Guest guest Posted June 23, 2003 Report Share Posted June 23, 2003 Hi all, I've got to put my 2cents worth in on Acupuncture. It can make an amazing, measurable difference in flexability, pain control as well as mood altering, (for the better)! Endorhins are released during each session that left me with a sense of well being that lasted for hours.. Acupuncture works best when used as a process-on a regular basis as opposed for the short term. Unfortunately it is usually not covered by insurance and is expensive. I began receiving acupuncture 5 days following my stroke. With each session my grip strength and mobility improved to the point that a year and a half after the stroke I went skydiving. Following the stroke my RA went into remission for 6 years. Regular acqupuncture, along with T'ai chi contributed to that remission. I'm back in the hands of western medicine now but as soon as I can afford it again I'll be looking for an accupuncturist here in central Texas. Wed wull be my 1st dose of Remicade, wish me luck. Peggy [ ] Digest Number 3398 > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 23, 2003 Report Share Posted June 23, 2003 In a message dated 6/22/2003 10:08:46 PM Central Standard Time, yatahaenpack@... writes: Peggy- Good luck with the Remicade. Please let me/us know how it goes because I would love to compare experiences with another person who just started it. Thanks! Cary > Wed wull be my 1st dose of Remicade, wish me luck. > Peggy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2003 Report Share Posted November 7, 2003 In a message dated 11/7/2003 6:25:55 AM Pacific Standard Time, writes: The specialist in AID doctor has already set me up appointments with an eye specialist (possible cataracts from the predisone) and with a Rhumatalogist(sp) for the mixed connective diseases. They are still working on setting up an appointment with the liver specialist. They are really working hard to make sure everything is taken care of - but yes we do have to educate the newer doctors that do not know about Autoimmune Hepitatis.I don't have a choice in picking my doctors - finances doesn't permit me to do that but I have learned enough to fill them in and how to say NO! and stick with it.Sandy Sandy, I'm glad that the possibility of Prednisone-related cataracts is being examined. Ask about the possibility of hypertension, diabetes, and osteoporosis, too; they often result from Prednisone treatment. As you must deal with doctors who know little about AIH (that's not unsual!), you might want to get a copy of a basic reference book and carry it with you to appointments. One good paperback, written in a simple conversational style, is Dr. Palmer's "Guide to Hepatitis and Liver Disease." It is very popular among those of us with AIH. A similar book, in a more academic style, is by Dr. G. Worman. Each is available through Amazon.com for well under $20. Palmer's book can be bought for less on her website, liverdisease.com. You can find material by both these doctors through a google search. Note that these books were published in 1990, so some material isn't entirely current. Best wishes. Harper Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 7, 2003 Report Share Posted November 7, 2003 > Sandy, I'm glad that the possibility of Prednisone-related cataracts is being > examined. Ask about the possibility of hypertension, diabetes, and > osteoporosis, too; they often result from Prednisone treatment. > > As you must deal with doctors who know little about AIH (that's not unsual!), > you might want to get a copy of a basic reference book and carry it with you > to appointments. One good paperback, written in a simple conversational > style, is Dr. Palmer's " Guide to Hepatitis and Liver Disease. " It is very > popular among those of us with AIH. A similar book, in a more academic style, > is by Dr. G. Worman. Each is available through Amazon.com for well > under $20. Palmer's book can be bought for less on her website, > liverdisease.com. You can find material by both these doctors through a google search. > Note that these books were published in 1990, so some material isn't entirely > current. > > Best wishes. > Harper Thanks Harper I do have osteoporosis of the spine - they did the base line test before they started the predisone Nov 02 and it was at a level of two at that time. I was started on 1500mg a day and was going to start me on Fosamax but I have four ulcers at the base of my esophogus and they are treating it with Nexium. Since I couldn't afford both doctors at the same time back then I had the liver specialist handling me to get the AIH under control and taking the meds that the Rhumatologist prescribled.They were both in the same building and worked together a lot. He said that being on the predisone and the Imuran would control the Mixed Connective Disease also so it was best to take care of the liver first...and I have been doing real well considering where I was at that point. That is one good thing about not having insurance now - and not because I want it that way - is now I have access to all my medical concerns being taken care of. Just means time off from work and waiting but they are doing good about getting the appointments set up even if they are quite a good ways off. If something happens before then there is always the immenient care that I can go to..step away from emergency room but it is there. I am familiar with the signs of diabetes since my sister has type 2. They have checked the blood sugar levels and he was surprised to see that mine is in the good levels. As far as hypertension - I have always had fairly good blood pressure. When she checked it last Monday it was 117/73. It usually runs in that area. I also have a low temperature - when I am doing good it runs around 97.6 and if I am feeling lousy it runs 99.9. When all of this started I ran a temp of 99.9 for nearly a year. The only thing that seemed to do any good was the steriod shots. Looks like they would have had a clue back then. That was around 10 years ago. The kept wanting to label it depression..because I was my fathers caregiver during the last three years he was with us and this was when it became really active. I am just glad that they finally decided what was wrong and we can take care of it the best way possible. Thanks again Sandy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 17, 2004 Report Share Posted December 17, 2004 My son also has sleep issues with casein and is just like your son, awake but happily chatting/singing to himself. on 12/17/04 2:25 PM, at wrote: > He went down fine, but a few hours later was awake > and in our room. This is not normal. He has slept completely > through the night for at least 4 months before last night. He wasn't > crying or whining, though. He was just awake and happily chatting > away. > > Do you think he woke up because of the casein? Quote Link to comment Share on other sites More sharing options...
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