict Atkins) might be helpful. Also, a heavy metal detox using iodine (lugols, magnascent or detoxified iodine (www.iodinesource.com) might also help the seizures. Has she recovered from the pancreatitis? I'm so sorry your pup is having such challenges. Lorie > > I read Dr. Mercola's article today as well as the responses. I have > been searching for something to help my dog. The moderators kindly let > me join this group for her. Thanks! > > She is a five year old pit bull/Boston or Frenchie cross. She has > lupus. I am also in an immune dog group but this girls problems are > very unique and no one can help her. The neurologist feels it is her > immune system attacking her CNS. So she has symptoms that include > nystagmus, poor balance, (former) mini-seizures, vision distortion, > rear limb weakness, sensitivity to sound and strangers. > > The Neuro says it taks about two years before the dog will need to be > put down. They offer no help except cyclosporin and prednisone. She > can't have them now because they caused pancreatitis. Her only > treatment now is methycobalamin, which seems to be slowing the > progression. > > Also, I would like to read about people who are helped with Crones > disease as my 15 yr. old nephew has this. He originally went through > all the medical testing and was put on drugs. My sister then took him > off all the drugs and consulted for months with a nutritionist who says > she can pretty much cure it with diet. He does very good now and is > drug free. But yesterday had a flare up because of eating at a Chinese > place. He is learning what he can and cannot eat the hard way > sometimes. > Thanks again for letting me join for my DOG! If anyone else has an > animal on LDN I would like to hear your stories. > Gail. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2009 Report Share Posted January 14, 2009 She is eating a balance homemade diet from human grade food. She gets no vaccines or chemical things like heartgard or frontline. We are very careful with her. Her seizures stopped after two months. I think she had them when the central nervous system started being affected. She doesn't have epilepsy. All that was last winter. Pancreatitis is gone now since she is off immune suppressing drugs. I will check into the de-wormer although she doesn't show to have worms. Thanks, Gail. > Is your dog on commercial food or home made? If she's on commercial, > it would be better if she was on home made to make sure her body is > getting all the nutrients she needs-- raw would be good. Also, a good > herbal dewormer like humaworm, clarkia or barefoot (don't know > anything about barefoot's dewormer). Does the lupus cause the > seizures or does she also have epilepsy? If she has epilepsy, the > ketogenic diet (strict Atkins) might be helpful. > > Also, a heavy metal detox using iodine (lugols, magnascent or > detoxified iodine (www.iodinesource.com) might also help the seizures. > Has she recovered from the pancreatitis? > > I'm so sorry your pup is having such challenges. > > Lorie > > > > > > I read Dr. Mercola's article today as well as the responses. I have > > been searching for something to help my dog. The moderators kindly let > > me join this group for her. Thanks! > > > > She is a five year old pit bull/Boston or Frenchie cross. She has > > lupus. I am also in an immune dog group but this girls problems are > > very unique and no one can help her. The neurologist feels it is her > > immune system attacking her CNS. So she has symptoms that include > > nystagmus, poor balance, (former) mini-seizures, vision distortion, > > rear limb weakness, sensitivity to sound and strangers. > > > > The Neuro says it taks about two years before the dog will need to be > > put down. They offer no help except cyclosporin and prednisone. She > > can't have them now because they caused pancreatitis. Her only > > treatment now is methycobalamin, which seems to be slowing the > > progression. > > > > Also, I would like to read about people who are helped with Crones > > disease as my 15 yr. old nephew has this. He originally went through > > all the medical testing and was put on drugs. My sister then took him > > off all the drugs and consulted for months with a nutritionist who says > > she can pretty much cure it with diet. He does very good now and is > > drug free. But yesterday had a flare up because of eating at a Chinese > > place. He is learning what he can and cannot eat the hard way > > sometimes. > > Thanks again for letting me join for my DOG! If anyone else has an > > animal on LDN I would like to hear your stories. > > Gail. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2009 Report Share Posted January 14, 2009 Art, Thanks. This was suggested by a moderator when I joined today and I have written an email to the pharmacy. They seemed very friendly on their website! I'm sure my vet has no information on this but I know he would write a script for her, since he is very interested in her and would like to help. Gail. > You should email Skip's Pharmacy and ask them about dogs and LDN. > They are experienced in these matters. > > http://www.skipspharmacy.com/petvet.php > > Art > --- > > http://www.skipspharmacy.com/petvet.php > > > > > > I read Dr. Mercola's article today as well as the responses. I > have > > been searching for something to help my dog. The moderators kindly > let > > me join this group for her. Thanks! > > > > She is a five year old pit bull/Boston or Frenchie cross. She has > > lupus. I am also in an immune dog group but this girls problems > are > > very unique and no one can help her. The neurologist feels it is > her > > immune system attacking her CNS. So she has symptoms that include > > nystagmus, poor balance, (former) mini-seizures, vision distortion, > > rear limb weakness, sensitivity to sound and strangers. > > > > The Neuro says it taks about two years before the dog will need to > be > > put down. They offer no help except cyclosporin and prednisone. > She > > can't have them now because they caused pancreatitis. Her only > > treatment now is methycobalamin, which seems to be slowing the > > progression. > > > > Also, I would like to read about people who are helped with Crones > > disease as my 15 yr. old nephew has this. He originally went > through > > all the medical testing and was put on drugs. My sister then took > him > > off all the drugs and consulted for months with a nutritionist who > says > > she can pretty much cure it with diet. He does very good now and > is > > drug free. But yesterday had a flare up because of eating at a > Chinese > > place. He is learning what he can and cannot eat the hard way > > sometimes. > > Thanks again for letting me join for my DOG! If anyone else has an > > animal on LDN I would like to hear your stories. > > Gail. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2009 Report Share Posted January 14, 2009 Gail.. Glad to hear she recovered from the pancreatitis and the seizures are no longer an issue. Look into what Hulda has to say about parasites. She's made them her life's work. She feels that all diseases that plague us come from parasites. Along with LDN, another thing that comes to mind is energy work. There's a book by Gordon called Quantum Touch (you can get it at Amazon or his website). It's an easy technique to learn. There are no attunements or symbols like reiki. Essentially, through breathing techniques you raise your vibrational level and cause your dog's vibrational level to rise to yours. This allows the dog's body to heal itself. At the very least, it is relaxing to the dog and a loving way to show her how much she means to you. I think getting her on LDN would be great idea. Lorie > > > > > > I read Dr. Mercola's article today as well as the responses. I > have > > > been searching for something to help my dog. The moderators > kindly let > > > me join this group for her. Thanks! > > > > > > She is a five year old pit bull/Boston or Frenchie cross. She > has > > > lupus. I am also in an immune dog group but this girls problems > are > > > very unique and no one can help her. The neurologist feels it is > her > > > immune system attacking her CNS. So she has symptoms that > include > > > nystagmus, poor balance, (former) mini-seizures, vision > distortion, > > > rear limb weakness, sensitivity to sound and strangers. > > > > > > The Neuro says it taks about two years before the dog will need > to be > > > put down. They offer no help except cyclosporin and prednisone. > She > > > can't have them now because they caused pancreatitis. Her only > > > treatment now is methycobalamin, which seems to be slowing the > > > progression. > > > > > > Also, I would like to read about people who are helped with > Crones > > > disease as my 15 yr. old nephew has this. He originally went > through > > > all the medical testing and was put on drugs. My sister then > took him > > > off all the drugs and consulted for months with a nutritionist > who says > > > she can pretty much cure it with diet. He does very good now and > is > > > drug free. But yesterday had a flare up because of eating at a > Chinese > > > place. He is learning what he can and cannot eat the hard way > > > sometimes. > > > Thanks again for letting me join for my DOG! If anyone else has > an > > > animal on LDN I would like to hear your stories. > > > Gail. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 14, 2009 Report Share Posted January 14, 2009 Hi Gail, welcome to this group! I have Crohns disease, and the only med I use is LDN. Have been on LDN since 09/2007. LDN is helping me tremendously, and did so from the first day I started using it. Your nephew should use it now, even if he is in remission, because it is able tocalm down new flares quite fast, and he maybe don't need any other meds to get better. But there is something important by using LDN. It should always be used together with a proper diet. Your nephews family should help him by making the SCD diet or the Makers Diet. SCD: Book: Breaking the Vicious Cycle by Elaine Gottschall, or book: The Makers diet, by Jordan S. Rubin. Both books are to be ordered at www.amazon.com Both diets are quite equal, and I know people using both books to learn even more. There are also books with more recipes on these diets. People are often brought in remission by using sugar, grain, milk and wheat free diets, and often the remissions are on 8 - 10 years. Together with LDN this could be a fantastic journey to a better health. People often claims that the diets are restricted and hard to follow. But the disease itself and being sick just have to make even more restrictions and problems for the individ. Also: LDN is super for your dog, but don't use the same dosage for dogs as for humans. Good luck in getting your dog well!! Kindest regards, Ingrid From: "gschellinger@..." <gschellinger@...>low dose naltrexone Sent: Tuesday, January 13, 2009 9:25:23 PMSubject: [low dose naltrexone] hi-new hereI read Dr. Mercola's article today as well as the responses. I have been searching for something to help my dog. The moderators kindly let me join this group for her. Thanks! She is a five year old pit bull/Boston or Frenchie cross. She has lupus. I am also in an immune dog group but this girls problems are very unique and no one can help her. The neurologist feels it is her immune system attacking her CNS. So she has symptoms that include nystagmus, poor balance, (former) mini-seizures, vision distortion, rear limb weakness, sensitivity to sound and strangers. The Neuro says it taks about two years before the dog will need to be put down. They offer no help except cyclosporin and prednisone. She can't have them now because they caused pancreatitis. Her only treatment now is methycobalamin, which seems to be slowing the progression.Also, I would like to read about people who are helped with Crones disease as my 15 yr. old nephew has this. He originally went through all the medical testing and was put on drugs. My sister then took him off all the drugs and consulted for months with a nutritionist who says she can pretty much cure it with diet. He does very good now and is drug free. But yesterday had a flare up because of eating at a Chinese place. He is learning what he can and cannot eat the hard way sometimes.Thanks again for letting me join for my DOG! If anyone else has an animal on LDN I would like to hear your stories.Gail.------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 15, 2009 Report Share Posted January 15, 2009 Hi Ingrid, I was wondering, do you follow a specific diet? I have tried to follow SCD but it is so hard! I am seeing my doctor next week about LDN. low dose naltrexone From: gunn.ingrid@...Date: Wed, 14 Jan 2009 15:10:08 -0800Subject: Re: [low dose naltrexone] hi-new here Hi Gail, welcome to this group! I have Crohns disease, and the only med I use is LDN. Have been on LDN since 09/2007. LDN is helping me tremendously, and did so from the first day I started using it. Your nephew should use it now, even if he is in remission, because it is able tocalm down new flares quite fast, and he maybe don't need any other meds to get better. But there is something important by using LDN. It should always be used together with a proper diet. Your nephews family should help him by making the SCD diet or the Makers Diet. SCD: Book: Breaking the Vicious Cycle by Elaine Gottschall, or book: The Makers diet, by Jordan S. Rubin. Both books are to be ordered at www.amazon.com Both diets are quite equal, and I know people using both books to learn even more. There are also books with more recipes on these diets. People are often brought in remission by using sugar, grain, milk and wheat free diets, and often the remissions are on 8 - 10 years. Together with LDN this could be a fantastic journey to a better health. People often claims that the diets are restricted and hard to follow. But the disease itself and being sick just have to make even more restrictions and problems for the individ. Also: LDN is super for your dog, but don't use the same dosage for dogs as for humans. Good luck in getting your dog well!! Kindest regards, Ingrid From: "gschellingersbcglobal (DOT) net" <gschellingersbcglobal (DOT) net>low dose naltrexone Sent: Tuesday, January 13, 2009 9:25:23 PMSubject: [low dose naltrexone] hi-new hereI read Dr. Mercola's article today as well as the responses. I have been searching for something to help my dog. The moderators kindly let me join this group for her. Thanks! She is a five year old pit bull/Boston or Frenchie cross. She has lupus. I am also in an immune dog group but this girls problems are very unique and no one can help her. The neurologist feels it is her immune system attacking her CNS. So she has symptoms that include nystagmus, poor balance, (former) mini-seizures, vision distortion, rear limb weakness, sensitivity to sound and strangers. The Neuro says it taks about two years before the dog will need to be put down. They offer no help except cyclosporin and prednisone. She can't have them now because they caused pancreatitis. Her only treatment now is methycobalamin, which seems to be slowing the progression.Also, I would like to read about people who are helped with Crones disease as my 15 yr. old nephew has this. He originally went through all the medical testing and was put on drugs. My sister then took him off all the drugs and consulted for months with a nutritionist who says she can pretty much cure it with diet. He does very good now and is drug free. But yesterday had a flare up because of eating at a Chinese place. He is learning what he can and cannot eat the hard way sometimes.Thanks again for letting me join for my DOG! If anyone else has an animal on LDN I would like to hear your stories.Gail.------------------------------------ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Ingrid - Hello! I also have Crohn's and try to follow the SCD diet but it is very hard. Do you follow a strict diet on LDN also? I was hoping LDN may help so that the diet restrictions can be somewhat alleviated. What do you do exactly? Thanks, > > Hi Gail, > welcome to this group! I have Crohns disease, and the only med I use is LDN. Have been on LDN since 09/2007. LDN is helping me tremendously, and did so from the first day I started using it. Your nephew should use it now, even if he is in remission, because it is able to > calm down new flares quite fast, and he maybe don't need any other meds to get better. But there is something important by using LDN. It should always be used together with a proper diet. Your nephews family should help him by making the SCD diet or the Makers Diet. SCD: Book: Breaking the Vicious Cycle by Elaine Gottschall, or book: The Makers diet, by Jordan S. Rubin. Both books are to be ordered at www.amazon.com Both diets are quite equal, and I know people using both books to learn even more. There are also books with more recipes on these diets. People are often brought in remission by using sugar, grain, milk and wheat free diets, and often the remissions are on 8 - 10 years. Together with LDN this could be a fantastic journey to a better health. People often claims that the diets are restricted and hard to follow. But the disease itself and being sick just have to make even more restrictions and problems for the individ. > Also: LDN is super for your dog, > but don't use the same dosage for dogs as for humans. Good luck in getting your dog well!! > Kindest regards, > Ingrid > >  > > > > ________________________________ > From: " gschellinger@... " <gschellinger@...> > low dose naltrexone > Sent: Tuesday, January 13, 2009 9:25:23 PM > Subject: [low dose naltrexone] hi-new here > > I read Dr. Mercola's article today as well as the responses. I have > been searching for something to help my dog. The moderators kindly let > me join this group for her. Thanks! > > She is a five year old pit bull/Boston or Frenchie cross. She has > lupus. I am also in an immune dog group but this girls problems are > very unique and no one can help her. The neurologist feels it is her > immune system attacking her CNS. So she has symptoms that include > nystagmus, poor balance, (former) mini-seizures, vision distortion, > rear limb weakness, sensitivity to sound and strangers. > > The Neuro says it taks about two years before the dog will need to be > put down. They offer no help except cyclosporin and prednisone. She > can't have them now because they caused pancreatitis. Her only > treatment now is methycobalamin, which seems to be slowing the > progression. > > Also, I would like to read about people who are helped with Crones > disease as my 15 yr. old nephew has this. He originally went through > all the medical testing and was put on drugs. My sister then took him > off all the drugs and consulted for months with a nutritionist who says > she can pretty much cure it with diet. He does very good now and is > drug free. But yesterday had a flare up because of eating at a Chinese > place. He is learning what he can and cannot eat the hard way > sometimes. > Thanks again for letting me join for my DOG! If anyone else has an > animal on LDN I would like to hear your stories. > Gail. > > > ------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 16, 2009 Report Share Posted January 16, 2009 Hi Lorie, and all others who have taken the time to inform me about LDN, Thank you so much for all the information. Tomorrow I will finish looking at everything and contact the vets. I will let you all know what they have to say. I want to be understanding this before I call them, you know how it goes, especially if it is something you get " off the net " they hate that. Her reg. vet is pretty understanding and I must say the neuro vet at the university hospital is also very nice about listening and helping. I am coming around to the idea of giving it to her now. I don't think there is much to lose as it doesn't sound like there are very many neg. issues with giving it. As for my nephew, I gave his mom the emails and info that pertain to him and Crohns. He is back to his white diet for three days per his nutritionist since he had this flare up. They do have the Makers Diet and he is on only diet to control and has been doing very good until this week. Thanks again, Gail. > no longer an issue. Look into what Hulda has to say about > parasites. She's made them her life's work. She feels that all > diseases that plague us come from parasites. > I think getting her on LDN would be great idea. > > Lorie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 20, 2009 Report Share Posted January 20, 2009 Hi Gail, I have my dog on LDN as part of the protocol I am trying to control his metastatic bladder/prostate cancer. Although it is too soon to tell what effect it may be having in controlling the cancer I will say that once I started him on it I noticed a pretty good increase in his energy level and appetite. I have not noticed any negative effects so far. Based on the reports here from people using LDN for various immune disorders I think that it might be worth a shot to get it for your dog and see how she does. My dog weighs 52 lbs and is on 3 mg per day. Good luck, Lagin low dose naltrexone From: gschellinger@...Date: Tue, 13 Jan 2009 20:25:23 +0000Subject: [low dose naltrexone] hi-new here I read Dr. Mercola's article today as well as the responses. I have been searching for something to help my dog. The moderators kindly let me join this group for her. Thanks! She is a five year old pit bull/Boston or Frenchie cross. She has lupus. I am also in an immune dog group but this girls problems are very unique and no one can help her. The neurologist feels it is her immune system attacking her CNS. So she has symptoms that include nystagmus, poor balance, (former) mini-seizures, vision distortion, rear limb weakness, sensitivity to sound and strangers. The Neuro says it taks about two years before the dog will need to be put down. They offer no help except cyclosporin and prednisone. She can't have them now because they caused pancreatitis. Her only treatment now is methycobalamin, which seems to be slowing the progression.Also, I would like to read about people who are helped with Crones disease as my 15 yr. old nephew has this. He originally went through all the medical testing and was put on drugs. My sister then took him off all the drugs and consulted for months with a nutritionist who says she can pretty much cure it with diet. He does very good now and is drug free. But yesterday had a flare up because of eating at a Chinese place. He is learning what he can and cannot eat the hard way sometimes.Thanks again for letting me join for my DOG! If anyone else has an animal on LDN I would like to hear your stories.Gail. Quote Link to comment Share on other sites More sharing options...
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