Guest guest Posted January 1, 2006 Report Share Posted January 1, 2006 Hi - Are you in Canada? The end stages for my dad changed. He went from being immobile, and incontinent to being mobile and using the restroom the night before he passed away. He had stopped eating a couple of weeks before he pased away and didn't even take in any liquids. He may have taken in less than a half a cup of a chocolate nutrition drink in those two weeks but not all at one time, nothing else though. He was so very thin, skin on bones. He had dark circles under his eyes and a dark film in his mouth. His eyes were still bright and blue and spoke volumes. His arms and hands were contorted and bent, very stiff and rigid. He didn't talk for the last 2 1/2 years of his life especially in the last few months, not even a yes or no. He had been taking Ativan for quite some time before I realized it was so bad for him and I had it stopped. I know that is what progressed his LBD beyond turning back. There was no helping him after taking Ativan. My dad went very peacefully and without struggle. I wasn't with him but we did have a distant family member/ nurse that was there and told me how dad went. Please let me know if there are any other questions you have. Blessing to you- Sandie -- End Stages Could someone tell me their experience with the end stages? What happeneds in the end stages? I know it is different for most....but my mother passed away with LBD and I feel that I may have helped contribute to her death by not understanding exactly what was going on. It might help me if I know how the end stage was for someone else. Thank you, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2006 Report Share Posted January 1, 2006 -- Hello Sandie, No I am in Pa. My mother was also skin and bones and not talking. I did spend the last 14 days of her life round the clock with her but it still is hard. The meds are nightmares and helps in making me feel that it is my fault because she also was on Ativan for a while. What a nightmare. God be with you and thank you for responding. - In LBDcaregivers , " Sandie " <sanclown@j...> wrote: > > Hi - > > Are you in Canada? > > The end stages for my dad changed. He went from being > immobile, and incontinent to being mobile and using the > restroom the night before he passed away. He had > stopped eating a couple of weeks before he pased away > and didn't even take in any liquids. He may have taken > in less than a half a cup of a chocolate nutrition drink > in those two weeks but not all at one time, nothing else > though. He was so very thin, skin on bones. He had > dark circles under his eyes and a dark film in his mouth. > His eyes were still bright and blue and spoke volumes. > His arms and hands were contorted and bent, very > stiff and rigid. He didn't talk for the last 2 1/2 years of > his life especially in the last few months, not even a > yes or no. He had been taking Ativan for quite some time > before I realized it was so bad for him and I had it stopped. > I know that is what progressed his LBD beyond turning > back. There was no helping him after taking Ativan. > My dad went very peacefully and without struggle. I > wasn't with him but we did have a distant family member/ > nurse that was there and told me how dad went. > > Please let me know if there are any other questions > you have. > > Blessing to you- > Sandie > > -- End Stages > > Could someone tell me their experience with the end stages? What > happeneds in the end stages? I know it is different for most....but my > mother passed away with LBD and I feel that I may have helped > contribute to her death by not understanding exactly what was going on. > It might help me if I know how the end stage was for someone else. > > Thank you, > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2006 Report Share Posted January 1, 2006 Hi - A dear member who was caregiver to her husband once said... " We are only responsible for the effort, not the result. " Your heart was in the right place, you loved your mom and did all you could to help her through her journey. There is not room for guilt there. I do know it is hard to deal with and I understand your emotions. Please know that you are not responsible for the result of your mom's passing. With hugs- Sandie -- End Stages > > Could someone tell me their experience with the end stages? What > happeneds in the end stages? I know it is different for most....but my > mother passed away with LBD and I feel that I may have helped > contribute to her death by not understanding exactly what was going on. > It might help me if I know how the end stage was for someone else. > > Thank you, > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2006 Report Share Posted January 1, 2006 kaqren, ativan is the drug of choice in many hospitals/physicans offices when they want to calm someone down. and even the lbd doc we went here said that what is good for one patient can be disastrous for another patient and he tried meds slow and one at a time, but when i finally heard the words lewy body disease i researched and researched as i had my laptop in the hosp with us. but dad had been on trazadone and ativan in 93 when he had his first major hallucination issues, but my dad hated meds and unless his sister supervised him he would not take them or would spit them out. would your mom be saying to you, honey you did the best you can, i love you for what you did for me and how you helped or would she be chastizing you for sometihng you didnt know, hmmmm anyh bets anyone. i thought so, i bet yhour mom would thankyou for trying everything you could and taking care of her. dont you think??? hugs sharon -- End Stages > > Could someone tell me their experience with the end stages? What > happeneds in the end stages? I know it is different for most....but my > mother passed away with LBD and I feel that I may have helped > contribute to her death by not understanding exactly what was going on. > It might help me if I know how the end stage was for someone else. > > Thank you, > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 1, 2006 Report Share Posted January 1, 2006 -Thank you Sandie, I was doing ok for a while then it all just hit like a ton of bricks all over again. -- In LBDcaregivers , " Sandie " <sanclown@j...> wrote: > > Hi - > > A dear member who was caregiver to her husband once > said... " We are only responsible for the effort, not the > result. " Your heart was in the right place, you loved your > mom and did all you could to help her through her journey. > There is not room for guilt there. I do know it is hard to > deal with and I understand your emotions. Please know > that you are not responsible for the result of your mom's > passing. > > With hugs- > Sandie > > -- End Stages > > > > Could someone tell me their experience with the end stages? What > > happeneds in the end stages? I know it is different for > most....but my > > mother passed away with LBD and I feel that I may have helped > > contribute to her death by not understanding exactly what was going > on. > > It might help me if I know how the end stage was for someone else. > > > > Thank you, > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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