Merry Christmas and Happy Holidays

[Guest guest]

I've been a member of this group for a couple of months now but mainly

I have just read the messages. However, you have already been both a

support and a help. My husband has LBD and I don't know what stage he

is in, but he can walk with great difficulty, he is sometimes very

articulate, but becoming increasingly infantile, and sometimes can do

very inappropriate things. Lately he seems to spend a lot of time

thinking about sex and saying things to strange women which verge on

embarrassing and insulting. He hates being the way he is and I feel

his hostility to me growing as he becomes more dependent, but I also

know he feels safe with me, and that is important. Right now my

biggest fear is that he will ultimately weigh me down so much that I

will get sick and not be able to care for him. It is strange to deal

with the fact that part of me longs to have this burden removed and at

the same time, I know how essential he is to me, and how empty my life

will become without him. Anyway, he and I have a long road to travel

together and knowing you all are out there is very comforting. Thank

you all for the support I know will be there every time I need it.

Dixie

[Guest guest]

hi my name is donna, i totally understand where u r coming from i only had my

mom for one month we are taking her home tommorrow back to pa. where we are

all originally from now reside in fla me and my 4 sisters are tossing her

around to hang in there as long as possible which we decided after the holidays

she definetly needs a full time nurse i keep telling my sisters that we not

capable of handeling this for much longer i only had for a month last yr

and 1 month this yr but i can not do this again on a full time basis right

now i am covered in hives/dermititis i look like i have the chicken pox.

totally stress related my stomach hurts alot and i feel like there is a truck

on my chest. and i wonder how i could take care of her without getting

myself very ill. i tell my sisters to get a full time nurse and when moms money

runs out (since she has a wooping 70K) the state has to step in and maybe we

can add to it to make sure she gets good care.

now im dealing with this at the same time my 15 yr old daughter got hit by a

truck riding on the back of a quad. that happend in aug and her fracture

tibia just wont heal and her thigh looks like a map with all the scars. i

cant do this or someone will be taken care of me. god bless u and my prayers

r with u talk soon donna d

minermatthey wrote: I've been a member of this group for a

couple of months now but mainly

I have just read the messages. However, you have already been both a

support and a help. My husband has LBD and I don't know what stage he

is in, but he can walk with great difficulty, he is sometimes very

articulate, but becoming increasingly infantile, and sometimes can do

very inappropriate things. Lately he seems to spend a lot of time

thinking about sex and saying things to strange women which verge on

embarrassing and insulting. He hates being the way he is and I feel

his hostility to me growing as he becomes more dependent, but I also

know he feels safe with me, and that is important. Right now my

biggest fear is that he will ultimately weigh me down so much that I

will get sick and not be able to care for him. It is strange to deal

with the fact that part of me longs to have this burden removed and at

the same time, I know how essential he is to me, and how empty my life

will become without him. Anyway, he and I have a long road to travel

together and knowing you all are out there is very comforting. Thank

you all for the support I know will be there every time I need it.

Dixie

Welcome to LBDcaregivers.

[Guest guest]

Dixie,

the most important rule of caregiving is to take care of yourself first,

so yhou can be a good caregiver. sounds like to me you need to contact

council of aging or elders affairs office and see if you qualify for some

respite care, you need a break you cannot due it 24/7 without burnout. i

hired someone for 20 hours a week to come in and stay with dad, sissy took

wonderful care of dad and loved him dearly, she is like our daughter now.

she gave me the break i needed to rest, shop, do whatever i had to do, so

you need to consider doing this, make phone calls dont stop at one, there

are programs out there, you just have to search for thiem. good luck and

happy holidays, sharon m

-- Merry Christmas and Happy Holidays

I've been a member of this group for a couple of months now but mainly

I have just read the messages. However, you have already been both a

support and a help. My husband has LBD and I don't know what stage he

is in, but he can walk with great difficulty, he is sometimes very

articulate, but becoming increasingly infantile, and sometimes can do

very inappropriate things. Lately he seems to spend a lot of time

thinking about sex and saying things to strange women which verge on

embarrassing and insulting. He hates being the way he is and I feel

his hostility to me growing as he becomes more dependent, but I also

know he feels safe with me, and that is important. Right now my

biggest fear is that he will ultimately weigh me down so much that I

will get sick and not be able to care for him. It is strange to deal

with the fact that part of me longs to have this burden removed and at

the same time, I know how essential he is to me, and how empty my life

will become without him. Anyway, he and I have a long road to travel

together and knowing you all are out there is very comforting. Thank

you all for the support I know will be there every time I need it.

Dixie

[Guest guest]

Dixie,

I think the sex stages applies in one way or another to this disease. Mom use

to disrobe at the nh, very unlike her

One solution that we have gleaned from the Alzheimers site if this happens to

you in public, is to hand out cards preprinted with words of your choice to the

effect

Please forgive my....father,husband, mom....he/she has dementia.

I always thought that would cover for a lot when it would maybe be difficult to

say something out loud. I learned it to late to use it.

Donna R

Do you want to read more about Lewy Body? You can also read the Thistle, the

LBD Newsletter. Just click on:

http://www.lewybodydementia.org

Merry Christmas and Happy Holidays

I've been a member of this group for a couple of months now but mainly

I have just read the messages. However, you have already been both a

support and a help. My husband has LBD and I don't know what stage he

is in, but he can walk with great difficulty, he is sometimes very

articulate, but becoming increasingly infantile, and sometimes can do

very inappropriate things. Lately he seems to spend a lot of time

thinking about sex and saying things to strange women which verge on

embarrassing and insulting. He hates being the way he is and I feel

his hostility to me growing as he becomes more dependent, but I also

know he feels safe with me, and that is important. Right now my

biggest fear is that he will ultimately weigh me down so much that I

will get sick and not be able to care for him. It is strange to deal

with the fact that part of me longs to have this burden removed and at

the same time, I know how essential he is to me, and how empty my life

will become without him. Anyway, he and I have a long road to travel

together and knowing you all are out there is very comforting. Thank

you all for the support I know will be there every time I need it.

Dixie

Welcome to LBDcaregivers.

[Guest guest]

minermatthey wrote: I've been a member of this group for a

couple of months now but mainly

I have just read the messages. However, you have already been both a

support and a help. My husband has LBD and I don't know what stage he

is in, but he can walk with great difficulty, he is sometimes very

articulate, but becoming increasingly infantile, and sometimes can do

very inappropriate things. Lately he seems to spend a lot of time

thinking about sex and saying things to strange women which verge on

embarrassing and insulting. He hates being the way he is and I feel

his hostility to me growing as he becomes more dependent, but I also

know he feels safe with me, and that is important. Right now my

biggest fear is that he will ultimately weigh me down so much that I

will get sick and not be able to care for him. It is strange to deal

with the fact that part of me longs to have this burden removed and at

the same time, I know how essential he is to me, and how empty my life

will become without him. Anyway, he and I have a long road to travel

together and knowing you all are out there is very comforting. Thank

you all for the support I know will be there every time I need it.

Dixie

Welcome to LBDcaregivers.

[Guest guest]

dixie,

my dad went thru a very sexual inappropriate stage,and alot of it was aimed

at me, he would call his friends and pimp me out, and worse than that at

times. it was the hardest part of the disease that i had to face, it lasted

about 1 year, and zoloft seemed to help control it a little. daddy didnt

go out in public, and the old saying, you hurt the ones you love the most,

certainly did fit in this situation. my only advise is, to have a business

card made up, saying that , i am sorry, my husband has dementia and

cannot control his actions or words, and discreetly hand it out to the

insultee so he cant see it. it wont ease the embarassment for you all that

much, but it will at least let the victim understand what is going on and

not to make an issue about it. hugs and good luck sharon m

-- Re: Merry Christmas and Happy Holidays

minermatthey wrote: I've been a member of this group for

a couple of months now but mainly

I have just read the messages. However, you have already been both a

support and a help. My husband has LBD and I don't know what stage he

is in, but he can walk with great difficulty, he is sometimes very

articulate, but becoming increasingly infantile, and sometimes can do

very inappropriate things. Lately he seems to spend a lot of time

thinking about sex and saying things to strange women which verge on

embarrassing and insulting. He hates being the way he is and I feel

his hostility to me growing as he becomes more dependent, but I also

know he feels safe with me, and that is important. Right now my

biggest fear is that he will ultimately weigh me down so much that I

will get sick and not be able to care for him. It is strange to deal

with the fact that part of me longs to have this burden removed and at

the same time, I know how essential he is to me, and how empty my life

will become without him. Anyway, he and I have a long road to travel

together and knowing you all are out there is very comforting. Thank

you all for the support I know will be there every time I need it.

Dixie

Welcome to LBDcaregivers.