Re: New poll for LBDcaregivers

[Guest guest]

On the other hand, My Uncle has 6 elder siblings that never had any signs of

dementia and two of them are older than him and still alive....driving yet!

(LOL) But, I agree with the anesthesia thingy....it always made my Uncle worse.

Note: His other siblings have all had major surgeries in later life and were

never affected by the anesthesia. The only big difference I have found is

that my Uncle had a very nasty " fall " on his head earlier in life and someone on

the message board mentioned something about occupational hazzard that rang a

bell but I will have to go over the emails and find out what that was.

* * * * * * *

Totally unreaserched and completely unsubstantiated but my own personal

opinion;

1. I think 'we' (humans) have a genetic predisposition to LBD. I think it

runs in my dad's side of the family - his uncle is dying of it now.

2. There is NO doubt in my mind that general anaesthetic accelerated my

dad's decline - and other drugs made it worse too.

Sally (UK)

[Guest guest]

.....that's it....chemical exposure! He had plenty of that in his work and in

the Navy!

* * * * * *

So for us - I think the chemical exposure (which others in the family did not

have) is what did it.

[Guest guest]

What about adding a none of the above option?

in Dallas

>

>

> Enter your vote today! A new poll has been created for the

> LBDcaregivers group:

>

> Group Question Poll: Do you think your Loved One's

>

> o LBD began with anesthesia/sleeping medications from surgery?

> o LBD began from Contact with Environmental Hazardous exposure

> o LBD is Genetic?

> o LBD began from war chemicals, such as; Agent Orange, Vaccines?

> o LBD began with an Occupational risk?

>

>

> To vote, please visit the following web page:

> http://groups.yahoo.com/group/LBDcaregivers/surveys?id=2104140

>

> Note: Please do not reply to this message. Poll votes are

> not collected via email. To vote, you must go to the Yahoo! Groups

> web site listed above.

>

> Thanks!

>

[Guest guest]

Quoting LBDcaregivers :

>

> Enter your vote today! A new poll has been created for the

> LBDcaregivers group:

>

> Group Question Poll: Do you think your Loved One's

>

> o LBD began with anesthesia/sleeping medications from surgery?

> o LBD began from Contact with Environmental Hazardous exposure

> o LBD is Genetic?

> o LBD began from war chemicals, such as; Agent Orange, Vaccines?

> o LBD began with an Occupational risk?

One thing ... this poll should allow for more than one answer or ranking of

answers.

In my Dad's case I believe initailly he was exposed to chemicals (he was

supervisor in dept of Parks and they worked with herbicides and pesticides all

the time).

However - the " trigger " was medication in the hospital - first Ativan

and then

Haldol which is what eventually did him in.

So I would say #5, then #2m, then #1, then #3 then #4

Do any of you feel this happened to you too ?

Donna

>

>

> To vote, please visit the following web page:

> http://groups.yahoo.com/group/LBDcaregivers/surveys?id=2104140

>

> Note: Please do not reply to this message. Poll votes are

> not collected via email. To vote, you must go to the Yahoo! Groups

> web site listed above.

>

> Thanks!

>

>

>

>

>

>

>

>

>

>

> Welcome to LBDcaregivers.

>

>

>

[Guest guest]

Totally unreaserched and completely unsubstantiated but my own personal

opinion;

1. I think 'we' (humans) have a genetic predisposition to LBD. I think it

runs in my dad's side of the family - his uncle is dying of it now.

2. There is NO doubt in my mind that general anaesthetic accelerated my

dad's decline - and other drugs made it worse too.

Sally (UK)

[Guest guest]

Quoting Mick and Sally Rodgers :

My Dad was the youngest of 5 brothers (he passed at 82 - his 87yo brother is

still doing fine ... others passed in their 90's !)... none of them had it.

So for us - I think the chemical exposure (which others in the family did not

have) is what did it.

Donna

> Totally unreaserched and completely unsubstantiated but my own personal

> opinion;

> 1. I think 'we' (humans) have a genetic predisposition to LBD. I think it

> runs in my dad's side of the family - his uncle is dying of it now.

> 2. There is NO doubt in my mind that general anaesthetic accelerated my

> dad's decline - and other drugs made it worse too.

> Sally (UK)

>

>

>

> Welcome to LBDcaregivers.

>

>

>

[Guest guest]

In 1992 Jim went in for back surgery, besides his back

lumbar problems, there were no others. He was

hallucinating badly when he came around after surgery

and woke up.

I had never seen him hallucinate before, but it made

sense that it was the medication that he was on, The

nurses said he was on Percaset, (Not sure of spelling)

and they needed to lower the dosage. The

hallucinations did go away, but one year later he was

diagnosed with Parkinsons and in 2000 the

hallucinations showed up with a vengence again, with

no changes in medication in 7 years and then all of a

sudden they showed up. Jim was on Sinemet from 1993 to

2000 with no hallucinations or any odd behaviors and

then all of a sudden they showed up. Jan

--- juperant@... wrote:

> On the other hand, My Uncle has 6 elder siblings

> that never had any signs of

> dementia and two of them are older than him and

> still alive....driving yet!

> (LOL) But, I agree with the anesthesia thingy....it

> always made my Uncle worse.

> Note: His other siblings have all had major

> surgeries in later life and were

> never affected by the anesthesia. The only big

> difference I have found is

> that my Uncle had a very nasty " fall " on his head

> earlier in life and someone on

> the message board mentioned something about

> occupational hazzard that rang a

> bell but I will have to go over the emails and find

> out what that was.

>

> * * * * * * *

>

>

> Totally unreaserched and completely unsubstantiated

> but my own personal

> opinion;

> 1. I think 'we' (humans) have a genetic

> predisposition to LBD. I think it

> runs in my dad's side of the family - his uncle is

> dying of it now.

> 2. There is NO doubt in my mind that general

> anaesthetic accelerated my

> dad's decline - and other drugs made it worse too.

> Sally (UK)

>

>

> [Non-text portions of this message have been

> removed]

>

>

__________________________________________________

[Guest guest]

When I talked yesterday about siblings with the disease, I said it wrong.

If a person has dementia, they may come from a family of more than 5 siblings.

It doesn't mean that all the siblings will necessarily have dementia. It means

that those with LBD/dementia come from bigger family..

Wonder if this is true? And also wonder if it is, what does the big family have

to do with it. My Mom came from a family of six siblings. At least Mom

(youngest) and 2 other sisters in very late life, (over 80) ended up with

dementia.

Donna R

Do you want to read more about Lewy Body? You can also read the Thistle, the

LBD Newsletter. Just click on:

http://www.lewybodydementia.org

Re: New poll for LBDcaregivers

On the other hand, My Uncle has 6 elder siblings that never had any signs of

dementia and two of them are older than him and still alive....driving yet!

(LOL) But, I agree with the anesthesia thingy....it always made my Uncle worse.

Note: His other siblings have all had major surgeries in later life and were

never affected by the anesthesia. The only big difference I have found is

that my Uncle had a very nasty " fall " on his head earlier in life and someone on

the message board mentioned something about occupational hazzard that rang a

bell but I will have to go over the emails and find out what that was.

* * * * * * *

Totally unreaserched and completely unsubstantiated but my own personal

opinion;

1. I think 'we' (humans) have a genetic predisposition to LBD. I think it

runs in my dad's side of the family - his uncle is dying of it now.

2. There is NO doubt in my mind that general anaesthetic accelerated my

dad's decline - and other drugs made it worse too.

Sally (UK)

[Guest guest]

Sally,

Hope you picked up the " new member " . He is from the UK..

Donna R

Do you want to read more about Lewy Body? You can also read the Thistle, the

LBD Newsletter. Just click on:

http://www.lewybodydementia.org

Re: New poll for LBDcaregivers

Totally unreaserched and completely unsubstantiated but my own personal

opinion;

1. I think 'we' (humans) have a genetic predisposition to LBD. I think it

runs in my dad's side of the family - his uncle is dying of it now.

2. There is NO doubt in my mind that general anaesthetic accelerated my

dad's decline - and other drugs made it worse too.

Sally (UK)

Welcome to LBDcaregivers.

[Guest guest]

Donna,

I agree with you. Depending on the question, I had a hard time answering.

If the question is when do I think it started? That is different from when was

the first time there were symptoms?

I to believe the chemicals that were part of the environment of the small town

my Mom came from was responsible for lots of the different sickness there. I

also believe the first symptoms I saw was after surgery.

Donna R

Do you want to read more about Lewy Body? You can also read the Thistle, the

LBD Newsletter. Just click on:

http://www.lewybodydementia.org

Re: New poll for LBDcaregivers

Quoting LBDcaregivers :

>

> Enter your vote today! A new poll has been created for the

> LBDcaregivers group:

>

> Group Question Poll: Do you think your Loved One's

>

> o LBD began with anesthesia/sleeping medications from surgery?

> o LBD began from Contact with Environmental Hazardous exposure

> o LBD is Genetic?

> o LBD began from war chemicals, such as; Agent Orange, Vaccines?

> o LBD began with an Occupational risk?

One thing ... this poll should allow for more than one answer or ranking of

answers.

In my Dad's case I believe initailly he was exposed to chemicals (he was

supervisor in dept of Parks and they worked with herbicides and pesticides all

the time).

However - the " trigger " was medication in the hospital - first Ativan

and then

Haldol which is what eventually did him in.

So I would say #5, then #2m, then #1, then #3 then #4

Do any of you feel this happened to you too ?

Donna

>

>

> To vote, please visit the following web page:

> http://groups.yahoo.com/group/LBDcaregivers/surveys?id=2104140

>

> Note: Please do not reply to this message. Poll votes are

> not collected via email. To vote, you must go to the Yahoo! Groups

> web site listed above.

>

> Thanks!

>

>

>

>

>

>

>

>

>

>

> Welcome to LBDcaregivers.

>

>

>

[Guest guest]

Mutli-siblings doesn't work for my mother, only one brother, no

chemicals and her first major melt down into the LBD world was before

being hospitalized and given Haldol (this made it worse). Although we

believe her father had AD (definately not LBD as very different from

Mum) we know of no other family members (related by blood) who had it.

Maybe my Mum is " the exception " ?

--- Donna Mido wrote:

---------------------------------

When I talked yesterday about siblings with the disease, I said it

wrong.

If a person has dementia, they may come from a family of more than 5

siblings. It doesn't mean that all the siblings will necessarily have

dementia. It means that those with LBD/dementia come from bigger

family..

Wonder if this is true? And also wonder if it is, what does the big

family have to do with it. My Mom came from a family of six siblings.

At least Mom (youngest) and 2 other sisters in very late life, (over

80) ended up with dementia.

Donna R

Do you want to read more about Lewy Body? You can also read the

Thistle, the LBD Newsletter. Just click on:

http://www.lewybodydementia.org

Re: New poll for LBDcaregivers

On the other hand, My Uncle has 6 elder siblings that never had any

signs of

dementia and two of them are older than him and still alive....driving

yet!

(LOL) But, I agree with the anesthesia thingy....it always made my

Uncle worse.

Note: His other siblings have all had major surgeries in later life

and were

never affected by the anesthesia. The only big difference I have found

is

that my Uncle had a very nasty " fall " on his head earlier in life and

someone on

the message board mentioned something about occupational hazzard that

rang a

bell but I will have to go over the emails and find out what that was.

* * * * * * *

Totally unreaserched and completely unsubstantiated but my own personal

opinion;

1. I think 'we' (humans) have a genetic predisposition to LBD. I think

it

runs in my dad's side of the family - his uncle is dying of it now.

2. There is NO doubt in my mind that general anaesthetic accelerated my

dad's decline - and other drugs made it worse too.

Sally (UK)

[Guest guest]

I found it difficult to complete the survey as well. My Mom does

not fit into any of the categories listed. Her symptoms began last

May when she had a very bad fall, hitting her head and knocking

herself out. It was never determined if she lost consciousness or

tripped or what but she has never been the same since.

We saw a dramatic change in her and within 4 months she began

exhibiting more and more of the LBD symptoms and was diagnosed at

the end of that 4 month period. She had sustained another fall

approx 7 months prior to that but not as serious as the one in May

2005.

All the doctors told us we may have " missed " Mom's sypmptoms for

perhaps years but all of us feel that is incorrect. We did not see

the PD shuffling gait and freqent falls, the fluctuating loss of

cognitive ability, nor the inability to function from time to time

until after that terrible fall in May 2005. Within just a few

months she went from being totally independent to now being in mid

stages of LBD.

This is such a dreadful disease. I pray with all of our help that a

cause and a cure will be found in the near future, for all of our

sakes. I pray it is not a genetic disease but many days I find

myself forgetting some things or losing a word or thought and

thinking, " OMG - I am becoming my Mother! "

Love and hugs to all in this wonderful support group.

Kathy S

[Guest guest]

Multi-siblings doesn't work here either. Uncle has 6 siblings, not one of

them have/had dementia except him. All are living or have lived past 80 and

still drove. Two are still alive, play cards every night and have a drink with

dinner, and still drive. He did briefly work around chemicals though (Navy),

anethesia made him worse, and certain meds make him crazy.

Mutli-siblings doesn't work for my mother, only one brother, no

chemicals and her first major melt down into the LBD world was before

being hospitalized and given Haldol (this made it worse). Although we

believe her father had AD (definately not LBD as very different from

Mum) we know of no other family members (related by blood) who had it.

Maybe my Mum is " the exception " ?

[Guest guest]

My dad (who has LBD) is an only child.

Right after his diagnosis when he was still fairly coherent, he told me that his

grandfather

had Parkinson's disease (I don't know if he ended up with dementia or not). That

was the

first time I'd heard that we had a trail of Parkinson's on his side of the

family.

My grandma on my mom's side (also an only child) had " essential tremor " but no

dementia. She had 8 children, of which I have one uncle with Parkinson's and my

mom has

essential tremor. All of my aunts/uncles on that side are 70 years or older and

none yet

with dementia...keeping my fingers crossed.

There are four of us in my family and I pray that with Parkinson's tendencies

from both

mom's and dad's families that none of us get LBD.

>

> When I talked yesterday about siblings with the disease, I said it wrong.

>

> If a person has dementia, they may come from a family of more than 5 siblings.

It

doesn't mean that all the siblings will necessarily have dementia. It means

that those with

LBD/dementia come from bigger family..

>

> Wonder if this is true? And also wonder if it is, what does the big family

have to do with

it. My Mom came from a family of six siblings. At least Mom (youngest) and 2

other

sisters in very late life, (over 80) ended up with dementia.

>

> Donna R

>

> Do you want to read more about Lewy Body? You can also read the Thistle, the

LBD

Newsletter. Just click on:

>

> http://www.lewybodydementia.org

>

>

> Re: New poll for LBDcaregivers

>

> On the other hand, My Uncle has 6 elder siblings that never had any signs of

> dementia and two of them are older than him and still alive....driving yet!

> (LOL) But, I agree with the anesthesia thingy....it always made my Uncle

worse.

> Note: His other siblings have all had major surgeries in later life and were

> never affected by the anesthesia. The only big difference I have found is

> that my Uncle had a very nasty " fall " on his head earlier in life and someone

on

> the message board mentioned something about occupational hazzard that rang a

> bell but I will have to go over the emails and find out what that was.

>

> * * * * * * *

>

>

> Totally unreaserched and completely unsubstantiated but my own personal

> opinion;

> 1. I think 'we' (humans) have a genetic predisposition to LBD. I think it

> runs in my dad's side of the family - his uncle is dying of it now.

> 2. There is NO doubt in my mind that general anaesthetic accelerated my

> dad's decline - and other drugs made it worse too.

> Sally (UK)

>

>

>