Re: Reflux/ Senna and FAO Vicky

[Guest guest]

I don't think so as it works in a different way

Mx

Hi

I use oxypowder every day for Luke (1 cap as a maintenance dose) – could this cause problems or is this inert too?

Nicola

From: Autism-Biomedical-Europe [mailto:Autism-Biomedical-Europe ] On Behalf Of Tracey ClewerSent: 28 July 2011 16:37To: Autism-Biomedical-Europe Subject: Re: Re: Reflux/ Senna and FAO Vicky

Margaret makes a really valuable point that most laxative/ suppositories are great very occasionally, however they quickly stop the necessary reflexes etc from working and can create serious bowel issues.

The reason I suggested diatom-x is that it is totally inert so it has not toxic effects on the body and by helping to detox and cleanse the colon, in time the digestive and bowel systems become much healthier.

Best Wishes

Tracey

Senna worked well with Henry for a while, then he got used to it and his bowel stopped responding. The thing to do is not to use any one thing for too long. Henry still has a sluggish bowel, I think. (NB: Movicol is definitely not the right thing to use with a sluggish bowel - local doctors and the PCT's constipation service had Henry on more and more o f it, although I said all along the problem wasn't that the stool was hard and I repeatedly questioned whether a stool softener was approppriate. The C & W docs (several years down the line of worse than useless medical advice from the local people we eventually got an out of arrea referral to them) said Movicol was the wrong thing and was not giving H the signal that he needed to "go". We got H to use the loo finally only with the use of Bisocodyl suppositories, which you can buy in the chemist. In both cases the things that helped H's constipation were things we had used independently without doctor's advice. Professionals in this country are apparently phobic about suppositories, but had we not used them, H would still either be soiling 10x a day or he would have had a colostomy... we were offered a colostomy by Addenbrooke's and this was the impetus for us to use suppositories.)Margaret

>> Just got back from seeing Dr Fell at Chelsea and Westminster and he thinks Harry has reflux and heartburn and has precribed Ranitidine. Think Harry has been suffering from this for some time and Dr Fell says it could be an after effect of a bout of constipation that we have just got through. Does Ranitidine work?> > Dont like giving him medication but also cannot sit back and let him suffer. Spoke to Kirsty earlier and she said Vicky is an expert in reflux so if your out there Vicky, any advice would be great. Infact, any advice from anyone!!> > Dr Fell also thinks that Harry's bowel muscles not relaxing enough for him to go so thinks he needs a boast with Senna. Just worry about it causing stomach cramps but also consious about getting his bowels moving on their own. Has anyone had good results from this?> > Kerryx>

[Guest guest]

Dear KerryI think that both of these might be addressed and improved by using diatomaceous earth.. diatom=x  at a dose of at least one teaspoon a day.I returned from seeing Scotson at Advance yesterday .. she treats really ill and severely disabled children with really complex needs and very sensitive digestive systems. She has been prescribing Diatom-x for a few months now and all her patients are making big gains.

My own 16 week old granddaughter will be starting on it tomorrow.. as she has already got big constipation problems and colic, bloating and reflux.. so I will keep the group up to date on how she is doing.l

Best WishesTracey

 

Just got back from seeing Dr Fell at Chelsea and Westminster and he thinks Harry has reflux and heartburn and has precribed Ranitidine. Think Harry has been suffering from this for some time and Dr Fell says it could be an after effect of a bout of constipation that we have just got through. Does Ranitidine work?

Dont like giving him medication but also cannot sit back and let him suffer. Spoke to Kirsty earlier and she said Vicky is an expert in reflux so if your out there Vicky, any advice would be great. Infact, any advice from anyone!!

Dr Fell also thinks that Harry's bowel muscles not relaxing enough for him to go so thinks he needs a boast with Senna. Just worry about it causing stomach cramps but also consious about getting his bowels moving on their own. Has anyone had good results from this?

Kerryx

[Guest guest]

Dear KerryI think that both of these might be addressed and improved by using diatomaceous earth.. diatom=x  at a dose of at least one teaspoon a day.I returned from seeing Scotson at Advance yesterday .. she treats really ill and severely disabled children with really complex needs and very sensitive digestive systems. She has been prescribing Diatom-x for a few months now and all her patients are making big gains.

My own 16 week old granddaughter will be starting on it tomorrow.. as she has already got big constipation problems and colic, bloating and reflux.. so I will keep the group up to date on how she is doing.l

Best WishesTracey

 

Just got back from seeing Dr Fell at Chelsea and Westminster and he thinks Harry has reflux and heartburn and has precribed Ranitidine. Think Harry has been suffering from this for some time and Dr Fell says it could be an after effect of a bout of constipation that we have just got through. Does Ranitidine work?

Dont like giving him medication but also cannot sit back and let him suffer. Spoke to Kirsty earlier and she said Vicky is an expert in reflux so if your out there Vicky, any advice would be great. Infact, any advice from anyone!!

Dr Fell also thinks that Harry's bowel muscles not relaxing enough for him to go so thinks he needs a boast with Senna. Just worry about it causing stomach cramps but also consious about getting his bowels moving on their own. Has anyone had good results from this?

Kerryx

[Guest guest]

Senna worked well with Henry for a while, then he got used to it and his bowel

stopped responding. The thing to do is not to use any one thing for too long.

Henry still has a sluggish bowel, I think.

(NB: Movicol is definitely not the right thing to use with a sluggish bowel -

local doctors and the PCT's constipation service had Henry on more and more of

it, although I said all along the problem wasn't that the stool was hard and I

repeatedly questioned whether a stool softener was approppriate. The C & W docs

(several years down the line of worse than useless medical advice from the local

people we eventually got an out of arrea referral to them) said Movicol was the

wrong thing and was not giving H the signal that he needed to " go " . We got H to

use the loo finally only with the use of Bisocodyl suppositories, which you can

buy in the chemist. In both cases the things that helped H's constipation were

things we had used independently without doctor's advice. Professionals in this

country are apparently phobic about suppositories, but had we not used them, H

would still either be soiling 10x a day or he would have had a colostomy... we

were offered a colostomy by Addenbrooke's and this was the impetus for us to use

suppositories.)

Margaret

>

> Just got back from seeing Dr Fell at Chelsea and Westminster and he thinks

Harry has reflux and heartburn and has precribed Ranitidine. Think Harry has

been suffering from this for some time and Dr Fell says it could be an after

effect of a bout of constipation that we have just got through. Does Ranitidine

work?

>

> Dont like giving him medication but also cannot sit back and let him suffer.

Spoke to Kirsty earlier and she said Vicky is an expert in reflux so if your out

there Vicky, any advice would be great. Infact, any advice from anyone!!

>

> Dr Fell also thinks that Harry's bowel muscles not relaxing enough for him to

go so thinks he needs a boast with Senna. Just worry about it causing stomach

cramps but also consious about getting his bowels moving on their own. Has

anyone had good results from this?

>

> Kerryx

>

[Guest guest]

hi kerry we had some good results with senna, we use a capsule from nutri

centre called senna leaf by bioheath 400mg as well as occasional suppository

when he is dehydrated particularly in sch. terms,Isobel

>

> Just got back from seeing Dr Fell at Chelsea and Westminster and he thinks

Harry has reflux and heartburn and has precribed Ranitidine. Think Harry has

been suffering from this for some time and Dr Fell says it could be an after

effect of a bout of constipation that we have just got through. Does Ranitidine

work?

>

> Dont like giving him medication but also cannot sit back and let him suffer.

Spoke to Kirsty earlier and she said Vicky is an expert in reflux so if your out

there Vicky, any advice would be great. Infact, any advice from anyone!!

>

> Dr Fell also thinks that Harry's bowel muscles not relaxing enough for him to

go so thinks he needs a boast with Senna. Just worry about it causing stomach

cramps but also consious about getting his bowels moving on their own. Has

anyone had good results from this?

>

> Kerryx

>

[Guest guest]

Hi I use oxypowder every day for Luke (1 cap as a maintenance dose) – could this cause problems or is this inert too? Nicola From: Autism-Biomedical-Europe [mailto:Autism-Biomedical-Europe ] On Behalf Of Tracey ClewerSent: 28 July 2011 16:37To: Autism-Biomedical-Europe Subject: Re: Re: Reflux/ Senna and FAO Vicky Margaret makes a really valuable point that most laxative/ suppositories are great very occasionally, however they quickly stop the necessary reflexes etc from working and can create serious bowel issues. The reason I suggested diatom-x is that it is totally inert so it has not toxic effects on the body and by helping to detox and cleanse the colon, in time the digestive and bowel systems become much healthier. Best Wishes Tracey Senna worked well with Henry for a while, then he got used to it and his bowel stopped responding. The thing to do is not to use any one thing for too long. Henry still has a sluggish bowel, I think. (NB: Movicol is definitely not the right thing to use with a sluggish bowel - local doctors and the PCT's constipation service had Henry on more and more of it, although I said all along the problem wasn't that the stool was hard and I repeatedly questioned whether a stool softener was approppriate. The C & W docs (several years down the line of worse than useless medical advice from the local people we eventually got an out of arrea referral to them) said Movicol was the wrong thing and was not giving H the signal that he needed to " go " . We got H to use the loo finally only with the use of Bisocodyl suppositories, which you can buy in the chemist. In both cases the things that helped H's constipation were things we had used independently without doctor's advice. Professionals in this country are apparently phobic about suppositories, but had we not used them, H would still either be soiling 10x a day or he would have had a colostomy... we were offered a colostomy by Addenbrooke's and this was the impetus for us to use suppositories.)Margaret>> Just got back from seeing Dr Fell at Chelsea and Westminster and he thinks Harry has reflux and heartburn and has precribed Ranitidine. Think Harry has been suffering from this for some time and Dr Fell says it could be an after effect of a bout of constipation that we have just got through. Does Ranitidine work?> > Dont like giving him medication but also cannot sit back and let him suffer. Spoke to Kirsty earlier and she said Vicky is an expert in reflux so if your out there Vicky, any advice would be great. Infact, any advice from anyone!!> > Dr Fell also thinks that Harry's bowel muscles not relaxing enough for him to go so thinks he needs a boast with Senna. Just worry about it causing stomach cramps but also consious about getting his bowels moving on their own. Has anyone had good results from this?> > Kerryx>

[Guest guest]

Hi Tracey,Re. Diatom Earth could the bowel become reliant on that too? I understand what you say about no toxins in it but am thinking does it artificially stimulate the bowel, ie by irritating the lining so that eventually the bowel stops knowing how to do this itself? Or does d. earth work in a different way do you know?That's always been one of my worries with long-term use of laxatives - we use lactolose and senna at the moment but have heard the bowel does get use to senna over time and stop working itself - like many others we have to use laxatives long-term.JanetTo: Autism-Biomedical-Europe From: Mum231ASD@...Date: Thu, 28 Jul 2011 14:06:32 -0400Subject: Re: Re: Reflux/ Senna and FAO Vicky

I don't think so as it works in a different way

Mx

Hi

I use oxypowder every day for Luke (1 cap as a maintenance dose) – could this cause problems or is this inert too?

Nicola

From: Autism-Biomedical-Europe [mailto:Autism-Biomedical-Europe ] On Behalf Of Tracey ClewerSent: 28 July 2011 16:37To: Autism-Biomedical-Europe Subject: Re: Re: Reflux/ Senna and FAO Vicky

Margaret makes a really valuable point that most laxative/ suppositories are great very occasionally, however they quickly stop the necessary reflexes etc from working and can create serious bowel issues.

The reason I suggested diatom-x is that it is totally inert so it has not toxic effects on the body and by helping to detox and cleanse the colon, in time the digestive and bowel systems become much healthier.

Best Wishes

Tracey

Senna worked well with Henry for a while, then he got used to it and his bowel stopped responding. The thing to do is not to use any one thing for too long. Henry still has a sluggish bowel, I think. (NB: Movicol is definitely not the right thing to use with a sluggish bowel - local doctors and the PCT's constipation service had Henry on more and more o f it, although I said all along the problem wasn't that the stool was hard and I repeatedly questioned whether a stool softener was approppriate. The C & W docs (several years down the line of worse than useless medical advice from the local people we eventually got an out of arrea referral to them) said Movicol was the wrong thing and was not giving H the signal that he needed to "go". We got H to use the loo finally only with the use of Bisocodyl suppositories, which you can buy in the chemist. In both cases the things that helped H's constipation were things we had used independently without doctor's advice. Professionals in this country are apparently phobic about suppositories, but had we not used them, H would still either be soiling 10x a day or he would have had a colostomy... we were offered a colostomy by Addenbrooke's and this was the impetus for us to use suppositories.)Margaret

>> Just got back from seeing Dr Fell at Chelsea and Westminster and he thinks Harry has reflux and heartburn and has precribed Ranitidine. Think Harry has been suffering from this for some time and Dr Fell says it could be an after effect of a bout of constipation that we have just got through. Does Ranitidine work?> > Dont like giving him medication but also cannot sit back and let him suffer. Spoke to Kirsty earlier and she said Vicky is an expert in reflux so if your out there Vicky, any advice would be great. Infact, any advice from anyone!!> > Dr Fell also thinks that Harry's bowel muscles not relaxing enough for him to go so thinks he needs a boast with Senna. Just worry about it causing stomach cramps but also consious about getting his bowels moving on their own. Has anyone had good results from this?> > Kerryx>

[Guest guest]

Diatomaceous earth is very different.. it is a bit like adding fibre to the diet.. without the problems fibre can cause sensitive colons.. I do not think that it would cause problems if used long term... and it is easy to step back from using it for a few days if you choose.

I would not touch lactolose. my granddaughter was prescribed it and her Mum decided to try it on herself before hand.. Mum found that it made her feel bloated and gave her massive tummy gripes and pains.. so she threw it away.

Oxypowder is really good. I think that the mag oxide in it absorbs a lot of liquid so that it bulks up and helps to transit foods through the colon.. It is a brilliant way to solve a problem, however I cannot say if long term use would cause the bowel to become less effective, but I do believe that it works differently to Senna or movicol or other things.. so it is much better than them. Mag ox is fairly inert.. and is used by gymnasts to powder their hands before doing their routines as it absorbs the moisture on their hands and stops them slipping!!  and if it was a toxin... they would not be able to use it.. it would mess with their dope testing!!

Best WishesTracey

 

Hi Tracey,Re. Diatom Earth could the bowel become reliant on that too? I understand what you say about no toxins in it but am thinking does it artificially stimulate the bowel, ie by irritating the lining so that eventually the bowel stops knowing how to do this itself?  Or does d. earth work in a different way do you know?That's always been one of my worries with long-term use of laxatives - we use lactolose and senna at the moment but have heard the bowel does get use to senna over time and stop working itself - like many others we have to use laxatives long-term.

JanetTo: Autism-Biomedical-Europe From: Mum231ASD@...

Date: Thu, 28 Jul 2011 14:06:32 -0400Subject: Re: Re: Reflux/ Senna and FAO Vicky

 

I don't think so as it works in a different way

 

Mx

 

 

Hi

I use oxypowder every day for Luke (1 cap as a maintenance dose) – could this cause problems or is this inert too?

Nicola

From: Autism-Biomedical-Europe [mailto:Autism-Biomedical-Europe ] On Behalf Of Tracey ClewerSent: 28 July 2011 16:37To: Autism-Biomedical-Europe Subject: Re: Re: Reflux/ Senna and FAO Vicky

 

Margaret makes a really valuable point that most laxative/ suppositories are great very occasionally, however they quickly stop the necessary reflexes etc from working and can create serious bowel issues.

The reason I suggested diatom-x is that it is totally inert so it has not toxic effects on the body and by helping to detox and cleanse the colon, in time the digestive and bowel systems become much healthier.

Best Wishes

Tracey

 

Senna worked well with Henry for a while, then he got used to it and his bowel stopped responding. The thing to do is not to use any one thing for too long. Henry still has a sluggish bowel, I think. (NB: Movicol is definitely not the right thing to use with a sluggish bowel - local doctors and the PCT's constipation service had Henry on more and more o f it, although I said all along the problem wasn't that the stool was hard and I repeatedly questioned whether a stool softener was approppriate. The C & W docs (several years down the line of worse than useless medical advice from the local people we eventually got an out of arrea referral to them) said Movicol was the wrong thing and was not giving H the signal that he needed to " go " . We got H to use the loo finally only with the use of Bisocodyl suppositories, which you can buy in the chemist. In both cases the things that helped H's constipation were things we had used independently without doctor's advice. Professionals in this country are apparently phobic about suppositories, but had we not used them, H would still either be soiling 10x a day or he would have had a colostomy... we were offered a colostomy by Addenbrooke's and this was the impetus for us to use suppositories.)Margaret

>> Just got back from seeing Dr Fell at Chelsea and Westminster and he thinks Harry has reflux and heartburn and has precribed Ranitidine. Think Harry has been suffering from this for some time and Dr Fell says it could be an after effect of a bout of constipation that we have just got through. Does Ranitidine work?> > Dont like giving him medication but also cannot sit back and let him suffer. Spoke to Kirsty earlier and she said Vicky is an expert in reflux so if your out there Vicky, any advice would be great. Infact, any advice from anyone!!> > Dr Fell also thinks that Harry's bowel muscles not relaxing enough for him to go so thinks he needs a boast with Senna. Just worry about it causing stomach cramps but also consious about getting his bowels moving on their own. Has anyone had good results from this?> > Kerryx>

[Guest guest]

Thanks for reply. Yes i agree oxy-powder works great but the problem is the taste!! -my 2 can't take it unfortunately because of this (have tried all ways of masking taste), ideally they could do with making a flavoured one, would solve alot of probs. here.JanetTo: Autism-Biomedical-Europe From: thelifechangers@...Date: Thu, 28 Jul 2011 22:04:41 +0100Subject: Re: Re: Reflux/ Senna and FAO Vicky

Diatomaceous earth is very different.. it is a bit like adding fibre to the diet.. without the problems fibre can cause sensitive colons... I do not think that it would cause problems if used long term... and it is easy to step back from using it for a few days if you choose.

I would not touch lactolose. my granddaughter was prescribed it and her Mum decided to try it on herself before hand.. Mum found that it made her feel bloated and gave her massive tummy gripes and pains.. so she threw it away.

Oxypowder is really good. I think that the mag oxide in it absorbs a lot of liquid so that it bulks up and helps to transit foods through the colon.. It is a brilliant way to solve a problem, however I cannot say if long term use would cause the bowel to become less effective, but I do believe that it works differently to Senna or movicol or other things.. so it is much better than them. Mag ox is fairly inert.. and is used by gymnasts to powder their hands before doing their routines as it absorbs the moisture on their hands and stops them slipping!! and if it was a toxin... they would not be able to use it.. it would mess with their dope testing!!

Best WishesTracey

Hi Tracey,Re. Diatom Earth could the bowel become reliant on that too? I understand what you say about no toxins in it but am thinking does it artificially stimulate the bowel, ie by irritating the lining so that eventually the bowel stops knowing how to do this itself? Or does d. earth work in a different way do you know?That's always been one of my worries with long-term use of laxatives - we use lactolose and senna at the moment but have heard the bowel does get use to senna over time and stop working itself - like many others we have to use laxatives long-term.

JanetTo: Autism-Biomedical-Europe From: Mum231ASD@...

Date: Thu, 28 Jul 2011 14:06:32 -0400Subject: Re: Re: Reflux/ Senna and FAO Vicky

I don't think so as it works in a different way

Mx

Hi

I use oxypowder every day for Luke (1 cap as a maintenance dose) – could this cause problems or is this inert too?

Nicola

From: Autism-Biomedical-Europe [mailto:Autism-Biomedical-Europe ] On Behalf Of Tracey ClewerSent: 28 July 2011 16:37To: Autism-Biomedical-Europe Subject: Re: Re: Reflux/ Senna and FAO Vicky

Margaret makes a really valuable point that most laxative/ suppositories are great very occasionally, however they quickly stop the necessary reflexes etc from working and can create serious bowel issues.

The reason I suggested diatom-x is that it is totally inert so it has not toxic effects on the body and by helping to detox and cleanse the colon, in time the digestive and bowel systems become much healthier.

Best Wishes

Tracey

Senna worked well with Henry for a while, then he got used to it and his bowel stopped responding. The thing to do is not to use any one thing for too long. Henry still has a sluggish bowel, I think. (NB: Movicol is definitely not the right thing to use with a sluggish bowel - local doctors and the PCT's constipation service had Henry on more and more o f it, although I said all along the problem wasn't that the stool was hard and I repeatedly questioned whether a stool softener was approppriate. The C & W docs (several years down the line of worse than useless medical advice from the local people we eventually got an out of arrea referral to them) said Movicol was the wrong thing and was not giving H the signal that he needed to "go". We got H to use the loo finally only with the use of Bisocodyl suppositories, which you can buy in the chemist. In both cases the things that helped H's constipation were things we had used independently without doctor's advice. Professionals in this country are apparently phobic about suppositories, but had we not used them, H would still either be soiling 10x a day or he would have had a colostomy... we were offered a colostomy by Addenbrooke's and this was the impetus for us to use suppositories.)Margaret

>> Just got back from seeing Dr Fell at Chelsea and Westminster and he thinks Harry has reflux and heartburn and has precribed Ranitidine. Think Harry has been suffering from this for some time and Dr Fell says it could be an after effect of a bout of constipation that we have just got through. Does Ranitidine work?> > Dont like giving him medication but also cannot sit back and let him suffer. Spoke to Kirsty earlier and she said Vicky is an expert in reflux so if your out there Vicky, any advice would be great. Infact, any advice from anyone!!> > Dr Fell also thinks that Harry's bowel muscles not relaxing enough for him to go so thinks he needs a boast with Senna. Just worry about it causing stomach cramps but also consious about getting his bowels moving on their own. Has anyone had good results from this?> > Kerryx>

[Guest guest]

Kerry,

It's my experience that everyone I've known who suffers from reflux has low

stomach acid. It's incredibly common in ASD kids. As a long term solution, you

may want to look at boosting stomach acid. It's not curative, but we've found

that Betaine HCl with pepsin works well, as well as ensuring enough enzyme

intake.

We've found that oxypowder in some sort of maintenance dose can also work well

for constipation. DS is not reliant on it, but we do have ups and downs.

Anita

>

> Just got back from seeing Dr Fell at Chelsea and Westminster and he thinks

Harry has reflux and heartburn and has precribed Ranitidine. Think Harry has

been suffering from this for some time and Dr Fell says it could be an after

effect of a bout of constipation that we have just got through. Does Ranitidine

work?

>

> Dont like giving him medication but also cannot sit back and let him suffer.

Spoke to Kirsty earlier and she said Vicky is an expert in reflux so if your out

there Vicky, any advice would be great. Infact, any advice from anyone!!

>

> Dr Fell also thinks that Harry's bowel muscles not relaxing enough for him to

go so thinks he needs a boast with Senna. Just worry about it causing stomach

cramps but also consious about getting his bowels moving on their own. Has

anyone had good results from this?

>

> Kerryx

>

[Guest guest]

I would second everything Anita has said, if it were my child I wouldn't be looking at acid inhibitors.

has had reflux for almost as long as he has lived! He seems to be finally free of the scourge, it is such a painful condition. Initially we followed a very strict dietary regime, he had ACV with his meals for some time, sweetened with Manuka which also attacks any bacteria issues. No food late at night, no huge meals, little and often, ensure everything is chewed down, no gulping or rushing food, avoid spicey, rich or high carb foods, use enzymes with every meal, raised pillow at night time. also had leaky gut and inflamation which certainly didn't help matters. Not sure if you are saying your sons reflux has only come about as a result of a bout of constipation, but be aware this is by no means the only reason for reflux/heartburn, my lad had the runniest, gloopiest gut possible, no constipation whatsoever but still had very severe reflux.

Look on GERD websites for information on dietary restrictions and other natural suggestions to keep things moving.

HTH

Vicky

[Guest guest]

I would second everything Anita has said, if it were my child I wouldn't be looking at acid inhibitors.

has had reflux for almost as long as he has lived! He seems to be finally free of the scourge, it is such a painful condition. Initially we followed a very strict dietary regime, he had ACV with his meals for some time, sweetened with Manuka which also attacks any bacteria issues. No food late at night, no huge meals, little and often, ensure everything is chewed down, no gulping or rushing food, avoid spicey, rich or high carb foods, use enzymes with every meal, raised pillow at night time. also had leaky gut and inflamation which certainly didn't help matters. Not sure if you are saying your sons reflux has only come about as a result of a bout of constipation, but be aware this is by no means the only reason for reflux/heartburn, my lad had the runniest, gloopiest gut possible, no constipation whatsoever but still had very severe reflux.

Look on GERD websites for information on dietary restrictions and other natural suggestions to keep things moving.

HTH

Vicky

[Guest guest]

We have used various things in the past. The incontinence nurse can only

supply Movicol and Dulcolax. The Dulcolax seems to produce liquid poo in ds

after half tsp so not keen on that. Movicol I have only given a low dose which

has helped but not given long term.

I have used KIB 500 quite a few times and it did really make ds produce large

soft stools but couldn't afford to keep going with it.

I am now trying D Earth. Been on it almost a week, built up to 1 tbsp

now. Large poo every day but no more (but more than usual) feel like it is

starting to work better today. I have always used suppositories for ds, He

doesn't have a problem with them at all and I think that they give the right

feeling of wanting to go. He has been toilet trained in the last year (from age

11-12) and we are delighted how well he is doing.

He has very bloated tummy however and bowel x-ray last month showed moderate

loading still, hence the D Earth. We have done home enemas in the past but these

are a bit invasive now he is such a big lad. Kirsty did you say you knew

someone in Manchester that does colonics, on kids? Do they help? or just clear

out the lower part of the bowel?

Sal

> >

> > Just got back from seeing Dr

> Fell at Chelsea and Westminster and he thinks Harry has reflux and heartburn

> and has precribed Ranitidine. Think Harry has been suffering from this for

> some time and Dr Fell says it could be an after effect of a bout of

> constipation that we have just got through. Does Ranitidine work?

> >

>

> > Dont like giving him medication but also cannot sit back and let him

> suffer. Spoke to Kirsty earlier and she said Vicky is an expert in reflux so

> if your out there Vicky, any advice would be great. Infact, any advice from

> anyone!!

> >

> > Dr Fell also thinks that Harry's bowel muscles not

> relaxing enough for him to go so thinks he needs a boast with Senna. Just

> worry about it causing stomach cramps but also consious about getting his

> bowels moving on their own. Has anyone had good results from this?

> >

>

> > Kerryx

> >

>

[Guest guest]

Hi Vicky,

Thanks for getting back to me re reflux. H does have cyder vinegar before his

breakfast and dinner and has done for sometime now. Will increase it so its

before his lunch to. He does take a tablespoon of it now no problem on its own

without honey to sweeten. Is it best to add in the honey to to help with

bacteria, if so how much? Just worry about it feeding his yeast?

Will also order some Betaine HCI, which one do you use and how much of it do you

give before each meal? He is currently on 2 trienza before each meal.

The problem I have with H is that he does tend to gulp his drinks and food,and

go bouncing straight after eating so am working on slowing him down if I can.

He wont sleep on lots of pillows either.

Dr Fell thinks the reflux is caused by the latest bout of constipation, but I

actually think he has had it for some time and have noticed him growling and

belching alot in the last few weeks. Its so hard as he cant tell me being

nonverbal so I have to pull out all the stops to make sure he isn't suffering.

Are there any other signs that he has reflux?

I hope to start him on Diatom, does this help the reflux?

I have been on the GERD website and have stopped citrus fruit. He doesn't have

spicy food etc, but does like his dinner cooked in goose/duck fat or lard which

he craves, do you think this would aggravate the reflux?

Kerryx

>

> I would second everything Anita has said, if it were my child I wouldn't be

> looking at acid inhibitors.

> has had reflux for almost as long as he has lived! He seems to be

> finally free of the scourge, it is such a painful condition. Initially we

> followed a very strict dietary regime, he had ACV with his meals for some

> time, sweetened with Manuka which also attacks any bacteria issues. No

> food late at night, no huge meals, little and often, ensure everything is

> chewed down, no gulping or rushing food, avoid spicey, rich or high carb

foods,

> use enzymes with every meal, raised pillow at night time. also had

> leaky gut and inflamation which certainly didn't help matters. Not sure if

> you are saying your sons reflux has only come about as a result of a bout of

> constipation, but be aware this is by no means the only reason for

> reflux/heartburn, my lad had the runniest, gloopiest gut possible, no

constipation

> whatsoever but still had very severe reflux.

> Look on GERD websites for information on dietary restrictions and other

> natural suggestions to keep things moving.

> HTH

> Vicky

>

[Guest guest]

Hi Sal,

Like you the kib worked well before but is pretty expensive to keep going, I am

giving him senna at the mo with movicol to try and get him going but think I

will start on the diatom as dont know how much good the senna is doing, just

liquid coming out at the mo. I am dropping the movicol down slowly as think

this is not doing him much good. Dont want to start him on the diatom whilst on

the senna as think it would be to much.

I dont take H to a colinic in Manchester, we live down south. Would love to

take him to a colinic if I could find someone prepared to do it,but H wouldn't

keep still and I have been told that they need to keep completely still for them

to have it done.

Kerryx

> > >

> > > Just got back from seeing Dr

> > Fell at Chelsea and Westminster and he thinks Harry has reflux and

heartburn

> > and has precribed Ranitidine. Think Harry has been suffering from this for

> > some time and Dr Fell says it could be an after effect of a bout of

> > constipation that we have just got through. Does Ranitidine work?

> > >

> >

> > > Dont like giving him medication but also cannot sit back and let him

> > suffer. Spoke to Kirsty earlier and she said Vicky is an expert in reflux

so

> > if your out there Vicky, any advice would be great. Infact, any advice

from

> > anyone!!

> > >

> > > Dr Fell also thinks that Harry's bowel muscles not

> > relaxing enough for him to go so thinks he needs a boast with Senna. Just

> > worry about it causing stomach cramps but also consious about getting his

> > bowels moving on their own. Has anyone had good results from this?

> > >

> >

> > > Kerryx

> > >

> >

>

[Guest guest]

Email Maz (Marijana McCann). Think she uses someone up north. Not sure where

though. My geography not great :0)

K

xx

> > >

> > > Just got back from seeing Dr

> > Fell at Chelsea and Westminster and he thinks Harry has reflux and

heartburn

> > and has precribed Ranitidine. Think Harry has been suffering from this for

> > some time and Dr Fell says it could be an after effect of a bout of

> > constipation that we have just got through. Does Ranitidine work?

> > >

> >

> > > Dont like giving him medication but also cannot sit back and let him

> > suffer. Spoke to Kirsty earlier and she said Vicky is an expert in reflux

so

> > if your out there Vicky, any advice would be great. Infact, any advice

from

> > anyone!!

> > >

> > > Dr Fell also thinks that Harry's bowel muscles not

> > relaxing enough for him to go so thinks he needs a boast with Senna. Just

> > worry about it causing stomach cramps but also consious about getting his

> > bowels moving on their own. Has anyone had good results from this?

> > >

> >

> > > Kerryx

> > >

> >

>

[Guest guest]

Email Maz (Marijana McCann). Think she uses someone up north. Not sure where

though. My geography not great :0)

K

xx

> > >

> > > Just got back from seeing Dr

> > Fell at Chelsea and Westminster and he thinks Harry has reflux and

heartburn

> > and has precribed Ranitidine. Think Harry has been suffering from this for

> > some time and Dr Fell says it could be an after effect of a bout of

> > constipation that we have just got through. Does Ranitidine work?

> > >

> >

> > > Dont like giving him medication but also cannot sit back and let him

> > suffer. Spoke to Kirsty earlier and she said Vicky is an expert in reflux

so

> > if your out there Vicky, any advice would be great. Infact, any advice

from

> > anyone!!

> > >

> > > Dr Fell also thinks that Harry's bowel muscles not

> > relaxing enough for him to go so thinks he needs a boast with Senna. Just

> > worry about it causing stomach cramps but also consious about getting his

> > bowels moving on their own. Has anyone had good results from this?

> > >

> >

> > > Kerryx

> > >

> >

>

[Guest guest]

He will have to slow down when eating and not gulp, but even worse is to go bouncing straight after eating, do you mean on the trampoline? We just locked the back door after meals for at least an hour to stop doing that.

Can you gradually cut back on the fats he craves because it will almost certainly aggravate the reflux.

Sometimes changes have to be done very slowly.

is also non verbal but we could see him regurgitate and was very windy, have you seen him bring food up and then swallow it back down, or appear to be chewing something when he hasnt been given any food?

Vicky

Re: Reflux/ Senna and FAO Vicky

Hi Vicky,

Thanks for getting back to me re reflux. H does have cyder vinegar before his breakfast and dinner and has done for sometime now. Will increase it so its before his lunch to. He does take a tablespoon of it now no problem on its own without honey to sweeten. Is it best to add in the honey to to help with bacteria, if so how much? Just worry about it feeding his yeast?

Will also order some Betaine HCI, which one do you use and how much of it do you give before each meal? He is currently on 2 trienza before each meal.

The problem I have with H is that he does tend to gulp his drinks and food,and go bouncing straight after eating so am working on slowing him down if I can. He wont sleep on lots of pillows either.

Dr Fell thinks the reflux is caused by the latest bout of constipation, but I actually think he has had it for some time and have noticed him growling and belching alot in the last few weeks. Its so hard as he cant tell me being nonverbal so I have to pull out all the stops to make sure he isn't suffering. Are there any other signs that he has reflux?

I hope to start him on Diatom, does this help the reflux?

I have been on the GERD website and have stopped citrus fruit. He doesn't have spicy food etc, but does like his dinner cooked in goose/duck fat or lard which he craves, do you think this would aggravate the reflux?

Kerryx

>

> I would second everything Anita has said, if it were my child I wouldn't be

> looking at acid inhibitors.

> has had reflux for almost as long as he has lived! He seems to be

> finally free of the scourge, it is such a painful condition. Initially we

> followed a very strict dietary regime, he had ACV with his meals for some

> time, sweetened with Manuka which also attacks any bacteria issues. No

> food late at night, no huge meals, little and often, ensure everything is

> chewed down, no gulping or rushing food, avoid spicey, rich or high carb foods,

> use enzymes with every meal, raised pillow at night time. also had

> leaky gut and inflamation which certainly didn't help matters. Not sure if

> you are saying your sons reflux has only come about as a result of a bout of

> constipation, but be aware this is by no means the only reason for

> reflux/heartburn, my lad had the runniest, gloopiest gut possible, no constipation

> whatsoever but still had very severe reflux.

> Look on GERD websites for information on dietary restrictions and other

> natural suggestions to keep things moving.

> HTH

> Vicky

>

[Guest guest]

Hi vicky,

Your right, bouncing on the trampoline not good after a meal,another thing to

work on.

I have seen H chew when there is no food, so guess he is showing all the signs

of reflux.

His tummy still looks distended and guessing still lots of wind. Started him on

the diatom today and stopped the senna. Watch this space...He pood this eve,all

liquid, reducing down movicol though.

Kerryxv

> >

> > I would second everything Anita has said, if it were my child I wouldn't be

> > looking at acid inhibitors.

> > has had reflux for almost as long as he has lived! He seems to be

> > finally free of the scourge, it is such a painful condition. Initially we

> > followed a very strict dietary regime, he had ACV with his meals for some

> > time, sweetened with Manuka which also attacks any bacteria issues. No

> > food late at night, no huge meals, little and often, ensure everything is

> > chewed down, no gulping or rushing food, avoid spicey, rich or high carb

foods,

> > use enzymes with every meal, raised pillow at night time. also had

> > leaky gut and inflamation which certainly didn't help matters. Not sure if

> > you are saying your sons reflux has only come about as a result of a bout

of

> > constipation, but be aware this is by no means the only reason for

> > reflux/heartburn, my lad had the runniest, gloopiest gut possible, no

constipation

> > whatsoever but still had very severe reflux.

> > Look on GERD websites for information on dietary restrictions and other

> > natural suggestions to keep things moving.

> > HTH

> > Vicky

> >

>