Re: doctor's visit/Jayn

[Guest guest]

Hi Jayn,

I can't believe how many thick headed doctors there

are. It is a battle dealing with all aspects of LBD.

We are up against people in the medical fields that

are ignorant of LBD and up against the disease itself.

I am sorry that you are facing this with your sister.

It amazes me how many doctors feel the need to drug

our LOs into a stupor. Like Donna says, someday the

path will be cleared for those with LBD in the future

and they won't have to go through these frustrations

as we do.

Take Care Jayn, my thoughts are with you. Hugs, Jan

--- jja52538@... wrote:

>

>

> I am always amazed!!!! Don't know why but doctor's

> never cease to amaze me.

> Today's visit with my sister to a dr that had

> assured me in a prior visit

> that he would be happy to take her and her dementia

> as a patient.

> I make the remark about people with lbd having

> utis. His reply " I don't

> know why you keep saying she has lbd, she does not

> have lbd. If you are going

> to be the doctor, then you need to find someone

> else. I told him she had all

> the symptoms and I was getting my information from

> research by doctors that

> had many years in doing their work and why did he

> say she had alzheimers? He

> didn't reply.

> He told us we could have her out or like she was

> living in a NH that had an

> alz unit. He did not want to adjust any of her meds.

> Wanted her to stay on

> the dosage of trazodone he had prescribed 100 mg.

> There were lots more that just blew my mind. It

> seemed he wanted her to be

> sedated or left alone.

> It seemed he did not want me saying it was lbd when

> she does have all the

> symptoms. Nothing she is doing is a symptom of alz.

> Well he decided to refer her to an physicist, now I

> am wondering: " so he

> will be able to do the medicine thing but what is

> his expertise in the brain "

> It seems we can't win for loosing. I just know

> there has to be someone

> somewhere that will look at symptoms and not say

> alzheimer.

>

> Thanks

> Jayn in

> S GA

>

>

>

>

> [Non-text portions of this message have been

> removed]

>

>

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