Re: Re: Just Diagnosed/Cindy

[Guest guest]

Hi ,

There are a few on here with early onset LBD, one of

them is a lady named, Patti. She comes on here from

time to time to tell us of her experiences and what

she is going through or just to ask questions. You may

be able to identify with her situation. Next time you

see her name, you may want to ask her some questions.

What you describe as seeing with your husband is very

much like my husband in the beginning. It is very

confusing and frustrating, because you start to think

that maybe you are seeing things wrong, but you are

not. Our LOs(Loved Ones) can be lucid for long periods

of time and it is misleading, because it gives you

false hope that maybe everything is going to be ok and

that it's not so bad. Even friends and relatives that

are not around daily may think that everything is ok

with your husband. One of the first things my husband

lost was the ability to dial a phone, but as you say,

he could do other things. He was still driving at the

time. The stooped posture is common. You will start

to notice more changes over time. My husband is very

stubborn most of the time and uncooperative. He gets a

mean side to him also. Somedays he's charming and

other days, it's hell to pay with him.

I am glad that you found this group, because as time

goes on you will need these people more and more to

see you through each day. Take Care

................Jan

--- wrote:

> does anyone else here have someone with early onset

> anything? My husband if 59 now, diagnosed at 58. I'm

> 53 years old . . .

>

> I see some of this stuff - but not a lot of it. Is

> it

> because he is early stage? I don't understand a lot

> of

> this - his symptoms are sometimes really bad and

> scary. Other times he seems fine and I think they

> looked at the wrong PET scan. How can that much of

> his

> brain be affected and him do the things he does.

>

> He can install a water softener but can't answer the

> portable phone????????

>

> He is starting to get the hunch back posture again.

> Is

> that part of this?

>

> He's better is so many ways on Rx - but then there

> are

> other more subtle things I pick up on. Like the last

> couple of days, I detect that sinister mean side

> again. It's his look, the eyes, the body posture,

> the

> changed tone of his voice.

>

> I don't think I belong anywhere half the time. HE

> don't fit any clinical picture most of the time, or

> he

> will fit bits and pieces of several!

>

>

>

>

>

>

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