Re: Carol/ LBD Symposium /Sharon

[Guest guest]

Hi Carol-

Thank you for the fabulous job you did in getting the

Symposium together.

For those of us who did not attend we still felt very

much a part of this special occasion. We thank you

for your dedication in getting photo's to you as we

feel my dad, Merle, and 's mom, Jo, were

also able to attend. This was such an honor for us.

Seeing the photo's sent so many emotions through

us, some we can't even explain. The photo's were

so beautifully arranged with such meaning in the words

that went along with them, couldn't have been done any

better. We love the photo of Jo. It was taken at

Christmas time (2005) in New Zealand. The paper hat is worn as a

celebration of Christmas...she looks so beautiful

and seeing her on the poster sent tears streaming -

it's a good thing! The " Many Faces of LBD " showed

through the photo's and we felt a kindred spirit through

every photo we were able to see.

So, Thank You Sharon for your hard work in getting

the photo's in such an order that touched our hearts

even here in Iowa. Great job!!! They were amazing!!

The words " thank you " will never express the gratitude

and appreciation we feel for all that you have done.

From our hearts to yours Carol, we Thank You!!

Many hugs-

Sandie and

-- LBD Symposium Photos!

Just a quick note - I just posted some of the photos from " The Many

Faces of Lewy Body Dementia " symposium held yesterday in South

Florida. They are located in my file in the Photos section. Thanks

to all of you who mailed and e-mailed photos. Also thanks to Sharon

for using her arts and crafts talents to showcase the photos around

the room. (They will be taken back to Atlanta and be displayed at

the new LBDA office and at future conferences/conventions.) I

picked up the TWO VHS tapes from the shoot with the time stamps on

them at 6 pm tonight. Now the tedious editing process will begin.

We should have final CDs of the event ready in a couple of weeks.

Symposium CDs will be distributed at the February DLB-PDD at the

Crossroads conference in Wash DC. Also a quick thanks to all of the

volunteers who put handouts together for the 150+ attendees. I

talked with Debbie Robins today to thank her for all of her hard

work. (She had the flyers professionally done and 4,000 mailed out -

also the posters, the food, the room and chairs as well as helping

with the flow of the event and controlling the Q's/A's. She got

choked up and thanked us for giving her the chance to be on

our " team " Her thoughts were " Each of us only has one or two

opportunities in our lifetime to professionally make an impact and a

difference in the lives of others -this was one of those times. " I

have a feeling this is going to be an annual event! Cyberhugs, Carol

Welcome to LBDcaregivers.

[Guest guest]

Hi

I'd like to add my 2 cents about the symposium. I was there and want to

thank Carol and her team for doing such a fantastic job in putting this

together.

We had 2 speakers who informed about Lewy Body and what to expect. We then

had a panel to answer questions about our experiences and what we did about it.

I'll be honest, I didn't expect 150 people to come. There was even an over

flow list. Maybe next year we will need a bigger place. I hope to be a

little more involved next year.

Thank You Coral Springs Medical Center also. They provided food and drink

and the room to hold this event.

I finally met Sharon and that was a treat. She is something else. With all

her own problems she is the most active person I've ever met. I don't think

she knows how to sit still. She also helped me by reading a tribute to my

Mom that my daughter wrote. And her poem tells it like it is for our LO's.

Arts and crafts, poet....what other talents are you hiding? It was GREAT to

finally meet you.

I hope this symposium inspires more people to get together and form more

support groups. Its not that this website isn't great, because it is. Its just

that there is nothing like sitting down face to face and talking over

problems.

My best to all of you,

Jacqui

[Guest guest]

Dear Donna,

Do you know of any meetings in Toronto for LBD caregivers? It is

very helpful to have this site to hear from different people and what

they are going through, but it would be nice to meet people in

person. I live in Toronto, Ontario, but I don't know of any " face to

face " groups. Can you or anyone else help me here?

Thanks,

Anne, Etobicoke, Ont.

>

> Jacquie,

>

> Glad you had a chance to meet with everyone who came to the

meeting. And it sounds like a great time was had by all. You are

right. There is nothing like meeting everyone face to face. Maybe

my hope is that one day we can all meet and know each other.

>

> Donna R

>

> Do you want to read more about Lewy Body? You can also read the

Thistle, the LBD Newsletter. Just click on:

>

> http://www.lewybodydementia.org

>

>

> Re: Carol/ LBD Symposium /Sharon

>

> Hi

> I'd like to add my 2 cents about the symposium. I was there and

want to

> thank Carol and her team for doing such a fantastic job in putting

this

> together.

> We had 2 speakers who informed about Lewy Body and what to expect.

We then

> had a panel to answer questions about our experiences and what we

did about it.

>

> I'll be honest, I didn't expect 150 people to come. There was even

an over

> flow list. Maybe next year we will need a bigger place. I hope

to be a

> little more involved next year.

>

> Thank You Coral Springs Medical Center also. They provided food

and drink

> and the room to hold this event.

>

> I finally met Sharon and that was a treat. She is something

else. With all

> her own problems she is the most active person I've ever met. I

don't think

> she knows how to sit still. She also helped me by reading a

tribute to my

> Mom that my daughter wrote. And her poem tells it like it is for

our LO's.

> Arts and crafts, poet....what other talents are you hiding? It

was GREAT to

> finally meet you.

>

> I hope this symposium inspires more people to get together and form

more

> support groups. Its not that this website isn't great, because it

is. Its just

> that there is nothing like sitting down face to face and talking

over

> problems.

>

> My best to all of you,

> Jacqui

>

>

>