Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 My condolences to you and your wonderful family. How lucky your Dad was to have you with him as he passed. Bless you all for the coming New Year and may you all find Peace, Stevie * * * * * rossudron wrote: I posted a message at the beginning of December to say my Dad had taken a turn for the worse and his doctor had just told us she didn't think he would make it till Christmas. Despite his detereoration it was a big shock to us all (my mum,my two sisters and myself) as we didn't think he was that bad. However he passed away on the 13th of December with us all at his bedside. It has been a few weeks of hell but on the other hand we are all relieved that he is now free from all the awfulness of LBD as are we. I was always looking for an answer to the final stages of this disease on the message board so for anyone else I thought I would describe my Dad's last days in case it helps anyone. Three weeks before he died my Dad's hip replacement was dislocated and he was taken to hospital where he underwent manipulation under general anaesthetic. This proved to be the catalyst in his worsening condition. He was very confused in hospital with all the noise etc so we got him home as soon as possible as we had carers coming in 3 times a day plus all the family to help. From then on ,however, his appetite decreased and he began to sleep more. As the days went by he was sometimes lucid but often confused. He had always still known who we all were and our names but one day he couldn't remember my name and this greatly upset him - and me! In the last week he began to be more agitated and was constantly picking at the bedclothes flaying his arms and often shouting out. He kept saying he wanted to go home and to see his mummy which was very hard for my mum to hear.He almost began to relive his life as he shouted out old colleages names and old friends. As his agitation increased the doctor gave him a sedative for his and our sakes as it was very hard to keep him calm and relaxed. He stopped eating about 4 or 5 days before he died which my mum found particularly hard to accept. I think she was scared we were starving him but he was unable to eat and his body didn't need food anymore. It was hard tho to see his bones becoming more and more apparent. About a week before he dies his breathing changed and he began to do what I believe is called 'cheyne stoking' - cycles of breathing which stop for up to 30 seconds. Very distressing but he seemed unaware. The morning he died his breathing changed again and was very pronounced breaths which took effort. He also changed colour and when I dashed over that morning I knew when I walked in that death was close. It was such an emotional moment for altho I had prayed for it when I held his hand I didn't want him to go. For an hour after I arrived he breathed then stopped, sometimes for almost a minute, then started again. It was almost funny as several times we thought he had gone then he would take a big breath again. We all adored my dad who was the most wonderful,kind,and caring father. The best anyone could ever wish for. When he finally took that last breath we were all there with him, my two young kids in the next room watching a video! It was painful but an amazing experience at the same time. Not easy to watch someone die but it gives you great sense of comfort to see how peaceful he looked. Don't know if this helps anyone in the same boat. I miss my lovely dad so much but the last couple of years it has been so hard on all our family and now it is finally over. Thanks for all the words of support and advice.Ros Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 Ros I am so sorry for you loss. My Mom passed this past Sept. I feel her loss every day but am glad she is no longer in pain or is confused. God be with you and your family, Jacqui Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 Dear I am so sorry for you loss, my heart aches for you and your family , but your dads finally at peace and in a much better place .... Eileen ...... Ontario, Canada -- Dad is gone I posted a message at the beginning of December to say my Dad had taken a turn for the worse and his doctor had just told us she didn't think he would make it till Christmas. Despite his detereoration it was a big shock to us all (my mum,my two sisters and myself) as we didn't think he was that bad. However he passed away on the 13th of December with us all at his bedside. It has been a few weeks of hell but on the other hand we are all relieved that he is now free from all the awfulness of LBD as are we. I was always looking for an answer to the final stages of this disease on the message board so for anyone else I thought I would describe my Dad's last days in case it helps anyone. Three weeks before he died my Dad's hip replacement was dislocated and he was taken to hospital where he underwent manipulation under general anaesthetic. This proved to be the catalyst in his worsening condition. He was very confused in hospital with all the noise etc so we got him home as soon as possible as we had carers coming in 3 times a day plus all the family to help. From then on ,however, his appetite decreased and he began to sleep more. As the days went by he was sometimes lucid but often confused. He had always still known who we all were and our names but one day he couldn't remember my name and this greatly upset him - and me! In the last week he began to be more agitated and was constantly picking at the bedclothes flaying his arms and often shouting out. He kept saying he wanted to go home and to see his mummy which was very hard for my mum to hear.He almost began to relive his life as he shouted out old colleages names and old friends. As his agitation increased the doctor gave him a sedative for his and our sakes as it was very hard to keep him calm and relaxed. He stopped eating about 4 or 5 days before he died which my mum found particularly hard to accept. I think she was scared we were starving him but he was unable to eat and his body didn't need food anymore. It was hard tho to see his bones becoming more and more apparent. About a week before he dies his breathing changed and he began to do what I believe is called 'cheyne stoking' - cycles of breathing which stop for up to 30 seconds. Very distressing but he seemed unaware. The morning he died his breathing changed again and was very pronounced breaths which took effort. He also changed colour and when I dashed over that morning I knew when I walked in that death was close. It was such an emotional moment for altho I had prayed for it when I held his hand I didn't want him to go. For an hour after I arrived he breathed then stopped, sometimes for almost a minute, then started again. It was almost funny as several times we thought he had gone then he would take a big breath again. We all adored my dad who was the most wonderful,kind,and caring father. The best anyone could ever wish for. When he finally took that last breath we were all there with him, my two young kids in the next room watching a video! It was painful but an amazing experience at the same time. Not easy to watch someone die but it gives you great sense of comfort to see how peaceful he looked. Don't know if this helps anyone in the same boat. I miss my lovely dad so much but the last couple of years it has been so hard on all our family and now it is finally over. Thanks for all the words of support and advice.Ros Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 Dear Ros I am sorry for your loss of your father. It is a difficult time, but we all know that some things are worse than death and Lewy is certainly up there...Bless you and your family, as your dad now has peace. Kath in Toronto rossudron wrote: I posted a message at the beginning of December to say my Dad had taken a turn for the worse and his doctor had just told us she didn't think he would make it till Christmas. Despite his detereoration it was a big shock to us all (my mum,my two sisters and myself) as we didn't think he was that bad. However he passed away on the 13th of December with us all at his bedside. It has been a few weeks of hell but on the other hand we are all relieved that he is now free from all the awfulness of LBD as are we. I was always looking for an answer to the final stages of this disease on the message board so for anyone else I thought I would describe my Dad's last days in case it helps anyone. Three weeks before he died my Dad's hip replacement was dislocated and he was taken to hospital where he underwent manipulation under general anaesthetic. This proved to be the catalyst in his worsening condition. He was very confused in hospital with all the noise etc so we got him home as soon as possible as we had carers coming in 3 times a day plus all the family to help. From then on ,however, his appetite decreased and he began to sleep more. As the days went by he was sometimes lucid but often confused. He had always still known who we all were and our names but one day he couldn't remember my name and this greatly upset him - and me! In the last week he began to be more agitated and was constantly picking at the bedclothes flaying his arms and often shouting out. He kept saying he wanted to go home and to see his mummy which was very hard for my mum to hear.He almost began to relive his life as he shouted out old colleages names and old friends. As his agitation increased the doctor gave him a sedative for his and our sakes as it was very hard to keep him calm and relaxed. He stopped eating about 4 or 5 days before he died which my mum found particularly hard to accept. I think she was scared we were starving him but he was unable to eat and his body didn't need food anymore. It was hard tho to see his bones becoming more and more apparent. About a week before he dies his breathing changed and he began to do what I believe is called 'cheyne stoking' - cycles of breathing which stop for up to 30 seconds. Very distressing but he seemed unaware. The morning he died his breathing changed again and was very pronounced breaths which took effort. He also changed colour and when I dashed over that morning I knew when I walked in that death was close. It was such an emotional moment for altho I had prayed for it when I held his hand I didn't want him to go. For an hour after I arrived he breathed then stopped, sometimes for almost a minute, then started again. It was almost funny as several times we thought he had gone then he would take a big breath again. We all adored my dad who was the most wonderful,kind,and caring father. The best anyone could ever wish for. When he finally took that last breath we were all there with him, my two young kids in the next room watching a video! It was painful but an amazing experience at the same time. Not easy to watch someone die but it gives you great sense of comfort to see how peaceful he looked. Don't know if this helps anyone in the same boat. I miss my lovely dad so much but the last couple of years it has been so hard on all our family and now it is finally over. Thanks for all the words of support and advice.Ros Welcome to LBDcaregivers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 Ross, Please accept my sincere sympathy as I know exactly what you are going through. My Dad passed away two weeks before yours. The stage of impending death is horrible to go through but at least there is peace in the end. My thoughts and prayers will be with you and your family throughout the coming days. na in North Carolina, USA rossudron wrote: I posted a message at the beginning of December to say my Dad had taken a turn for the worse and his doctor had just told us she didn't think he would make it till Christmas. Despite his detereoration it was a big shock to us all (my mum,my two sisters and myself) as we didn't think he was that bad. However he passed away on the 13th of December with us all at his bedside. It has been a few weeks of hell but on the other hand we are all relieved that he is now free from all the awfulness of LBD as are we. I was always looking for an answer to the final stages of this disease on the message board so for anyone else I thought I would describe my Dad's last days in case it helps anyone. Three weeks before he died my Dad's hip replacement was dislocated and he was taken to hospital where he underwent manipulation under general anaesthetic. This proved to be the catalyst in his worsening condition. He was very confused in hospital with all the noise etc so we got him home as soon as possible as we had carers coming in 3 times a day plus all the family to help. From then on ,however, his appetite decreased and he began to sleep more. As the days went by he was sometimes lucid but often confused. He had always still known who we all were and our names but one day he couldn't remember my name and this greatly upset him - and me! In the last week he began to be more agitated and was constantly picking at the bedclothes flaying his arms and often shouting out. He kept saying he wanted to go home and to see his mummy which was very hard for my mum to hear.He almost began to relive his life as he shouted out old colleages names and old friends. As his agitation increased the doctor gave him a sedative for his and our sakes as it was very hard to keep him calm and relaxed. He stopped eating about 4 or 5 days before he died which my mum found particularly hard to accept. I think she was scared we were starving him but he was unable to eat and his body didn't need food anymore. It was hard tho to see his bones becoming more and more apparent. About a week before he dies his breathing changed and he began to do what I believe is called 'cheyne stoking' - cycles of breathing which stop for up to 30 seconds. Very distressing but he seemed unaware. The morning he died his breathing changed again and was very pronounced breaths which took effort. He also changed colour and when I dashed over that morning I knew when I walked in that death was close. It was such an emotional moment for altho I had prayed for it when I held his hand I didn't want him to go. For an hour after I arrived he breathed then stopped, sometimes for almost a minute, then started again. It was almost funny as several times we thought he had gone then he would take a big breath again. We all adored my dad who was the most wonderful,kind,and caring father. The best anyone could ever wish for. When he finally took that last breath we were all there with him, my two young kids in the next room watching a video! It was painful but an amazing experience at the same time. Not easy to watch someone die but it gives you great sense of comfort to see how peaceful he looked. Don't know if this helps anyone in the same boat. I miss my lovely dad so much but the last couple of years it has been so hard on all our family and now it is finally over. Thanks for all the words of support and advice.Ros Welcome to LBDcaregivers. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 3, 2006 Report Share Posted January 3, 2006 Ros, I want to thank you so much for sharing your fathers passing. It has helped me understand what will go on. My mom is getting worse and worse and some days I get panicky thinking about her passing. Sending you and your family much strength. Courage Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 5, 2006 Report Share Posted January 5, 2006 Ros, Condolences to you and your family. May he rest in peace. Donna R Do you want to read more about Lewy Body? You can also read the Thistle, the LBD Newsletter. Just click on: http://www.lewybodydementia.org Re: Dad is gone My condolences to you and your wonderful family. How lucky your Dad was to have you with him as he passed. Bless you all for the coming New Year and may you all find Peace, Stevie * * * * * rossudron wrote: I posted a message at the beginning of December to say my Dad had taken a turn for the worse and his doctor had just told us she didn't think he would make it till Christmas. Despite his detereoration it was a big shock to us all (my mum,my two sisters and myself) as we didn't think he was that bad. However he passed away on the 13th of December with us all at his bedside. It has been a few weeks of hell but on the other hand we are all relieved that he is now free from all the awfulness of LBD as are we. I was always looking for an answer to the final stages of this disease on the message board so for anyone else I thought I would describe my Dad's last days in case it helps anyone. Three weeks before he died my Dad's hip replacement was dislocated and he was taken to hospital where he underwent manipulation under general anaesthetic. This proved to be the catalyst in his worsening condition. He was very confused in hospital with all the noise etc so we got him home as soon as possible as we had carers coming in 3 times a day plus all the family to help. From then on ,however, his appetite decreased and he began to sleep more. As the days went by he was sometimes lucid but often confused. He had always still known who we all were and our names but one day he couldn't remember my name and this greatly upset him - and me! In the last week he began to be more agitated and was constantly picking at the bedclothes flaying his arms and often shouting out. He kept saying he wanted to go home and to see his mummy which was very hard for my mum to hear.He almost began to relive his life as he shouted out old colleages names and old friends. As his agitation increased the doctor gave him a sedative for his and our sakes as it was very hard to keep him calm and relaxed. He stopped eating about 4 or 5 days before he died which my mum found particularly hard to accept. I think she was scared we were starving him but he was unable to eat and his body didn't need food anymore. It was hard tho to see his bones becoming more and more apparent. About a week before he dies his breathing changed and he began to do what I believe is called 'cheyne stoking' - cycles of breathing which stop for up to 30 seconds. Very distressing but he seemed unaware. The morning he died his breathing changed again and was very pronounced breaths which took effort. He also changed colour and when I dashed over that morning I knew when I walked in that death was close. It was such an emotional moment for altho I had prayed for it when I held his hand I didn't want him to go. For an hour after I arrived he breathed then stopped, sometimes for almost a minute, then started again. It was almost funny as several times we thought he had gone then he would take a big breath again. We all adored my dad who was the most wonderful,kind,and caring father. The best anyone could ever wish for. When he finally took that last breath we were all there with him, my two young kids in the next room watching a video! It was painful but an amazing experience at the same time. Not easy to watch someone die but it gives you great sense of comfort to see how peaceful he looked. Don't know if this helps anyone in the same boat. I miss my lovely dad so much but the last couple of years it has been so hard on all our family and now it is finally over. Thanks for all the words of support and advice.Ros Quote Link to comment Share on other sites More sharing options...
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