Re: FW: File: PedPIDemaillist.txt - and yet another new member

[Guest guest]

To and all the new members: Welcome to the group and you are in the

right place for great support and information. My daughter is

cvid,asthma,ataxia. If any of you are from Holland we owe your country her

life. What a great place to live,

sincerely,

annette and alissa

>

>Reply-To: PedPIDonelist

>To: " PedPID - onelist " <PedPIDonelist>

>Subject: FW: File: PedPIDemaillist.txt - and yet another new

>member

>Date: Mon, 31 Jan 2000 13:57:48 -0500

>

> - welcome to the group. Your daughter has been through a great deal

>in her short life. I hope that this email group and the PedPID web page

>can

>be of help. Have they said which immune tests are going to be run?

>Antibody

>testing, IgA?

>

>there are also other list members with cancer survivors and current cancer

>patients. They will probably peek their heads in soon.

>

>Please let us know if there are any questions we can answer or anything we

>can help with. The list archives are on the Onelist site and there is a

>very good search engine on the same page. Feel free to bring up any old

>topics again.

>

>Ursula - & Macey (4 yr old w/CVID) mom

>http://www.pedpid.com

>

>

> Re: File: PedPIDemaillist.txt

>

>

>My name is Curkendall and I am the mother of 2 children. My 9 yo

>daughter was adopted by us when she was 5 years old. She has AIDS but

>despite adequate control of her virus she has been very medically fragile

>her

>whole life. In June of last year she had some Immunoglobulin tests run and

>it revealed a IGG2 and IGG4 deficiency. Almost all of her illnessess

>(frequent pnemonias, recurrent sepsis, recurrent sinusitis and

>conjunctivitis,etc. ) are unexplainable with the HIV diagnosis but easily

>explained by this recent finding. They are now going to do more in depth

>testing of her immune system to determine if this is the only underlying

>deficiency (with the excepetion of the HIV) that she is demonstrating. The

>reality is, she would have been ill irregardless of her HIV status. I also

>have a 4 yo biological son who was diagnosed with a brain tumor when he was

>2. He is doing fine now.

>Thank you.

>

>

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