--Mayo

[Guest guest]

Hi , Thanks.

I won't rule out a trip to Mayo, but we'll see what the team comes up

with first. Right now, just driving to Indianapolis is a big enough

job for us!

As this whole thing progresses, I am wondering how or if they are

going to find that Dercum's is related to the different types of

arthritis. They have already established a link with polycystic

ovarian syndrome (PCOS)and that PCOS is an autoimmune disease, so it

is very possible. And many of the symptoms of Dercum's are similar

to RA, with the joint involvement, fatigue, fever. I'll keep you

posted!

Judi

[Guest guest]

Judi,

Naturally, I don't know the details of the Mayo visits of those other

unfortunate people (when they went, what departments they visited, was

the multidisciplinary strategy employed or not, etc.), but I believe at

least a letter or phone call wouldn't hurt.

At Rochester they have 22 board-certified dermatologists and eight

disease interest groups. I didn't expect to see a Dercum's group (and

didn't), but, if they can't help you, perhaps they can direct you to

someone who can.

Mayo Clinic

Rochester, MN

Dermatology Disease Interest Groups

http://www.mayoclinic.org/dermatology-rst/interestgroups.html

Of course, they have many rheumatologists, neurologists, and oncologists

on hand, too.

Have you tried contacting those groups in Sweden?

I'll tell you where to go!

Mayo Clinic in Rochester

http://www.mayoclinic.org/rochester

s Hopkins Medicine

http://www.hopkinsmedicine.org

[ ] --Mayo

> Hi ,

>

> There were a couple of DD patients who tried Mayo Clinic, but they

> were totally in the dark about what to do. They prescribed pain meds

> for one lady, and when she went back a month later, they couldn't

> remember what the disease was all about.

>

> The lab doing the blood study is in England, and they're not really

> interested in studying live patients.

>

> guess this just gives me something to continue being useful for!

>

> Judi