Re: Re: Carol/ LBD Symposium /Sharon

[Guest guest]

Wow thanks jacqui, and i was thrilled to meet you as well. and it was my

pleasure to read such a wonderful tribute that your daughter wrote. jacqui is

right the symposium went GREAT, no actually FANTASTIC a great hig five to

carol for all of her hard work and coordination and for all that she

accomplished, her speakers both doctors, made us caregivers feel so important

and appreciated. they understood, yes people i said UNDERSTOOD what we go thru

and had wonderful advice and hints for all of us, and i would suggest that

everyone get the dvd/cd when it is available. with Gordon and , jacqui,

phillip and myself all gave important advice that everyone could appreciate, i

talked about hte inappropraite sexual comments actions, john talked about being

honest and hallucinations, the rest you will have to hear for yourself, cant let

all the good stuff out, lol

big thanks to the city, the hosp and the docs that gave their time it was a

great symposium

great to meet some faces that i talk to online and to share some stories with

others that came to the symposium.

hugs to all sharon

ps carol and barb are wonderful hosts. hugs sharon

From: mamajacqui@...

Date: 2006/01/22 Sun AM 12:18:21 EST

To: LBDcaregivers

Subject: Re: Carol/ LBD Symposium /Sharon

Hi

I'd like to add my 2 cents about the symposium. I was there and want to

thank Carol and her team for doing such a fantastic job in putting this

together.

We had 2 speakers who informed about Lewy Body and what to expect. We then

had a panel to answer questions about our experiences and what we did about it.

I'll be honest, I didn't expect 150 people to come. There was even an over

flow list. Maybe next year we will need a bigger place. I hope to be a

little more involved next year.

Thank You Coral Springs Medical Center also. They provided food and drink

and the room to hold this event.

I finally met Sharon and that was a treat. She is something else. With all

her own problems she is the most active person I've ever met. I don't think

she knows how to sit still. She also helped me by reading a tribute to my

Mom that my daughter wrote. And her poem tells it like it is for our LO's.

Arts and crafts, poet....what other talents are you hiding? It was GREAT to

finally meet you.

I hope this symposium inspires more people to get together and form more

support groups. Its not that this website isn't great, because it is. Its just

that there is nothing like sitting down face to face and talking over

problems.

My best to all of you,

Jacqui

[Guest guest]

I am so proud of you all! Great Team Work in getting

it all together. Carol, you are remarkable with all

the schedules you keep and getting everything in order

to make the Symposium a successful event. Kudos to

you all! Jan

--- LadySmilingAtU2@... wrote:

> Wow thanks jacqui, and i was thrilled to meet you as

> well. and it was my pleasure to read such a

> wonderful tribute that your daughter wrote. jacqui

> is right the symposium went GREAT, no actually

> FANTASTIC a great hig five to carol for all of her

> hard work and coordination and for all that she

> accomplished, her speakers both doctors, made us

> caregivers feel so important and appreciated. they

> understood, yes people i said UNDERSTOOD what we go

> thru and had wonderful advice and hints for all of

> us, and i would suggest that everyone get the dvd/cd

> when it is available. with Gordon and , jacqui,

> phillip and myself all gave important advice that

> everyone could appreciate, i talked about hte

> inappropraite sexual comments actions, john talked

> about being honest and hallucinations, the rest you

> will have to hear for yourself, cant let all the

> good stuff out, lol

> big thanks to the city, the hosp and the docs that

> gave their time it was a great symposium

> great to meet some faces that i talk to online and

> to share some stories with others that came to the

> symposium.

> hugs to all sharon

>

> ps carol and barb are wonderful hosts. hugs sharon

> From: mamajacqui@...

> Date: 2006/01/22 Sun AM 12:18:21 EST

> To: LBDcaregivers

> Subject: Re: Carol/ LBD Symposium

> /Sharon

>

> Hi

> I'd like to add my 2 cents about the symposium. I

> was there and want to

> thank Carol and her team for doing such a fantastic

> job in putting this

> together.

> We had 2 speakers who informed about Lewy Body and

> what to expect. We then

> had a panel to answer questions about our

> experiences and what we did about it.

>

> I'll be honest, I didn't expect 150 people to come.

> There was even an over

> flow list. Maybe next year we will need a bigger

> place. I hope to be a

> little more involved next year.

>

> Thank You Coral Springs Medical Center also. They

> provided food and drink

> and the room to hold this event.

>

> I finally met Sharon and that was a treat. She is

> something else. With all

> her own problems she is the most active person I've

> ever met. I don't think

> she knows how to sit still. She also helped me by

> reading a tribute to my

> Mom that my daughter wrote. And her poem tells it

> like it is for our LO's.

> Arts and crafts, poet....what other talents are you

> hiding? It was GREAT to

> finally meet you.

>

> I hope this symposium inspires more people to get

> together and form more

> support groups. Its not that this website isn't

> great, because it is. Its just

> that there is nothing like sitting down face to face

> and talking over

> problems.

>

> My best to all of you,

> Jacqui

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

> Welcome to LBDcaregivers.

>

>

>

[Guest guest]

Hi Anne,

Someone else may have already answered you because I'm pretty late, but Kath

and Courage are initiating a get together in the near future. I don't know

details yet but just watch the message board and we should know soon. doris in

Mississauga

saac2anne wrote:

Dear Donna,

Do you know of any meetings in Toronto for LBD caregivers? It is

very helpful to have this site to hear from different people and what

they are going through, but it would be nice to meet people in

person. I live in Toronto, Ontario, but I don't know of any " face to

face " groups. Can you or anyone else help me here?

Thanks,

Anne, Etobicoke, Ont.

>

> Jacquie,

>

> Glad you had a chance to meet with everyone who came to the

meeting. And it sounds like a great time was had by all. You are

right. There is nothing like meeting everyone face to face. Maybe

my hope is that one day we can all meet and know each other.

>

> Donna R

>

> Do you want to read more about Lewy Body? You can also read the

Thistle, the LBD Newsletter. Just click on:

>

> http://www.lewybodydementia.org

>

>

> Re: Carol/ LBD Symposium /Sharon

>

> Hi

> I'd like to add my 2 cents about the symposium. I was there and

want to

> thank Carol and her team for doing such a fantastic job in putting

this

> together.

> We had 2 speakers who informed about Lewy Body and what to expect.

We then

> had a panel to answer questions about our experiences and what we

did about it.

>

> I'll be honest, I didn't expect 150 people to come. There was even

an over

> flow list. Maybe next year we will need a bigger place. I hope

to be a

> little more involved next year.

>

> Thank You Coral Springs Medical Center also. They provided food

and drink

> and the room to hold this event.

>

> I finally met Sharon and that was a treat. She is something

else. With all

> her own problems she is the most active person I've ever met. I

don't think

> she knows how to sit still. She also helped me by reading a

tribute to my

> Mom that my daughter wrote. And her poem tells it like it is for

our LO's.

> Arts and crafts, poet....what other talents are you hiding? It

was GREAT to

> finally meet you.

>

> I hope this symposium inspires more people to get together and form

more

> support groups. Its not that this website isn't great, because it

is. Its just

> that there is nothing like sitting down face to face and talking

over

> problems.

>

> My best to all of you,

> Jacqui

>

>

>

[Guest guest]

Anne,

I hope you are reading all about the group that is meeting there in Feb.

Courage will be helpful if you didn't find the messages. Otherwise introduce

yourself and I am sure they will welcome you with open arms.

Let me know.

Donna R

Do you want to read more about Lewy Body? You can also read the Thistle, the

LBD Newsletter. Just click on:

http://www.lewybodydementia.org

Re: Carol/ LBD Symposium /Sharon

>

> Hi

> I'd like to add my 2 cents about the symposium. I was there and

want to

> thank Carol and her team for doing such a fantastic job in putting

this

> together.

> We had 2 speakers who informed about Lewy Body and what to expect.

We then

> had a panel to answer questions about our experiences and what we

did about it.

>

> I'll be honest, I didn't expect 150 people to come. There was even

an over

> flow list. Maybe next year we will need a bigger place. I hope

to be a

> little more involved next year.

>

> Thank You Coral Springs Medical Center also. They provided food

and drink

> and the room to hold this event.

>

> I finally met Sharon and that was a treat. She is something

else. With all

> her own problems she is the most active person I've ever met. I

don't think

> she knows how to sit still. She also helped me by reading a

tribute to my

> Mom that my daughter wrote. And her poem tells it like it is for

our LO's.

> Arts and crafts, poet....what other talents are you hiding? It

was GREAT to

> finally meet you.

>

> I hope this symposium inspires more people to get together and form

more

> support groups. Its not that this website isn't great, because it

is. Its just

> that there is nothing like sitting down face to face and talking

over

> problems.

>

> My best to all of you,

> Jacqui

>

>

>