Guest guest Posted September 4, 1999 Report Share Posted September 4, 1999 <<-----Original Message-----From: Morton The question was " If givin the choice, would he have wanted to know he has MDS ? , " Well I have an answer to that would you like to hear it . . . . . The answer would be, No. This is just my stand point, but I have been steroetyped all my life, and ridiculed all my life on my dignoses Of MDS. >> Hiya KC! So nice to finally hear from you! I, as well as all the other group members, really appreciate any time you can find in your teenage schedule to share with us! Thanks in advance! :>) My daughter (MDS) , is 7-weeks old today! My husband and I have already decided NOT to share her MDS with anyone, except my in-law's and her pediatrician. I do not want her to be pre-judged by anyone, and if we ever need to share this information with anyone, we will know when, where and how to, and with whom. We have even decided NOT to share this with 's two older brothers (ages 9 and 11) and her 9-year-old sister. You have now given me something very important to ponder over......whether to tell about her MDS when she is old enough. I know I have plenty of time for this, but it might take me this long to make the right decision! I don't want her to think that she ever has an excuse not to keep up with others because she knows she has MDS. I also don't ever want her to suffer from any type of peer pressure because of this! Not sure if I'm making much sense here, but I have alot of thoughts on this going through my mind right now! Thanks KC, and I truly look forward to learning much more from your experiences! Bree Mommy to (MDS), born July 17th, 1999, 2 sons (ages 11 & 9) and a step-daughter (9). Quote Link to comment Share on other sites More sharing options...
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