Guest guest Posted July 2, 2003 Report Share Posted July 2, 2003 Hi all- I know there are people on this list with MS...I am wondering if any of you would be willing to share your initial symptoms of MS that made you go to the Dr. to get checked out? I have all sorts of nursing and medical books with " official " signs and symptoms, and I work with MS patients at the hospital on a regular basis, but I would really like to know first hand the initial, even little or weird symptoms that made you think something was wrong. I really appreciate any info you all would share. Thanks! Cary Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2007 Report Share Posted September 29, 2007 Hi Johanna, I'm sorry to hear that you're dealing with the vision problems. Did you notice eye problems before or after explant? I also have visual disturbances as it goes along with implant toxicity for some. The good news is we can recover and you've come to right place for that as far as finding out how to detox. You also had your capsules removed which is excellent! I was explanted 5 months ago by Dr. Kolb. Who was your doc? I too had Mentor implants although mine were smooth. I've been to numerous doctors, including 2 optic neurologists. I had every test available: the ERG, VEP, optic ultrasound, angiogram of the retina, ect..all normal, yet my vision is blurry, sometimes deficient, and just odd. I do have high intraocular pressure and a loss of vision in the left eye, yet it doesn't appear like straight glaucoma. Docs are confused. I've probably been to over 15 docs total and none of them believe implants are the cause. I've found that natural and alternative therapies seem to work better. The good news is I notice improvement in my vision from time to time to the point that on occasion it is perfect so I know it can be had. Based on what others on the forum have said, the blurry vision problems resolve after being on a strict candida-free diet and doing some detoxing therapies. It just takes patience. Try not to worry...I know it's hard, particularly with kids to raise, but there are so many women who recover completely. - PH PS Based on what I've read about MS and experienced myself, mercury toxicity and candidasis can contribute as well as the implants. Have you had a heavy metals test? Do you have amalgam fillings? If so that's one area you might want to address with a holistic, mercury-free dentist. > > I just had my saline (textured) mentor implants removed 6 weeks ago due > to a rupture and neurological problems. So, my body feels like it has > been thru a train wreck. As of 3 days ago I lost partial vision to my > left eye and am seeing a neurologist. There may be other issues going > on, but can explant cause this to happen? I had the capsules removed > also. I thought I was supposed to get better, not worse? Thanks. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2007 Report Share Posted September 29, 2007 Yes, I had the capsules out by Dr. Feng. I also have a prior history of chronic lyme disease, but didn't have neurologic symptoms until 7 months post implant. I do have white lesions on my brain. I have been on massive antibiotics and have had testing for yeast and was and still probably am overloaded with it. I was on diflucan, nystatin, etc. etc. I was never willing to completely give up sugars though. But I will consider this product. thanks! Jo -------------- Original message -------------- From: Rogene <saxony01@...> Johanna, Welcome! Beautiful name . . . My mothers middle name! . . I've never have known anyone else by that name! I'd check your post-op report to be sure everything is out! . . . . Assuming it is, then I'd try the Three Lac test to see if you're dealing with fungal issues; http://www.victorie-inc.us/Threelac_Candida_Free_Test.htm We've had some interesting posts recently on Caprylic Acid (gets rid of fungal issues) and Mycoplex by Precision Herbs (gets rid of mycoplasma bacterial organism. Foot baths can help draw toxins out quickly . . I recommend the one on www.ionicoasis.com . . . If you'll "offer" $225 on ebay, you'll get the same models for about half price. Please check back through recent posts to see if you think these apply to you. Hugs, Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2007 Report Share Posted September 29, 2007 Rogene ~ You always use great analgys ! Love you ~ DedeSee what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2007 Report Share Posted September 29, 2007 There are so many possiblities going on with breast implants it's virutally impossible what will work or how long it will take. Is it one's own body rejecting the materials? . . .and allergy? Are toxic chemicals in the implant leaching out? Are there contaminents in or on the implants? Is the immune system wearing down from fighting foreign materials? Has a systemic fungal problem developed? There are probably more possibilities . . . but these are enough for a start. Once the offending cause is eliminated, it's going to take the body a while to repair the damage done. . . Kinda like remodeling a house . . It has to tear out bad stuff and replace it with good . . . It's not going to happen overnight . . .and, if you mess up on the job . . . i.e. bring in the wrong materials (sugar, etc.), it's going to take longer. If you were remodeling your house, you wouldn't want to rebuild it with defective materials, you'd want the best. . . That's why good nutrition is so very important. Nutrition provides the building materials your body needs. Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2007 Report Share Posted September 29, 2007 Jo, Unless you give up sugar, you're just treading water. . . As an experiment, put a teaspoon of baker's yeast in two half cups of warm water. Add a teaspoon of sugar to one cup, nothing to the other cup. . . . Then watch to see what happens. Refined grains also feed yeast - but not as dramatically. Whole grains are OK. If I remember right, Patty also had leisons on her brain . . . As you can tell, her brain is working A-OK now! Hugs, Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2007 Report Share Posted September 29, 2007 Rogene, I have asked myself and tried to do research on everyone of these questions... It seems there should be some answers for so many of us who have been through this. > > There are so many possiblities going on with breast implants it's virutally impossible what will work or how long it will take. > > Is it one's own body rejecting the materials? . . .and allergy? > > Are toxic chemicals in the implant leaching out? > > Are there contaminents in or on the implants? > > Is the immune system wearing down from fighting foreign materials? > > Has a systemic fungal problem developed? > > There are probably more possibilities . . . but these are enough for a start. > > Once the offending cause is eliminated, it's going to take the body a while to repair the damage done. . . Kinda like remodeling a house . . It has to tear out bad stuff and replace it with good . . . It's not going to happen overnight . . .and, if you mess up on the job .. . . i.e. bring in the wrong materials (sugar, etc.), it's going to take longer. If you were remodeling your house, you wouldn't want to rebuild it with defective materials, you'd want the best. . . That's why good nutrition is so very important. Nutrition provides the building materials your body needs. > > Rogene > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2007 Report Share Posted September 29, 2007 Lynda will remember . . . When we were in D.C. in 1994, we were chanting "We are the evidence" . . . To my knowledge, nobody has be interested in studying either women, or their children, sick from breast implants! And we pay these people to represent us and protect our interests! D.C. need a housecleaning - BIG TIME! Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 29, 2007 Report Share Posted September 29, 2007 Yep, Lynda does remember. And the FDA and the doctors still do not care. Nor do the manufacturers. Lynda At 06:11 PM 9/29/2007, you wrote: >Lynda will remember . . . > >When we were in D.C. in 1994, we were chanting " We are the evidence " . . . > >To my knowledge, nobody has be interested in >studying either women, or their children, sick from breast implants! > >And we pay these people to represent us and protect our interests! > >D.C. need a housecleaning - BIG TIME! > >Rogene > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2007 Report Share Posted October 1, 2007 Hi Nan. This is so weird, but I grew up with a friend named Nan Mc. Anyway, a few days after my explantation I couldnt write with my left hand and my arm was very weak. It still feels kind of funny. Did you ever have an MRI of the brain done or blood tests for toxicity or fungus from the implants? I wanted the implants cultured, but the nurses told me they only do that if the implants look or smell funny. They sent the capsules to the lab but that was it. My MRI has white matter lessions on it and I just recently lost my vison (optic neuritis) out of no where. They say these are usually signs of MS, but I never had neurologic problems until after the implants were put in, 7 months after to be exact. thanks. Jo -------------- Original message -------------- From: "nnnttwilliams" <nnnttwilliams@...> -Hi, I think we all expect this, just to get better quickly. I know Patty has shared it took her years to feel normal. I have ups and downs, some things totally go away and then come back, others have totally disappeared. I have not really had any new things develop, and I am better but not normal and it is sooo frustrating. It just takes a lot of patience, you have to try different things. I too had very bad neuro problems. Some of those are gone. What I keep telling myself is that the body heals, and it is true. Our bodies are really strong, but this is like being shot, and the aftermath is there. I lost all feeling in my right arm and hand, now it is just a minor annoyance when I don't feel well that I can feel a slight difference from my normal arm. Don't be surprised if you end up with a lot of normal test results. This disease has a way of doing this. Hope that heps, and just ask any questions you have. Nan-- In A href="mailto: %40"> , "Johanna" <brandon_kaylasmommy@...> wrote:>> I just had my saline (textured) mentor implants removed 6 weeks ago due > to a rupture and neurological problems. So, my body feels like it has > been thru a train wreck. As of 3 days ago I lost partial vision to my > left eye and am seeing a neurologist. There may be other issues going > on, but can explant cause this to happen? I had the capsules removed > also. I thought I was supposed to get better, not worse? Thanks.> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2007 Report Share Posted October 1, 2007 Shouldn't my blood be tested for toxins, and fungus, etc. The implants were not cultured. Jo -------------- Original message -------------- From: DGRAHAMA@... Jo ~ Sugar feeds yeast and makes them multiply far quicker than the die off from the meds you took..........It is important you decipline yourself long enough to kill the fungus, and expel it....... capryllic acid will kill the yeast, 3600 mg a day for at least 16 days. If you have nanobacteria, or mycotoxin, mycoplex will get rid of it. When the fungal organisms die off, they put out a toxin, and it is very important you poo it out as quickly as possible. be sure you do that every day. When you are killing off all those it can give you a "herx" reaction that makes you feel really sick, but it really means you are killing the little monsters. Drink lots of water with minerals. It is important you take magnesium, and you need calcium and D with it. I take calcium 500 mg with magnesium 250 and D. a couple times a day. Magnesium deficiency is huge among implant women.Magnesium Research Lab web site Research that site, very insightful ! Hugs N Prayers ~ Dede See what's new at AOL.com and Make AOL Your Homepage. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2007 Report Share Posted October 1, 2007 Actually, I did not have lesions on my brain, but I did have an abnormal brain MRI--that was scary enough! The statement on my MRI results were: ""Mild prominence of superior cerebellar sulci, significanceuncertain. Suggest clinical correlation." (Anytime it says that, there is a problem.) "There is mild prominence of sulciover the superior cerebellar hemispheres bilaterally, of uncertain significance. This may indicate a mild degree of cerebellar atrophy considering the patient's age." So, no lesions, but atrophy was bad enough. And you're right! My brain does work A-OK now! NO thanks to any of those doctors though. They were clueless, and I took the bull by the horns and CURED MYSELF. PattyRogene <saxony01@...> wrote: Jo, Unless you give up sugar, you're just treading water. . . As an experiment, put a teaspoon of baker's yeast in two half cups of warm water. Add a teaspoon of sugar to one cup, nothing to the other cup. . . . Then watch to see what happens. Refined grains also feed yeast - but not as dramatically. Whole grains are OK. If I remember right, Patty also had leisons on her brain . . . As you can tell, her brain is working A-OK now! Hugs, Rogene Building a website is a piece of cake. Small Business gives you all the tools to get online. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2007 Report Share Posted October 1, 2007 Johanna, You can get better after explant, but it does not happen in a straight line. Meaning that you can get worse before you get better. I certainly did. So, please do not get really freaked out about new symptoms, although partial loss of vision in an eye is certainly worrisome. My daughter had this after her gymnastics class once, and the optometrist called it an optic stroke. Of course, I was very worried, but he was not...the condition cleared up rather quickly. However, I would always get this checked out. Is the partial vision loss longstanding at this point? I know other women have had similar experiences, but as far as I know, no one has ever suffered a permanent vision loss yet. (Lynda and Rogene, do you know of women who have suffered longstanding permanent vision loss on any of the groups? What was the remedy?) Johanna, I know you want to get better. I did too. It took me over 4 years to heal well, so don't get your hopes up that you are going to see only improvements over time. It is more like 3 steps forward, 2 steps back, and a roller coaster ride of emotions as you battle fatigue, depression and frustration through the healing process. But the good news is that over time (in some cases a very long time), you will begin to see small, gradual improvements. It's nice when healing happens rather quickly, but I've found out that not very many women experience immediate healing, and not many women experience healing without the honeymoon period. Take it easy, and let us know what happens with the neurologist. Be careful of getting on drugs. Patty Johanna <brandon_kaylasmommy@...> wrote: I just had my saline (textured) mentor implants removed 6 weeks ago due to a rupture and neurological problems. So, my body feels like it has been thru a train wreck. As of 3 days ago I lost partial vision to my left eye and am seeing a neurologist. There may be other issues going on, but can explant cause this to happen? I had the capsules removed also. I thought I was supposed to get better, not worse? Thanks. Moody friends. Drama queens. Your life? Nope! - their life, your story. Play Sims Stories at Games. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2007 Report Share Posted October 1, 2007 Some of our ladies have commented that their vision deteriorated, or is deteriorating (still have implants) . . . and got better after explant. More reasons why breast implants aren't safe! In my opinion, if it hasn't gone on for a long time, it may be reversable. What comes to mine is the Visual Contrast Sensitivity test . . . obviously vision deteriorates in the presence of toxins . . . and gets better after detoxing. Rogene Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2007 Report Share Posted October 1, 2007 Jo, It would be great if they would test people . . . but it's unlikely they will. Virtually everyone has some level of toxins from the environment . . and fungal organisms are a normal part of the body "flora". The problem isn't their presence as much as the balance between the good stuff and the bad stuff - and the problems their presence has created. A good naturopathic doctor is more likely to be able to help. You can get testing done by certain labs - but you have to pay yourself. Hugs, Rogene Quote Link to comment Share on other sites More sharing options...
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