Re: End Stages karen/sharon m

[Guest guest]

WOW!! Thank you, I wish I could give you a hug right now. I am sorry

for all of the troubles you have with your health. You must have

gone through hell.

My mother used to be very mean with me at times also! that hurt.

you have opened my eyes and my mind to understand more and to quit

beating up on myself.

Thank you,

> >

> > karen,

> > my dear, you did not contribute to your mothers death, please do

> not feel

> > guilty about anthing that you tried to do lbd is one of the most

> > misdiagnosed forms of dementia, and also is not very well known in

> the

> > medical circles as it should be. anything that you may have done

> was wiht

> > the best of intentions and the people that have beenin this group

> alot

> > longer than i have can tell you that just the sharing of

> informaiton in this

> > group has made a difference in learning about lbd. my dad went

> very quickly

> > but looking back he probasbly had lbd since 93 when he started

> with severe

> > hallucinations and then the unexplained falls started as well as

the

> > parkinsonisms. dad was diagnosed after what i thought may be a

> stroke

> > starting in may 2004, he was diagnosed by a weekend fill in doctor

> who

> > commented that he thought daddy sounded like he had lewy's body

> dementia.

> > dads fallsgot worse and worse and his capabilities of functioning

> were

> > slowly decreasing like we had to cut his meat up in small

> bitesisze pieces

> > for him and eventauly had to start bathinghim as he was unasble to

> do so

> > himslef. he didnt understand what he was supposed to do. dads

> demise

> > started after two series falls about 2months apart t in 2005, he

> second one

> > fractured his rip hip ball adn he had to have surgery, after that

> he lost

> > all mobility and was tring to learn how to walk again, when the

> ball popped

> > out of socket and after much discussion between myslef , including

> dad as

> > much as possible, and the doctros. decided not to persue more

> surgery as the

> > surgery just took so much ablities away from him. dispite being on

> > bloodthinners he develped a lung blood clot which almost killed

him

> and

> > aspriation pneumonia, this was very difficult for him as he was

on a

> > ventilatore for 2 weeks and with the meds for pain and such he

lost

> more of

> > his abilities to talk and communicate. but he could sing you are

my

> > sunshine to and with me. with in one month after that he develop

> [ed a uti

> > and another bout of pnuemonia. this took the rest of his life out

> of him,

> > he seemed to age 10 years over nite, and soon after we got news

his

> 98 year

> > old mother passed away end of aug and dad died less than 1 month

> later, he

> > gave up, it was such a struggle for him to breathe as he was

> wearing oxygen

> > and he couldnt walk with his hip out of joint he was in what i

> called a

> > permanent flamingo position. his qualituy of life declined and

> > hismotviation ot stay awake and try was gone. his mind adn body

> were just

> > tired, and he lived up to his promise to his mother, she didnt

have

> to bury

> > her baby boy before she died. they are all buried in the family

> plot in ny.

> > my dad, his mom and dad, and his fav aunt. myh dad went quickly

> at the end

> > his end stage was less than 3months, sigh hugs sharon m

> >

> > -- End Stages

> >

> > Could someone tell me their experience with the end stages? What

> > happeneds in the end stages? I know it is different for

> most....but my

> > mother passed away with LBD and I feel that I may have helped

> > contribute to her death by not understanding exactly what was

going

> on.

> > It might help me if I know how the end stage was for someone else.

> >

> > Thank you,

> >

> >

> >

> >

> >

> >

> >

> >